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lymenews.bsky.social
LymeDisease.org
@lymenews.bsky.social
1.7K followers 150 following 370 posts
The #LymeDisease community's leading source for news, insight and advocacy. Publisher of The Lyme Times, creator of MyLymeData. A 501(c)(3) organization. Tick-Borne Diseases, Infection Associated Chronic Conditions #IACC, #OneHealth
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lymenews.bsky.social
LymeDisease.org @lymenews.bsky.social · Sep 10
Got Lyme? Enroll in MyLymeData to share your experiences with researchers seeking a cure.
Enroll Today: mylymedata.org
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lymenews.bsky.social
LymeDisease.org @lymenews.bsky.social · 14h
Once defined by athletic precision & high-altitude adrenaline, this skier's life took a dramatic turn when she contracted Lyme disease.

It forced her to confront not only chronic illness but also the loss & rediscovery, of identity, purpose & hope.
READ MORE: www.lymedisease.org/skier-bounce...
PODCAST: How a professional skier bounced back after Lyme disease | LymeDisease.org
By Fred Diamond In this week’s episode of the Love, Hope, Lyme podcast, Athena Brownson, a former professional skier turned Denver real estate agent and
www.lymedisease.org
lymenews.bsky.social
LymeDisease.org @lymenews.bsky.social · 14h
When antibiotics and antivirals fall short, patients and practitioners start looking at other possibilities.

Maria Marian, ND, has written a two-part series about a cutting-edge therapy that’s stirring hope, and controversy...

Part Two www.lymedisease.org/sot-for-lyme...
Targeting Lyme at the genetic level: SOT’s emerging role | LymeDisease.org
This is Part Two of a series on Supportive Oligonucleotide Therapy (SOT),  a form of antisense oligonucleotide therapy. SOT is a personalized,
www.lymedisease.org
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lymenews.bsky.social
LymeDisease.org @lymenews.bsky.social · 14h
When antibiotics and antivirals fall short, patients and practitioners start looking at other possibilities.

Maria Marian, ND, has written a two-part series about a cutting-edge therapy that’s stirring hope—and controversy...

Part One www.lymedisease.org/sot-lyme-tre...
SOT therapy for Lyme is experimental, expensive—and full of potential. | LymeDisease.org
Part One of a two-part series. By Maria Marian, ND, MSE For many people facing chronic infections such as Lyme disease, Epstein–Barr virus (EBV), herpes
www.lymedisease.org
lymenews.bsky.social
LymeDisease.org @lymenews.bsky.social · 14h
Chris Williamson, host of the Modern Wisdom podcast, has revealed that he’s been battling Lyme disease, mold toxicity, and other chronic infections that have deeply affected his physical and mental health.

READ MORE www.lymedisease.org/podcaster-sh...
“It’s time to talk about my health” — podcaster shares his Lyme story | LymeDisease.org
Chris Williamson, host of the Modern Wisdom podcast, has revealed that he’s been battling Lyme disease, mold toxicity, and other chronic infections that
www.lymedisease.org
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lymenews.bsky.social
LymeDisease.org @lymenews.bsky.social · 8d
“There’s something wrong here, doctor, and I don’t know what it is…

But there’s a monster in my body and it’s living in my limbs…"

Listen to @jesseruben's new song HERE. www.lymedisease.org/jesse-rubens...
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lymenews.bsky.social
LymeDisease.org @lymenews.bsky.social · 8d
A British journalist chronicles his young daughter’s long, painful descent into what turned out to be Lyme disease--and the medical system’s failure to recognize what was happening to her.

READ MORE www.lymedisease.org/how-did-we-m...
"How did we miss it?" A journalist’s search for his daughter’s diagnosis | LymeDisease.org
Patrick Barkham, a respected British journalist and nature writer, has written a deeply personal and powerful piece in The Guardian about his daughter
www.lymedisease.org
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lymenews.bsky.social
LymeDisease.org @lymenews.bsky.social · 8d
When antibiotics and antivirals fall short, patients and practitioners start asking: what else is out there?

Maria Marian, ND, gives details about a cutting-edge therapy that’s stirring hope—and controversy—in the world of chronic Lyme.

READ MORE www.lymedisease.org/sot-lyme-tre...
SOT therapy for Lyme is experimental, expensive—and full of potential. | LymeDisease.org
Part One of a two-part series. By Maria Marian, ND, MSE For many people facing chronic infections such as Lyme disease, Epstein–Barr virus (EBV), herpes
www.lymedisease.org
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lymenews.bsky.social
LymeDisease.org @lymenews.bsky.social · 13d
Mast cell activation syndrome affects many people with Lyme disease. Did you know it can contribute to "female problems" as well? Dr. Tania Dempsey explains. drtaniadempsey.com/mcas-symptom... via @DrTaniaDempsey
MCAS symptoms “down there” with Dr. Tania Dempsey
MCAS doesn’t ignore the nether-regions, so in this episode, Dr. Dempsey discusses symptoms and treatments in the genitourinary and surrounding areas, including some novel uses of antihistamines and ma...
drtaniadempsey.com
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lymenews.bsky.social
LymeDisease.org @lymenews.bsky.social · 15d
Tick-borne alpha-gal syndrome, otherwise known as the red meat allergy, is on the rise across the United States.

