Brain Support Network
@brainsupportnet.bsky.social
We have helped over 1,500 families donate a loved ones brain we can help your family too. #atypicalparkinsons #braindonation #lbd #psp #msa #cbd
Thank you for your compassion and guidance through this difficult time... My cousin recommended Brain Support Network to me for help with my mother's brain donation.
Karleen W.
10/31/2025
Karleen W.
10/31/2025
November 26, 2025 at 5:47 PM
Thank you for your compassion and guidance through this difficult time... My cousin recommended Brain Support Network to me for help with my mother's brain donation.
Karleen W.
10/31/2025
Karleen W.
10/31/2025
Reposted by Brain Support Network
This #NationalFamilyCaregiversMonth, members of the FTD community shared what they’ve learned along the way. From finding flexibility to accepting help, these insights remind us that caregiving is not about perfection. It’s about compassion, resilience, & support. Learn more: https://bit.ly/43qrxRZ
November 26, 2025 at 4:03 PM
This #NationalFamilyCaregiversMonth, members of the FTD community shared what they’ve learned along the way. From finding flexibility to accepting help, these insights remind us that caregiving is not about perfection. It’s about compassion, resilience, & support. Learn more: https://bit.ly/43qrxRZ
What We Learn From Every Drop: The Power of Biosamples in FTD
Every biosample holds valuable information that brings us closer to earlier diagnosis and effective treatments for FTD.
ftdregistry.org/press/what-w...
Every biosample holds valuable information that brings us closer to earlier diagnosis and effective treatments for FTD.
ftdregistry.org/press/what-w...
What We Learn From Every Drop: The Power of Biosamples in FTD - FTD Disorders Registry
Every biosample holds valuable information that brings us closer to earlier diagnosis and effective treatments for FTD.
ftdregistry.org
November 26, 2025 at 5:37 PM
What We Learn From Every Drop: The Power of Biosamples in FTD
Every biosample holds valuable information that brings us closer to earlier diagnosis and effective treatments for FTD.
ftdregistry.org/press/what-w...
Every biosample holds valuable information that brings us closer to earlier diagnosis and effective treatments for FTD.
ftdregistry.org/press/what-w...
FTD Research 2025: Paving the Path Towards Effective Treatments
Join AFTD’s Dr. Penny Dacks and Dr. Chiadi Onyike for a discussion on recent advances in #FTD research, a celebration of 2025 accomplishments, and how you can make a difference in 2026.
events.zoom.us/ev/AhL5wA6qo...
Join AFTD’s Dr. Penny Dacks and Dr. Chiadi Onyike for a discussion on recent advances in #FTD research, a celebration of 2025 accomplishments, and how you can make a difference in 2026.
events.zoom.us/ev/AhL5wA6qo...
FTD Research 2025: Paving the Path Towards Effective Treatments
events.zoom.us
November 25, 2025 at 6:10 PM
FTD Research 2025: Paving the Path Towards Effective Treatments
Join AFTD’s Dr. Penny Dacks and Dr. Chiadi Onyike for a discussion on recent advances in #FTD research, a celebration of 2025 accomplishments, and how you can make a difference in 2026.
events.zoom.us/ev/AhL5wA6qo...
Join AFTD’s Dr. Penny Dacks and Dr. Chiadi Onyike for a discussion on recent advances in #FTD research, a celebration of 2025 accomplishments, and how you can make a difference in 2026.
events.zoom.us/ev/AhL5wA6qo...
Reposted by Brain Support Network
Today for Caregivers Month, consider joining a care partner support group! 🤝 Regardless of where you are in your care partner journey, finding your support system is invaluable.
Skeptical? Check out these pieces of advice from support group leaders: Parkinson.org/blog/care/support-group-leaders
Skeptical? Check out these pieces of advice from support group leaders: Parkinson.org/blog/care/support-group-leaders
November 25, 2025 at 5:07 PM
Today for Caregivers Month, consider joining a care partner support group! 🤝 Regardless of where you are in your care partner journey, finding your support system is invaluable.
Skeptical? Check out these pieces of advice from support group leaders: Parkinson.org/blog/care/support-group-leaders
Skeptical? Check out these pieces of advice from support group leaders: Parkinson.org/blog/care/support-group-leaders
Becoming a Care Partner PDF from @apdaparkinsons.bsky.social
What exactly is PD? This supplement offers tips on being a care partner for a person with PD and taking care of yourself.
