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Brain Support Network @brainsupportnet.bsky.social · 2d

On World Mental Health Day, we honor the personal wellness of caregivers, individuals, and families in the Parkinson's community.

Read through over a decade of collected articles about #Parkinson's, caregiving, and mental health: www.brainsupportnetwork.org?s=mental+hea...

Reposted by Brain Support Network

The Parkinson's Foundation @parkinsondotorg.bsky.social · 2d

This World Mental Health Day, we’re bringing awareness to common non-movement symptoms of Parkinson’s disease. Around 50% of people with PD will experience a form of depression and up to 40% will experience an anxiety disorder.

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Brain Support Network @brainsupportnet.bsky.social · 2d

And how we care for our loved ones with cognitive decline is critical. The New Reality gained access to Canada’s first dementia village in Langley, British Columbia and spoke with the founder of the world’s first dementia village in The Netherlands.

Brain Support Network @brainsupportnet.bsky.social · 2d

Inside Canada's first dementia village

More than 55 million people worldwide are living with #dementia and that’s expected to double every 20 years.

www.youtube.com/watch?v=7A39...

Inside Canada's first dementia village

YouTube video by Global News

www.youtube.com

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Brain Support Network @brainsupportnet.bsky.social · 3d

Intangible personal property (such as life insurance, copyrights, and royalties)
Real estate
Beneficiaries of charitable annuities or trusts

Brain Support Network @brainsupportnet.bsky.social · 3d

Publicly Traded Securities
Donor-advised Fund (DAF)
Ecommerce Affiliate Programs
Beneficiary Designations
In-Kind Donations
Stock in privately held companies
Tangible personal property (such as artwork, jewelry, watercraft, and aircraft)

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Brain Support Network @brainsupportnet.bsky.social · 3d

Donate to Brain Support Network

BSN is a 501(c)(3) non-profit organization and offers many options for making charitable contributions to support our work:

Credit Card
Check
Facebook Fundraisers
Vehicle Donation

Continued in thread...

#Donate today: www.brainsupportnetwork.org/donate/

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Reposted by Brain Support Network

American Brain Foundation @abfbrain.bsky.social · 4d

In this week’s blog post, we look at the relationship between #grief and #dementia, explore what the brain is doing as people grieve, and suggest ways to help yourself heal from emotional trauma ➡️ buff.ly/qaXx6gK #Carer

Dementia and Grief - American Brain Foundation

Discover how dementia brings unique grief for patients and caregivers and learn ways to cope, heal, and find hope.

buff.ly

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Brain Support Network @brainsupportnet.bsky.social · 3d

People at risk, or potentially at risk, of developing FTD from a genetic mutation shared their perspectives on the potential effects the results of predictive biomarker testing would have on their lives in a recent study from the Netherlands.

Brain Support Network @brainsupportnet.bsky.social · 3d

People at Potential Risk of Developing FTD Share Views on Effects of Predictive Biomarker Testing

#FTD

www.theaftd.org/posts/1ftd-i...

People at Potential Risk of Developing FTD Share Views on Effects of Predictive Biomarker Testing | AFTD

Predictive biomarker testing specific to FTD is an active area of ongoing research, but it is important to consider the potential impact.

www.theaftd.org

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Brain Support Network @brainsupportnet.bsky.social · 4d

In 2024, Miami Dade County had the highest prevalence of Alzheimer's disease in the United States. 'Although there are likely many paths to Alzheimer's disease, cyanobacterial exposures increasingly appear to be a risk factor,' adds Dr. Davis."

Brain Support Network @brainsupportnet.bsky.social · 4d

Excerpt: "'Since dolphins are considered environmental sentinels for toxic exposures in marine environments,' Dr. David Davis at the Miller School of Medicine explains, 'there are concerns about human health issues associated with cyanobacterial blooms.'

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Brain Support Network @brainsupportnet.bsky.social · 4d

In fact, their new book "The Parkinson's Plan" refers to the story of a disease similar to progressive supranuclear palsy "discovered" by Dr. John Steele on the island of Guam. That neurological disease on Guam was caused by the ingestion of cynaobacteria.

