Adam
@abrokenbattery.bsky.social
2.5K followers 350 following 370 posts
Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos. https://linktr.ee/abrokenbattery
Posts Media Videos Starter Packs
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abrokenbattery.bsky.social
New Trailer for the #MECFS #GreatestMedicalScandal Explainer Video.

Includes clips from the full video that highlights the Stigma, Abuse, Bad Science and Harm.
Reposted by Adam
abrokenbattery.bsky.social
Thanks, George 🙏

For anyone interested, I wrote a thread about how Wessely was wrong about Gulf War Illness, Camelford Poisonings & ill health following 9/11 being psychogenic.

He also used harassment as a distraction from criticism during a talk on GWI.

threadreaderapp.com/thread/15273...
Thread by @ABrokenBattery on Thread Reader App
@ABrokenBattery: 🧵Gulf War Syndrome & Simon Wessely "For 30 years they have been disowned, ignored and lied to by consecutive governments, with no positive answers to their questions about exposure to...
threadreaderapp.com
abrokenbattery.bsky.social
Thanks, George 🙏

For anyone interested, I wrote a thread about how Wessely was wrong about Gulf War Illness, Camelford Poisonings & ill health following 9/11 being psychogenic.

He also used harassment as a distraction from criticism during a talk on GWI.

threadreaderapp.com/thread/15273...
Thread by @ABrokenBattery on Thread Reader App
@ABrokenBattery: 🧵Gulf War Syndrome & Simon Wessely "For 30 years they have been disowned, ignored and lied to by consecutive governments, with no positive answers to their questions about exposure to...
threadreaderapp.com
Reposted by Adam
georgemonbiot.bsky.social
ME/CFS is a devastating condition that has long been denied, dismissed, psychologised and underdiagnosed. Research is at last starting to catch up with it, with glimmers of hope for those who have been left untreated for so long.
There's a huge BUT coming ...🧵
www.theguardian.com/society/2025...
Scientists develop first ‘accurate blood test’ to detect chronic fatigue syndrome
Research could offer hope for ME patients – but some experts urge caution and say more studies needed
www.theguardian.com
abrokenbattery.bsky.social
No worries, yeah unfortunately it’s unlisted. I’ve done that with all the media clips as I didn’t want them to interfere with the main channel. I should’ve created a separate channel just for clips, but I never got round to it.
abrokenbattery.bsky.social
On LBC, callers Ann and Annie told Natasha Devon that the rise in long-term sickness is linked to long Covid — and compared the lack of support to what people with #MECFS have faced for decades (10 mins)

youtu.be/BoVpKmsTNFY?...
Natasha Devon - Long-term sickness call in
YouTube video by Broken Battery
youtu.be
Reposted by Adam
mecfsskeptic.bsky.social
1) 🇳🇴 Ola Didrik Saugstad and his colleagues report about the first specialised care unit for severely and very severely affected ME/CFS patients.

It opened in 2021 in Norway. The authors report the results from the first 3 years.
abrokenbattery.bsky.social
BBC Radio Suffolk segment (13 mins) on #MECFS - @tinarodwell1.bsky.social speaks about caring for her son Angus, the daily challenges of the illness, and @jeremy-jeffs.bsky.social powerful exhibition Lives We Cannot Live which Angus took part in.

youtu.be/bNw30eqfhvw?...
BBC Radio Suffolk - Tina Rodwell
YouTube video by Broken Battery
youtu.be
abrokenbattery.bsky.social
Thank you to Prof. Vivienne Matthies-Boon for including my very severe ME/CFS video in your lecture on the psychologisation of post-viral illness. Good to see philosophy and ethics engaging with this topic.
Screenshot of the presentation
abrokenbattery.bsky.social
Highlights - ITV News reports on POTS, which affects the autonomic nervous system and can leave people disabled. Cases have increased by a quarter since COVID, yet there are only a handful of specialists and the average wait for diagnosis is 7 years.
abrokenbattery.bsky.social
Clip - ITV News reports on the lack of POTS specialists and an average 7-year wait for diagnosis. Lottie Ryder Wern from Plymouth describes how symptoms affect everyday activities.
abrokenbattery.bsky.social
ITV News reports on the rise in POTS since COVID. A consultant admitted that before the pandemic he “had no idea” about the condition, highlighting how little autonomic dysfunction is taught in medical school.
abrokenbattery.bsky.social
BBC Radio Cumbria (8 mins): Fiona Sadler speaks with farmer Andrew Jackson and his wife about featuring in Lives We Cannot Live, a photo exhibition about #MECFS by Jeremy Jeffs (@jeremy-jeffs.bsky.social) - London Oxo Tower Gallery, 24–28 Sept

youtu.be/ylcuLlvfubk?...
BBC Radio Cumbria — ME/CFS Photo Exhibition
YouTube video by Broken Battery
youtu.be
abrokenbattery.bsky.social
Sorry to hear about the crash — glad it’s easing a bit. The podcast idea sounds interesting, hopefully it comes together more when you’re back to your baseline
abrokenbattery.bsky.social
Hi Eleanor, I’m doing okay thanks — how are you getting on?
abrokenbattery.bsky.social
Clip from ITV Border News (19 Sept) about the powerful upcoming exhibition Lives We Cannot Live by Jeremy Jeffs (@jeremy-jeffs.bsky.social), shining a light on life with #MECFS.

Highly recommended if you’re in London - Oxo Tower Gallery, 24–28 Sept
Reposted by Adam
bmhughes.bsky.social
A man was arrested for causing a public nuisance at Heathrow Airport. He'd released tear gas causing several people to feel suddenly ill

IMO the *real* public nuisances were the psych academics who'd claimed the initial symptoms were just "mass psychogenic illness" 🤦

Via @davetuller1.bsky.social
Trial By Error: "Mass Psychogenic Illness" at Heathrow Airport--NOT! | Virology Blog
By David Tuller, DrPH On Monday afternoon, a bunch of people in Terminal 4 at Heathrow, London’s biggest airport, reported feeling ill. The reports led to c ...
virology.ws
Reposted by Adam
longcovidadvoc.com
Not sure there is a scientist that is as reliably wrong about speculating & assuming mass hysteria as Wessely

The psychiatrist on the media hysteria hotline doesn't seem to mind being repeatedly wrong

2hrs later hysteria proved to be a tear gas cannister
www.theguardian.com/uk-news/2025...
It happens all over the world every day, particularly in crowded spaces like schools, concerts, crowds, factory floors etc. The only reason this made the news was because of the fact it was at Heathrow and led to major flight disruptions.
Reposted by Adam
bmhughes.bsky.social
The Irish health service has initiated a process to develop a clinical guideline for ME (#MyalgicEncephalomyelitis). I am honoured to be part of its Steering Group

The process so far has been extremely progressive

I am hugely optimistic that a world-leading guideline will be produced

#pwME #MECFS
Myalgic Encephalomyelitis (ME) - HSE.ie
www.hse.ie