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Brain Support Network @brainsupportnet.bsky.social · 23h

I'm very grateful that everything went smoothly with my husband's brain donation. I am awed by the amount of detailed arranging that Brain Support Network took care of so swiftly.
Vera H.
7/9/25

#braindonation

Brain Support Network @brainsupportnet.bsky.social · 23h

This booklet reflects the experiences of thousands of people affected by FTD, along with insights from professionals in the field. By taking proactive steps and building a network of support, you can navigate the challenges of FTD with greater confidence and resilience. From @theaftd.bsky.social

Brain Support Network @brainsupportnet.bsky.social · 23h

Life After an FTD Diagnosis - What You Need to Know

While family and friends are crucial, connecting with others who understand the #FTD journey can be transformative. Grief often evolves as the disease progresses, and having a support system can provide lifelines.

www.theaftd.org/wp-content/u...

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Reposted by Brain Support Network

The Association For Frontotemporal Degeneration @theaftd.bsky.social · 1d

How do you talk to family about the genetic risks of FTD?

On 10/20 at 3 pm, AFTD will host a webinar featuring community members Wanda Smith and Ansel Dow, who will share their experiences. Angela Lunde, from Mayo Clinic, will provide practical tools and strategies. Sign up: https://bit.ly/46TyMUh

Webinar announcement from AFTD, titled 'Talking to Family About Genetic FTD Risk' set for October 20, 2025, at 3:00 p.m. ET. Features speakers Angela Lunde, Ansel Dow, and Wanda Smith. Image displays a family seated around a dining table in a well-lit room, engaged in conversation.

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Brain Support Network @brainsupportnet.bsky.social · 1d

“The hardest lesson I had to learn as a caregiver is that I had to change because the person with the disease cannot.”
– Local Support Group Member

#caregiving

Brain Support Network @brainsupportnet.bsky.social · 1d

10 Healthy Habits for Your Brain

Positive, everyday actions can make a difference in brain health, even lowering the risk of cognitive decline and possibly #Alzheimer's or dementia. Incorporate some or all of these habits into your life to help maintain a healthy brain.

www.alz.org/help-support...

Brain Support Network @brainsupportnet.bsky.social · 1d

In a magical scene towards the end of 2007 film Ratatouille, notoriously harsh food critic Anton Ego is instantly transported back in time, his childhood memories revived by a spoonful of the film’s eponymous dish. No pictures were needed – just the taste and scent of the food.

Brain Support Network @brainsupportnet.bsky.social · 1d

Losing your sense of smell? It could be an early sign of Alzheimer’s or #Parkinson’s disease

theconversation.com/losing-your-...

Losing your sense of smell? It could be an early sign of Alzheimer’s or Parkinson’s disease

This sign of neurodegenerative disease often appears much earlier than other symptoms.

theconversation.com

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Brain Support Network @brainsupportnet.bsky.social · 1d

He shared this interesting study of exercise as a "treatment" after colon resection and chemotherapy for colon cancer. Recurrence of cancer is common. About 900 participants were split into an exercise group and a non-exercise group. More of those in the exercise group lived disease-free.

Brain Support Network @brainsupportnet.bsky.social · 1d

We attended a webinar recently with Dr. Ray Dorsey, co-author of "The Parkinson's Plan." Like so many neurologists, it's his belief that exercise is beneficial to those who have a neurological disease (and for those who don't).
www.nejm.org/do/10.1056/N...

Exercise after Chemotherapy for Colon Cancer | NEJM

Quick Take Video Summary from The New England Journal of Medicine — Exercise after Chemotherapy for Colon Cancer

www.nejm.org

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Brain Support Network @brainsupportnet.bsky.social · 4d

On World Mental Health Day, we honor the personal wellness of caregivers, individuals, and families in the Parkinson's community.

Read through over a decade of collected articles about #Parkinson's, caregiving, and mental health: www.brainsupportnetwork.org?s=mental+hea...

Reposted by Brain Support Network

The Parkinson's Foundation @parkinsondotorg.bsky.social · 5d

This World Mental Health Day, we’re bringing awareness to common non-movement symptoms of Parkinson’s disease. Around 50% of people with PD will experience a form of depression and up to 40% will experience an anxiety disorder.

(1/2)

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Brain Support Network @brainsupportnet.bsky.social · 4d

And how we care for our loved ones with cognitive decline is critical. The New Reality gained access to Canada’s first dementia village in Langley, British Columbia and spoke with the founder of the world’s first dementia village in The Netherlands.

