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Winette van der Graaf @winettevandergraaf.bsky.social · 1d

What an amazing group op people in this consortium.
Grateful for everyone’s contribution!
@strong-aya.bsky.social
Annual meeting # Paris

STRONG-AYA @strong-aya.bsky.social · 2d

It’s a wrap! Day 2 of the General Assembly brought inspiring discussions with input from our Patient Advisory Board.

Today's highlights:
• Cancer awareness campaigns that stick
• Update on the federated learning infrastructure and integrated data
• Steps for launching our public information portal

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Reposted by Winette van der Graaf

STRONG-AYA @strong-aya.bsky.social · 2d

📍 We're in Paris for the #STRONGAYA General Assembly meeting, hosted by Institut Gustave Roussy.

Today, we discussed:
• Sustaining project results & reaching stakeholders
• Ethical health data processing for research
• Patient consent models
• Evaluating & refining our Core Outcome Set

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Reposted by Winette van der Graaf

STRONG-AYA @strong-aya.bsky.social · 22d

📖 New STRONG AYA Resource:
The Blueprint for building national and pan-European STRONG AYA ecosystems to improve AYA cancer care is now available on our website.

👉 Read the full blueprint with information on data ecosystem structures, governance, standards & challenges: strongaya.eu/wp-content/u...

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Reposted by Winette van der Graaf

STRONG-AYA @strong-aya.bsky.social · 5d

📄 Publication alert: Recommendations and roadmap to implement minimum standards of specialist adolescent and young adult #AYA cancer care units

Led and co-authored by AYAs under the EU-CAYAS-NET project and featuring STRONG-AYA among EU initiatives.
👉 www.sciencedirect.com/science/arti...

Minimum standards of specialist adolescent and young adult (AYA) cancer care units: recommendations and implementation roadmap

In 2022, according to the Global Cancer Observatory, >115 000 adolescents and young adults (AYAs; aged 15-39 years) were diagnosed with cancer across …

www.sciencedirect.com

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Winette van der Graaf @winettevandergraaf.bsky.social · 7d

Grateful for the collaboration with @youthcancereurope.bsky.social showcasing minimal standards of AYA care units. Much can be found in the Dutch AYAZORGNETWERK.nl but we take the recoomendations into account to further improve the care. Published in @ESMO Open.

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Winette van der Graaf @winettevandergraaf.bsky.social · 11d

Very interesting session with speakers from Japan, India, Slovenia, Jordan, South Africa and South Korea.
Language matters, cultural sensitivity even more, particularly in Quality of Life Research. There’s work to do!

Happy to have introduced the topic showing other global activities @eortc.org

EORTC Quality of Life Group (QLG) @qol.eortc.org · 12d

💡 Insightful panel discussion as part of @eortc.org #QualityofLife Group autumn meeting closing plenary session.
We look forward to broadening our collaborations in global context🤝

#QLGmeeting #GivingVoice2Patients
@winettevandergraaf.bsky.social @miekevhr.bsky.social

www.eortc.org/event/eortc-...

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Reposted by Winette van der Graaf

European Organisation for Research and Treatment of Cancer @eortc.org · Sep 2

🔔 New in @thelancetoncol.bsky.social:
Policy review led by Ian Tannock & Madeline Pe with EORTC & CSO highlights the critical role of patient quality of life data in the evaluation of treatments for people with advanced cancer.
📖Read more: www.eortc.org/blog/2025/09...
#CancerResearch #QualityofLife

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Reposted by Winette van der Graaf

European Organisation for Research and Treatment of Cancer @eortc.org · Jun 25

📅 Get ready to make the most of EORTC’s upcoming events!

Mark your calendars 👇

#CancerResearch #ClinicalTrials #Oncology #EORTCevents #PatientDays #EBCC15 #Stats2026 #MCCRworkshop #ENASymp26

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Reposted by Winette van der Graaf

Common Sense Oncology @csoncol.bsky.social · 23d

📅 Attending ESMO in Berlin? Don't miss this special CSO Symposium taking place on Fri Oct 17, 5:30-7:00 pm CET.
Moderated by @winettevandergraaf.bsky.social, the panel will discuss recent CSO initiatives & activities in Europe & beyond.

tinyurl.com/5yj9vm8b

@qol.eortc.org #CommonSenseOncology

Common Sense Oncology at ESMO. Join us at the Messe Berlin for a special CSO symposium. Panelists, from left to right: Dr. Winette van der Graaf, Dr. Chris Booth, Dr. Madeline Pe, Dr. Dario Trapani, Dr. Rachel Riechelmann, and Dr. Chris Cronin. Topics, from left to right: CSO and Clinical Trials, CSO Momentum, CSO and QOL, CSO and Education, CSO and Global Oncology, and CSO-EORTC Fellowship. Register now to receive location details.

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Reposted by Winette van der Graaf

Common Sense Oncology @csoncol.bsky.social · Sep 3

Applications for the 2026 Common Sense Oncology Cancer Health Services Research Fellowship will close on Sept 18, 2025 @ 4 pm EDT. If you are in the clinical or medical oncology field, this opportunity is for you!

View the posting online: tinyurl.com/37cdc5sy

#CommonSenseOncology #CancerCare

Queen's University. Common Sense Oncology Cancer Health Services Research Fellowship. Apply today to help build a cancer care system focused on outcomes that matter.

