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Alex Mac BCyA @alexmac06.bsky.social · Aug 15

Still not quite 100% from last weeks hospital fun but got some hard work done this afternoon 💪
Couldn’t get my legs to work for me but my arms were better than usual & I did some good rolling too #BeMoreAlex #ConductiveEducation

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Alex Mac BCyA @alexmac06.bsky.social · Aug 1

👍😎

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Alex Mac BCyA @alexmac06.bsky.social · Jul 31

Mum’s done a bit of hand therapy for #buttonybear so he’s now got a matching hand splint & bandage like mine!!!! #Twins

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Alex Mac BCyA @alexmac06.bsky.social · Jul 30

Todays exciting entertainment was a trip to dressings clinic to unwrap my hand for the 1st time!!!
I’ve now got straight fingers, 3 big wires sticking out, a wound healing nicely & a big blood blister🤦🏻‍♂️
Now got a lighter splint for 6 weeks till the wires come out #BeforeAndAfter

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Alex Mac BCyA @alexmac06.bsky.social · Jul 25

Feeling a bit better after some gentle exercises with #ConnectionsNeuro this afternoon
Thank you for all your lovely messages, I’ll catch up with them properly once Mum has caught up on some sleep…I’ve been keeping her busier than usual this week! 😉…#TiredMum #2DaysPostOp

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Alex Mac BCyA @alexmac06.bsky.social · Jul 24

Next few days is all about paracetamol and managing my pain.
Didn't sleep very well as my hand hurts but Mum says it'll be worth it
But at least I'm at home!!!
Back next week to get the dressing and splint changed.....

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Alex Mac BCyA @alexmac06.bsky.social · Jul 17

The end of my 17 yrs at school is coming up fast 😢.. it was our Leavers Prom tonight so smart gear on, leave Mum & dad at home & it was party time!!!
Worn out now from too much dancing 🕺!!!

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Alex Mac BCyA @alexmac06.bsky.social · Jul 15

It’s been a sad day today…my last session RainbowHubNW before I head off to college in September 😢
I’ll be forever grateful for the help they’ve given me & the skills they’ve taught me over the last 17 yrs!!
They gave me a lovely send off this morning🌈 🦸🏻‍♂️ 😎🎁 #BeMoreAlex

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Alex Mac BCyA @alexmac06.bsky.social · May 27

Its half term so Mum’s lined up loads of appointments for me 🤦🏻‍♂️😂
Today was my 1st visit to @thewaltoncentre.bsky.social as they take over care for my Baclofen pump from @alderhey.nhs.uk …& thats me now fully at adult hospitals
Sad to leave Alder Hey who’ve looked after me since I was 6mths old😢

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Alex Mac BCyA @alexmac06.bsky.social · May 25

⭐️ Woohoo!!! THANK YOU EVERYBODY!!! ⭐️

My email has been very busy telling me that I’ve hit my target & passed it, I can relax now!! You are all amazing & so very kind!!! 🙏🙏🙏😎🌈 #BeMoreAlex

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Alex Mac BCyA @alexmac06.bsky.social · May 24

Well, as an Award Winning Fundraiser, this is a bit embarrassing…I’ve only managed 70% of my target for this years #RainbowRamble 😢

THANK YOU to everyone who has already supported me, but a bit more would be nice😉…I have a reputation to uphold!!!! 🙏

www.justgiving.com/page/alexmac...

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Alex Mac BCyA @alexmac06.bsky.social · May 24

We love flat square parcels in this house…the latest fab album from Rio18 arrived yesterday❤️😎 🙏#CarwynEllisAndRio18
#HighlyRecommendedByAlex😎

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Alex Mac BCyA @alexmac06.bsky.social · May 14

Bit of an emotional day today on my last ever visit to @alderhey.nhs.uk 😢…a lot of memories there, some bad & scary but mostly good-I’ve been very well looked after over the last 19 years,
but it’s time to move to adult hospitals now😳
Had to pay the Tin Man a final visit😎 #BeMoreAlex

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Alex Mac BCyA @alexmac06.bsky.social · May 12

👍👍👍

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Alex Mac BCyA @alexmac06.bsky.social · May 12

Busy day today…a trip up the motorway past this on the way to an assessment day for what will hopefully be my brilliant new college from September🤞🤞🤞Could be seeing this a lot more in the future!!! 😎 #BeMoreAlex #CarryOnLearning

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Alex Mac BCyA @alexmac06.bsky.social · May 10

Please RT my tweet below & help my #Fundraising for this year 😁🌈👨🏻‍🦽 @justgiving.bsky.social links below 🙏😎 #BeMoreAlex