Brain Support Network @brainsupportnet.bsky.social · 4d

Inside Canada's first dementia village

More than 55 million people worldwide are living with #dementia and that’s expected to double every 20 years.

www.youtube.com/watch?v=7A39...

Inside Canada's first dementia village

YouTube video by Global News

www.youtube.com

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Brain Support Network @brainsupportnet.bsky.social · 5d

Intangible personal property (such as life insurance, copyrights, and royalties)
Real estate
Beneficiaries of charitable annuities or trusts

Brain Support Network @brainsupportnet.bsky.social · 5d

Publicly Traded Securities
Donor-advised Fund (DAF)
Ecommerce Affiliate Programs
Beneficiary Designations
In-Kind Donations
Stock in privately held companies
Tangible personal property (such as artwork, jewelry, watercraft, and aircraft)

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Brain Support Network @brainsupportnet.bsky.social · 5d

Donate to Brain Support Network

BSN is a 501(c)(3) non-profit organization and offers many options for making charitable contributions to support our work:

Credit Card
Check
Facebook Fundraisers
Vehicle Donation

Continued in thread...

#Donate today: www.brainsupportnetwork.org/donate/

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Reposted by Brain Support Network

American Brain Foundation @abfbrain.bsky.social · 6d

In this week’s blog post, we look at the relationship between #grief and #dementia, explore what the brain is doing as people grieve, and suggest ways to help yourself heal from emotional trauma ➡️ buff.ly/qaXx6gK #Carer

Dementia and Grief - American Brain Foundation

Discover how dementia brings unique grief for patients and caregivers and learn ways to cope, heal, and find hope.

buff.ly

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Brain Support Network @brainsupportnet.bsky.social · 5d

People at risk, or potentially at risk, of developing FTD from a genetic mutation shared their perspectives on the potential effects the results of predictive biomarker testing would have on their lives in a recent study from the Netherlands.

Brain Support Network @brainsupportnet.bsky.social · 5d

People at Potential Risk of Developing FTD Share Views on Effects of Predictive Biomarker Testing

#FTD

www.theaftd.org/posts/1ftd-i...

People at Potential Risk of Developing FTD Share Views on Effects of Predictive Biomarker Testing | AFTD

Predictive biomarker testing specific to FTD is an active area of ongoing research, but it is important to consider the potential impact.

www.theaftd.org

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Brain Support Network @brainsupportnet.bsky.social · 6d

In 2024, Miami Dade County had the highest prevalence of Alzheimer's disease in the United States. 'Although there are likely many paths to Alzheimer's disease, cyanobacterial exposures increasingly appear to be a risk factor,' adds Dr. Davis."

Brain Support Network @brainsupportnet.bsky.social · 6d

Excerpt: "'Since dolphins are considered environmental sentinels for toxic exposures in marine environments,' Dr. David Davis at the Miller School of Medicine explains, 'there are concerns about human health issues associated with cyanobacterial blooms.'

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Brain Support Network @brainsupportnet.bsky.social · 6d

In fact, their new book "The Parkinson's Plan" refers to the story of a disease similar to progressive supranuclear palsy "discovered" by Dr. John Steele on the island of Guam. That neurological disease on Guam was caused by the ingestion of cynaobacteria.

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Brain Support Network @brainsupportnet.bsky.social · 6d

Interesting article about how dolphins develop a disease like Alzheimer's, perhaps from cynaobacterial blooms. This reminds me of Dr. Okun and Dr. Dorsey's hypothesis that degreasing chemicals such as TCE and pesticides such as paraquat are causing the pandemic of PD.

phys.org/news/2025-10...

Do stranded dolphins have Alzheimer's disease?

One of the most heartbreaking occurrences for nature lovers is to discover a beached marine mammal such as a dolphin or whale. If the animal is still alive, marine biologists assisted by citizen volun...

phys.org

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Reposted by Brain Support Network

The Association For Frontotemporal Degeneration @theaftd.bsky.social · 7d

AFTD offers national support groups designed to meet the unique needs of our community. Whether you’re a young adult care partner, part of the LGBTQIA+ community, or a Spanish-speaking caregiver, these groups provide a safe space for connection and understanding.

Email [email protected] to sign up!

Promotional graphic for AFTD's National Support Group for Young Adult Care Partners between the ages of 17-26.

Promotional graphic for AFTD's National Support Group for Young Adult Care Partners between the ages of 24-40.

Promotional graphic for AFTD's National LGTBQIA+ Caregiver Support Group

Promotional graphic for AFTD's National Support Group for Spanish-Speaking Care Partners

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