“I’m getting sicker by the day & my meds aren’t controlling what’s happening in my body. You can do everything right with #illness, by the way, and still have it turn out all wrong.”: buff.ly/ErFObQn
by @carriekellenberger.bsky.social
#ChronicPain #ChronicIllness #InvisibleIllness #spoonie
by @carriekellenberger.bsky.social
#ChronicPain #ChronicIllness #InvisibleIllness #spoonie
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buff.ly
October 19, 2025 at 5:20 AM
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1 likes
Three weeks down. Three weeks to go.
#ChronicIllness #Prednisone #RheumatoidArthritis #ChronicPain #SilverLining
#ChronicIllness #Prednisone #RheumatoidArthritis #ChronicPain #SilverLining
October 19, 2025 at 4:53 AM
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"Our desire to see and perform tests to #diagnose and triage #illnesses, though essential, has allowed a certain #cynicism to creep into our understanding of illnesses without objective measures..": buff.ly/5av4iGj
via kevinmd
#ChronicPain #InvisibleIllness
via kevinmd
#ChronicPain #InvisibleIllness
How showing up teaches children about grief and empathy
A mother reflects on the importance of presence and empathy in mourning after taking her children to a visitation for a young man who died by suicide.
buff.ly
October 19, 2025 at 4:30 AM
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#chronicillness #chronicpain #PTSD #mentalhealth #invisibleillness #autoimmunedisease #health #depression
October 19, 2025 at 3:14 AM
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“But that’s not all it is. It is that I can’t imagine a life where I am not this #sick, where I am not also even more miserable. It is that I have never been well..I don’t really remember a “before.””: buff.ly/l97xxXU
by @mollyfree.bsky.social
#pwME #ChronicIllness #ChronicPain #NEisVoid
by @mollyfree.bsky.social
#pwME #ChronicIllness #ChronicPain #NEisVoid
On my Eight Year Bed-iversary
Time flies when you're having... whatever this is
buff.ly
October 19, 2025 at 2:30 AM
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3 likes
OMG my joints are so sore, Kris, do me next, I beg you 🥲 #goodstretch #EDS #chronicpain #AEWWrestledream
October 19, 2025 at 2:15 AM
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3 likes
"1 of the most helpful things I’ve done is prep a “#BadDay basket”..a go-to corner of #comfort that I can reach for without #overthinking. On tough days, even making decisions takes #energy I don’t have. So I keep these essentials close.": buff.ly/K3RbvdI
#ChronicPain
by @thethrivingspoonie.com
#ChronicPain
by @thethrivingspoonie.com
The Easy Way I Adapt My Routine When I’m Having a Bad Day With Chronic Illness
Transform your day with an adaptable chronic illness routine that accommodates your changing needs and promotes a positive mindset.
buff.ly
October 19, 2025 at 12:30 AM
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5 likes
I’m strong, but not Superman—
just human. Wish I was invincible somedays, the more I survive the more I realize how fragile we all really are. Now it is time for me to be kind to my mind and spine and send positive energy through out my body.
#BrainTumor #BPD #Autism #ADHD #ChronicPain #Recovery
just human. Wish I was invincible somedays, the more I survive the more I realize how fragile we all really are. Now it is time for me to be kind to my mind and spine and send positive energy through out my body.
#BrainTumor #BPD #Autism #ADHD #ChronicPain #Recovery
October 19, 2025 at 12:07 AM
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2 likes
no stream tonight ghosties
my stomach has decided it wants me ded 😮💨
as always come back here to find updates
#vtuber #ghostie #chronicpain
my stomach has decided it wants me ded 😮💨
as always come back here to find updates
#vtuber #ghostie #chronicpain
October 18, 2025 at 10:51 PM
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2 likes
“My life had become very #isolated due to #ChronicPain..It was quite hard seeing #friends post on social media about events that I would have normally attended, but couldn’t. – Jo.”: buff.ly/MEohDFg
#NEisVoid #ChronicIllness
#NEisVoid #ChronicIllness
October 18, 2025 at 9:30 PM
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1 reposts
4 likes
Doing something revolutionary today. Playing outside with my kids and nephew. #ChronicIllness #ChronicPain
October 18, 2025 at 7:24 PM
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#spoonie #chronicpain #chronicillness #NoKingsDay #RESIST #trumpregime #fascism #AmericanFascism #oligarchy #authoritarianism #GangsterRegime #Kakistocracy #AmericanFascistParty #MAGA #ResistFascism #AbolishICE
October 18, 2025 at 4:02 PM
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2 reposts
4 likes
" #Work #stress tends to be the worst..I guess I tense my body up subconsciously which ‘holds’ all that #inflammation in. By the end of the day that becomes painful & by the next morning my joints & muscles are sore and limited in function.": buff.ly/sGEpfOL
#ChronicIllness #ChronicPain
#ChronicIllness #ChronicPain
A Roundup of Biggest Pain Flare Triggers (from 40 People with Chronic Illness)
Check out this 3-part series all about pain flares. This is part 1, where people with chronic pain share more about their pain flare triggers.
buff.ly
October 18, 2025 at 3:30 PM
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6 likes
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If you need a push to get you out the door to go to #NoKings today, do it for someone who can’t.
