Lightnews — Scholar-powered news

Brain Support Network @brainsupportnet.bsky.social · 10h

In 2024, Miami Dade County had the highest prevalence of Alzheimer's disease in the United States. 'Although there are likely many paths to Alzheimer's disease, cyanobacterial exposures increasingly appear to be a risk factor,' adds Dr. Davis."

Brain Support Network @brainsupportnet.bsky.social · 10h

Excerpt: "'Since dolphins are considered environmental sentinels for toxic exposures in marine environments,' Dr. David Davis at the Miller School of Medicine explains, 'there are concerns about human health issues associated with cyanobacterial blooms.'

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Brain Support Network @brainsupportnet.bsky.social · 10h

In fact, their new book "The Parkinson's Plan" refers to the story of a disease similar to progressive supranuclear palsy "discovered" by Dr. John Steele on the island of Guam. That neurological disease on Guam was caused by the ingestion of cynaobacteria.

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Brain Support Network @brainsupportnet.bsky.social · 10h

Interesting article about how dolphins develop a disease like Alzheimer's, perhaps from cynaobacterial blooms. This reminds me of Dr. Okun and Dr. Dorsey's hypothesis that degreasing chemicals such as TCE and pesticides such as paraquat are causing the pandemic of PD.

phys.org/news/2025-10...

Do stranded dolphins have Alzheimer's disease?

One of the most heartbreaking occurrences for nature lovers is to discover a beached marine mammal such as a dolphin or whale. If the animal is still alive, marine biologists assisted by citizen volun...

phys.org

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Reposted by Brain Support Network

The Association For Frontotemporal Degeneration @theaftd.bsky.social · 11h

AFTD offers national support groups designed to meet the unique needs of our community. Whether you’re a young adult care partner, part of the LGBTQIA+ community, or a Spanish-speaking caregiver, these groups provide a safe space for connection and understanding.

Email [email protected] to sign up!

Promotional graphic for AFTD's National Support Group for Young Adult Care Partners between the ages of 17-26.

Promotional graphic for AFTD's National Support Group for Young Adult Care Partners between the ages of 24-40.

Promotional graphic for AFTD's National LGTBQIA+ Caregiver Support Group

Promotional graphic for AFTD's National Support Group for Spanish-Speaking Care Partners

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Brain Support Network @brainsupportnet.bsky.social · 1d

Please join Mission MSA for their next essential webinar, Autonomic Dysfunction in Multiple System Atrophy, where they’ll take a deep dive into the complex autonomic symptoms present in MSA and discuss practical, evidence-based management strategies.

Brain Support Network @brainsupportnet.bsky.social · 1d

Mission MSA: Addressing Autonomic Dysfunction in MSA Webinar – Tuesday, October 21, 2025

Date: Tuesday, October 21, 2025
Time: 12:00pm ET

#multiplesystematrophy

us06web.zoom.us/webinar/regi...

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Brain Support Network @brainsupportnet.bsky.social · 2d

“Asking for help is an act of self-reliance!”
– Local Support Group Member

#caregiving

Brain Support Network @brainsupportnet.bsky.social · 2d

Expert Tips on How to Get Good Sleep with Parkinson's

Sleep recharges our brains and bodies, while boosting mental wellness. People living with #Parkinson’s disease (PD) need even more time to reset and restore.

www.parkinson.org/blog/researc...

Expert Tips on How to Get Good Sleep with Parkinson's

Discover how Parkinson’s symptoms, medications or other health problems can impact your sleep, and what you can do to maximize slumber.

www.parkinson.org

Brain Support Network @brainsupportnet.bsky.social · 5d

World Multiple System Atrophy Day - An opportunity for the global community to learn more about MSA, share stories, and make donations in support of those affected and to advance research for a cure.

Learn more about #MSA and brain donation: www.brainsupportnetwork.org/education/mu...

#parkinsons

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Brain Support Network @brainsupportnet.bsky.social · 5d

This was a hybrid event: in-person at Stanford and online. The speakers included an movement disorder specialist, autonomic disorder specialist, neuro-palliative care physician, physical therapist, and speech therapist.

