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First NICE guideline on kidney cancer - Action Kidney Cancer

ACTION KIDNEY CANCER @actionkidneycancer.bsky.social · 17d

We've been working hard with the National Institute for Health and Care Excellence, to create guide lines which aim to reduce variation in treatment between hospitals and prevent unnecessary surgery for the removal of kidney tumours.
About the guideline:
actionkidneycancer.org/first-nice-g...

A new draft guideline, issued by the National Institute for Health and Care Excellence (NICE), aims to reduce variation in treatment between hospitals and prevent unnecessary surgery for the removal o...

Audit of NHS shows only 1% of kidney cancer patients are enrolled in clinical trials - Action Kidney Cancer

ACTION KIDNEY CANCER @actionkidneycancer.bsky.social · 17d

Stoptober starts in one weeks time, to get the support you need to quit for good.
Find out more:
nhs.uk/better-healt...

ACTION KIDNEY CANCER @actionkidneycancer.bsky.social · Sep 11

The 2025 NKCA reveals that only 1% of kidney cancer patients in England joined clinical trials from 2020 to 2022. We are raising awareness to help more #kidneycancer patients access innovative treatments through trial participation.
Read more here:
actionkidneycancer.org/audit-of-nhs...

We are pleased to announce the publication of the second National Kidney Cancer Audit (NKCA) State of the Nation Patient and Public Report 2025 from the Royal College of Surgeons of England.

ACTION KIDNEY CANCER @actionkidneycancer.bsky.social · Sep 10

I is for.....

In our own words, in this series of videos, kidney cancer patients and carers talk frankly about their experiences, emotions and how to live well with a diagnosis of #kidneycancer

Watch the videos:

actionkidneycancer.org/help.../in-o...

#bypatientsforpatients #StrongerTogether

Impact of first-line combination treatment on outcomes of second-line TKI in advanced kidney cancer - Action Kidney Cancer

ACTION KIDNEY CANCER @actionkidneycancer.bsky.social · Sep 9

A recent study compares real world data on the outcomes of advanced #kidneycancer patients treated with an immunotherapy combination as a first-line treatment followed by a second-line TKI.
To read more:
actionkidneycancer.org/impact-of-fi...

There is limited information on the outcomes of patients who are treated with an immunotherapy combination as a first-line treatment followed by a tyrosine kinase inhibitor (TKI) as a second-line trea...

First-line benmelstobart plus anlotinib versus sunitinib in advanced kidney cancer - Action Kidney Cancer

ACTION KIDNEY CANCER @actionkidneycancer.bsky.social · Sep 9

Benmelstobart a new immunotherapy, which blocks the action of the immunosuppressant, PD-L1, in combination with a TKI called anlotinib was compared with sunitinib as first-line treatment for advanced #kidneycancer
Read More:
actionkidneycancer.org/first-line-b...

A new immunotherapy called benmelstobart, which blocks the action of the immunosuppressant, PD-L1, in combination with a tyrosine kinase inhibitor (TKI) called anlotinib was compared with sunitinib as...

Samra Turajlić Was Named New Director of the CRUK Manchester Institute - OncoDaily

ACTION KIDNEY CANCER @actionkidneycancer.bsky.social · Sep 4

We are delighted that our trustee Samra Turajlic is New Director of the Cancer Research UK Manchester Institute.

#kidneycancer

oncodaily.com/career/samra...

Samra Turajlić Was Named New Director of the CRUK Manchester Institute / cancer, Cancer Research UK, OncoDaily, Oncology, Samra Turajlic

oncodaily.com

2

ACTION KIDNEY CANCER @actionkidneycancer.bsky.social · Sep 1

Researchers from the University of California in Los Angeles have developed a new kind of immunotherapy that uses specially engineered immune cells that attack #kidneycancer tumours without the need to customise treatment for each individual patient.

To read:
actionkidneycancer.org/new-immunoth...

ACTION KIDNEY CANCER @actionkidneycancer.bsky.social · Aug 29

Julia one of our team was delighted to meet and thank three generations of the the Pointon family, Dave, Steve and special helper Ernie, along with Clive Read & Jonnie Briggs from Crewe soul club and venue manager Phil Taylor who made the event a resounding success and raised a fantastic £2056.

ACTION KIDNEY CANCER @actionkidneycancer.bsky.social · Aug 28

T is for ...
Treatment, we have a section on our website where you will find information about available #kidneycancer treatments.
The section includes surgical options, medicines, clinical trials and much more.
actionkidneycancer.org/.../kidney-c...

#StrongerTogether #bypatientsforpatients

ACTION KIDNEY CANCER @actionkidneycancer.bsky.social · Aug 28

We are supporting the One Cancer Voice NHS Cancer Plan campaign which was presented in parliament.
#OneCancerVoice #kidneycancer #StrongerTogether

2

ACTION KIDNEY CANCER @actionkidneycancer.bsky.social · Aug 20

C is for..
Clinical trials, if you would like to find out more about #kidneycancer trials, see where they are being held in the UK and read real patients experiences of being on one, we have a section on our website that provides this information.
actionkidneycancer.org/res.../about...