Alex Mac BCyA @alexmac06.bsky.social · May 10

We did it!!! It was a bit hot 🥵☀️ walking along the country roads but we made it round!!!
I really enjoyed laughing at Mum @karenmac10.bsky.social 😂
That’s another medal to add to my collection 👍😎🏅👨🏻‍🦽🚶🏻‍♂️🚶🏻‍♀️
#CharityWalk #RainbowHubNW #RainbowRamble #BeMoreAlex

👉 justgiving.com/page/alexmac2025

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Alex Mac BCyA @alexmac06.bsky.social · May 10

We did it!!! It was a bit hot 🥵☀️ walking along the country roads but we made it round!!!
I really enjoyed laughing at Mum @karenmac10.bsky.social 😂
That’s another medal to add to my collection 👍😎🏅👨🏻‍🦽🚶🏻‍♂️🚶🏻‍♀️
#CharityWalk #RainbowHubNW #RainbowRamble #BeMoreAlex

👉 justgiving.com/page/alexmac2025

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Alex Mac BCyA @alexmac06.bsky.social · May 10

It’s #RainbowRamble Day with everyone from @rainbowhubnw !!! And we’re raring to go….5/6 miles here we come 😳 to raise valuable funds for this amazing charity #MumsAchesAndPains🤦🏻‍♂️ #BeMoreAlex 👇 🙏 🌈😎👨🏻‍🦽🚶🏻‍♂️🚶🏻‍♀️

justgiving.com/page/alexmac2025

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Alex Mac BCyA @alexmac06.bsky.social · May 3

Oh yes!!!!!

Louder Than Words Festival @lthanwordsfest.bsky.social · May 3

Such a fabulous addition to our #Louder2025 programme!

Join CLARE GROGAN in conversation... and there may well be some musical treats for our ears to boot too!

Saturday 15th November, 2pm at The Innside, Manchester.

All tickets & info here: tinyurl.com/4k6byp7f

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Alex Mac BCyA @alexmac06.bsky.social · May 3

This year is turning good for music, done Primal Scream, got #TheBluebells in August and Mum’s just sorted me a ticket to see @claregrogan.bsky.social at @lthanwordsfest.bsky.social in November!! Can’t wait!!! 😎 🎶 #BeMoreAlex

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Alex Mac BCyA @alexmac06.bsky.social · May 1

No school today but for a good reason this time, my Auntie was getting married!!
All suited & booted, we headed off to Blackpool on a lovely day for it!!

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Alex Mac BCyA @alexmac06.bsky.social · Apr 29

They let us go home so mum & dad could keep a close eye on me overnight as there were still no beds at 10:30pm We went back to see the urologist this morning & he said all was now good so they didn’t keep me in 🙌
Hope I get back to school tomorrow🤞#WhatAWeekend🤦🏻‍♂️

Karen Macpherson #MDANT @karenmac10.bsky.social · Apr 28

Soooooo…. After a day spent in 2 A&Es (we needed urology so had to go back to Preston hospital), we’ve got another nights stay to look forward to 🤦🏻‍♀️
as the Drs just want to keep an eye on his fluid levels overnight #AnotherNightOfNoSleep
( I swear this kid was sent to try me 😂)

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Reposted by Alex Mac BCyA

Karen Macpherson #MDANT @karenmac10.bsky.social · Apr 26

Thanks everyone got your messages, @alexmac06.bsky.social finally got a bed in A&E at about 1am…had tests, seen some drs waiting for more drs… oh and he’s still wide awake!!!! Mind you I won’t get much sleep in a chair anyway 🤦🏻‍♀️ #ICantGetNoSleep

Karen Macpherson #MDANT @karenmac10.bsky.social · Apr 25

Well we hadn’t planned to be in A&E with Alex this evening.. he should have been at respite 😢 #LongWait #StressedParents

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Alex Mac BCyA @alexmac06.bsky.social · Apr 26

I’m home!!! The lovely bowel surgeon came to see me & sorted out my pseudo obstruction so all good, for now anyway!!! Looking forward to sleeping in my own quiet bed tonight
Just got to get back up to speed with my food & I’m good to go 👍😎

Karen Macpherson #MDANT @karenmac10.bsky.social · Apr 26

We have smiles!!! 😍
After a night of no sleep, we’re waiting on results of a CT scan of his bowels to see what happens next…. 🤞🤞🤞🤞🤞 nothing serious!!! @alexmac06.bsky.social

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Alex Mac BCyA @alexmac06.bsky.social · Apr 23

Had a nice trip over to Yorkshire on Sunday to see my Grandma & Grandad. Went for a walk, saw some lambs & the canal 😎

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