Author | Lightnews

Reposted by #LupusChat

Mithu Maheswaranathan, MD @mithurheum.bsky.social · 19h

🆕 ACR 2025 Guidelines for Treatment of Systemic Lupus Erythematosus 🦋

#ACR25 #Lupus #RheumSky

1 5 10

Reposted by #LupusChat

Tiffany @tiffanyandlupus.bsky.social · 16h

Representing @lupuschat.bsky.social at the lupus community booth at #ACR25 with @ladaorg.bsky.social! Stay tuned as I share updates on new and intriguing studies on lupus and rheumatic conditions!

Please visit our community booth in the Exhibit Hall at booth 2121! #LADAorg #LupusChat #ACR25

Two ladies standing in front of a lupus community booth

5 10

Reposted by #LupusChat

Lupus and Allied Diseases Association, Inc. @ladaorg.bsky.social · 6d

We are excited to attend #ACR25 to network, learn and share our resources. Visit us at the #Lupus Community Booth # 2121. #PatientVoice
@lupuschat.bsky.social @michiganlupus.bsky.social @infusionaccessfoundation.org @acr25.bsky.social @rheumepi.bsky.social @rheumcat.bsky.social

#LADAorg

4 5

#LupusChat @lupuschat.bsky.social · Aug 28

Hey #LupusChat fam, please join us is wishing our Founder & CEO @tiffanyandlupus.bsky.social a very Happy Birthday!!! We are forever grateful for all you do for the community. You are a beacon of light and we appreciate you. We hope you have THE BEST day! 🎉🎂

1 3 2

#LupusChat @lupuschat.bsky.social · Aug 25

🎂💜 Happy Birthday to our colleague & #LupusChat co-host @syncenerdcarly.bsky.social! 🥳 Thank you for advancing lupus research & always showing up for the community. We celebrate you today & every day! 🎉

a cartoon character from bob 's burgers is celebrating her birthday with her hands on her head .

Alt: a cartoon character from bob 's burgers is celebrating her birthday with her hands on her head .

media.tenor.com

1

#LupusChat @lupuschat.bsky.social · Aug 4

Got SLE? 💜 Been on a biologic?
You could earn $150 for sharing your experience in a 90-min online lupus research interview!

Ages 21–55, no Lupus Nephritis.

Apply by TODAY Aug 8 👉 shorturl.at/GfJk5 #LupusChat

#LupusChat @lupuschat.bsky.social · Jun 15

Please join us in celebrating all the wonderful Dads and Father figures in our community and across the world. Happy Father's Day to you all!!

~The #LupusChat Team 💜

3

Reposted by #LupusChat

Silvia Aguilera @silvia-aps.bsky.social · Jun 14

Michael #Highlights #LupusGPT developed by @lupuseurope.bsky.social, a new AI tool aimed for patients, who just won the PFMD “Made with Patients” award. Congratulations! 🥳
Find it here: lupusgpt.org

1 2 5

Reposted by #LupusChat

Dr Rasu Shrestha @rasushrestha.bsky.social · Jun 14

✅ Meaningful patient collaboration X GenAI = real impact

Congratulations to #LupusGPT on winning the #MadeWithPatients Award 🏆 at #EULAR25

🔊LISTEN IN 👇🏽

@lupuseurope.bsky.social @lupuschat.bsky.social @lupusdnadoc.bsky.social @lupuswarrior69.bsky.social @lupus.org @disorderlupus.bsky.social

Lupus Europe @lupuseurope.bsky.social · Jun 12

🏆We’re thrilled to announce that hashtag

#LupusGPT has won the #MadeWithPatients Award 2025!

🌍A huge moment for Lupus Europe & the #lupus community —proving what’s possible through true patient collaboration.

Celebrating at #EULAR2025! Come join us at booth O15!

