Adam
@abrokenbattery.bsky.social
Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos.
https://linktr.ee/abrokenbattery
https://linktr.ee/abrokenbattery
Pinned
Adam
@abrokenbattery.bsky.social
· Dec 12
New Trailer for the #MECFS #GreatestMedicalScandal Explainer Video.
Includes clips from the full video that highlights the Stigma, Abuse, Bad Science and Harm.
Includes clips from the full video that highlights the Stigma, Abuse, Bad Science and Harm.
Segment from WELT (German TV) featuring Federal Research Minister Dorothee Bär discussing Germany’s National Decade Against Post-Infectious Diseases - €500 million for research including #MECFS and #LongCOVID. (English Subtitles - 3 mins)
youtu.be/f84TAp3D_Ng?...
youtu.be/f84TAp3D_Ng?...
Germany’s National Decade Against Post-Infectious Diseases (€500m Research Plan)
YouTube video by Broken Battery
youtu.be
November 24, 2025 at 10:09 AM
Segment from WELT (German TV) featuring Federal Research Minister Dorothee Bär discussing Germany’s National Decade Against Post-Infectious Diseases - €500 million for research including #MECFS and #LongCOVID. (English Subtitles - 3 mins)
youtu.be/f84TAp3D_Ng?...
youtu.be/f84TAp3D_Ng?...
Clip: @oonaghcousins.bsky.social explains how post-exertional malaise has affected her. It’s not tiredness after exercise, simple tasks like preparing food or even talking would cause her whole body would go into shutdown, affecting her nervous, immune, digestive systems and more.
November 22, 2025 at 6:15 PM
Clip: @oonaghcousins.bsky.social explains how post-exertional malaise has affected her. It’s not tiredness after exercise, simple tasks like preparing food or even talking would cause her whole body would go into shutdown, affecting her nervous, immune, digestive systems and more.
Former Team GB rower and #longCOVID campaigner @oonaghcousins.bsky.social spoke to Sky News in response to the COVID Inquiry. She highlighted how long-term illness was foreseeable and why a proper national strategy is urgently needed. Aired on 20/11/25 (5 mins).
youtu.be/-qZHg9PsE4c?...
youtu.be/-qZHg9PsE4c?...
Former Team GB Rower Oona Cousins Responds to the COVID Inquiry on Sky News
YouTube video by Broken Battery
youtu.be
November 22, 2025 at 4:43 PM
Former Team GB rower and #longCOVID campaigner @oonaghcousins.bsky.social spoke to Sky News in response to the COVID Inquiry. She highlighted how long-term illness was foreseeable and why a proper national strategy is urgently needed. Aired on 20/11/25 (5 mins).
youtu.be/-qZHg9PsE4c?...
youtu.be/-qZHg9PsE4c?...
Clip: Julie Heath shares the impact of becoming a carer for her husband and two children with #MECFS, and how she’s become their advocate because they don’t have the energy to do things like speak to their GP. ME/CFS doesn’t just affect individuals it affects whole families.
November 22, 2025 at 11:23 AM
Clip: Julie Heath shares the impact of becoming a carer for her husband and two children with #MECFS, and how she’s become their advocate because they don’t have the energy to do things like speak to their GP. ME/CFS doesn’t just affect individuals it affects whole families.
BBC Radio Somerset (12 mins) Charlie Taylor speaks to Julie and John Heath about their family, where three out of four members have been diagnosed with #MECFS — they discuss how the condition affects daily life and the profound impact on their family.
youtu.be/t-eIzxqmNWY?...
youtu.be/t-eIzxqmNWY?...
BBC Somerset - 3 out of family of 4 diagnosed with ME/CFS
YouTube video by Broken Battery
youtu.be
November 22, 2025 at 8:06 AM
BBC Radio Somerset (12 mins) Charlie Taylor speaks to Julie and John Heath about their family, where three out of four members have been diagnosed with #MECFS — they discuss how the condition affects daily life and the profound impact on their family.
youtu.be/t-eIzxqmNWY?...
youtu.be/t-eIzxqmNWY?...
New from the The Sick Times
Less than 20% of Long COVID trials involving exercise even mention post-exertional malaise
‘Testing exercise is “money down the drain” and won’t advance understanding of Long COVID, experts say’
thesicktimes.org/2025/11/21/l...