Brain Support Network @brainsupportnet.bsky.social · 5d

Brain Support Network and Stanford's Movement Disorders Center co-hosted a Multiple System Atrophy Symposium on Saturday, May 4, 2024.

See our playlist of videos from the symposium:
www.youtube.com/playlist?lis...

#MSA #multiplesystematrophy

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Brain Support Network @brainsupportnet.bsky.social · 6d

We also keep an email list of caregivers and patients, organized by disorder, sending emails about research programs, relevant findings, upcoming events, and articles on caregiving. We never share our email list, even with affiliated groups.

Brain Support Network @brainsupportnet.bsky.social · 6d

We help busy families identify the best resources so that they can have meaningful discussions with medical providers and serve as effective advocates.

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Brain Support Network @brainsupportnet.bsky.social · 6d

BSN Mission, Part 2:
Family Education
(scope: Worldwide)

BSN tracks research, videos, and published material into the four Atypical Parkinsonism disorders (LBD, PSP, MSA, CBD), sifting through medical journals and other sources.
Read more: www.brainsupportnetwork.org/about-bsn/mission/

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Reposted by Brain Support Network

The Parkinson's Foundation @parkinsondotorg.bsky.social · 6d

This LGBTQ+ History Month, we celebrate the strength and resilience of the LGBTQ+ Parkinson’s community. 🩵 Know that the Parkinson’s Foundation is here for you with inclusive support, resources, and community: Parkinson.org/LGBTQ

LGBTQ+ & Parkinson’s

Those who identify with both the LGBTQ+ & Parkinson's community face unique challenges when it comes to healthcare.

Parkinson.org

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Brain Support Network @brainsupportnet.bsky.social · 7d

October is Lewy Body Dementia Awareness Month

Let's raise awareness about LBD, educate the public about the symptoms, diagnosis, and treatment, and also support individuals and families living with LBD.

Learn more about LBD and brain donation: www.brainsupportnetwork.org/education/le...

Reposted by Brain Support Network

Michael Okun @michaelokun.bsky.social · 7d

Do you know how genes and the environment shape Parkinson’s disease? Does the time (or the temporal sequence) of events matter? Genetic risk factors unfold over time, interact w/ environmental exposures and may contribute to the many ways Parkinson’s disease shows itself. @thelancet.com

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Brain Support Network @brainsupportnet.bsky.social · 8d

We seek answers and understanding about mom's disease, but my greatest hope now is that her donation will provide a meaningful contribution to the collective fight for a cure to frontotemporal dementia. That does bring some comfort.
Carrie F.
7/23/25

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Brain Support Network @brainsupportnet.bsky.social · 8d

Elder Care Too Costly? Move to Mexico

With nursing home care in the U.S. costing an average of $111,000 per year, families look south to newer facilities at less than half the price

www.nextavenue.org/a-novel-idea...

Reposted by Brain Support Network

Michael Okun @michaelokun.bsky.social · 8d

KevinMD just dropped a post on expanding the Parkinson’s universe of care for persons w/ Parkinson’s, caregivers, clinicians and communities. The post is focused on an excerpt from the just published book, the Parkinson’s Plan www.pdplan.org

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Brain Support Network @brainsupportnet.bsky.social · 9d

“I once heard the expression, ‘Stress makes us stupid.’ Caregiving stress definitely makes me stupid. My brain loses the ability to focus when concentrating on stress.”
– Local Support Group Member

#caregiving

Brain Support Network @brainsupportnet.bsky.social · 9d

Women With Alzheimer's May Have an Omega Fatty Acid Deficit

— Findings underscore need for sex-specific research in #Alzheimer's disease

www.medpagetoday.com/neurology/al...

Women With Alzheimer's May Have an Omega Fatty Acid Deficit

Findings underscore need for sex-specific research in Alzheimer's disease

www.medpagetoday.com

Brain Support Network @brainsupportnet.bsky.social · 9d

A feeling of grief and possibly depression is likely to accompany an initial determination that lifetime caregiving is required."

Brain Support Network @brainsupportnet.bsky.social · 9d

Excerpts: "To help to cope with any emotional challenge, including caregiving, consider the feelings you and others are experiencing. Then ask yourself, is this feeling appropriate, and is it helpful?

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