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meassociation.org.uk
ME Association
@meassociation.org.uk
660 followers 140 following 810 posts
A UK registered charity for people with #MECFS and Long Covid (and Post Covid ME/CFS). We inform, educate, raise awareness, fund medical research and campaign for positive change. RPs do not necessarily mean endorsement. https://linktr.ee/meassociation
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meassociation.org.uk
ME Association @meassociation.org.uk · 10m
If you are a HCP who would like to receive the magazine, or if you would like to nominate your GP to be added to the magazine mailing list, you can do so here:
 
https://meassociation.org.uk/hcpr
 
You can now get a online version of the magazine if you are a HCP outside of the UK!
Health and Social Care: ME Medical - The ME Association
Sign up below to receive ME Medical, the free quarterly […]
meassociation.org.uk
meassociation.org.uk
ME Association @meassociation.org.uk · 10m
ME Medical is our quarterly magazine designed for healthcare professionals, featuring the latest news, research developments, and medical information on ME/CFS. The most recent issue included a copy of our ME/CFS Management poster.

#pwME #MECFS #MyalgicE #HealthcareProfessionals #MedicalEducation
IMAGE DESCRIPTION: Photo of the ME Medical Magazine poster, with the ME/CFS Management Infographic poster behind it. Wording - ME Medical, the magazine for healthcare professionals
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meassociation.org.uk
ME Association @meassociation.org.uk · 1h
#GiftAidAwarenessDay - 9th Oct 2025!

Please remember to click #GiftAid on donations, as the ME Association receives 25p more for every pound you donate.  

Donate: https://meassociation.org.uk/donate/

#pwME #MECFS #Fundraising #GiftAid #GAD #TickTheBox
IMAGE DESCRIPTION: Graphic of someone ticking a box. Heading - Remember to... tick the box. Gift Aid Awareness Day. All you have to do is ... #TickTheBox Image description: Graphic of a 'donation, with a plus sign and then a graphic representing 'tick the box', then an equals sign and then a gift box with the wording '25% extra'. Gift Adi. All you have to do is #TickTheBox. It doesn't cost you a penny extra to #TickTheBox and it will help us to help more.
meassociation.org.uk
ME Association @meassociation.org.uk · 2h
Survey: PEM

DSQ-PEM 2 Survey - DePaul University
www.dsqpem2.com
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meassociation.org.uk
ME Association @meassociation.org.uk · 2h
Survey: Can we reach consensus on an ME research case definition?

redcap.is.depaul.edu
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meassociation.org.uk
ME Association @meassociation.org.uk · 2h
Research Update: ME Research Case Definition Consensus Survey

"I would like to thank the patient community for their participation in our recent surveys... More than 4,000 individuals responded to the first survey, and over 600 to the second. "

https://meassociation.org.uk/t2u4

#MECFS #pwME
Research Update: ME Research Case Definition Consensus Survey - The ME Association
Professor Leonard A. Jason provides an update on the survey, […]
meassociation.org.uk
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meassociation.org.uk
ME Association @meassociation.org.uk · 23h
ME Association Christmas Cards are now available!

Support the work we do for the ME/CFS and Long Covid communities whilst also raising awareness by buying our 2025 Christmas cards - only £4.50 for a pack of 10!

Buy your cards here: https://meassociation.org.uk/product-category/christmas/

#pwME
IAMGE DESCRIPTION: Photo of someone holding a Christmas card with a night time village scene. Photo of someone holding a Christmas card with a colorful graphic of three people standing over the baby Jesus' manger. Photo of someone holding a Christmas card with a rainbow coloured Christmas tree and the wording 'Merry and Bright' at the top.
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meassociation.org.uk
ME Association @meassociation.org.uk · 1d
This comprehensive infographic post with expert information from Dr Charles Shepherd is designed to help healthcare professionals with the management of ME/CFS.