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Brain Support Network @brainsupportnet.bsky.social · 4d

Interesting article about how dolphins develop a disease like Alzheimer's, perhaps from cynaobacterial blooms. This reminds me of Dr. Okun and Dr. Dorsey's hypothesis that degreasing chemicals such as TCE and pesticides such as paraquat are causing the pandemic of PD.

phys.org/news/2025-10...

Do stranded dolphins have Alzheimer's disease?

One of the most heartbreaking occurrences for nature lovers is to discover a beached marine mammal such as a dolphin or whale. If the animal is still alive, marine biologists assisted by citizen volun...

phys.org

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Reposted by Brain Support Network

The Association For Frontotemporal Degeneration @theaftd.bsky.social · 4d

AFTD offers national support groups designed to meet the unique needs of our community. Whether you’re a young adult care partner, part of the LGBTQIA+ community, or a Spanish-speaking caregiver, these groups provide a safe space for connection and understanding.

Email [email protected] to sign up!

Promotional graphic for AFTD's National Support Group for Young Adult Care Partners between the ages of 17-26.

Promotional graphic for AFTD's National Support Group for Young Adult Care Partners between the ages of 24-40.

Promotional graphic for AFTD's National LGTBQIA+ Caregiver Support Group

Promotional graphic for AFTD's National Support Group for Spanish-Speaking Care Partners

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Brain Support Network @brainsupportnet.bsky.social · 5d

Please join Mission MSA for their next essential webinar, Autonomic Dysfunction in Multiple System Atrophy, where they’ll take a deep dive into the complex autonomic symptoms present in MSA and discuss practical, evidence-based management strategies.

Brain Support Network @brainsupportnet.bsky.social · 5d

Mission MSA: Addressing Autonomic Dysfunction in MSA Webinar – Tuesday, October 21, 2025

Date: Tuesday, October 21, 2025
Time: 12:00pm ET

#multiplesystematrophy

us06web.zoom.us/webinar/regi...

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Brain Support Network @brainsupportnet.bsky.social · 6d

“Asking for help is an act of self-reliance!”
– Local Support Group Member

#caregiving

Brain Support Network @brainsupportnet.bsky.social · 6d

Expert Tips on How to Get Good Sleep with Parkinson's

Sleep recharges our brains and bodies, while boosting mental wellness. People living with #Parkinson’s disease (PD) need even more time to reset and restore.

www.parkinson.org/blog/researc...

Expert Tips on How to Get Good Sleep with Parkinson's

Discover how Parkinson’s symptoms, medications or other health problems can impact your sleep, and what you can do to maximize slumber.

www.parkinson.org

Brain Support Network @brainsupportnet.bsky.social · 9d

World Multiple System Atrophy Day - An opportunity for the global community to learn more about MSA, share stories, and make donations in support of those affected and to advance research for a cure.

Learn more about #MSA and brain donation: www.brainsupportnetwork.org/education/mu...

#parkinsons

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Brain Support Network @brainsupportnet.bsky.social · 9d

This was a hybrid event: in-person at Stanford and online. The speakers included an movement disorder specialist, autonomic disorder specialist, neuro-palliative care physician, physical therapist, and speech therapist.

Brain Support Network @brainsupportnet.bsky.social · 9d

Brain Support Network and Stanford's Movement Disorders Center co-hosted a Multiple System Atrophy Symposium on Saturday, May 4, 2024.

See our playlist of videos from the symposium:
www.youtube.com/playlist?lis...

#MSA #multiplesystematrophy

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Brain Support Network @brainsupportnet.bsky.social · 10d

We also keep an email list of caregivers and patients, organized by disorder, sending emails about research programs, relevant findings, upcoming events, and articles on caregiving. We never share our email list, even with affiliated groups.

Brain Support Network @brainsupportnet.bsky.social · 10d

We help busy families identify the best resources so that they can have meaningful discussions with medical providers and serve as effective advocates.

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Brain Support Network @brainsupportnet.bsky.social · 10d

BSN Mission, Part 2:
Family Education
(scope: Worldwide)

BSN tracks research, videos, and published material into the four Atypical Parkinsonism disorders (LBD, PSP, MSA, CBD), sifting through medical journals and other sources.
Read more: www.brainsupportnetwork.org/about-bsn/mission/

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