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Reposted by Winette van der Graaf

Common Sense Oncology @csoncol.bsky.social · Sep 3

Common Sense Oncology is now on #BlueSky! We are a global network dedicated to advancing innovative patient-centred cancer care & cancer research that meaningfully improves outcomes for patients around the world.

Join us to keep in touch—membership is free!
tinyurl.com/mrjtu9at #CommonSenseOncology

Leaders of Common Sense Oncology standing in front of the pillars of a building.

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Winette van der Graaf @winettevandergraaf.bsky.social · Jun 28

Substandard anticancer medications in clinical care settings and private pharmacies in sub-Saharan Africa: a systematic pharmaceutical investigation - The Lancet Global Health www.thelancet.com/journals/lan...

This is awful.

Substandard anticancer medications in clinical care settings and private pharmacies in sub-Saharan Africa: a systematic pharmaceutical investigation

Oncology practitioners and health systems in sub-Saharan Africa need to be aware of the possible presence of substandard anticancer products when designing care protocols and evaluating patient outcom...

www.thelancet.com

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Reposted by Winette van der Graaf

European Organisation for Research and Treatment of Cancer @eortc.org · Jun 27

📢Excited to announce @benjaminbessemd.bsky.social as EORTC President-Elect, starting in June 2026, following @winettevandergraaf.bsky.social 🙌

Also, we welcome the new chairs of the Scientific Chairs Council: Anne-Marie Dingemans and Jean-Pascal Machiels!🔬🎉

👉 www.eortc.org/blog/2025/06...

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Reposted by Winette van der Graaf

eClinicalMedicine – The Lancet Discovery Science @eclinicalmed.bsky.social · Jun 2

🔍Presenting at #ASCO25 as a #poster and now LIVE on our website

Predictors of withdrawal of anticancer drug indications granted accelerated approval: a retrospective cohort study

Read the whole paper here: www.thelancet.com/journals/ecl...
#TheLancet #Oncology #OncologyResearch #MedSky

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Reposted by Winette van der Graaf

eClinicalMedicine – The Lancet Discovery Science @eclinicalmed.bsky.social · Jun 20

Prevention of sacituzumab govitecan-related neutropenia and diarrhea in patients with HER2-negative advanced breast cancer

Primary prophylactic G-CSF and loperamide led to a clinically relevant reduced incidence and severity of neutropenia and diarrhea

www.thelancet.com/journals/ecl...
#MedSky

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Winette van der Graaf @winettevandergraaf.bsky.social · Jun 21

For my #sarcoma colleagues and researchers and @HartwigMedicalFoundation @ecuppen.bsky.social

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Winette van der Graaf @winettevandergraaf.bsky.social · Jun 21

New paper on implementation of WGS in sarcoma routine medical care in a sarcoma expert center. WGS results of 161 STS were assessed. Actionable targets in 46%, subtype specific added value of WGS. Less in fusion pos STS, more in complex ones.

kwnsfk27.r.eu-west-1.awstrack.me/L0/https:%2F...

ScienceDirect.com | Science, health and medical journals, full text articles and books.

kwnsfk27.r.eu-west-1.awstrack.me

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Winette van der Graaf @winettevandergraaf.bsky.social · Jun 2

Same disappointment. The early days of twitter were so informative! Let’s try harder here!

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Winette van der Graaf @winettevandergraaf.bsky.social · Jun 1

Immensely proud of my colleague and friend Christopher Booth @Queens’s University Kingston who will present the positive results of Challenge #ASCO25 today. Together with Publication in @nejm.org Impressive work. meetings.asco.org/2025-asco-an...

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Winette van der Graaf @winettevandergraaf.bsky.social · May 3

With dosing and duration that are investigated in clinical trials with relevant outcomes for patients reflecting the whole patient population, for regulators and health systems

Winette van der Graaf @winettevandergraaf.bsky.social · May 3

A new paper from a workshop on pragmatic clinical trials in cancer organised by @eortc.org published in Lancet Oncology.
Fabulous group of co-authors who took part in the workshop. Access to drugs that matter to
patients as ultimate goal.
eur05.safelinks.protection.outlook.com?url=https%3A...

eur05.safelinks.protection.outlook.com

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Winette van der Graaf @winettevandergraaf.bsky.social · Apr 20

Easter in #Amsterdam

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Reposted by Winette van der Graaf

EORTC Quality of Life Group (QLG) @qol.eortc.org · Apr 15

🤝As the clinical trial landscape evolves, so must our strategies for measuring patients’ #QualityofLife to ensure their voice is incorporated in the decision-making process

🔎Takeaways from new article in @thelancetoncol.bsky.social: www.eortc.org/blog/2025/04...
#GivingVoice2Patients @ema.europa.eu

European Organisation for Research and Treatment of Cancer @eortc.org · Apr 15

🔎New in @thelancetoncol.bsky.social: Insights from @ema.europa.eu-EORTC workshop underscore the role of #QualityofLife data in cancer treatment evaluation.

It’s not just about survival-it’s also about how patients live.

Read more in our press release:
www.eortc.org/blog/2025/04...
#CancerResearch

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Winette van der Graaf @winettevandergraaf.bsky.social · Apr 15

The paper is out!
#Sarcoma genetic predisposition syndromes. Consequences for diagnosis and treatment. Result of an educational session at @ESMO annual meering 2023.

kwnsfk27.r.eu-west-1.awstrack.me/L0/https:%2F...

ScienceDirect.com | Science, health and medical journals, full text articles and books.

kwnsfk27.r.eu-west-1.awstrack.me

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