Download the infographic poster: https://meassociation.org.uk/movi

#MECFS
IMAGE DESCRIPTION: Zoomed in image of the infographic. Heading - ME/CFS Management Infographic.
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meassociation.org.uk
ME Association @meassociation.org.uk · 1d
Science Media Centre: Expert reaction to study of blood based diagnostic biomarkers for ME/CFS

Prof Chris Ponting said: “This test needs to be fully validated in better designed and independent studies before it is considered for clinical application.”

https://tinyurl.com/2jdm2nzw

#MECFS
IMAGE DESCRIPTION: Photo of blood vials on a rack. Heading - Science Media Centre: Expert reaction to study of blood based diagnostic biomarkers for ME/CFS
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meassociation.org.uk
ME Association @meassociation.org.uk · 1d
Dr Charles Shepherd, MEA Hon. Medical Adviser, has spoken with journalists and has been quoted in the some of the mainstream media articles that are covering this paper this morning.
meassociation.org.uk
ME Association @meassociation.org.uk · 1d
Blood test ‘can detect ME/CFS’, University of East Anglia (UEA) Researchers Claim

Dr Charles Shepherd comments: "These results, using epigenetic profiling, appear to be an important step forward in the search for a diagnostic blood test."

https://meassociation.org.uk/7bnj

#MECFS #pwME #MyalgicE
Blood test ‘can detect ME/CFS’, UEA Researchers Claim - The ME Association
Today a research paper entitled ‘Development and validation of blood-based […]
meassociation.org.uk
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meassociation.org.uk
ME Association @meassociation.org.uk · 1d
Updated Template Letter: Flu Vaccine (2025-26)

It's a personal choice whether to have the Flu vaccination. This template letter can help you obtain a free NHS Flu vaccination if you have ME/CFS and decide to have one.

Template Letter: https://meassociation.org.uk/iuhf

#MECFS #pwME #LongCovid #Flu
IMAGE DESCRIPTION: Photo of someone getting a vaccination. Photo of the Template Letter. Heading - Template letter: Flu Vaccine (2025-26)
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meassociation.org.uk
ME Association @meassociation.org.uk · 1d
We have reviewed a heavily redacted DWP training document on ME/CFS, released under the Freedom of Information Act.

Read more: https://meassociation.org.uk/s5dq

#MECFS #pwME #MyalgicE #TakingThePIP #WelfareReform
DWP Training Guidance on ME/CFS (FOI Redacted Document) - The ME Association
This document was obtained via a Freedom of Information request […]
meassociation.org.uk
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meassociation.org.uk
ME Association @meassociation.org.uk · 1d
Earlier this summer, the ME Association awarded Decode ME the 2025 Howes-Goudsmit Award for their extensive work and commitment to their genome-wide association study.

Donate the Decode ME: https://tinyurl.com/bdeek9ed

#MECFS #pwME
IMAGE DESCRIPTION: Photo of a DNA model. Heading - The ME Association awarded Decode ME the Howes Goudsmit Award 2025 Logos - ME Association, Decode ME, Howes Goudsmit Award
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meassociation.org.uk
ME Association @meassociation.org.uk · 2d
The ME Association is deeply concerned about proposed changes to disability benefits.

Our latest blog outlines how the ME Association is responding and our latest submission to the Work and Pensions Select Committee inquiry on disability and employment.

https://meassociation.org.uk/ns2h

#MECFS
Employment, Government policy and ME/CFS or Long Covid - The ME Association
The ME Association is engaging in ongoing campaign work regarding […]
meassociation.org.uk
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meassociation.org.uk
ME Association @meassociation.org.uk · 2d
The ME Connect helpline is open as usual to offer support and information. You can find the details and opening hours here:
ME Connect - The ME Association
The Support and Information Service for people affected by ME/CFS/PVFS and Long Covid. Telephone helpline and email and social media support.
meassociation.org.uk
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meassociation.org.uk
ME Association @meassociation.org.uk · 2d
The ME Association's head office are having new phones installed this morning. We will endeavor to answer call as best we can, but if you have any issues getting through, please try again later in the day or tomorrow.

#MECFS #pwME #MEAssociation
Wording - Head Office Reduced Phone Service Today. The MEA's head office are having new phones installed today. We will endeavor to answer call as best we can, but if you have any issues getting through, please try again later in the day or tomorrow.
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meassociation.org.uk
ME Association @meassociation.org.uk · 2d
Utilised by researchers across the UK, Europe, the Americas, and beyond, the Biobank has supported numerous studies, with findings widely published and cited—helping push ME/CFS science forward.

