banner
LightNews
fndportal.bsky.social
FND Portal
@fndportal.bsky.social
1.6K followers 1.1K following 1.3K posts
A person with Functional Neurological Disorder. News and musings on FND, disability, and brain science. Contributing to projects at AAN, FNDS, UCL, NHNN. When we work together we can change it for the better. He/him.
Posts Media Videos Starter Packs
Reposted by FND Portal
lenasun.bsky.social
Lena Sun @lenasun.bsky.social · 7h
NEW: @CDCgov hit hard by massive firings that several staff describe to me as a “bloodbath.”
Among those RIFd:
—leadership of the center for immunization and respiratory diseases;
—leadership of global health center
—leadership of the measles outbreak response; 1/4
61 980 1.7K
fndportal.bsky.social
FND Portal @fndportal.bsky.social · 5h
My general thought about the next several years is that many people are going to need to grow a spine real fucking quick if we want to still have a democratic society
1 3
fndportal.bsky.social
FND Portal @fndportal.bsky.social · 15h
Really fighting on all fronts lately
2
Reposted by FND Portal
jeremyfaust.bsky.social
Jeremy Faust, MD @jeremyfaust.bsky.social · 16h
We have breaking news in Inside Medicine.

We had heard rumors of RIFs to CDC.

But this is the first visual confirmation that it has occurred tonight, and at high levels in the agency.

Here is what we know...and then some well-sourced rumors (but rumors, nonetheless, not confirmed) 🧵...
9 170 280
Reposted by FND Portal
sherylnyt.bsky.social
Sheryl Gay Stolberg @sherylnyt.bsky.social · 18h
BREAKING: Friday night massacre underway at CDC. Doznes of "disease detectives," high-level scientists, entire Washington staff and editors of the MMWR (Morbidity and Mortality Weekly Report) have all been RIFed and received the following notice:
830 8.2K 15K
Reposted by FND Portal
brendelbored.bsky.social
Brendel @brendelbored.bsky.social · 20h
I like how the news will be like “while the President claiming Portland was ruled by a giant skeleton named Mr Nibbles is not strictly true, it does speak to the anxiety of many Americans”
130 2.1K 10K
fndportal.bsky.social
FND Portal @fndportal.bsky.social · 23h
More important than ever. Do it!
ndrnadvocates.bsky.social
National Disability Rights Network @ndrnadvocates.bsky.social · 23h
By getting informed and encouraging others, you contribute to a more engaged and robust democracy. Your vote shapes the future of our community and nation.

Learn how at NationalVoterEducationWeek.org #NationalVoterEducationWeek
Purple and pink gradient graphic featuring the National Disability Rights Network logo and text that reads “Are you ready to make your voice heard at the polls? Educate yourself to make choices that matter.” A smiling person with a megaphone appears in the background. A banner at the bottom reads “NationalVoterEducationWeek.org.” Gradient graphic with the National Disability Rights Network logo and text that says “Register to vote! Registering to vote is like RSVPing to democracy’s party—your invitation to have a say in shaping the future!” Includes a photo of two smiling people holding up ID cards. The bottom banner reads “NationalVoterEducationWeek.org.” Blue and purple gradient graphic with the National Disability Rights Network logo and text that reads “Make a plan to vote! Whether it’s hitting the polls early or on Election Day, mailing in your ballot, or ensuring you have the right ID, preparation ensures your voice is heard around your own schedule.” A smiling person sits in the background holding an "I voted" sticker. Banner at the bottom reads “NationalVoterEducationWeek.org.” Purple and blue gradient graphic with the National Disability Rights Network logo and text that says “Get to know your ballot! Know your ballot, know your power—research candidates, understand initiatives, and cut through the noise to vote smart.” A person reads a ballot in the background. Banner at the bottom reads “NationalVoterEducationWeek.org.”
1
Reposted by FND Portal
captainacab.airbud.website
alboo @captainacab.airbud.website · 2d
[joke that requires 2-3 mental leaps before conceptually arriving at the punchline]
8 11 64
fndportal.bsky.social
FND Portal @fndportal.bsky.social · 2d
Really wish I could be there! Break a leg (metaphorically) everyone
1 1
Reposted by FND Portal
fndireland.bsky.social
FND Ireland @fndireland.bsky.social · 2d
Over 150 delegates registered to attend our first #FNDIreland Conference! Limited tickets, registration closes Monday 13th October. Scan QR code to book.

Our founder Eamon McPartlin will present 'FND Ireland Updates and NAI Patient Experience Survey Findings' 💚🧡

#FND @fndportal.bsky.social
Image description: A white and green poster for the FND Ireland Conference speakers. The text reads: "Meet Our Speakers: Eamon McPartlin, Founder and Chair of FND Ireland. Eamon lives with Functional Neurological Disorder (FND) and another neurological condition called Dystonia. He gained experience in patient advocacy, peer support and research through his roles with other neurological support organisations before founding FND Ireland. Eamon is an active HSE patient partner and is a member of the National Neurorehabilitation Workstream Groups. He is also a member of the FND Society Patient Liaison Committee and a Neurological Alliance of Ireland board member. FND Ireland Conference 2025 Date: Saturday 18th October, Location: Maldron Hotel Tallaght, Dublin." There is a headshot photo of Eamon in the top left of the poster. He is a person with dark hair and is wearing a striped blue shirt. There is a QR code to book tickets to the conference in the bottom left of the poster.
1 1 4
Reposted by FND Portal
nicolechung.bsky.social
Nicole Chung @nicolechung.bsky.social · 3d
Young lives cut short on an unimaginable scale: the 18,457 children on Gaza’s list of war dead
Every name on a list compiled by health authorities in Gaza of the child victims of Israel’s offensive
www.theguardian.com
11 30
fndportal.bsky.social
FND Portal @fndportal.bsky.social · 3d
A whole article that’s at least partially about FND, with FND in the title, and yet without a single quote from a person with FND or a specialist who studies it.