View and download the PDF: www.apdaparkinson.org/wp-content/u...
What exactly is PD? This supplement offers tips on being a care partner for a person with PD and taking care of yourself.
View and download the PDF: www.apdaparkinson.org/wp-content/u...
November 25, 2025 at 6:05 PM
Becoming a Care Partner PDF from @apdaparkinsons.bsky.social
What exactly is PD? This supplement offers tips on being a care partner for a person with PD and taking care of yourself.
View and download the PDF: www.apdaparkinson.org/wp-content/u...
What exactly is PD? This supplement offers tips on being a care partner for a person with PD and taking care of yourself.
View and download the PDF: www.apdaparkinson.org/wp-content/u...
“The additional support from a palliative care team (doctor, nurse, social worker, and chaplain) will change your life. It is NOT the same as hospice.”
– Local Support Group Member
#caregiving
– Local Support Group Member
#caregiving
November 24, 2025 at 6:47 PM
“The additional support from a palliative care team (doctor, nurse, social worker, and chaplain) will change your life. It is NOT the same as hospice.”
– Local Support Group Member
#caregiving
– Local Support Group Member
#caregiving
LBDA Research: Spotlight on Caregiving
If you or someone you provide care for is participating in a clinical trial, you already know that care partners play a key role in research studies.
Read more: www.lbda.org/research-spo...
#LBD #LewyBodyDementia
If you or someone you provide care for is participating in a clinical trial, you already know that care partners play a key role in research studies.
Read more: www.lbda.org/research-spo...
#LBD #LewyBodyDementia
November 24, 2025 at 6:46 PM
LBDA Research: Spotlight on Caregiving
If you or someone you provide care for is participating in a clinical trial, you already know that care partners play a key role in research studies.
Read more: www.lbda.org/research-spo...
#LBD #LewyBodyDementia
If you or someone you provide care for is participating in a clinical trial, you already know that care partners play a key role in research studies.
Read more: www.lbda.org/research-spo...
#LBD #LewyBodyDementia
MDS-PAS Genetics of Movement Disorders
Start Date: Mon, Dec 1, 2025
REGISTRATION DEADLINE: Thursday, November 27, 2025
education.movementdisorders.org/Detail/1008/...
Start Date: Mon, Dec 1, 2025
REGISTRATION DEADLINE: Thursday, November 27, 2025
education.movementdisorders.org/Detail/1008/...
November 24, 2025 at 6:44 PM
MDS-PAS Genetics of Movement Disorders
Start Date: Mon, Dec 1, 2025
REGISTRATION DEADLINE: Thursday, November 27, 2025
education.movementdisorders.org/Detail/1008/...
Start Date: Mon, Dec 1, 2025
REGISTRATION DEADLINE: Thursday, November 27, 2025
education.movementdisorders.org/Detail/1008/...
Our family was glad to have found Brian Support Network at the last minute. Brain donation was a hard decision at first. However we will appreciate the knowledge gained into this debilitating disease. "Good deeds, good words, good work!"
Paul G.
10/20/2025
#braindonation
Paul G.
10/20/2025
#braindonation
November 24, 2025 at 6:39 PM
Our family was glad to have found Brian Support Network at the last minute. Brain donation was a hard decision at first. However we will appreciate the knowledge gained into this debilitating disease. "Good deeds, good words, good work!"
Paul G.
10/20/2025
#braindonation
Paul G.
10/20/2025
#braindonation
The Difference Between Discomfort & Pain in Parkinson’s Disease
Pain is a common part of life with Parkinson’s disease. It is complex and can take many forms. In this webinar we will review the different types of pain, their causes and various treatment options.
www.youtube.com/watch?v=LJIP...
Pain is a common part of life with Parkinson’s disease. It is complex and can take many forms. In this webinar we will review the different types of pain, their causes and various treatment options.
www.youtube.com/watch?v=LJIP...