Find out more about the biobank:
The ME/CFS Biobank - The ME Association
The ME Association’s Ramsay Research Fund has been supporting the UK […]
meassociation.org.uk
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meassociation.org.uk
ME Association @meassociation.org.uk · 2d
The UK ME/CFS Biobank (UKMEB) is a world-renowned resource driving global research into ME/CFS, and the ME Association proudly funds all the basic annual running costs at the UKMEB. 

Watch the video: https://www.youtube.com/watch?v=dbgJ5gVxYNU

#MECFS #ResearchMatters #UKMEB #MEAssociation #CureME
About the UK ME/CFS Biobank (CureME Team)
About the UK ME/CFS Biobank (2025) The CureME team at the London School of Hygiene & Tropical Medicine (LSHTM) established the UKMEB with funding from the US...
www.youtube.com
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meassociation.org.uk
ME Association @meassociation.org.uk · 3d
The ME Association – Governance Review: Stage 1 Announcement Autumn 2025

The MEA have shared an announcement on the website regarding the independent governance review which the board commissioned in 2025.

Read the announcement here: https://meassociation.org.uk/0yhp

#MECFS #pwME #MEAssociation
The ME Association – Governance Review: Stage 1 Announcement Autumn 2025 - The ME Association
The ME Association (MEA) has grown significantly in recent years, […]
meassociation.org.uk
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meassociation.org.uk
ME Association @meassociation.org.uk · 3d
Following a series of successful social media posts, we have developed an A to Z poster showing the alphabet of common symptoms, experiences, and comorbidities of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS).

https://meassociation.org.uk/lk72 

#pwME #MECFS #MyalgicEncephalomyelitis
IMAGE DESCRIPTION: Background image of a woman lying on a bed in discomfort. In the foreground is a picture of the A-Z poster. Wording reads: New Literature: ME/CFS: A to Z Poster. MEA logo top right.
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meassociation.org.uk
ME Association @meassociation.org.uk · 3d
YAWN, a play written and performed by Hollie Christian-Brookes, highlights the emotional and physical toll of ME/CFS.

Get your tickets: https://lambethfringe.com/events/yawn-a-chronically-fatigued-play

#pwME #MECFS #MyalgicEncephalomyelitis #MEAssociation #YAWN
IMAGE DESCRIPTION: A scene from the play with a yellow frame. Title: YAWN. Wording: A chronically fatigued play. THE LAMBETH FRINGE. Weds 8th & 9th October @ 7pm Golden Goose Theatre Tickets £12/£10. Quote overlayed over the image - 'Funny and moving at the same time'
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meassociation.org.uk
ME Association @meassociation.org.uk · 5d
We have released an updated version of our flu information booklet for winter 2025/2026.

It's a personal choice whether to have the Flu vaccination and this booklet provides information that may help you to make that decision.

Download: https://meassociation.org.uk/39nu

#MECFS #pwME #Flu
Updated Booklet: Flu Vaccination & ME/CFS 2025/2026 - The ME Association
We have released an updated version of our flu information […]
meassociation.org.uk
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meassociation.org.uk
ME Association @meassociation.org.uk · 5d
Search the free information database Medical Matters here:   

Medical Matters - The ME Association
meassociation.org.uk
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meassociation.org.uk
ME Association @meassociation.org.uk · 5d
Medical Matters – Allodynia and ME/CFS

Dr Charles Shepherd answer questions from members of the MEA.   

Q: What is Allodynia (increased sensitivity to touch and movement) and how might this affect people with ME/CFS?
A: https://tinyurl.com/md4czc64

#pwME #MECFS #Allodynia
IMAGE DESCRIPTION: Photo of Dr Charles Shepherd. Text - What is Allodynia (increased sensitivity to touch and movement) and how might this affect people with ME/CFS? Please click the link to read the answer in the Medical Matters database. Medical Matters logo.
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