Lightnews — Scholar-powered news

CreakyJoints® @creakyjoints.bsky.social · 10h

💙 On #WorldArthritisDay we honor the 350 million people worldwide living with arthritis and RMDs.
Thank you for your resilience, advocacy, and hope in action every day.
Together, we push for awareness, equity, and better care. What keeps you going?

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CreakyJoints® @creakyjoints.bsky.social · 1d

On #WorldMentalHealthDay we honor everyone facing the mental toll of chronic illness — the fatigue, isolation, and uncertainty. You are seen, valued, and not alone. 💚 #YouAreNotAlone #ChronicIllness

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Reposted by CreakyJoints®

A Chronic Voice @achronicvoice.com · 6d

“Relish the #chores you actually like - Believe it or not, some #HouseholdChores may actually help your #arthritis feel better. “I do dishes a lot as the hot water feels wonderful on my hands,” says Debra": buff.ly/SkHaFrX

from @creakyjoints.bsky.social
#ChronicIllness #ChronicPain

Doing Chores with Arthritis Is a Real Pain, But These 12 Tips Can Help a Little

This advice from an occupational therapist and fellow patients can help make chores less painful for people with arthritis.

buff.ly

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CreakyJoints® @creakyjoints.bsky.social · 3d

📅 Mark your calendars: October 23 is #GCAAwarenessDay. Giant Cell Arteritis can cause sudden vision loss — but awareness saves sight. 👁️💡
#GiantCellArteritis #StopVisionLoss #PatientAdvocacy

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CreakyJoints® @creakyjoints.bsky.social · 3d

You can’t see my pain — but I still feel it every day. 💔 Why living with an invisible illness is exhausting & misunderstood →
creakyjoints.org/living-with-...
@chroniceileen.bsky.social

My Mini Rant About the Frustrations of a Living with Invisible Disability: A Rheumatoid Arthritis Patient Speaks Out

Learn more about a rheumatoid arthritis patient’s take on why it’s challenging to live with an invisible disability that is misunderstood by others.

creakyjoints.org

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CreakyJoints® @creakyjoints.bsky.social · 4d

New Health Advocates: Public Health in a Shutdown.

What happens to the CDC, FDA & NIH when Washington stops?
Steven Newmark breaks down the impact on vaccines, food safety & healthcare access.

🎧 ghlf.org/the-health-a...

#TheHealthAdvocates #PublicHealth #GovernmentShutdown

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CreakyJoints® @creakyjoints.bsky.social · 5d

Living with PsA? Your voice matters.
Take our 15–20 min survey & help improve care for others like you.
Enter a raffle to win 1 of 5 $300 e-gift cards.
Click here for more info:
www.research.net/r/TNYM279
#PsA #PsoriaticArthritis #PatientVoices #CreakyJoints #AutoimmuneLife

CreakyJoints® @creakyjoints.bsky.social · 6d

Pain isn’t one-size-fits-all. Understanding what type you live with — and how to talk about it — can change how you’re treated.
Read here:
creakyjoints.org/about-arthri...
#UnderstandingPain #ChronicPain #SelfAdvocacy

Understanding Pain

Learn about pain, its various types, and how to communicate your pain effectively to your health care provider.

creakyjoints.org

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CreakyJoints® @creakyjoints.bsky.social · 10d

A Guide to Setting Boundaries if You’re a People-Pleaser

Saying no isn’t always easy — but with practice, it can become a habit.
👉 creakyjoints.org/living-with-...

#Boundaries #SelfAdvocacy #ChronicIllness

A Guide to Setting Boundaries if You’re a People-Pleaser

If you have trouble setting boundaries, here’s what you need to know to shift your mindset — and keep yourself healthy.

creakyjoints.org

CreakyJoints® @creakyjoints.bsky.social · 11d

Walking can help reduce stiffness, boost mood & maintain independence. Start slow, wear good shoes & listen to your body.
Read more ⬇️
creakyjoints.org/diet-exercis...

#ChronicPain #Arthritis #PainAwareness

Walking with Arthritis: Benefits, Tips, How to Prevent Pain

Learn more about walking as exercise for arthritis, including the health benefits of walking and how to avoid injuries and pain.

creakyjoints.org

CreakyJoints® @creakyjoints.bsky.social · 13d

“Rate your pain 0–10.”
But what if you have three different kinds of pain at once?
📊 The pain scale is broken →

creakyjoints.org/living-with-...

#PainAwarenessMonth #ChronicPain #PatientAdvocate

Why Pain Scales Don’t Work When You Have Multiple Types of Chronic Pain: An Arthritis Patient’s Perspective

Learn more about a patient’s perspective on the problem with pain scales when you have multiple types of arthritis and chronic pain.

creakyjoints.org

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Reposted by CreakyJoints®

Shelley @shelley55.bsky.social · 14d

If you have psoriatic arthritis, please complete this survey from @creakyjoints.bsky.social #psa #psoriaticarthritis

CreakyJoints® @creakyjoints.bsky.social · 16d

Living with PsA? Your voice matters.
Take our 15–20 min survey & help improve care for others like you.
Enter a raffle to win 1 of 5 $300 e-gift cards.
Click here for more info:
www.research.net/r/TNYM279
#PsA #PsoriaticArthritis #PatientVoices #CreakyJoints #AutoimmuneLife

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CreakyJoints® @creakyjoints.bsky.social · 13d

High Awareness, Low Access.