Less than 20% of Long COVID trials involving exercise even mention post-exertional malaise
‘Testing exercise is “money down the drain” and won’t advance understanding of Long COVID, experts say’
thesicktimes.org/2025/11/21/l...
November 21, 2025 at 5:54 PM
New from the The Sick Times
Less than 20% of Long COVID trials involving exercise even mention post-exertional malaise
‘Testing exercise is “money down the drain” and won’t advance understanding of Long COVID, experts say’
thesicktimes.org/2025/11/21/l...
Less than 20% of Long COVID trials involving exercise even mention post-exertional malaise
‘Testing exercise is “money down the drain” and won’t advance understanding of Long COVID, experts say’
thesicktimes.org/2025/11/21/l...
BBC Points West ran a very short 20-second clip on yesterday’s Westminster debate. Local MP Tessa Munt called for greater NHS support and investment for people with #MECFS. Unfortunately the segment used “extreme tiredness” to describe the main symptom.
November 21, 2025 at 5:00 PM
BBC Points West ran a very short 20-second clip on yesterday’s Westminster debate. Local MP Tessa Munt called for greater NHS support and investment for people with #MECFS. Unfortunately the segment used “extreme tiredness” to describe the main symptom.
Alison Hume MP shares an account of severe #MECFS and warns that many healthcare professionals lack understanding of severe ME — especially its hallmark symptom, post, exertional malaise PEM — and that patients are too often pushed into pathways that simply aren’t appropriate.
November 21, 2025 at 12:28 PM
Alison Hume MP shares an account of severe #MECFS and warns that many healthcare professionals lack understanding of severe ME — especially its hallmark symptom, post, exertional malaise PEM — and that patients are too often pushed into pathways that simply aren’t appropriate.
Highlights — JoPlattMP.bsky.social MP developed #MECFS after #LongCOVID and says these are among the most devastating yet neglected illnesses of our time. She calls for research to match Germany’s €500m pledge & for a severe ME service, with patients dying from nutritional failure.
November 21, 2025 at 6:50 AM
Highlights — JoPlattMP.bsky.social MP developed #MECFS after #LongCOVID and says these are among the most devastating yet neglected illnesses of our time. She calls for research to match Germany’s €500m pledge & for a severe ME service, with patients dying from nutritional failure.
Tessa Munt MP calls for urgent action to accelerate #MECFS research. The UK has spent just £10 million over 12 years — about 60p per patient/year. Four times more went on a helicopter for a former PM, 12 times more on a bat tunnel for HS2. Why isn’t ME a strategic research priority?
November 20, 2025 at 9:09 PM
Tessa Munt MP calls for urgent action to accelerate #MECFS research. The UK has spent just £10 million over 12 years — about 60p per patient/year. Four times more went on a helicopter for a former PM, 12 times more on a bat tunnel for HS2. Why isn’t ME a strategic research priority?
Tessa Munt MP warns that two preventable death reports in just over a year highlight the dangers facing people with severe #MECFS. She spoke to @BinitaKane.bsky.social, who described a 25yr old student and multiple missed opportunities to stop her decline. This is not an isolated case.
November 20, 2025 at 4:49 PM
Tessa Munt MP warns that two preventable death reports in just over a year highlight the dangers facing people with severe #MECFS. She spoke to @BinitaKane.bsky.social, who described a 25yr old student and multiple missed opportunities to stop her decline. This is not an isolated case.
Tessa Munt MP: “ME is perhaps the only condition where the sicker you become, the less care you receive from the NHS.” NHS care for severe ME is nonexistent, over 200 healthcare workers were so concerned they wrote to the Health Secretary 14 months ago but received no response.
November 20, 2025 at 11:51 AM
Tessa Munt MP: “ME is perhaps the only condition where the sicker you become, the less care you receive from the NHS.” NHS care for severe ME is nonexistent, over 200 healthcare workers were so concerned they wrote to the Health Secretary 14 months ago but received no response.
Tessa Munt MP highlights how Germany is taking post-infectious diseases seriously, committing €500m over 10 years to research #MECFS & #LongCOVID. She asks if the UK Government will make a comparable commitment, or wait a decade for the Germans’ conclusions before taking action?
