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LymeDisease.org @lymenews.bsky.social · 6d

“There’s something wrong here, doctor, and I don’t know what it is…

But there’s a monster in my body and it’s living in my limbs…"

Listen to @jesseruben's new song HERE. www.lymedisease.org/jesse-rubens...

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LymeDisease.org @lymenews.bsky.social · 6d

A British journalist chronicles his young daughter’s long, painful descent into what turned out to be Lyme disease--and the medical system’s failure to recognize what was happening to her.

READ MORE www.lymedisease.org/how-did-we-m...

"How did we miss it?" A journalist’s search for his daughter’s diagnosis | LymeDisease.org

Patrick Barkham, a respected British journalist and nature writer, has written a deeply personal and powerful piece in The Guardian about his daughter

www.lymedisease.org

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LymeDisease.org @lymenews.bsky.social · 6d

When antibiotics and antivirals fall short, patients and practitioners start asking: what else is out there?

Maria Marian, ND, gives details about a cutting-edge therapy that’s stirring hope—and controversy—in the world of chronic Lyme.

READ MORE www.lymedisease.org/sot-lyme-tre...

SOT therapy for Lyme is experimental, expensive—and full of potential. | LymeDisease.org

Part One of a two-part series. By Maria Marian, ND, MSE For many people facing chronic infections such as Lyme disease, Epstein–Barr virus (EBV), herpes

www.lymedisease.org

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LymeDisease.org @lymenews.bsky.social · 11d

Mast cell activation syndrome affects many people with Lyme disease. Did you know it can contribute to "female problems" as well? Dr. Tania Dempsey explains. drtaniadempsey.com/mcas-symptom... via @DrTaniaDempsey

MCAS symptoms “down there” with Dr. Tania Dempsey

MCAS doesn’t ignore the nether-regions, so in this episode, Dr. Dempsey discusses symptoms and treatments in the genitourinary and surrounding areas, including some novel uses of antihistamines and ma...

drtaniadempsey.com

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LymeDisease.org @lymenews.bsky.social · 13d

Tick-borne alpha-gal syndrome, otherwise known as the red meat allergy, is on the rise across the United States.

Two new continuing medical education courses—one from the CDC and one from VectorWise CME—aim to boost clinician awareness and training.

READ MORE www.lymedisease.org/alpha-gal-tr...

Two new CME courses aim to close alpha-gal syndrome knowledge gap | LymeDisease.org

As alpha-gal syndrome (AGS) continues to rise across the United States, two new continuing medical education (CME) courses—one from the CDC and one from

www.lymedisease.org

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LymeDisease.org @lymenews.bsky.social · 13d

At New York Fashion Week, Project Lab Coat turned the spotlight on Lyme disease—and the people fighting it—with fierce fashion and unforgettable purpose.

Journalist Mary Beth Pfeiffer describes what it was like--and how it came to be.

READ MORE www.lymedisease.org/walked-fashi...

I walked the fashion runway for Lyme—alongside scientists, stars, and survivors | LymeDisease.org

Reprinted by permission of the Rescue substack. By Mary Beth Pfeiffer Magic happened for a far-flung group of scientists, doctors, pop stars, advocates,

www.lymedisease.org

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LymeDisease.org @lymenews.bsky.social · 13d

Two authors of the report, retired Air Force Colonel and Lyme advocate Nicole Malachowski and infectious disease physician and researcher Dr. Kent Kester, shed light not only on the significance of the report but also on the road ahead.
READ MORE www.lymedisease.org/nasem-malach...

PODCAST: National Academies report opens a new chapter in Lyme research | LymeDisease.org

By Fred Diamond Lyme awareness got a major boost recently with the publication of the new National Academies of Sciences, Engineering, and Medicine

www.lymedisease.org

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LymeDisease.org @lymenews.bsky.social · 13d

A recent @60minutes.bsky.social Minutes report highlights a controversial effort to curb Lyme disease by genetically modifying wild mice.

The project is still in the research phase and raises ethical and ecological questions.

WATCH THE FULL SEGMENT HERE www.lymedisease.org/engineered-m...