The Difference Between Discomfort & Pain in Parkinson’s Disease | Parkinson's Foundation
YouTube video by Parkinson's Foundation
www.youtube.com
November 21, 2025 at 5:59 PM
The Difference Between Discomfort & Pain in Parkinson’s Disease
Pain is a common part of life with Parkinson’s disease. It is complex and can take many forms. In this webinar we will review the different types of pain, their causes and various treatment options.
www.youtube.com/watch?v=LJIP...
Pain is a common part of life with Parkinson’s disease. It is complex and can take many forms. In this webinar we will review the different types of pain, their causes and various treatment options.
www.youtube.com/watch?v=LJIP...
Reposted by Brain Support Network
This Caregivers Month, we acknowledge that not every person living with Parkinson’s has a traditional care partner. Many people with Parkinson’s care for themselves, managing appointments, medications and wellness routines alone, displaying strength, self-advocacy and resilience.
(1/2)
(1/2)
November 21, 2025 at 2:04 PM
This Caregivers Month, we acknowledge that not every person living with Parkinson’s has a traditional care partner. Many people with Parkinson’s care for themselves, managing appointments, medications and wellness routines alone, displaying strength, self-advocacy and resilience.
(1/2)
(1/2)
Brain Support Network FAQs
2.4. What are common motivations for brain donation?
FInd out at: www.brainsupportnetwork.org/brain-donati...
#braindonation #ftd #msa #psp #lbd
2.4. What are common motivations for brain donation?
FInd out at: www.brainsupportnetwork.org/brain-donati...
#braindonation #ftd #msa #psp #lbd
November 20, 2025 at 6:16 PM
Brain Support Network FAQs
2.4. What are common motivations for brain donation?
FInd out at: www.brainsupportnetwork.org/brain-donati...
#braindonation #ftd #msa #psp #lbd
2.4. What are common motivations for brain donation?
FInd out at: www.brainsupportnetwork.org/brain-donati...
#braindonation #ftd #msa #psp #lbd
Reposted by Brain Support Network
Caring for someone with FTD can be deeply meaningful, but it can also be stressful. Taking time to care for yourself helps you show up stronger for those you love. ❤️
Explore ways to manage stress, like joining a support group, journaling, or asking for help. Learn more: https://bit.ly/441AUYl
Explore ways to manage stress, like joining a support group, journaling, or asking for help. Learn more: https://bit.ly/441AUYl
November 20, 2025 at 4:10 PM
Caring for someone with FTD can be deeply meaningful, but it can also be stressful. Taking time to care for yourself helps you show up stronger for those you love. ❤️
Explore ways to manage stress, like joining a support group, journaling, or asking for help. Learn more: https://bit.ly/441AUYl
Explore ways to manage stress, like joining a support group, journaling, or asking for help. Learn more: https://bit.ly/441AUYl
CurePSP - Ask the Expert: Expanding Access to Care
Dec 9, 2025 12:00 PM
Access to timely and quality healthcare can be difficult to find for people with PSP, CBD and MSA.
Host: CurePSP
Register: us02web.zoom.us/webinar/regi...
Dec 9, 2025 12:00 PM
Access to timely and quality healthcare can be difficult to find for people with PSP, CBD and MSA.
Host: CurePSP
Register: us02web.zoom.us/webinar/regi...
November 20, 2025 at 6:05 PM
CurePSP - Ask the Expert: Expanding Access to Care
Dec 9, 2025 12:00 PM
Access to timely and quality healthcare can be difficult to find for people with PSP, CBD and MSA.
Host: CurePSP
Register: us02web.zoom.us/webinar/regi...
Dec 9, 2025 12:00 PM
Access to timely and quality healthcare can be difficult to find for people with PSP, CBD and MSA.
Host: CurePSP
Register: us02web.zoom.us/webinar/regi...
This entire experience with Brain Support Network has been exceedingly positive. Working with you directly on the day of my father's passing was a huge relief.
Angela L.
10/20/2025
Angela L.
10/20/2025
November 19, 2025 at 5:32 PM
This entire experience with Brain Support Network has been exceedingly positive. Working with you directly on the day of my father's passing was a huge relief.
Angela L.
10/20/2025
Angela L.
10/20/2025
Dementia Researcher Podcast – Exploring Psychotherapy for People with Dementia
Hosted by Dr Anna Volkmer
www.dementiaresearcher.nihr.ac.uk/podcast-expl...