November 20, 2025 at 7:04 AM
Tessa Munt MP highlights how Germany is taking post-infectious diseases seriously, committing €500m over 10 years to research #MECFS & #LongCOVID. She asks if the UK Government will make a comparable commitment, or wait a decade for the Germans’ conclusions before taking action?
Tessa Munt MP highlights the economic impact of ME: based on a 2014–15 estimate, adjusted for inflation and increased case numbers, ME is estimated to cost the UK around £7 billion a year — rising to ~£20 billion including people who meet the criteria for ME with long COVID
November 19, 2025 at 8:51 PM
Tessa Munt MP highlights the economic impact of ME: based on a 2014–15 estimate, adjusted for inflation and increased case numbers, ME is estimated to cost the UK around £7 billion a year — rising to ~£20 billion including people who meet the criteria for ME with long COVID
Clip - Tessa Munt MP opens the #MECFS debate, noting ~400,000 have ME in the UK, & the total could be much higher including people with with long COVID. She highlights decades of substandard, sometimes harmful care, pitiful funding, and the outdated view of ME as psychiatric.
November 19, 2025 at 7:01 PM
Clip - Tessa Munt MP opens the #MECFS debate, noting ~400,000 have ME in the UK, & the total could be much higher including people with with long COVID. She highlights decades of substandard, sometimes harmful care, pitiful funding, and the outdated view of ME as psychiatric.
Today’s Westminster Hall debate on government support for people with #MECFS is now on YouTube. Led by Tessa Munt MP (Wells and Mendip Hills, Liberal Democrat), and lasts around an hour.
youtu.be/wZFEUnjWgOA?...
youtu.be/wZFEUnjWgOA?...
Westminster Hall Debate on Support for People with ME/CFS - November 2025
YouTube video by Broken Battery
youtu.be
November 19, 2025 at 6:25 PM
Today’s Westminster Hall debate on government support for people with #MECFS is now on YouTube. Led by Tessa Munt MP (Wells and Mendip Hills, Liberal Democrat), and lasts around an hour.
youtu.be/wZFEUnjWgOA?...
youtu.be/wZFEUnjWgOA?...
Just a note to say: if you hear anything about #MECFS or #PEM and related on radio or TV, let me know and I’ll do my best to record it. I missed the Celebrity Catchphrase clip and don’t want to miss any more.
And if you have any old clips on VHS, I’ll try and get them digitised.
And if you have any old clips on VHS, I’ll try and get them digitised.
November 18, 2025 at 8:42 PM
Mark Bonnar was also recently on Celebrity Traitors, supporting Action for ME — although unfortunately he didn’t win.
Clip from January 2022, @mark_bonnar appeared on Celebrity Catchphrase supporting @actionforme. He explained that he backs the charity because #MECFS is very misunderstood, very underfunded and affects several people he knows personally.
November 16, 2025 at 11:36 AM
Mark Bonnar was also recently on Celebrity Traitors, supporting Action for ME — although unfortunately he didn’t win.
Clip from January 2022, @mark_bonnar appeared on Celebrity Catchphrase supporting @actionforme. He explained that he backs the charity because #MECFS is very misunderstood, very underfunded and affects several people he knows personally.
November 16, 2025 at 11:29 AM
Clip from January 2022, @mark_bonnar appeared on Celebrity Catchphrase supporting @actionforme. He explained that he backs the charity because #MECFS is very misunderstood, very underfunded and affects several people he knows personally.
Germany pledges €500 million for research through the “National Decade Against Post-Infectious Diseases” (2026-2036), including #MECFS and #LongCOVID.
Addressing what they call “one of the greatest public health challenges of the 21st century.”
www.zeit.de/politik/deut...
Addressing what they call “one of the greatest public health challenges of the 21st century.”
www.zeit.de/politik/deut...
Chronic Fatigue Syndrome: Bundesregierung will Erforschung von ME/CFS stärker fördern
Die Zahl der Long-Covid- und ME/CFS-Erkrankungen hat seit der Pandemie stark zugenommen. Bis 2036 sollen deswegen 500 Millionen Euro in die Forschung investiert werden.
www.zeit.de
November 14, 2025 at 6:50 AM
Germany pledges €500 million for research through the “National Decade Against Post-Infectious Diseases” (2026-2036), including #MECFS and #LongCOVID.
