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meassociation.org.uk
ME Association
@meassociation.org.uk
700 followers 140 following 1.1K posts
A UK registered charity for people with #MECFS and Long Covid (and Post Covid ME/CFS). We inform, educate, raise awareness, fund medical research and campaign for positive change.

RPs do not necessarily mean endorsement.

https://linktr.ee/meassociation
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meassociation.org.uk
ME Association @meassociation.org.uk · 7d
We’re taking part in Big Give’s #ChristmasChallenge from 2–9 December; every donation you make to the ME Association will be DOUBLED by Big Give!

Donate here: https://meassociation.org.uk/BigGive2025

#MECFS #MyalgicEncephalomyelitis #LongCovid #BigGive2025 #WhenRestIsntEnough #DoubleYourDonation
IMAGE DESCRIPTION: Photo of 2 Christmas trees. Wording reads: You donate. We double it. 2-9 December only.
meassociation.org.uk
Germany: Nature: Long-COVID research just got a big funding boost: will it find new treatments?

"The German government has committed half a billion euros for research on long COVID and other post-infection syndromes." 

Read more: https://www.nature.com/articles/d41586-025-03904-w 

#LongCovid
Long-COVID research just got a big funding boost: will it find new treatments?
The German government has committed half a billion euros for research on long COVID and other post-infection syndromes.
www.nature.com
December 9, 2025 at 1:32 PM
meassociation.org.uk
There’s only 1 hour left to give money to fund a new research project into Post Exertional Malaise – The BigGive Christmas Challenge closes at 12 midday today.

Please consider giving whatever you can, & help us crack PEM. https://meassociation.org.uk/BigGive2025

#LastChance #Donate #MECFS #PEM
December 9, 2025 at 11:03 AM
meassociation.org.uk
ME Research UK: Planned NHS Specialist ME/CFS Services in Scotland

Rhoda Grant MSP (with assistance from MERUK) has asked for more details via FOI requests from the Boards in her constituency. MERUK have made requests to the remaining 11 NHS Boards.

www.meresearch.org.uk/planned-nhs-...
IMAGE DESCRIPTION: An image of a doctor with a patient with a circular image of the Scottish flag. Title: MERUK: Planned NHS Specialist ME/CFS Services in Scotland
December 9, 2025 at 10:24 AM
meassociation.org.uk
ME Connect (helpline & email service) is available via our freephone number to offer support and information.

** Freephone number - 0808 801 0484 **

You can also email us at meconnect@meassociation.org.uk

#pwME #MECFS #MyalgicE  #Helpline #MEConnect
December 8, 2025 at 4:30 PM
meassociation.org.uk
ATTENTION: There’s only 1 DAY LEFT to donate to our BigGive Christmas Challenge!

Donate before 12 midday tomorrow, and your contribution will help to further understanding of this debilitating yet under-researched disease. 

https://meassociation.org.uk/BigGive2025 

#MECFS #1DayLeft #pwME
IMAGE DESCRIPTION: Illustration of an alarm clock ringing. Wording reads: Only 1 day left to donate to the BigGive Christmas Challenge. MEA and BigGive Christmas Challenge logos in bottom corners.
December 8, 2025 at 3:30 PM
meassociation.org.uk
1/2: In 2025, the MEA Board commissioned an independent governance review to assess how effectively the charity’s structures, leadership arrangements, and working practices support its mission—and to identify changes required to ensure sustainability, accountability, and organisational clarity.
IMAGE DESCRIPTION: Photo showing a blackboard with little tiles representing people, and lines between them, showing an organisational chart. Small photo of David Allen, MEA Interim Chairman. Heading - The ME Association – Governance Review Update and Divisional Structure proposal
December 8, 2025 at 2:37 PM
meassociation.org.uk
Medical Matters – Dorsal Root Ganglionitis

Q: What is Dorsal Root Ganglionitis? And what, if anything, do post-mortem studies say about its relevance to ME/CFS?
A: https://tinyurl.com/3sr4ju6h

#MECFS #MyalgicEncephalomyelitis #DorsalRootGanglionitis
IMAGE DESCRIPTION: Photo of Dr Charles Shepherd with the following text below in a bubble: What is Dorsal Root Ganglionitis? And what, if anything, do post-mortem studies say about its relevance to ME/CFS? Please click the link to read the answer in the Medical Matters database. Medical Matters logo.
December 8, 2025 at 1:30 PM
meassociation.org.uk
This December, give a gift with a ‘fa-la-la-la-lasting’ impact!

