A Chronic Voice
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achronicvoice.com
A Chronic Voice
@achronicvoice.com
2.5K followers 2.1K following 7.6K posts
I share #ChronicIllness, #ChronicPain, #disability & #MentalHealth info from VARIOUS #perspectives. #Lupus #Sjogrens #AntiphospholipidSyndrome #epilepsy Open to constructive chat, will block overly opinionated people.

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achronicvoice.com
A Chronic Voice @achronicvoice.com · 3d
Don't forget to check out the revamped #website, and visit our #AboutPage for more info and resources. My aim is and always will be to raise #awareness about lifelong #illnesses from VARIOUS #perspectives. Context matters. 👉 buff.ly/TKHRkRo

#ChronicIllness #disability #ChronicPain #MedSky #spoonie
About
Learn more about “A Chronic Voice”, a blog that aims to raise awareness about chronic illness and disabilities through various perspectives.
achronicvoice.com
achronicvoice.com
" #hobbies r not a consolation prize. They’re resistance. They’re reclamation. They’re our way of saying, “I still get to hv #fun. I still get to make beautiful, silly, weird, or wildly unnecessary things, just because I want to”": buff.ly/iCaZbpO

by @unremarkableme.bsky.social
#spoonie #disability
Crafting Joy: How Chronically Ill Hobbies Keep Us Going (and Occasionally Covered in Glitter)
By Antonia at Unremarkable Me(Currently making clay earrings with one hand, balancing a heat pack on my neck, and seriously considering whether my glue gun is judging me.)Let’s be honest: if hobbies…
buff.ly
December 24, 2025 at 2:30 PM
achronicvoice.com
"It can be hard, then, to ever know: How much does our desire to be #alone come from a genuine desire to be with ourselves and how much is about avoiding the #unknown?": buff.ly/V41U6X5

via @behscientist.bsky.social
#unpredictable #PersonalGrowth #solitude
The Art of Balancing Solitude and Connection - by Elizabeth Weingarten - Behavioral Scientist
Without enough alone time, I feel disconnected from myself. But too much alone time makes me feel like I’m losing part of myself, too—the part of me that comes alive when I’m with other people.
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December 24, 2025 at 12:30 PM
achronicvoice.com
“Get a #ShowerChair. I resisted this for a LONG time bcos I felt like it was ‘lazy’. I wish I had been kinder to myself. #Fainting in the shower is dangerous & even if you don’t #faint - #showering takes an absurd amt of energy.”: buff.ly/Uyn2mVh

by @broadwaybabyto.bsky.social
#POTS
Learning to Live Horizontally - Your Guide to All Things POTS
When you have POTS - being upright is a challenge. We deal with fatigue, tachycardia, dizziness, fainting and more. Adapting to living life horizontally can make symptoms more manageable.
buff.ly
December 24, 2025 at 10:30 AM
achronicvoice.com
"For #spoonies, #NewYear messaging rarely lands as neutral #motivation. It often feels like pressure disguised as possibility. And most #ChronicIllness new year tips still assume that more effort, more discipline, or tighter #routines are the answer.": buff.ly/Zc6qomo

by @thethrivingspoonie.com
Resting Through the New Year: A Spoonie’s Alternative to Resolutions
A gentler alternative to New Year’s resolutions with chronic illness, centered on rest, pacing, and sustainable routines.
buff.ly
December 24, 2025 at 9:30 AM
achronicvoice.com
"I get my #resiliency from all the #adversity & #challenges..From having my home on fire at the age of 12 to coming to the USA at the age of 14 without speaking a word of English to #surviving #cancer twice by the age 23 and many other obstacles.": buff.ly/HVpbD71
boldjourney.com
December 24, 2025 at 8:13 AM
achronicvoice.com
"I wish #employers could look past the #disability and base #hiring decisions on someone’s experience and talent because #disabled people get college degrees and can be just as qualified, if not more than, non-disabled people.": buff.ly/YGoHUbt

by myrockindisabledlife
#spoonie
Myths People Often Believe When Hiring Disabled People
Disabled people often have a harder time finding employment than non-disabled people because we face discrimination in job interviews that you would not experience without having a disability. The …
buff.ly
December 24, 2025 at 7:30 AM
achronicvoice.com
“To get better this year, means getting better today.” - @achronicvoice.com — The #LittleThings & #BabySteps do matter. #TakeCare of yourself in small ways today too 💕 For more #InspirationalQuotes for people w #ChronicIllness, visit: buff.ly/fp7dYT0
“To get better this year, means getting better today.” - Sheryl Chan, A Chronic Voice
December 24, 2025 at 4:30 AM
achronicvoice.com
“First, take a deep breath. #Christmas is one day. One. 24 hours. 1440 minutes. Let’s also enjoy the other 364 days in the year. #Relax.”: buff.ly/pQYR3gi

by yadadarcyyada
#SelfCare #MentalHealth #ChronicPain
12 Unusual Ways To Relieve Your Holiday Stress
The holiday season stresses out most everyone, but for those who are ill, the holidays can be a nightmare (before and during Christmas); it’s stressful for even those who don’t celebrat…
buff.ly
December 24, 2025 at 4:00 AM
achronicvoice.com
"Use a #SymptomTracker or #health diary - Document your symptoms in a structured way as #doctors need to see the data. It can #validate your experience and reveal patterns that even seasoned doctors might miss.": buff.ly/cU47hrS