1 2 2

Reposted by #LupusChat

Lupus and Allied Diseases Association, Inc. @ladaorg.bsky.social · May 31

We need crosssector collaborations, public-private partnerships and robust basic, clinical and translational projects to identify biomarkers, better clinical trial methodologies, prevent complications, develop better dx measures and safer, >effective #lupus drugs and cures. @lupuschat.bsky.social

1 4

Reposted by #LupusChat

Kristen Young @kristenyoung.bsky.social · May 26

Thrilled to have the opportunity to present our early research on identifying stereotypes for patients with SLE at #LUPUS2025 in Toronto. Leaving inspired and grateful for this outstanding community of scientists, clinicians, and patient partners.

2 6 10

Reposted by #LupusChat

Kristen Young @kristenyoung.bsky.social · May 26

Adding some of my favorite slides … #LUPUS2025
Many excellent sessions and abstracts, especially appreciated the multiple sessions on CNS lupus and cognitive impairment - an area of importance for patients with lupus.

1 6 5

Reposted by #LupusChat

Michelle @elleonsound.bsky.social · May 25

A6: I'm more solo independent and don't rely on others very much. BUT I'm an expert at navigating the US medical beast that is Healthcare and insurance ;) #LupusChat

1 2

Reposted by #LupusChat

Michelle @elleonsound.bsky.social · May 25

A5: oof... I dunno... Lupus kind of taught me that most of the people around me were lacking in any empathy. Being neurospicy I always had issues with relationships anyhow. 🙃

#LupusChat

2 2

Reposted by #LupusChat

Lupus and Allied Diseases Association, Inc. @ladaorg.bsky.social · May 26

While some drugs provide benefits to people with #lupus, significant side effects exist and can cause an increase in infections, cancer, significant bone loss and osteoporosis, sterility, and stroke among many other adverse health consequences. We need an arsenal of new drugs! @lupuschat.bsky.social

1 3

Reposted by #LupusChat

Michelle @elleonsound.bsky.social · May 25

A4: I am a fierce advocate of myself. ❤️ #lupuschat

2 1

Reposted by #LupusChat

💜⚽🇭🇹♊ Xtel Bond @xtel007.bsky.social · May 25

A6. So I decided to have ‪‪@tinarsjn.bsky.social‬ answer this. We've been friends for a gazillion years and have been roommates for a while lol. She says that living with someone who has lupus has shaped her interactions with people. #LupusChat

2

Reposted by #LupusChat

Tiffany @tiffanyandlupus.bsky.social · May 25

A6: #LupusTaughtMe to move through the world more intentionally. I plan ahead, protect my energy, and no longer feel guilty for resting. It’s also taught me how to pass my strength along—to use what I’ve learned to empower and uplift others on their journey too. #LupusChat

1 1

Reposted by #LupusChat

Tiffany @tiffanyandlupus.bsky.social · May 25

A6: #LupusMeEnseño para moverse por el mundo más intencionalmente. Planeo con anticipación, protejo mi energía, y no me siento culpable por descansar. También me enseñó cómo compartir mi fuerza y usar lo que he aprendido para empoderar y elevar a otros en su viaje. #LupusChat

1

Reposted by #LupusChat

Michelle @elleonsound.bsky.social · May 25

A3: lupus has taught me to pay more attention to my body. Not to dismiss even small things that may pop up. #LupusChat

2 2

#LupusChat @lupuschat.bsky.social · May 25

Disfrute del resto de su día & acuérdese de practicar el cuidado de sí mismo hoy porque además #LupusChat también es #SelfcareSunday!

1

#LupusChat @lupuschat.bsky.social · May 25

Enjoy the rest of your day & remember to practice a little (or a lot) self-care today because besides #LupusChat it's also #SelfcareSunday!

2

#LupusChat @lupuschat.bsky.social · May 25

Mantén viva la conversación usando la etiqueta #LupusMeEnseño para compartir tus experiencias personales, grandes o pequeñas. Tu historia podría ser la que alguien más necesita ver para sentirse menos solo o más comprendido. Cada voz ayuda a crear conciencia y comunidad. 💜#LupusChat

#LupusChat @lupuschat.bsky.social · May 25

Keep the conversation going by using the #LupusTaughtMe hashtag to share your personal experiences, big or small. Your story might be the one someone else needs to see to feel less alone or more understood. Every voice helps build awareness and community. 💜#LupusChat