#dementia
Hosted by Dr Anna Volkmer
www.dementiaresearcher.nihr.ac.uk/podcast-expl...
#dementia
Podcast – Exploring Psychotherapy for People with Dementia - DEMENTIA RESEARCHER
Dr Anna Volkmer talks with Dr Alys Griffiths, Sophie Jeffery, and Esther Whittlesea Reed about psychotherapy’s role in supporting people living with dementia.
www.dementiaresearcher.nihr.ac.uk
November 19, 2025 at 5:14 PM
Dementia Researcher Podcast – Exploring Psychotherapy for People with Dementia
Hosted by Dr Anna Volkmer
www.dementiaresearcher.nihr.ac.uk/podcast-expl...
#dementia
Hosted by Dr Anna Volkmer
www.dementiaresearcher.nihr.ac.uk/podcast-expl...
#dementia
Rev. Jesse Jackson, Civil Rights Leader, Diagnosed with PSP
The FTD community extends its heartfelt support to Rev. Jesse Jackson and his family following the news today that the civil rights icon has been diagnosed with PSP, a rare form of #FTD.
www.theaftd.org/posts/1ftd-i...
The FTD community extends its heartfelt support to Rev. Jesse Jackson and his family following the news today that the civil rights icon has been diagnosed with PSP, a rare form of #FTD.
www.theaftd.org/posts/1ftd-i...
Rev. Jesse Jackson, Civil Rights Leader, Diagnosed with PSP | AFTD
The FTD community extends its heartfelt support to Rev. Jesse Jackson and his family following his diagnosis of PSP.
www.theaftd.org
November 18, 2025 at 6:27 PM
Rev. Jesse Jackson, Civil Rights Leader, Diagnosed with PSP
The FTD community extends its heartfelt support to Rev. Jesse Jackson and his family following the news today that the civil rights icon has been diagnosed with PSP, a rare form of #FTD.
www.theaftd.org/posts/1ftd-i...
The FTD community extends its heartfelt support to Rev. Jesse Jackson and his family following the news today that the civil rights icon has been diagnosed with PSP, a rare form of #FTD.
www.theaftd.org/posts/1ftd-i...
Reposted by Brain Support Network
Holidays can feel different when FTD is part of the picture. These Thanksgiving tips can help create a calmer, more comfortable day for care partners, guests, & the persons diagnosed.
Looking for more tips? Join an AFTD support group to learn from others who truly understand: https://bit.ly/4i0XvtL
Looking for more tips? Join an AFTD support group to learn from others who truly understand: https://bit.ly/4i0XvtL
November 18, 2025 at 4:10 PM
Holidays can feel different when FTD is part of the picture. These Thanksgiving tips can help create a calmer, more comfortable day for care partners, guests, & the persons diagnosed.
Looking for more tips? Join an AFTD support group to learn from others who truly understand: https://bit.ly/4i0XvtL
Looking for more tips? Join an AFTD support group to learn from others who truly understand: https://bit.ly/4i0XvtL
Don’t miss the Rare Disease Day 2026 Launch Webinar
Thursday, Nov. 20 at 12:00 p.m. ET
Rare Disease Day is more than a single day of awareness. It’s an international movement that connects and inspires people across generations and professions.
rarediseases.zoom.us/webinar/regi...
Thursday, Nov. 20 at 12:00 p.m. ET
Rare Disease Day is more than a single day of awareness. It’s an international movement that connects and inspires people across generations and professions.
rarediseases.zoom.us/webinar/regi...
November 18, 2025 at 5:48 PM
Don’t miss the Rare Disease Day 2026 Launch Webinar
Thursday, Nov. 20 at 12:00 p.m. ET
Rare Disease Day is more than a single day of awareness. It’s an international movement that connects and inspires people across generations and professions.
rarediseases.zoom.us/webinar/regi...
Thursday, Nov. 20 at 12:00 p.m. ET
Rare Disease Day is more than a single day of awareness. It’s an international movement that connects and inspires people across generations and professions.
rarediseases.zoom.us/webinar/regi...