Would the Sick Times find this appropriate for any other condition?

Why are we not worthy of representation?
fndportal.bsky.social
FND Portal @fndportal.bsky.social · 3d
Sorry that that’s the case! Hope you’re able to take some time to support your recovery at the right speed for you. ❤️
Reposted by FND Portal
fndireland.bsky.social
FND Ireland @fndireland.bsky.social · 12d
📢 Delighted to have Emma Jane Bane speak at our first #FNDIreland Conference on 'Occupational Therapy Approaches to Management in Functional Neurological Disorder'. Scan the QR code to book.💚🧡
@sjhdublin.bsky.social @aotinews.bsky.social @fndportal.bsky.social @efna.net #FND #FNDConference
Image description: A white and green poster for the FND Ireland Conference speakers. The text reads: "Meet Our Speakers: Emma Jane Bane, Senior Occupational Therapist, St James’s Hospital. Emma Jane developed a strong interest in Functional Neurological Disorder (FND) in her previous role at the National Hospital for Neurology and Neurosurgery at Queen’s Square, London. She is currently completing her Masters degree in Neurology at the RCSI which includes research in FND. Emma Jane is a committee member at FND Ireland and a member of the FND AHP Network, supporting interdisciplinary collaboration in the management of FND. FND Ireland Conference 2025 Date: Saturday 18th October, Location: Maldron Hotel Tallaght, Dublin." There is a headshot photo of Emma Jane in the top left of the poster. She is a person with dark hair and is wearing a maroon scrub top with a navy lanyard. There is a QR code to book tickets to the conference in the bottom left of the poster.
2 5
fndportal.bsky.social
FND Portal @fndportal.bsky.social · 3d
Thank you! I’m feeling better, so looks like it helped 😃
1 1
fndportal.bsky.social
FND Portal @fndportal.bsky.social · 3d
I’m not loving this
npr.org
NPR @npr.org · 3d
A national survey of students, teachers and parents shines a light on how the AI revolution is playing out in schools – including when it comes to bullying and a community's trust in schools. n.pr/46OAc16
1 in 5 high schoolers has had a romantic AI relationship, or knows someone who has
A national survey of students, teachers and parents shines a light on how the AI revolution is playing out in schools – including when it comes to bullying and a community's trust in schools.
n.pr
Reposted by FND Portal
drjanetscott.bsky.social
Janet Scott @drjanetscott.bsky.social · 4d
Functional Neurological Disorder is a condition where the nervous system doesn’t function properly despite no structural damage. Key quotes:
“Because there is no damage to the nervous system, you have the potential to get better.”
1 2 2
fndportal.bsky.social
FND Portal @fndportal.bsky.social · 4d
Same thing we do every night, Pinky
1
fndportal.bsky.social
FND Portal @fndportal.bsky.social · 4d
I’m back! And starting to catch up.

Recovering nicely and spent a little time with the palm trees
A view of a swimming pool with swaying palm trees around the edges
8
fndportal.bsky.social
FND Portal @fndportal.bsky.social · 14d
Hi friends. I’m sick with a viral thing (travel always gets me somehow, despite masking).

Hope to be back soon. Time to go kick this thing and sleep as much as possible.

See ya soon
3 10
Reposted by FND Portal
sjshancoxli.liberalcurrents.com
Dr. Samantha Hancox-Li @sjshancoxli.liberalcurrents.com · 20d
for all people mock it wikipedia is genuinely one of the wonders of the modern world
150 1K 9.1K
fndportal.bsky.social
FND Portal @fndportal.bsky.social · 19d
Thank you! 😅 perhaps inspiration for a new pub-based deliberative process for FNDS going forward
1
fndportal.bsky.social
FND Portal @fndportal.bsky.social · 20d
Great to see this out, as well as all the deliberation that went into it! A hard-won consensus
1 2
Reposted by FND Portal
fndireland.bsky.social
FND Ireland @fndireland.bsky.social · 20d
Positive proposal by ILAE to move away from “PNES” which is criticized as “psychogenic” & implies mind–body dualism. “Nonepileptic” only defines the diagnosis negatively. “FDS” improves consistency in clinical practice and research. Thanks @fndportal.bsky.social for highlighting this. 💚🧡
#FNDIreland
alancarson15.bsky.social
Alan Carson @alancarson15.bsky.social · 21d
onlinelibrary.wiley.com/doi/10.1111/...
Functional/dissociative seizures: Proposal for a new diagnostic label and definition by the ILAE task force
The acceptability and validity of the term
onlinelibrary.wiley.com
1 3 9
fndportal.bsky.social
FND Portal @fndportal.bsky.social · 20d
Thanks for the review here - and I’ve been glad to be part of the conversation! Hope this is one of many steps in the right direction for folks with FDS ❤️
1