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A Chronic Voice

@achronicvoice.com

2.2K followers 1.9K following 6.2K posts

I share #ChronicIllness, #ChronicPain, #disability & #MentalHealth info from VARIOUS #perspectives. #Lupus #Sjogrens #AntiphospholipidSyndrome #epilepsy Open to constructive chat, will block overly opinionated people. https://www.achronicvoice.com/

www.achronicvoice.com

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A Chronic Voice @achronicvoice.com · Nov 18

My aim with this site is to raise #awareness about lifelong #illnesses from various #perspectives" - Check out my About Page for more info & resources! www.achronicvoice.com/about/ #ChronicPain #ChronicIllness

About - A Chronic Voice

More about A Chronic Voice, a blog that aims to raise awareness about chronic illness and disabilities through various perspectives.

www.achronicvoice.com

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A Chronic Voice @achronicvoice.com · 31m

"Unlike #dogs, #cats don’t rely on prolonged #EyeContact to bond. Instead, they use more understated signals. The most well known is the slow blink. It’s a feline smile, signalling safety and #trust.": buff.ly/jVXmtW8

via @theconversation.com
#pets

A Chronic Voice @achronicvoice.com · 1h

“The #exhibition showcases the..impactful images of more than 20 people..some with #MECFS so severely that they are confined to bed..& many others who #struggle to simply keep up with a basic existence.”: buff.ly/BZ9DfEb

from @LondonWorld.bsky.social
#ChronicIllness #disabled

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A Chronic Voice @achronicvoice.com · 3h

" #Finnish native Heli Jimenez suggests a straightforward approach.."Don’t overcomplicate #wellness: Sauna, walking in the woods, drinking clean water & spending time #offline are enough to improve #wellbeing."": buff.ly/qQGFniP

via @womanandhome.bsky.social
#MentalHealth

Life lessons from Finland, the world's happiest country

From embracing simplicity to honouring the seasons, there's a lot we can learn from Finnish culture

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A Chronic Voice @achronicvoice.com · 4h

"I had to almost force myself to limit myself to #SingleTasking, which is doing one task at a time. That was especially hard if the task was mechanically simple, such as watching a television show": buff.ly/S0BVCiG

via tinybuddha
#multitasking #mindfulness #SelfAwareness #resting

Why It’s So Hard to Just Rest and Why We Need to Do It - Tiny Buddha

We are conditioned to be productive and to stay busy from the time we are young. We say “I’ll rest when I’m dead." But we need rest now.

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A Chronic Voice @achronicvoice.com · 6h

"Up to 70% of #children with #AbdominalMigraine go on to develop migraine with #HeadPain later in life..Maddy’s journey with migraine began at..4..she eventually outgrew them, but by 13 she was suffering from chronic #migraine.": buff.ly/LUHPyAu

#ChronicIllness
via migraineatschool

ABDOMINAL MIGRAINE IN CHILDREN: ALL YOU NEED TO KNOW — Migraine at School

Learn about abdominal migraine in children, its symptoms, triggers, treatments, and school accommodations, to help your child with migraine.

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A Chronic Voice @achronicvoice.com · 8h

CW: #suicide
.
"“Trinity well, safe, free.” That was my daily #prayer. God answers prayer, I just had no idea what I was #praying for. God reminded me of Trinity’s constant prayer to be free from pain, free from her body.": buff.ly/4pUiAGX

via Endofound
#ChronicPain #endometriosis

Sarah Austin, Whose Daughter Died By Suicide Due to Endometriosis Pain, Speaks Out

Trinity suffered debilitating pain from endometriosis and adenomyosis for nearly four years before she took her own life.

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A Chronic Voice @achronicvoice.com · 10h

Yea often, sadly, it would hurt way more sometimes to be waiting in the ER.

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Reposted by A Chronic Voice

SpoonieTV📺(Meadow) 🎥 🏳️‍🌈🏨👻🎄🥄📝💌♿🎨📷🍍 @meandmyremote.bsky.social · 2d

"We can work on sharing the reality of our experiences, and speak up for those who can’t or aren’t ready to do so yet. We can remind others of what it means to be human, and how to behave like a decent one."

A Chronic Voice @achronicvoice.com · 2d

"If there’s something being ill has taught me, it’s to have a little #empathy. At the end of the day, we’re all just trying to live our best lives, and if I have the ability to #change something for the better, then I should.": buff.ly/4gLrZdo

#ChronicIllness #kindness #SickGirl

Call Me Sick Girl (Or How to Make Your Weakness Your Strength)

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A Chronic Voice @achronicvoice.com · 10h

Thanks for resharing 🍄

A Chronic Voice @achronicvoice.com · 10h

@markdignam69.bsky.social Thanks for resharing 🍄

A Chronic Voice @achronicvoice.com · 10h

Thanks for resharing 🍄 and hope you enjoy those podcasts !