#ChronicPain
via edsshare
“Who Says Disability Isn’t a Full-Time Job?”: The Frustration Fatigue Reality of Uncoordinated Care
If you live with hypermobile Ehlers-Danlos syndrome (hEDS), you likely already know the truth: managing your health is a full-time job — one with no paid time off, no clear job description, and no…
buff.ly
December 24, 2025 at 1:30 AM
achronicvoice.com
"A nice, hot shower in the evening to wash the day away..A little treat which I now #appreciate & enjoy daily, after I wasn’t able to #shower when hospitalised for 2 months. & in a..#humid climate like #Singapore, that feels really gross.": buff.ly/tirVXSU

#ChronicIllness
My Responses to “A Day in the Life” Linkup (What Does 'Normal' Even Mean?)
My response to the “Day in the Life” linkup, which aims to show what a normal day looks like for people with a chronic illness and disability.
buff.ly
December 23, 2025 at 9:30 PM
achronicvoice.com
"The short distances I can walk are even less in the #winter, which makes me more reliant on my #Rollator which can change how people see me. This in itself is frustrating and does affect my #MentalHealth.": buff.ly/2UMLzAh

by @beverleybutterfly.bsky.social
#ChronicPain #disability
Protecting your Mental Health in Winter -
We all know that protecting your Mental Health in Winter is vital, many people struggle in the darker half of the year
buff.ly
December 23, 2025 at 8:30 PM
achronicvoice.com
"The #isolation was terrible, too. Not only had I lost my #job : I was losing the #social connections and the sense of #purpose that came with it. And to make matters worse, my manager didn’t believe how sick I was.": buff.ly/vQoMaVe

via ExploreWellcome
#NEisVoid #MECFS
Living with ME
Nine people with ME reveal their unremitting struggles as they negotiate life with their illness, including their battles to be believed, diagnosed and supported.
buff.ly
December 23, 2025 at 7:30 PM
achronicvoice.com
"Nobody teaches you how to #mourn a life you’re still technically living. Nobody prepares you for the #heartbreak of losing the version of yourself u thought would exist by now. It’s not a clean break. It’s a slow unraveling.": buff.ly/w1apGRF

#ChronicIllness #grief
by @mindspiralmirage.bsky.social
Grieving the Life I Thought I’d Have
I didn’t expect to lose myself after learning who I was.
buff.ly
December 23, 2025 at 4:30 PM
achronicvoice.com
"In modern day culture, #independence is a revered trait..But that is not how #humanity has thrived over the centuries. We are social creatures built for #community. It is an important aspect of social #wellbeing.": buff.ly/4rAGFM8

#ChronicIllness
Dating with Chronic Illness (and What I've Learned)
Read as I share what dating with chronic illness is like, and my best relationship tips for the chronically ill and potential partners.
buff.ly
December 23, 2025 at 3:30 PM
achronicvoice.com
"I bought a fresh pack of 3 x 5 cards and wrote the title of each flash piece on a card. Then I made a list of not-yet-written #moments I planned to tackle, mostly big #Traumas and little traumas.": buff.ly/faJjMmY

via lithub
#trauma #memoir #writing #MentalHealth
How I Wrote My Memoir, One Notecard at a Time
In the fall of 2008, I was high on nitrous oxide when two ideas came to me, in this order, with equal fervor: First, I needed to tell the dentist that I loved her, really loved her, like if I were …
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December 23, 2025 at 1:30 PM
achronicvoice.com
“I am #disabled.
So when I step outside,
I never #assume that nothing will happen.
I may meet wandering stares.
Awkward pauses.
#Moments where I have to explain myself.
Invisible walls that words can’t quite touch.”: buff.ly/qU4j5PX

by kenken02122000
#disability #spoonie #human
Still, I Step Outside the World - 挑戦と共感の軌跡：中途重度障害者のパラレルライフ
When I stand on a train platform,I always pause—just fo
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December 23, 2025 at 12:30 PM
achronicvoice.com
" #Hydroxychloroquine is linked with serious adverse effects, most notably #retinopathy, with long-term use, but nevertheless the drug is the mainstay of #treatment for #lupus.": buff.ly/Gqf6Ie8