Two new continuing medical education courses—one from the CDC and one from VectorWise CME—aim to boost clinician awareness and training.

READ MORE www.lymedisease.org/alpha-gal-tr...
Two new CME courses aim to close alpha-gal syndrome knowledge gap | LymeDisease.org
As alpha-gal syndrome (AGS) continues to rise across the United States, two new continuing medical education (CME) courses—one from the CDC and one from
www.lymedisease.org
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lymenews.bsky.social
LymeDisease.org @lymenews.bsky.social · 15d
At New York Fashion Week, Project Lab Coat turned the spotlight on Lyme disease—and the people fighting it—with fierce fashion and unforgettable purpose.

Journalist Mary Beth Pfeiffer describes what it was like--and how it came to be.

READ MORE www.lymedisease.org/walked-fashi...
I walked the fashion runway for Lyme—alongside scientists, stars, and survivors | LymeDisease.org
Reprinted by permission of the Rescue substack. By Mary Beth Pfeiffer Magic happened for a far-flung group of scientists, doctors, pop stars, advocates,
www.lymedisease.org
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lymenews.bsky.social
LymeDisease.org @lymenews.bsky.social · 15d
Two authors of the report, retired Air Force Colonel and Lyme advocate Nicole Malachowski and infectious disease physician and researcher Dr. Kent Kester, shed light not only on the significance of the report but also on the road ahead.
READ MORE www.lymedisease.org/nasem-malach...
PODCAST: National Academies report opens a new chapter in Lyme research | LymeDisease.org
By Fred Diamond Lyme awareness got a major boost recently with the publication of the new National Academies of Sciences, Engineering, and Medicine
www.lymedisease.org
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lymenews.bsky.social
LymeDisease.org @lymenews.bsky.social · 15d
A recent @60minutes.bsky.social Minutes report highlights a controversial effort to curb Lyme disease by genetically modifying wild mice.

The project is still in the research phase and raises ethical and ecological questions.

WATCH THE FULL SEGMENT HERE www.lymedisease.org/engineered-m...
Can genetically engineered mice stop Lyme? And at what cost? | LymeDisease.org
A recent 60 Minutes report highlights a controversial effort to curb Lyme disease by genetically modifying wild mice. Researchers, led by MIT’s Kevin
www.lymedisease.org
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lymenews.bsky.social
LymeDisease.org @lymenews.bsky.social · 15d
Singer-songwriter Jesse Ruben has released “Monster,” a raw and powerful new single born from his years battling Lyme disease.

Learn the story behind the music and listen to the song.

READ MORE www.lymedisease.org/jesse-rubens...
Jesse Ruben’s “Monster” tells the story Lyme patients know all too well | LymeDisease.org
Ten years ago, singer-songwriter Jesse Ruben was desperately ill with Lyme disease—wracked with pain, clouded by brain fog, and battling depression. In
www.lymedisease.org
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lymenews.bsky.social
LymeDisease.org @lymenews.bsky.social · 21d
From the Center for Lyme Action:

The House Appropriations Committee has approved $17.5M in new funding for Lyme disease, alpha-gal, and other tick-borne diseases.

READ MORE: www.lymedisease.org/house-approp...
House committee approves $17.5M in new funding for tick-borne diseases | LymeDisease.org
From the Center for Lyme Action: In good news, we are excited to announce that the House Appropriations Committee has approved the following increases for
www.lymedisease.org
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lymenews.bsky.social
LymeDisease.org @lymenews.bsky.social · 22d
Two years ago, a task force of 17 scientists, physicians, and public health experts submitted a comprehensive plan to New York State.

It outlined urgent steps to address the surge in Lyme & other tick-borne diseases.

But the report was never released.

READ MORE www.lymedisease.org/pfeiffer-nys...
New York has a plan to combat Lyme disease. Why is it still buried? | LymeDisease.org
If you care about improving the lives of Lyme patients and protecting public health, you’ll want to read Mary Beth Pfeiffer’s latest exposé.
www.lymedisease.org
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lymenews.bsky.social
LymeDisease.org @lymenews.bsky.social · 22d
A growing tick-borne threat is now on West Virginia’s radar.

Healthcare providers across the state are now required to report cases of alpha-gal syndrome—a serious allergic condition triggered by lone star tick bites.

