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Physios For ME @physiosforme.bsky.social · 7h

Further information on our newest paper can be found here:

physiosforme.com/hr-monitor-p...

(end)

Physios For ME @physiosforme.bsky.social · 7h

We worked with a great team:
@sunsopeningband.bsky.social Harry Leeming and patient experts. Collaboration with the ME community has been central to all our research projects - we learn from the best!

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Physios For ME @physiosforme.bsky.social · 7h

89% were still using heart rate monitors after 8 weeks, and 66% after 6 months.

No significant drop in activity level after the introduction of heart rate monitors, which appears to contradict concerns that this method of pacing will cause people to become over cautious.

(3)

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Physios For ME @physiosforme.bsky.social · 7h

As this is a feasibility study, no conclusions can be drawn about the data itself; the outcome is whether this protocol is feasible.

Key points found:

The protocol (using home-based testing) was feasible with no adverse events

(2)

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Physios For ME @physiosforme.bsky.social · 7h

We've had another study published 🥳

"Pacing with a heart rate monitor for people with myalgic encephalomyelitis/chronic fatigue syndrome and long COVID: a feasibility study"

Open access link here. Summary below (1)
www.tandfonline.com/doi/full/10....

Taylor & Francis Online: Peer-reviewed Journals

Search and explore the millions of quality, peer-reviewed journal articles published under the Taylor & Francis, Routledge and Dove Medical Press imprints.

tandfonline.com

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Physios For ME @physiosforme.bsky.social · Sep 7

I will try and see what I can find out tomorrow when I can log in 🧐

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Physios For ME @physiosforme.bsky.social · Sep 1

Pleased to have assisted @thecsp.bsky.social to write this piece for their magazine, which goes out to all chartered physiotherapists in the UK.

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Physios For ME @physiosforme.bsky.social · Aug 8

Severe ME is particularly challenging because even your physical presence with a patient may cause worsening symptoms.

Physios can have a role in pain and posture management but this must be from a place of understanding of the condition.

@thecsp.bsky.social

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Physios For ME @physiosforme.bsky.social · Aug 8

It is #SevereMEDay

Physios in any specialism may meet people (adults or children) with severe ME during a hospital admission.

We can play a key role in education of other health professionals, to advocate for safe management and care

@thecsp.bsky.social

www.physiosforme.com/severe-me

Severe ME | Physiosforme

www.physiosforme.com

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Reposted by Physios For ME

Dr Nicola Clague-Baker @claguenjc36.bsky.social · Jun 29

Just saw this in the physio frontline journal! All advocacy is important however small! Thanks @thecsp.bsky.social @physiosforme.bsky.social

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Reposted by Physios For ME

Dr Nicola Clague-Baker @claguenjc36.bsky.social · Jun 29

youtu.be/vv0pUwoF9J0?si…
Well done @michelleb4.bsky.social you represented @physiosforme.bsky.social so well. Some grea#MEME talks, well done all at the ME/CFS conference, digging deeper - Norway.

Michelle Bull - Living with ME/CFS and Long Covid - Managing symptoms (Norwegian subtitles)

YouTube video by Norges ME-forening - Rogaland Fylkeslag

https://youtu.be/vv0pUwoF9J0?si…

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Physios For ME @physiosforme.bsky.social · Jun 29

One of us is an avid player of lawn bowls
One of us attends a punk/rock festival annually
One of us has published four horror novels
One of us goes to France every year to cycle up mountains (slowly)

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Physios For ME @physiosforme.bsky.social · Jun 29

It's our six year anniversary!

To celebrate, the four of us spent a lovely weekend together, plotting and planning what our seventh year will look like.

You can read a whole recap of our year in our latest blog post here
www.physiosforme.com/post/we-cele...

We celebrate our six year anniversary

It is now six years since the formation of Physios for ME, when four physiotherapists with a shared goal – to improve physiotherapy care for people with ME – got together online, gave ourselves a name...

www.physiosforme.com

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Physios For ME @physiosforme.bsky.social · Jun 3

Well done for @claguenjc36.bsky.social for getting 3 abstracts accepted at @thecsp.bsky.social conference. Taking every opportunity to educate physios in the care and management of people with #ME

Dr Nicola Clague-Baker @claguenjc36.bsky.social · Jun 3

Pleased to have 3 abstracts accepted for the Chartered Society of Physiotherapy conference in Nov. Thanks @thecsp.bsky.social @physiosforme.bsky.social

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Reposted by Physios For ME

DrMichelleBull💙 @michelleb4.bsky.social · May 15

Feel very privileged to have spent time with @putrinolab.bsky.social & others in the last week discussing actual evidence based robust science relating to ME and Long Covid. There is no room for this sort of nonsense @bmj_latest

Boo-trino Lab @putrinolab.bsky.social · May 15

Quite disheartening to return from 10 days working with some of the most important and relevant #MECFS and #LongCOVID researchers in the world and to read this drivel being allowed through from @bmj_latest. Let's be unambiguous about this: BMJ has

www.bmj.com/content/389/...