“There are several non-medication approaches to manage neurogenic orthostatic hypotension (nOH) / low blood pressure when standing. Sometimes, you have to do them all at once. It’s a lot…”
– Local Support Group Member
#caregiving
– Local Support Group Member
#caregiving
November 17, 2025 at 5:43 PM
“There are several non-medication approaches to manage neurogenic orthostatic hypotension (nOH) / low blood pressure when standing. Sometimes, you have to do them all at once. It’s a lot…”
– Local Support Group Member
#caregiving
– Local Support Group Member
#caregiving
Reposted by Brain Support Network
A Soho Sessions benefit concert for AFTD, held on November 5, honored Bruce Willis, currently living with an FTD diagnosis. In attendance were music legends, dear friends, and FTD advocates who all share a commitment to advancing progress toward an FTD-free future. Learn more: https://bit.ly/4oySRFV
November 16, 2025 at 6:41 PM
A Soho Sessions benefit concert for AFTD, held on November 5, honored Bruce Willis, currently living with an FTD diagnosis. In attendance were music legends, dear friends, and FTD advocates who all share a commitment to advancing progress toward an FTD-free future. Learn more: https://bit.ly/4oySRFV
Reposted by Brain Support Network
Join us online this Thursday for a webinar designed to help veterans and their care partners prepare for the changes that may come with advancing Parkinson’s. 🖥️
Register for free: Parkinson.org/events/2025/Planning-Ahead-Veterans
Register for free: Parkinson.org/events/2025/Planning-Ahead-Veterans
Navigating Advancing Needs: Planning Ahead with Parkinson’s
This webinar will help veterans, and their care partners prepare for the changes that may come with advancing Parkinson’s.
www.parkinson.org
November 17, 2025 at 2:04 PM
Join us online this Thursday for a webinar designed to help veterans and their care partners prepare for the changes that may come with advancing Parkinson’s. 🖥️
Register for free: Parkinson.org/events/2025/Planning-Ahead-Veterans
Register for free: Parkinson.org/events/2025/Planning-Ahead-Veterans
Teepa Snow's Positive Approach to Care
Ep. 330: How Do I Explain Dementia to Kids? Talking About Brains, Big Feelings, and Real Words
Teepa shares age-appropriate ways to talk about #brain change, model empathy, and turn scary moments into learning opportunities.
www.youtube.com/watch?v=cwB-...
Ep. 330: How Do I Explain Dementia to Kids? Talking About Brains, Big Feelings, and Real Words
Teepa shares age-appropriate ways to talk about #brain change, model empathy, and turn scary moments into learning opportunities.
www.youtube.com/watch?v=cwB-...
Ep. 330: How Do I Explain Dementia to Kids? Talking About Brains, Big Feelings, and Real Words
YouTube video by Teepa Snow's Positive Approach to Care
www.youtube.com
November 17, 2025 at 5:39 PM
Teepa Snow's Positive Approach to Care
Ep. 330: How Do I Explain Dementia to Kids? Talking About Brains, Big Feelings, and Real Words
Teepa shares age-appropriate ways to talk about #brain change, model empathy, and turn scary moments into learning opportunities.
www.youtube.com/watch?v=cwB-...
Ep. 330: How Do I Explain Dementia to Kids? Talking About Brains, Big Feelings, and Real Words
Teepa shares age-appropriate ways to talk about #brain change, model empathy, and turn scary moments into learning opportunities.
www.youtube.com/watch?v=cwB-...
Home Sweet Home: Tailoring Spaces for Every Phase of Lewy Body Dementia
This webinar explores how to transform your home into a supportive space that caters to the unique needs of those living with Lewy body dementia #LBD.
www.youtube.com/watch?v=t6bM...
This webinar explores how to transform your home into a supportive space that caters to the unique needs of those living with Lewy body dementia #LBD.
www.youtube.com/watch?v=t6bM...
Home Sweet Home: Tailoring Spaces for Every Phase of Lewy Body Dementia
YouTube video by LBDAtv
www.youtube.com
November 14, 2025 at 5:57 PM
Home Sweet Home: Tailoring Spaces for Every Phase of Lewy Body Dementia
This webinar explores how to transform your home into a supportive space that caters to the unique needs of those living with Lewy body dementia #LBD.
www.youtube.com/watch?v=t6bM...
This webinar explores how to transform your home into a supportive space that caters to the unique needs of those living with Lewy body dementia #LBD.
www.youtube.com/watch?v=t6bM...