via @medpagetoday.com
#ChronicIllness #MedSky #MedicalResearch #medications #autoimmune
Study: Keep Hydroxychloroquine Doses High in Lupus
Better efficacy and, believe it or not, better safety too
buff.ly
December 23, 2025 at 11:31 AM
achronicvoice.com
“These features would not change the core experience for sighted players, but..open the #game to a much wider audience. #Accessibility is not about simplifying #gameplay —it is about giving every player the tools they need to #succeed.”: buff.ly/imEMWrr

by blindmetalgamer
#disability #SniperElite
How Games in the Sniper Elite Series Can Be Made Fully Playable By Blind and Low Vision Players
Making the Sniper Elite Series Fully Playable for Blind and Low Vision PlayersThis blog is intended to help the developers of the Sniper Elite series make future games fully playable by blind and l…
buff.ly
December 23, 2025 at 9:30 AM
achronicvoice.com
“I appreciate it that people still think of me as the fully #capable & unstoppable #GoGetter I once was, but that certainly is not how I feel now. It’s hard when I can’t meet my own standards, much less those of others.”: buff.ly/FFzpFnV

via @angioedemanews.bsky.social
#ChronicIllness #NEisVoid
With chronic illness, we can’t brush off holiday stress so easily
Holiday stress can exacerbate symptoms, writes columnist Natalie Sirota. But turning down activities can also be misinterpreted.
buff.ly
December 23, 2025 at 7:30 AM
achronicvoice.com
"Such #medical information [ready on hand] is crucial, especially if you’re unconscious or unable to communicate, or if a blood transfusion or #emergency surgery is needed.": buff.ly/shkY0MT

#TravelHacks #ChronicIllness #MondayBlogs
Top Tips for Travelling with Chronic Illness & Disability (From a Girl Who Loves to Travel)
Check out my best tips for travelling with chronic illness and disability. Learn what my emergency protocols and travel hacks are.
buff.ly
December 23, 2025 at 4:30 AM
achronicvoice.com
“Chloe is not #disabled by her body but by societal barriers. The barrier here is the lack of access to appropriate #mobility equipment that would allow her to thrive.”: buff.ly/zK0LsqO

by Dustywentworth1
#accessibility #society #disability #wheelchair #DisabilitySky
The Hidden Cost of Independence: Why a Wheelchair is More Than Just a Medical Device. By Dusty Wentworth
The writings of Dusty Wentworth—exploring politics, social commentary, philosophy, and life with clarity, honour, and depth.
buff.ly
December 23, 2025 at 2:30 AM
achronicvoice.com
“ #Advocacy : pulling together my long viral ME..brain. My #dyslexia uses 5 times more energy..for instance, I had to turn my journey thru hell into a haiku for the British Columbia budget committee to #advocate for ME patients”: buff.ly/fZruaWx

from @TheCanaryUK.bsky.social
#pwME #MECFS #NEisVoid
Marcia: life with severe ME is like screaming into the void
Marcia is a person living with ME, amongst a range of other disabilities - here, she writes for the Canary about her life
buff.ly
December 22, 2025 at 11:30 PM
achronicvoice.com
"If you’re hesitant, simply approach your #friend or loved one and ask. It can still be a #surprise, but gathering more information on what they can and cannot do/eat/apply would help both of you tremendously.": buff.ly/ypMGsV0

#GiftIdeas #ChronicIllness #MondayBlogs
Curated Chronic Illness Gift Ideas for Christmas, Birthdays & Other Occasions!
A curated list of chronic illness gift ideas for a friend or loved one who suffers from chronic pain or mental health issues — for all occasions!
buff.ly
December 22, 2025 at 9:30 PM
achronicvoice.com
“I’m #mourning someone who is still #alive, someone whose face I still wear in photographs taken before everything changed. I flinch at the ease in her eyes, the opaque #presumption of many tomorrows.": buff.ly/eeOf3Vt

By @leighlouharper.bsky.social
#ChronicIllness #spoonie #NEisVoid #disabled
She is Me
There are days when I wake into a stillness I don’t recognise.
buff.ly
December 22, 2025 at 8:30 PM
achronicvoice.com
“First of all, screw them. This has happened to me a LOT: everything is fine and dandy and then I tell them I have #RA and they are gone (even if I don’t explain how serious it is). It’s very annoying.”: buff.ly/NjvvdHW

by @katethealmostgreat.bsky.social
#dating #ableism #ChronicIllness #disability
Living Life with Chronic Illness: Common Problems & Their Solutions
Living life with chronic illness is trickier than most people realize. This chronic illness patient shares solutions for common issues.
buff.ly
December 22, 2025 at 6:30 PM