Tom Plender
@tomplender.bsky.social
370 followers 460 following 180 posts
Musician, Artist, chairman of FND Action
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Reposted by Tom Plender
fndportal.bsky.social
Hey folks.

ILAE's International Epilepsy Congress is now concluded (great meeting!), so I thought I'd share a few highlights from my talk on Functional / Dissociative Seizures (FDS).

The full talk (and recording) belong to ILAE, but here are some of the key points!
A canvas sign advertising the 36th International Epilepsy Congress in Lisbon, Portugal
tomplender.bsky.social
Thankyou that means a lot 😁🙏
tomplender.bsky.social
Thanks dude, that’s really kind 🙏
Reposted by Tom Plender
fndportal.bsky.social
I know what I’m reading this weekend! 😎
jonstoneneuro.bsky.social
Our new open access paper looking at Migraine and FND, two of the commonest conditions in neurological practice.

Migraine and functional neurological disorder (FND)—a review of comorbidity and potential overlap. academic.oup.com/braincomms/a... 🧵1/
tomplender.bsky.social
Thanks 🙏 - wasn’t sure if this is technically correct as I’m not a neuroscientist, just a musician trying to make sense of all this stuff!
tomplender.bsky.social
Ok thanks🙏 - so maybe I can use this way of thinking and explaining one of the mechanisms behind FND
tomplender.bsky.social
Latest attempt to try and define predictive brain mechanism in #FND in the simplest terms -

A disconnect in the brain where -

Beliefs/expectations + prior experiences

Outweigh

Incoming sensory input from present reality

Does that seem accurate? Any thoughts appreciated 🙏
Reposted by Tom Plender
fndportal.bsky.social
Functional seizures don't act like epilepsy. Functional movement disorders don't act like nervous system damage.

But is FND feigning or malingering? No!

A great paper from @mahyog.bsky.social @jonstoneneuro.bsky.social explains why

www.pure.ed.ac.uk/ws/portalfil...
www.pure.ed.ac.uk
tomplender.bsky.social
#fnd #disabilityrights
Reposted by Tom Plender
fndportal.bsky.social
“Connections between the nervous and immune systems are increasingly recognized as central to brain–body physiology […] we examine how these systems collaborate to detect and respond to both internal and external stimuli — such as psychological stress, circadian cues, infection, and tissue injury.“
Reposted by Tom Plender
fndportal.bsky.social
“The findings emphasize the need for personalised and compassionate care for individuals suffering from FND, underpinned by increased service provision within the healthcare system.”
medrxivpreprint.bsky.social
The journey to a diagnosis of Functional Neurological Disorder (FND) https://www.medrxiv.org/content/10.1101/2025.07.02.25330696v1
Reposted by Tom Plender
tomplender.bsky.social
For anybody struggling- great video from Dan Buglio on not losing hope with these #FND / chronic pain type conditions
www.youtube.com/watch?v=9ccd...
Are You Losing Hope?
YouTube video by Pain Free You
www.youtube.com
tomplender.bsky.social
4/I don't dispute that for a subset of #FND patients repression/dissociation is an issue that can make symptoms worse. However for many the exact opposite is true, the traumatic memory or triggering event is TOO vivid - and thats a big part of the problem
tomplender.bsky.social
6/Not all FND patients have psychological trauma, and in those where trauma is a contributing factor, there is still a lot of variability and complexity
tomplender.bsky.social
5/This is why rigid theories like Freudian conversion disorder frequently fail FND patients – they are too narrow and simplistic and don't allow for the complexity and variability within FND – in terms of causation, individual response etc
tomplender.bsky.social
3/The theory is the traumatic memory is not processed into long term memory storage, so the brain ends up stuck and hyperdefensive, constantly reliving the event and watching for similar dangers. In this hyper aroused state it often misinterprets harmless stimuli as a threat.
tomplender.bsky.social
2/they are more likely to remember traumatic events vividly as opposed to mundane events from the same time period. As a result the brains threat detection systems keep the memory alive in time, so it can 'hypervigilantly' watch for anything similar that could be a threat
tomplender.bsky.social
1/A major flaw with Freuds conversion disorder theory- that patients who've been traumatised cannot consciously remember the event and it ends up repressed. In my experience people are more likely to vividly remember traumatic events from the past-
Reposted by Tom Plender
fndportal.bsky.social
Sadly still seeing many reports from newly-diagnosed folks in FND spaces that their doctor diagnosed them by “ruling things out.”

This is bad!

FND should be diagnosed based on positive clinical signs.

It is not a diagnosis of exclusion.

Someone please have a word with the neurologists 🙏