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A Chronic Voice @achronicvoice.com · 10h

Yes for sure. Gentle resilience is less brittle too :)

A Chronic Voice @achronicvoice.com · 10h

Yea similar story for me. I think many of us have had to find some sort of acceptance at some point in order to carry on.

A Chronic Voice @achronicvoice.com · 11h

Yea I am the same. Though I also could try a bit harder I think heh. Ever since I broke my knees I've been a bit phobic.

Reposted by A Chronic Voice

April Smith | The Thriving Spoonie @thethrivingspoonie.com · 1d

Even on the hard days, beauty can still exist in small, quiet moments.

This gentle post from @achronicvoice.com reflects on finding the meaningful in the mundane while living with chronic illness.
www.achronicvoice.com/2017/05/10/p...

#ProjChronicWisdom: Things I Find Beautiful in My Everyday Life Despite the Pain

Here are things I find beautiful in my everyday life despite chronic pain. Read what others from the chronic illness community have to say, too!

www.achronicvoice.com

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A Chronic Voice @achronicvoice.com · 11h

Thanks for resharing 🍄

A Chronic Voice @achronicvoice.com · 11h

I have too many things that just get repeated lol

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A Chronic Voice @achronicvoice.com · 11h

I'm sorry to hear that :( I can't eat many more foods now as well no thanks to a shoddy surgery :/ I hope you manage to recover decently!

A Chronic Voice @achronicvoice.com · 11h

"I genuinely did HV flare ups from my #vasculitis, but this cld hv been triggered in part from my fear of getting flare ups. After talking to my #rheumatologist abt my #anxiety, she referred me to a #psychologist who treats many #ChronicIllness patients.":

When Autoimmune Disorder Ravages Your Face (and How That Led To My Body Dysmorphic Disorder)

The stress of living with an autoimmune disorder or mental illness is often a vicious cycle. Julia shares how she developed body dysmorphic disorder, when she couldn't recognise herself one day.

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A Chronic Voice @achronicvoice.com · 12h

"Research..reveals that #walking is a powerful tool for emotional processing, #trauma #healing & #stress reduction. Dr. Nicole LePera..underscores its benefits, saying, “Walking regulates your #emotions & helps your brain move thru trauma.”": buff.ly/QweccB2

via TheBestBrainPossible

Walking Your Way to Better Mental Health - The Best Brain Possible

Walking is one of the most effective and accessible ways to improve your mental well-being. Lace up your shoes and start today!

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A Chronic Voice @achronicvoice.com · 13h

"Thomson coaches #caregivers to make a pie chart of how they spend their days..activities they do & for how long. They're often blown away by how much time is devoted to #caregiving & it helps them see the shape of their own #life more clearly.": buff.ly/WqQ07CR

via @npr.org

Caregiving can test you, body and soul. It can also unlock a new sense of self

Helping a sick family member over months or years can be an enormous strain. It can also disrupt your identity. Psychologists say embracing this change can open up new ways for caregivers to cope.

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A Chronic Voice @achronicvoice.com · 15h

"There are days I wish I could prescribe #PeaceOfMind as easily as I prescribe blood pressure #medication. But it doesn’t work that way. #Peace can’t be ordered. It has to be earned—through trust, #communication, and presence.": buff.ly/TAknYPL

via kevinmd
#PatientCare

The unseen burden patients carry between appointments

Modern medicine must recognize and treat the emotional toll of uncertainty, anxiety, and self-blame that patients carry between visits.

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A Chronic Voice @achronicvoice.com · 17h

"I was in and out of the ER every three days for #HeartPalpitations..It was then that I told my #doctor, “I definitely need to see a #psychologist or #psychiatrist. Please refer me to one whether you think it is a necessity or not.”": buff.ly/ODjL8F4

#MentalHealthMatters

Is Seeking Help for Your Mental Health Worth the Fuss?

A Chronic Voice @achronicvoice.com · 18h

“Every time I caught myself asking how this..could be happening to me, I answered myself back: I am not special..I am anyone, everyone, a soul within a #body that is temporary, fragile, finite.”: buff.ly/5Zjq65S

from @time.com
#ChronicIllness #InvisibleIllness #spoonie #human

I Was Writing About a Medical Mystery. Then I Experienced My Own

It began the way many life-changing things do: almost imperceptibly.

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A Chronic Voice @achronicvoice.com · 19h

“Many who live w severe & painful conditions can only manage 1 ‘big’ activity a day, especially if it involves leaving the house. If that day has a #medical visit..everything pivots on that single activity”: buff.ly/Wj8Q1MI

by @apainprincess.bsky.social
#ChronicPain #ChronicIllness #disability

But You Look Good: Living with Disbelief of Invisible Illness and Pain

Each time we are told that we 'look good' or 'look well' by people who have little concept of even the lengths we have gone to just to connect with them at all, it carries with it

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