If you’re able-bodied, please go for me.
If you need courage, take some of mine.
Thank you, from the bottom of my boomer ❤️
#Disability #ChronicIllness #ChronicPain
If you’re able-bodied, please go for me.
If you need courage, take some of mine.
Thank you, from the bottom of my boomer ❤️
#Disability #ChronicIllness #ChronicPain
October 18, 2025 at 2:44 PM
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2 reposts
2 quotes
6 likes
The Autumn Slide. New blog post: kathrynmcrowley.com/2025/10/18/t... #chronicpain #fibromyalgia #sleep #wellbeing #Autumn 🧪🍂
The Autumn slide
Autumn has arrived to the northern hemisphere. I love the colours of this season and the crisp air, even if my body feels more stiff lately! Autumn brings challenges to some. We’ll have less …
kathrynmcrowley.com
October 18, 2025 at 2:35 PM
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" #AskingForHelp personally? It’s really difficult for me. I feel uncomfortable, #embarrassed, selfish, and guilty. I’m inconveniencing someone else to assist me in doing something that a “normal” person could do on their own.": buff.ly/dst5PyL
via @themighty.bsky.social
#ChronicPain #disabled
via @themighty.bsky.social
#ChronicPain #disabled
7 Challenging Daily Decisions When You Live With Chronic Illness
"I have to put serious consideration into much of what I choose to do because it will have an immediate effect on Current Leslie, as well as risk having an impact on Future Leslie."
buff.ly
October 18, 2025 at 2:30 PM
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5 reposts
11 likes
I'm taking a brain-healing course at the mo to help with my #chronicpain & it's amazing! Wanted to share this one video which is superb, the presenter is really funny and it's SUPER helpful for #pain #symptoms #illness #anxiety #fear
#Neuroscience #MindBodyhealing
www.youtube.com/watch?v=Nv-O...
#Neuroscience #MindBodyhealing
www.youtube.com/watch?v=Nv-O...
Chronic Pain and Anxiety: Why Doctors Get It Wrong & How to Hack Your Brain | Brad Fanestil | TEDxCU
YouTube video by TEDx Talks
www.youtube.com
October 18, 2025 at 2:25 PM
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2 likes
“What I failed to recognize was that it is just as important to allow myself to stop sometimes. To stop before I could barely walk… It is unrealistic and unhealthy to keep expecting myself to function like I did before #ChronicIllness.” http://j.mp/2LAN57F #ChronicPain #Disabilities
October 18, 2025 at 2:23 PM
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1 likes
Is #orthopedic #surgery the closest #doctors have ever been to car #mechanic?
"Who wants a tune up!"
#humour #backsurgery #chronicpain #backpain
"Who wants a tune up!"
#humour #backsurgery #chronicpain #backpain
October 18, 2025 at 12:37 PM
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If you don't know what #MCAS is...count yourself lucky.
#IYKYK #ChronicIllness #ChronicPain #EDS #POTS #HealingPath #HolisticHealth 💕 #Wellness
#IYKYK #ChronicIllness #ChronicPain #EDS #POTS #HealingPath #HolisticHealth 💕 #Wellness
This Woman Can Only Eat Two Foods: Oatmeal And Baby Formula — Here's Why
"My symptoms included continual anaphylaxis, difficulty breathing, restricted airways, tight lungs, wheezing, tight throat, hives, and rashes."
buff.ly
October 18, 2025 at 12:23 PM
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1 likes
When you feel weak when you feel fragile. I know your strength. You fight a battle no one sees. #chronicillness #chronicpain
October 18, 2025 at 12:12 PM
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1 likes
Protesting prone or from home? You are not alone! Survival is an act of defiance. #MyalgicE #LongCovid #Housebound #Bedridden #Parkinsons #OutSick #ChronicPain #ChronicIllness #AcuteIllness #COVID #Flu #Fibro #MEcfs #MyalgicEncephalomyelitis We are here.
The first half focuses on creating a more accessible protest and the second half focuses on attending an in-person protest safely. Today's thread is focusing on in-person but first a reminder- you matter! Your survival matters.
Many actions can be taken from home, too!
Many actions can be taken from home, too!
October 18, 2025 at 11:51 AM
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1 reposts
4 likes
#ChronicPain #Surgery Finally connected my increasing knee/back pain with the fact that they stopped a pain med for surgery. Ironic, but also ow 🥺, but also I had planned all my surgery prep (mostly cooking) around being able to stand for a bit. Guess I'll have to sit down and/or ask for help. Sigh.
October 18, 2025 at 11:25 AM
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42 likes
These can definitely be worth trying but you do need to know what to look for and avoid:
buff.ly/lmWdbpP
~~~
#NewBlogPost #LED #LightTherapy #VibrationPlate #ChronicIllness #ChronicPain #EDS #hEDS #MCAS #POTS #HolisticHealth 💕 #Wellness
buff.ly/lmWdbpP
~~~
#NewBlogPost #LED #LightTherapy #VibrationPlate #ChronicIllness #ChronicPain #EDS #hEDS #MCAS #POTS #HolisticHealth 💕 #Wellness
October 18, 2025 at 11:17 AM
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