Please give generously so we can fund research into understanding ME/CFS – helping the 400,000+ people living with it in the UK today. 

https://meassociation.org.uk/BigGive2025

#MyalgicEncephalomyelitis #PEM #BigGive2025 #MECFS
December 8, 2025 at 11:15 AM
meassociation.org.uk
ME affects around 400,000 people in the UK; stealing their energy, independence and derailing their future.

Your donation could help unlock answers that lead to better treatments & understanding.

https://meassociation.org.uk/BigGive2025

#MECFS #LongCovid #BigGive2025 #Research #Donate
December 7, 2025 at 12:10 PM
meassociation.org.uk
You only have 3 days left to donate to the BigGive Christmas challenge!

Don’t miss out on donating to fund vital research into Post-Exertional Malaise (PEM).

https://meassociation.org.uk/BigGive2025

#MyalgicEncephalomyelitis #LongCovid #BigGive2025 #ChristmasChallenge #Donate
December 6, 2025 at 12:10 PM
meassociation.org.uk
1/3: GOV UK: Fraudsters face tougher action as Government gains new powers to tackle benefit fraud

Campaigners are worried about the DWP's new powers to see benefit claimant's bank information and remove funds - as many conditions including ME/CFS and Long Covid may be fluctuating(term used by DWP)
December 5, 2025 at 3:59 PM
meassociation.org.uk
The Sick Times: “Not Recovered” protest for Long COVID, ME, and related diseases takes over The Hague

https://thesicktimes.org/2025/12/02/not-recovered-protest-for-long-covid-me-and-related-diseases-takes-over-the-hague/

#MECFS #pwME #LongCovid
“Not Recovered” protest for Long COVID, ME, and related diseases takes over The Hague - The Sick Times
Demonstrations for post-acute infection syndromes including Long COVID, Lyme, and myalgic encephalomyelitis (ME) took place on November 30 in The Hague, Netherlands as a part of the #HetPAISProtest led by the group #NietHersteld (Not Recovered).
thesicktimes.org
December 5, 2025 at 3:12 PM
meassociation.org.uk
There’s ‘snow’ time like the present to donate to our BigGive Christmas Challenge!

All donations will go towards a groundbreaking new study into Post-Exertional Malaise (PEM).

https://meassociation.org.uk/BigGive2025

#MECFS #LongCovid #pwME #PEM #BigGive2025 #ChristmasChallenge
December 5, 2025 at 10:36 AM
meassociation.org.uk
Write to your MP – Encourage them to attend the next APPG meeting – 10th December 2025

We've provided a template letter here: https://meassociation.org.uk/qawa 

#APPG #APPGOnME #pwME #MECFS
December 4, 2025 at 5:11 PM
meassociation.org.uk
ME/CFS steals energy in a way science still doesn’t fully understand - you can help us change that.

From 2–9 December, every donation to the MEA through the BigGive Christmas Challenge will be doubled — funding life-changing research into ME/CFS.

https://meassociation.org.uk/BigGive2025
IMAGE DESCRIPTION: Photo of a young woman lying on her bed, staring into space. Wording reads: Let's crack PEM together. MEA and BigGive Christmas Challenge logos in bottom corners.
December 4, 2025 at 4:10 PM
meassociation.org.uk
Mast Cell Action have produced a new summary booklet on Mast Cell Activation Syndrome, covering mast cells, MCAS symptoms, triggers, management, treatment and the histamine bucket theory.

Download the booklet to read more: https://tinyurl.com/238jv3th

#MCAS #MastCells #MECFS #LongCovid
IMAGE DESCRIPTION: Photo of a person with a red neck that they are scratching. Photo of someone holding a booklet. Heading - Download Mast Cell Action’s new booklet on MCAS. Mast Cell Action and ME Association logos
December 4, 2025 at 3:34 PM
meassociation.org.uk
BBC News article shares patient's anger over closure of Long Covid specialist service

The service, which is the only one covering Mid and South Essex, will close on the 28th of Feb and is no-longer taking new patients.