Dr. Robert Popovian explains what GHLF’s survey reveals about COVID-19 antiviral access — and the barriers keeping high-risk patients from lifesaving treatments.

🎧 Listen: ghlf.org/healthcarema...

#HealthcareMatters #COVID19 #HealthEquity

Healthcare Matters Podcast

A podcast dedicated to bringing you a simplified rundown of not-so-simple matters in healthcare economic and policy issues.

ghlf.org

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CreakyJoints® @creakyjoints.bsky.social · 16d

🚨 New episode of The Health Advocates

ACIP’s vaccine votes and Trump’s Tylenol claims made for another turbulent week in public health. Steven Newmark explains what happened, what the science shows, and why advocacy matters.

🎧 Listen: ghlf.org/the-health-a...

#TheHealthAdvocates #PublicHealth

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CreakyJoints® @creakyjoints.bsky.social · 16d

Living with PsA? Your voice matters.
Take our 15–20 min survey & help improve care for others like you.
Enter a raffle to win 1 of 5 $300 e-gift cards.
Click here for more info:
www.research.net/r/TNYM279
#PsA #PsoriaticArthritis #PatientVoices #CreakyJoints #AutoimmuneLife

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CreakyJoints® @creakyjoints.bsky.social · 19d

Working from home isn’t as comfy as it sounds when you have arthritis.

From flares to fatigue, here’s how to make remote work actually work for you 💻🪑

🔗 creakyjoints.org/living-with-...

#PainAwarenessMonth #ChronicPain #Arthritis

Working at Home with Arthritis: 5 Important Tips for Less Pain

Learn how to adjust your home work station if you have arthritis to avoid joint and muscle pain and be more comfortable while you work from home.

creakyjoints.org

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CreakyJoints® @creakyjoints.bsky.social · 23d

You are NOT FAKING IT if people can’t see your pain.
You are NOT FAKING IT if test results say “normal.”
You are NOT FAKING IT if you look “fine” to everyone else.
You are NOT FAKING IT if others don’t understand.
You are NOT FAKING IT if you need to do less.

You are NOT FAKING IT.

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CreakyJoints® @creakyjoints.bsky.social · 24d

Widespread pain goes beyond joints.
For people with psoriatic arthritis, moderate or high disease activity is linked to worse widespread pain — highlighting the need for better pain and disease management.

Read more: creakyjoints.org/about-arthri...

#PainAwarenessMonth #PsA #ChronicPain

Widespread Pain (Beyond Just Joint Pain) Is Common in Psoriatic Arthritis

Learn more about a study that found psoriatic arthritis patients have a lot of widespread pain unrelated to joint pain, and how this could affect treatment.

creakyjoints.org

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CreakyJoints® @creakyjoints.bsky.social · 24d

💉 This fall’s Covid-19 vaccine rollout is more confusing than ever.

In a new The Health Advocates, Steven breaks down who qualifies, what “off-label” means, and how coverage is likely to work.

🎧 Listen: ghlf.org/the-health-a...

#TheHealthAdvocates #Vaccines #PublicHealth

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CreakyJoints® @creakyjoints.bsky.social · 26d

Florida’s proposal to eliminate school vaccine requirements risks bringing back diseases like measles & whooping cough. Protecting kids protects everyone — especially the immunocompromised.
📄 Read our full letter to the Florida Department of Health here:
ghlf.org/wp-content/u...
#VaccinesWork

ghlf.org

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CreakyJoints® @creakyjoints.bsky.social · 27d

#HispanicHeritageMonth begins today! 🎉

We proudly celebrate the culture, history & contributions of the Hispanic/Latino community — and reaffirm our commitment to health equity.

Explore bilingual resources designed to uplift & empower our community: ghlf.org/national-his...

National Hispanic Heritage Month - English

En Español

ghlf.org

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CreakyJoints® @creakyjoints.bsky.social · 28d

Living with Polymyalgia Rheumatica (PMR)?
Don’t miss our webinar on September 18 at 6:30 PM ET
Hear from experts Dr. Leonard Calabrese & Dr. Jeffrey Curtis, moderated by Shilpa Venkatachalam, PhD, MPH.
👉 Register here:
www.research.net/r/RKW2FHZ

PMR Webinar Registration Form

Take this survey powered by surveymonkey.com. Create your own surveys for free.

www.research.net

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CreakyJoints® @creakyjoints.bsky.social · Sep 11

You are NOT A BURDEN if your body needs more rest.
You are NOT A BURDEN if you cancel plans from a flare.
You are NOT A BURDEN if you need accommodations.
You are NOT A BURDEN if daily tasks take you twice the energy.
You are NOT A BURDEN if you say “I can’t” and need support.

You are NOT A BURDEN.

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CreakyJoints® @creakyjoints.bsky.social · Sep 9

We’re asking our community what living with PsA is really like. Do you have a story to share?

Take our 15–20 min survey and you may be eligible to enter a raffle to win a $300 e-gift card (5 winners)
Take the survey here: www.research.net/r/9YGSGJ2

#PsA #PsoriaticArthritis

Tell us about your Experience with PsA

Take this survey powered by surveymonkey.com. Create your own surveys for free.

www.research.net

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CreakyJoints® @creakyjoints.bsky.social · Sep 9

Join CreakyJoints for the first-ever Giant Cell Arteritis (GCA) Awareness Day on October 23, 2025.
We’re looking for people in the U.S. living with GCA to record a short video.
✔️ You will be compensated for your time.
Click below to sign up.
www.research.net/r/GCASHARE

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