Addressing what they call “one of the greatest public health challenges of the 21st century.”
www.zeit.de/politik/deut...
Addressing what they call “one of the greatest public health challenges of the 21st century.”
www.zeit.de/politik/deut...
Reposted by Adam
🚨 NEXT WEDNESDAY 19 NOVEMBER
We’ve been made aware of an upcoming Westminster Hall debate, tabled by @tessamunt.bsky.social, focused on government support for people with ME.
If you have the energy - an email to your MP asking them to attend can go a long way 🙏
Template in next post👇
We’ve been made aware of an upcoming Westminster Hall debate, tabled by @tessamunt.bsky.social, focused on government support for people with ME.
If you have the energy - an email to your MP asking them to attend can go a long way 🙏
Template in next post👇
November 13, 2025 at 9:48 AM
🚨 NEXT WEDNESDAY 19 NOVEMBER
We’ve been made aware of an upcoming Westminster Hall debate, tabled by @tessamunt.bsky.social, focused on government support for people with ME.
If you have the energy - an email to your MP asking them to attend can go a long way 🙏
Template in next post👇
We’ve been made aware of an upcoming Westminster Hall debate, tabled by @tessamunt.bsky.social, focused on government support for people with ME.
If you have the energy - an email to your MP asking them to attend can go a long way 🙏
Template in next post👇
Q&A on the Photography & Collaboration Arts Collective (PCAC) blog with photographer Jeremy Jeffs @jeremy-jeffs.bsky.social, diagnosed with ME in 1987, discussing his powerful project photographing people living with the illness.
www.pcac.ngo/blog/jeremy-...
www.pcac.ngo/blog/jeremy-...
November 13, 2025 at 8:19 AM
Q&A on the Photography & Collaboration Arts Collective (PCAC) blog with photographer Jeremy Jeffs @jeremy-jeffs.bsky.social, diagnosed with ME in 1987, discussing his powerful project photographing people living with the illness.
www.pcac.ngo/blog/jeremy-...
www.pcac.ngo/blog/jeremy-...
After a number of requests I’ve made all of the TV clips on my YouTube channel public. They’re now searchable on and will appear on my homepage and in the videos tab.
youtube.com/@brokenbattery
youtube.com/@brokenbattery
Broken Battery
Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos.
youtube.com
November 6, 2025 at 7:28 PM
After a number of requests I’ve made all of the TV clips on my YouTube channel public. They’re now searchable on and will appear on my homepage and in the videos tab.
youtube.com/@brokenbattery
youtube.com/@brokenbattery
This clip from 2018 perfectly captures just how passionate @davetuller1.bsky.social is and how shocked he was by the way the PACE trial was defended.
His crowd funding has just 1 day to go and he’s ~$10k from his target. I’ve just donated again so he can carry on doing his important work
His crowd funding has just 1 day to go and he’s ~$10k from his target. I’ve just donated again so he can carry on doing his important work
November 6, 2025 at 10:15 AM
This clip from 2018 perfectly captures just how passionate @davetuller1.bsky.social is and how shocked he was by the way the PACE trial was defended.
His crowd funding has just 1 day to go and he’s ~$10k from his target. I’ve just donated again so he can carry on doing his important work
His crowd funding has just 1 day to go and he’s ~$10k from his target. I’ve just donated again so he can carry on doing his important work
‘If you’re disabled, you’re not ill.’
Sir Charlie Mayfield (author of the Keep Britain Working review)
This is who’s shaping UK disability employment policy. Shocking, he doesn’t even understand the basics.
I’m disabled because I’m chronically ill with #MECFS.
Sir Charlie Mayfield (author of the Keep Britain Working review)
This is who’s shaping UK disability employment policy. Shocking, he doesn’t even understand the basics.
I’m disabled because I’m chronically ill with #MECFS.
November 6, 2025 at 9:35 AM
‘If you’re disabled, you’re not ill.’
Sir Charlie Mayfield (author of the Keep Britain Working review)
This is who’s shaping UK disability employment policy. Shocking, he doesn’t even understand the basics.
I’m disabled because I’m chronically ill with #MECFS.
Sir Charlie Mayfield (author of the Keep Britain Working review)
This is who’s shaping UK disability employment policy. Shocking, he doesn’t even understand the basics.
I’m disabled because I’m chronically ill with #MECFS.