Combination treatment shows benefits in rare, aggressive kidney cancer - Action Kidney Cancer

ACTION KIDNEY CANCER @actionkidneycancer.bsky.social · Aug 20

Fumarate hydratase-deficient rcc is a rare and aggressive type of #kidneycancer Because of this treatment is not clear. This phase two study shows treatment with a combination of immunotherapy and tyrosine kinase inhibitor, showed promise in patients.
actionkidneycancer.org/combination-...

Fumarate hydratase (FH)-deficient renal cell carcinoma (RCC) is a rare and aggressive type of kidney cancer. Because of how rare this cancer is, treatment is not clear. In this phase 2 study, treatmen...

ACTION KIDNEY CANCER @actionkidneycancer.bsky.social · Aug 13

In this series of 21 short videos, experts in the treatment and care of #kidneycancer patients answer your questions

Why not grab a cuppa, watch a video and have some of your questions answered.

To watch the videos:
actionkidneycancer.org/help-support...
#StrongerTogether

ACTION KIDNEY CANCER @actionkidneycancer.bsky.social · Aug 12

A massive THANK YOU to the Pointon Family, the DJ's and all the volunteers who supported the 6th Northern Soul and Motown Charity Event in Crew on the 10th August. They raised a fantastic £2,056.04 for us an everyone enjoyed a fantastic day of music and dance.

#kidneycancer

ACTION KIDNEY CANCER @actionkidneycancer.bsky.social · Jul 31

A massive THANK YOU to Michelle & her sister Donna who recently completed a skydive in memory of their beloved sister Sarah to raise funds for us. Thanks to their friends and family who helped them raise an amazing £1895.
Read more: kcsn.enthuse.com/pf/michelle-...
#kidneycancer #StrongerTogether

ACTION KIDNEY CANCER @actionkidneycancer.bsky.social · Jul 29

There are still some tickets for this years 5th Anniversary Northern Soul Charity Event
We are delighted that the Pointon family have organised another fabulous event, the sixth, to raise funds for us.
Please buy your tickets:
actionkidneycancer.org/.../norther-...
#kidneycancer #StrongerTogether

Reposted by ACTION KIDNEY CANCER

John McGrane @jmcgrane.bsky.social · Jul 17

@simplyoncology.bsky.social
Back 🗣️#renalcancer SABR with
@harshanigreen.bsky.social
from
@royalmarsden.org

We discuss the FASTRACK II trial and the work of
Prof Shankar Siva

We discuss this & more 💡(+Mike produces a Magic Lamp)
@actionkidneycancer.bsky.social

Metastasis-Directed Radiotherapy Shows Improved Kidney Cancer Outcomes - Action Kidney Cancer

ACTION KIDNEY CANCER @actionkidneycancer.bsky.social · Jul 23

A phase 2 clinical trial has shown that radiotherapy directed at metastases resulted in promising survival rates and low side effects for patients with metastatic clear cell #kidneycancer who had up to 5 metastases without the need for anti-cancer medication.

actionkidneycancer.org/metastasis-d...

A recent phase 2 clinical trial presented at the 2025 Kidney Cancer Research Summit in Boston, USA, found that radiotherapy directed at metastases resulted in promising survival rates and low side eff...

A Skydive in Memory of Sarah July 2025 - Action Kidney Cancer

ACTION KIDNEY CANCER @actionkidneycancer.bsky.social · Jul 14

We are thinking of and thanking Donna and Michelle, today they are doing a skydive to raise funds for us.
They are doing the skydive to honour their sisters Sarah’s memory on what would have been her 46th birthday.
Please read about Sarah:
actionkidneycancer.org/.../a-skydiv...

#kidneycancer

On December 27th, 2024, Michelle and Donna lost their beautiful sister, Sarah, to kidney cancer. Sarah was a devoted mother who truly loved life. In Sarah’s honour, Michelle and Donna are doing a skyd...

Cabozantinib most promising for refractory metastatic kidney cancer - Action Kidney Cancer

ACTION KIDNEY CANCER @actionkidneycancer.bsky.social · Jul 7

In a European study of second-line treatments for metastatic #kidneycancer that does not respond to first-line treatment, or becomes resistant to first-line treatment, cabozantinib was the most commonly used treatment and results in good patient outcomes.

actionkidneycancer.org/cabozantinib...

In a European study of second-line treatments for metastatic kidney cancer that does not respond to first-line treatment, or becomes resistant to first-line treatment (refractory kidney cancer), caboz...

Screening programme to be extended to Wakefield - Action Kidney Cancer

ACTION KIDNEY CANCER @actionkidneycancer.bsky.social · Jul 7

Great news - Hundreds of people in Wakefield and across the region will benefit from life-saving abdomen scans following new funding from Yorkshire Cancer Research.
To read more:
actionkidneycancer.org/screening-pr...

Hundreds of people in Wakefield and across the region will benefit from life-saving abdomen scans following new funding from Yorkshire Cancer Research. The scans, which can help detect kidney, stomach...