Arthur
@unrealarthur.bsky.social
ME Patient-ly Waiting for Biomedical Research | Volunteer @crunchme.bsky.social
#GreatestMEdicalScandal @unreal_arthur crunchme.org
#GreatestMEdicalScandal @unreal_arthur crunchme.org
November 6, 2025 at 8:29 AM
Reposted by Arthur
I wonder how long before the subs stop using "chronic fatigue syndrome". It's a lot of wasted line space compared with ME.
#ME #Editors #Journalism
#ME #Editors #Journalism
October 2, 2025 at 11:00 PM
I wonder how long before the subs stop using "chronic fatigue syndrome". It's a lot of wasted line space compared with ME.
#ME #Editors #Journalism
#ME #Editors #Journalism
@actionforme.bsky.social ’s estimate page: www.actionforme.org.uk/supporting-y...?
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September 29, 2025 at 5:34 PM
@actionforme.bsky.social ’s estimate page: www.actionforme.org.uk/supporting-y...?
Reposted by Arthur
'standard operating procedures'. ME demands staff ignore SOPs. The on practical help I am aware of anywhere in the world is in the link pinned to my profile. In England pwME under NHS care are given PN and TPN once it is established they are starving, but only in hospitals. This destroys any chance
August 19, 2025 at 8:35 AM
'standard operating procedures'. ME demands staff ignore SOPs. The on practical help I am aware of anywhere in the world is in the link pinned to my profile. In England pwME under NHS care are given PN and TPN once it is established they are starving, but only in hospitals. This destroys any chance
Reposted by Arthur
In our case Maeve was diagnosed at 17. It took 4 years to obtain. There were no Safeguarding referrals because she didn't miss any schooling. She loved to learn and was a joy to teach.
She was known to our specialist NHS CFS service for 7 years. They had nothing to offer but agreed to keep her
1/2
She was known to our specialist NHS CFS service for 7 years. They had nothing to offer but agreed to keep her
1/2
August 10, 2025 at 4:15 PM
In our case Maeve was diagnosed at 17. It took 4 years to obtain. There were no Safeguarding referrals because she didn't miss any schooling. She loved to learn and was a joy to teach.
She was known to our specialist NHS CFS service for 7 years. They had nothing to offer but agreed to keep her
1/2
She was known to our specialist NHS CFS service for 7 years. They had nothing to offer but agreed to keep her
1/2
Reposted by Arthur
Emily said the online version will be given more space. Huge thanks to her & the Sunday Times (@thetimes.com) for giving this aspect the exposure Devon County Council so successfully covered up. Their right of reply says it all. Maeve was taking them to judicial review. Died trying. #MaeveInquest
August 10, 2025 at 5:17 AM
Emily said the online version will be given more space. Huge thanks to her & the Sunday Times (@thetimes.com) for giving this aspect the exposure Devon County Council so successfully covered up. Their right of reply says it all. Maeve was taking them to judicial review. Died trying. #MaeveInquest