Read the article by searching on the BBC website.

#LongCovid #PostCovid
IMAGE DESCRIPTION: Photo of an empty GP waiting room. Heading - BBC News article shares patient’s anger over closure of Long Covid specialist service
December 4, 2025 at 1:45 PM
meassociation.org.uk
Parliamentary Question: Baroness Scott of Needham Market raised the following:

"To ask His Majesty's Government what assessment criteria they are using to assess the case for commissioning a specialised service for very severe [ME]"

Read the response: https://tinyurl.com/4z2re262

#MECFS #SevereME
IMAGE DESCRIPTION: Photo of Big Bet at the Houses of Parliament. Heading - Parliamentary question on assessment criteria used to assess case for commissioning specialised service for people with severe ME. ME Association logo
December 4, 2025 at 1:03 PM
meassociation.org.uk
ME/CFS is a life altering disease. 

Your support will fund crucial research into the energy crash in ME/CFS, & give hope to the 400,000+ with this devastating illness in the UK.

Donate now, & have your amount doubled! https://meassociation.org.uk/BigGive2025

#MECFS #MyalgicEncephalomyelitis #PEM
December 4, 2025 at 11:56 AM
meassociation.org.uk
Precision Life Press Release: Groundbreaking myalgic encephalomyelitis study identifies over 250 core genes, shared biology with long COVID, and dozens of drug repurposing opportunities

Read more: https://precisionlife.com/news-and-events/me-genetics-study

#MyalgicEncephalomyelitis #DecodeME
The most detailed genetic analysis of myalgic encephalomyelitis ever conducted
Groundbreaking ME study identifies 250+ genes, links with long COVID, and uncovers new drug repurposing opportunities to advance targeted treatments
precisionlife.com
December 4, 2025 at 11:16 AM
meassociation.org.uk
We're putting your donations towards a new research project, looking at what happens to muscle cells when a person with ME/CFS experiences PEM. This could potentially lead to breakthroughs & make way for a possible treatment to be developed.
 
 https://meassociation.org.uk/BigGive2025

#MECFS #PEM
IMAGE DESCRIPTION: Photo of Christmas presents underneath a tree. Wording reads: 'Donate to our BigGive Christmas Challenge and YULE be making a HUGE difference' MEA and BigGive Christmas Challenge logos bottom left.
December 3, 2025 at 2:46 PM
meassociation.org.uk
1/2: GOV Press Release: Almost every GP now offers online access for patients

"Patients at nearly all GP practices (98.7%) in England can now access their surgery online, thanks to government changes allowing patients to submit online consultation requests open during work hours..."

#pwME
IMAGE DESCRIPTION: Photo of a woman sat on the sofa, blowing her nose. She is looking at a laptop which shows a video call with a doctor wearing headphones. Heading - GOV Press Release: Almost every GP now offers online access for patients. ME Association logo.
December 3, 2025 at 12:05 PM
meassociation.org.uk
This week (2–9 December), every donation to the MEA through the BigGive Christmas Challenge will be DOUBLED - meaning your £10 becomes £20, your £50 becomes £100!

Donate now & help fund a new research study into PEM.

https://meassociation.org.uk/BigGive2025

#MECFS #BigGive2025 #ChristmasChallenge
December 3, 2025 at 10:45 AM
meassociation.org.uk
MP Tessa Munt emails the MEA regarding the DWP’s training guidance on ME/CFS

With permission, we have published their email correspondence on the blog: https://meassociation.org.uk/7i65

#pwME #MECFS #WelfareReforms
MP Tessa Munt emails the MEA regarding the DWP's training guidance on ME/CFS - The ME Association
Photo of Tessa Munt ©House of Commons/Roger Harris – image […]
meassociation.org.uk
December 2, 2025 at 3:31 PM
meassociation.org.uk
Here's Dave, one of our fundraisers, explaining why he supports the MEA and what our BigGive Christmas Challenge is all about.

Click to donate (all donations are DOUBLED at no extra cost to you!): https://meassociation.org.uk/BigGive2025 

#BigGive #BigGive2025 #ChristmasChallenge #pwME #MECFS
December 2, 2025 at 2:41 PM