Can genetically engineered mice stop Lyme? And at what cost? | LymeDisease.org

A recent 60 Minutes report highlights a controversial effort to curb Lyme disease by genetically modifying wild mice. Researchers, led by MIT’s Kevin

www.lymedisease.org

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LymeDisease.org @lymenews.bsky.social · 13d

Singer-songwriter Jesse Ruben has released “Monster,” a raw and powerful new single born from his years battling Lyme disease.

Learn the story behind the music and listen to the song.

READ MORE www.lymedisease.org/jesse-rubens...

Jesse Ruben’s “Monster” tells the story Lyme patients know all too well | LymeDisease.org

Ten years ago, singer-songwriter Jesse Ruben was desperately ill with Lyme disease—wracked with pain, clouded by brain fog, and battling depression. In

www.lymedisease.org

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LymeDisease.org @lymenews.bsky.social · 20d

From the Center for Lyme Action:

The House Appropriations Committee has approved $17.5M in new funding for Lyme disease, alpha-gal, and other tick-borne diseases.

READ MORE: www.lymedisease.org/house-approp...

House committee approves $17.5M in new funding for tick-borne diseases | LymeDisease.org

From the Center for Lyme Action: In good news, we are excited to announce that the House Appropriations Committee has approved the following increases for

www.lymedisease.org

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LymeDisease.org @lymenews.bsky.social · 20d

Two years ago, a task force of 17 scientists, physicians, and public health experts submitted a comprehensive plan to New York State.

It outlined urgent steps to address the surge in Lyme & other tick-borne diseases.

But the report was never released.

READ MORE www.lymedisease.org/pfeiffer-nys...

New York has a plan to combat Lyme disease. Why is it still buried? | LymeDisease.org

If you care about improving the lives of Lyme patients and protecting public health, you’ll want to read Mary Beth Pfeiffer’s latest exposé.

www.lymedisease.org

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LymeDisease.org @lymenews.bsky.social · 20d

A growing tick-borne threat is now on West Virginia’s radar.

Healthcare providers across the state are now required to report cases of alpha-gal syndrome—a serious allergic condition triggered by lone star tick bites.

READ MORE www.lymedisease.org/west-virgini...

West Virginia makes alpha-gal syndrome a reportable condition | LymeDisease.org

West Virginia has become the most recent state to make alpha-gal syndrome (AGS) a reportable condition This means healthcare providers and laboratories

www.lymedisease.org

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LymeDisease.org @lymenews.bsky.social · 20d

Lyme disease is on the rise in North Carolina—and ticks are on the move.

A new study reveals that blacklegged ticks, the primary carriers of Lyme, are expanding into the western part of the state, including the Blue Ridge Mountains.

READ MORE www.lymedisease.org/tick-study-n...

Lyme-infected ticks are expanding across western North Carolina | LymeDisease.org

From the University of North Carolina at Greensboro: North Carolina is experiencing a surge in Lyme disease cases, and a new surveillance study from UNC

www.lymedisease.org

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LymeDisease.org @lymenews.bsky.social · 20d

Babesia—a stealthy co-infection often delivered by the same tick as Lyme—can quietly sabotage recovery if left untreated.

In a new article for NDNR, Lyme specialist Dr. Alexis Chesney breaks down how to spot it, treat it, and why it matters.

READ MORE www.lymedisease.org/is-babesia-b...

Is Babesia blocking your recovery from Lyme disease? | LymeDisease.org

Lyme disease is increasingly being recognized as a complex chronic illness, often tangled up with co-infections and overlapping conditions that make it

www.lymedisease.org

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LymeDisease.org @lymenews.bsky.social · 20d

This week, Yolanda Hadid shared a raw and powerful tribute to her daughter Bella’s struggle with chronic Lyme disease.

For families living with tick-borne illness, her words feel achingly familiar—and profoundly validating.
READ MORE www.lymedisease.org/yolanda-inst...

Yolanda Hadid writes of the "unknown hell" of Bella’s Lyme battle | LymeDisease.org

This week, Yolanda Hadid—once a fixture in the fashion world, now a Lyme advocate and mother to internationally acclaimed model Bella Hadid—shared a

www.lymedisease.org

LymeDisease.org @lymenews.bsky.social · Sep 10

When chronic Lyme meets long COVID, the gut often takes the hardest hit.
READ Latest LYME SCI blog from Lonnie Marcum on how to begin healing the gut. www.lymedisease.org/recovery-fro...