READ MORE www.lymedisease.org/west-virgini...
West Virginia makes alpha-gal syndrome a reportable condition | LymeDisease.org
West Virginia has become the most recent state to make alpha-gal syndrome (AGS) a reportable condition This means healthcare providers and laboratories
www.lymedisease.org
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lymenews.bsky.social
LymeDisease.org @lymenews.bsky.social · 22d
Lyme disease is on the rise in North Carolina—and ticks are on the move.

A new study reveals that blacklegged ticks, the primary carriers of Lyme, are expanding into the western part of the state, including the Blue Ridge Mountains.

READ MORE www.lymedisease.org/tick-study-n...
Lyme-infected ticks are expanding across western North Carolina | LymeDisease.org
From the University of North Carolina at Greensboro: North Carolina is experiencing a surge in Lyme disease cases, and a new surveillance study from UNC
www.lymedisease.org
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lymenews.bsky.social
LymeDisease.org @lymenews.bsky.social · 22d
Babesia—a stealthy co-infection often delivered by the same tick as Lyme—can quietly sabotage recovery if left untreated.

In a new article for NDNR, Lyme specialist Dr. Alexis Chesney breaks down how to spot it, treat it, and why it matters.

READ MORE www.lymedisease.org/is-babesia-b...
Is Babesia blocking your recovery from Lyme disease? | LymeDisease.org
Lyme disease is increasingly being recognized as a complex chronic illness, often tangled up with co-infections and overlapping conditions that make it
www.lymedisease.org
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lymenews.bsky.social
LymeDisease.org @lymenews.bsky.social · 22d
This week, Yolanda Hadid shared a raw and powerful tribute to her daughter Bella’s struggle with chronic Lyme disease.

For families living with tick-borne illness, her words feel achingly familiar—and profoundly validating.
READ MORE www.lymedisease.org/yolanda-inst...
Yolanda Hadid writes of the "unknown hell" of Bella’s Lyme battle | LymeDisease.org
This week, Yolanda Hadid—once a fixture in the fashion world, now a Lyme advocate and mother to internationally acclaimed model Bella Hadid—shared a
www.lymedisease.org
lymenews.bsky.social
LymeDisease.org @lymenews.bsky.social · Sep 10
When chronic Lyme meets long COVID, the gut often takes the hardest hit.
READ Latest LYME SCI blog from Lonnie Marcum on how to begin healing the gut. www.lymedisease.org/recovery-fro...
Recovery from Lyme and long COVID begins in the gut | LymeDisease.org
The human body is made up of many systems, all working together to keep us healthy. If one system falls out of balance, it can disrupt the others, and our
www.lymedisease.org
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lymenews.bsky.social
LymeDisease.org @lymenews.bsky.social · Sep 10
Got Lyme? Enroll in MyLymeData to share your experiences with researchers seeking a cure.
Enroll Today: mylymedata.org
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lymenews.bsky.social
LymeDisease.org @lymenews.bsky.social · Sep 5
If you’ve felt dismissed, sidelined, or silenced—this is your moment to rise.

Stand with us. Power the movement. Amplify the call for justice and a cure. Together, we’re reshaping the future of Lyme disease.

JOIN US TODAY lymedisease.org/members/join...
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lymenews.bsky.social
LymeDisease.org @lymenews.bsky.social · Sep 5
From research to relief: A new fund is helping turn scientific breakthroughs into real-world tools for early detection and treatment of Lyme disease. lymedisease.org/bay-area-lym... via
@BayAreaLyme
Bay Area Lyme Foundation launches first tick-borne venture fund | LymeDisease.org
The Bay Area Lyme Foundation has announced the launch of Bay Area Lyme Ventures, a new impact fund designed to fast-track promising diagnostics and
lymedisease.org
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lymenews.bsky.social
LymeDisease.org @lymenews.bsky.social · Sep 5
Maine on track for record number of Lyme cases amid longer tick seasons. www.newscentermaine.com/article/news... via @newscentermaine.bsky.social
Maine on track for record number of Lyme cases amid longer tick seasons
Lyme disease cases in Maine are nearing record highs, with nearly 2,800 cases reported already this year.
www.newscentermaine.com
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lymenews.bsky.social
LymeDisease.org @lymenews.bsky.social · Sep 5
20 years misdiagnosed, 5 years in remission. She's written a book seeking to uplift others who are still in the struggle.
READ MORE: I survived Lyme. I remember the fear. You are not alone. www.lymedisease.org/20-years-mis...
I survived Lyme. I remember the fear. You are not alone. | LymeDisease.org
By Jana Steck I am a Lyme warrior, five years into remission, with a calling to help others still in the midst of their battle to feel a little less
www.lymedisease.org
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