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Patients with severe ME/CFS need hope and expert multidisciplinary care

Reframing beliefs about illness, along with specialist rehabilitation, can help recovery in people with severe ME/CFS, write Alastair Miller, Fiona Symington, Paul Garner, and Maria Pedersen Myalgic...

www.bmj.com

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Physios For ME @physiosforme.bsky.social · May 12

You might need to try this link instead

www.physiosforme.com/onesheetprin...

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Physios For ME @physiosforme.bsky.social · May 12

Thank you for flagging

www.physiosforme.com/onesheetprin...

Does this one work?

One sheet printout | Physiosforme

www.physiosforme.com

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Reposted by Physios For ME

ME Association @meassociation.org.uk · May 12

. @meactionuk.bsky.social @actionforme.bsky.social
@longcovidkids.bsky.social @physiosforme.bsky.social
@longcovidadvoc.com @longcovidphysio.bsky.social
@longcovidsupport.bsky.social

ME Association @meassociation.org.uk · May 12

Today, on World ME Day, we stand with all those affected by ME to deliver a simple message to the UK government.

@joplatt.bsky.social @eddavey.libdems.org.uk @tessamunt.bsky.social

Read the joint statement: meassociation.org.uk/nsts

#WorldMEDay #MEAwarenessWeek2025

At the top is the text "World ME Day 2025" on a vibrant orange background. Below, text reads: "After generations of neglect and empty promises, now is the time for action." Underneath, there is a collection of logos from various ME/CFS, fibromyalgia, and Long COVID advocacy groups, including #ME Action UK; #ThereForME; Action for ME; Cambridge ME Group; Crunch ME; Hope 4 ME & Fibro Northern Ireland; Kirklees & Calderdale IMESG; Long Covid Nurses & Midwives UK); The ME Association; ME Local Groups Network UK; MERC PAG; Not Recovered UK; Oxfordshire ME Group for Action; Physios for M.E.; Tymes Trust; The 25% ME Group; Keyworker Petition UK; Long Covid Advocacy; Long Covid Physio; Long Covid Scotland; Long Covid Support; ME positive; Sheffield ME & Fibromyalgia Group; Walsall Fibro M.E. Support; Bury & Bolton ME/CFS & Fibromyalgia Support Group; ME/CFS Friendship Group in Gloucestershire; and ME Group Staffordshire.. Below, a dark blue banner reads "JOINT STATEMENT" in white capitals.

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Physios For ME @physiosforme.bsky.social · May 12

Finally, on #MEAwarenessDay we'd like to emphasize the importance of learning about ME to physiotherapists and other healthcare professionals

And to #pwME we'd like to offer our continued support and let you know that you have a dedicated team on your side 💜

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Physios For ME @physiosforme.bsky.social · May 12

And of course here's some information about our book, which provides more detailed evidence based material to help you understand more about safe management of people with ME

#MEAwarenessDay

www.physiosforme.com/our-book

Our Book | Physiosforme

www.physiosforme.com

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Physios For ME @physiosforme.bsky.social · May 12

Here are seven slides that give a basic overview of ME and relevant issues for health professionals

#MEAwarenessDay

t.co/X9eVenALoX

https://www.physiosforme.com/seven-slides-for-physios

t.co

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Physios For ME @physiosforme.bsky.social · May 12

Here is a one page handout to help identify areas of any practice that might need to be adapted to work safely with people with ME

physiosforme.com/onesheetprinto…#MEAwarenessDayay

https://physiosforme.com/onesheetprinto…

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Physios For ME @physiosforme.bsky.social · May 12

On #MEAwarenessDay we encourage all physiotherapists and other allied health professionals to take a moment to learn about this condition, as it is relevant no matter what speciality you work in.

We have some resources to help...

@thecsp.bsky.social @thercot.bsky.social

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Physios For ME @physiosforme.bsky.social · May 12

Today is #MEAwarenessDay

We've published a blog with some updates of our recent activities.

www.physiosforme.com/post/world-m...

World ME Day 2025

Today is World ME Day. Physios for ME continue to strive for improved awareness, education and care for people with ME, and we've had a busy few months.We are proud to support the There for ME campaig...

www.physiosforme.com

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Reposted by Physios For ME

DrMichelleBull💙 @michelleb4.bsky.social · May 11

Just back from a wonderful week in Norway
for the @meforeningen.bsky.social Digging Deeper conference & took the opportunity to ride my bike somewhere a bit different.
Fantastic to meet @putrinolab.bsky.social
@bmhughes.bsky.social in person along with others who I can't find to tag
...1/3

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