Recovery from Lyme and long COVID begins in the gut | LymeDisease.org

The human body is made up of many systems, all working together to keep us healthy. If one system falls out of balance, it can disrupt the others, and our

www.lymedisease.org

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LymeDisease.org @lymenews.bsky.social · Sep 10

Got Lyme? Enroll in MyLymeData to share your experiences with researchers seeking a cure.
Enroll Today: mylymedata.org

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LymeDisease.org @lymenews.bsky.social · Sep 5

If you’ve felt dismissed, sidelined, or silenced—this is your moment to rise.

Stand with us. Power the movement. Amplify the call for justice and a cure. Together, we’re reshaping the future of Lyme disease.

JOIN US TODAY lymedisease.org/members/join...

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LymeDisease.org @lymenews.bsky.social · Sep 5

From research to relief: A new fund is helping turn scientific breakthroughs into real-world tools for early detection and treatment of Lyme disease. lymedisease.org/bay-area-lym... via
@BayAreaLyme

Bay Area Lyme Foundation launches first tick-borne venture fund | LymeDisease.org

The Bay Area Lyme Foundation has announced the launch of Bay Area Lyme Ventures, a new impact fund designed to fast-track promising diagnostics and

lymedisease.org

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LymeDisease.org @lymenews.bsky.social · Sep 5

Maine on track for record number of Lyme cases amid longer tick seasons. www.newscentermaine.com/article/news... via @newscentermaine.bsky.social

Maine on track for record number of Lyme cases amid longer tick seasons

Lyme disease cases in Maine are nearing record highs, with nearly 2,800 cases reported already this year.

www.newscentermaine.com

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LymeDisease.org @lymenews.bsky.social · Sep 5

20 years misdiagnosed, 5 years in remission. She's written a book seeking to uplift others who are still in the struggle.
READ MORE: I survived Lyme. I remember the fear. You are not alone. www.lymedisease.org/20-years-mis...

I survived Lyme. I remember the fear. You are not alone. | LymeDisease.org

By Jana Steck I am a Lyme warrior, five years into remission, with a calling to help others still in the midst of their battle to feel a little less

www.lymedisease.org

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LymeDisease.org @lymenews.bsky.social · Sep 5

ACTION ALERT: Support 5 tick-borne disease bills in Congress. Your voice matters! www.lymedisease.org/support-5-ho...

ACTION ALERT: Support 5 tick-borne disease bills in Congress | LymeDisease.org

From the Center for Lyme Action: With five active tick-borne disease bills in the House of Representatives, we need all hands on deck to make sure these

www.lymedisease.org

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LymeDisease.org @lymenews.bsky.social · Sep 5

The immune system is particularly affected by microplastic exposure. Bisphenol A disrupts immune function, making it harder to fight infections while increasing autoimmune disease risk. gordonmedical.com/microplastic...

Microplastics: An Emerging Health Crisis

Microplastics is a term that has only recently become highlighted in mainstream health and wellness media, and emerging research suggests it may be one of the biggest threats to human health we're cur...

gordonmedical.com

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LymeDisease.org @lymenews.bsky.social · Sep 5

“You may be surprised to learn that the microbiome influences the course of most chronic diseases!"

MEDICAL DETECTIVE: Diseases Associated with Microbiome Abnormalities, Part 2 medicaldetective.substack.com/p/diseases-a...

Diseases Associated with Microbiome Abnormalities, Part 2

Part 1 of this microbiome series discussed what’s in your microbiome, and its importance regarding metabolism, immunity (fighting infections and cancer), as well as its essential role in modulating in...

medicaldetective.substack.com

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LymeDisease.org @lymenews.bsky.social · Sep 5

Protect your performance by protecting your health. Learn how one tick bite forced an NFL legend to completely change his diet and training. Stay informed, stay prepared, and keep fueling your body the right way. www.si.com/everyday-ath...

NFL Legend Jared Allen’s Tick Bite Diagnosis Every Athlete Needs to Know About

When a Tick Changes the Game: Jared Allen's Battle with Alpha-Gal Syndrome Most athletes know the importance of diet when it comes to peak performance; what you

www.si.com

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