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ALK Positive Inc. @alkpositive.bsky.social · 3h

It’s #NationalDAFDay! Turn your DAF into life-extending impact.

Each grant powers ALK-positive research and patient programs—giving families more time.

Give today: thegivingblock.com/donate/alk-p...

#MoreResearchMoreTime #ALKPositive #LCAM

ALK Positive Inc. @alkpositive.bsky.social · 6d

LCAM 2025 is almost here! 💙 Join us Sunday on ALKtALK as Marc Muskavitch shares how your support fuels research, empowers trial access & powers our medical committees. Learn what we’ve achieved, how you can join this November, & bring your questions for live Q&A! 🌟

ALK Positive Inc. @alkpositive.bsky.social · 9d

From the floor of #WCLC25, our Director of Research & Clinical Affairs, Dr. Ken Culver, spoke with Lung Cancers Today about the latest advances in lung cancer research.

👉 Watch the video & read the full article: www.lungcancerstoday.com/post/new-dat...

ALK Positive Inc. @alkpositive.bsky.social · 14d

Our board & medical committee member Marc Muskavitch joined the LungCAN Summit—uniting 30+ advocacy groups to push for earlier detection, better treatments & more research. Together, we’re stronger. 💙

ALK Positive Inc. @alkpositive.bsky.social · 14d

What a way to kick off Season 6 of ALKtALK! 🎉
We were honored to be joined by Dr. Christine M. Lovly—a renowned oncologist, researcher, and tireless advocate for ALK patients and families. 💙

If you missed it live, you can still catch this powerful replay 👉 youtu.be/dVUX0-SWBCw

ALK Positive Inc. @alkpositive.bsky.social · 21d

At 57, Colin Barton, was diagnosed with stage 4 lung cancer & given 2 yrs to live.

#BiomarkerTesting changed everything: it found ALK. Targeted treatment gave him not only more time, but the drive to co-found @ALKPositiveinc.

We want everyone to be lucky
corporate.thermofisher.com/us/en/index/...

ALK Positive Inc. @alkpositive.bsky.social · 21d

👥 Men’s Group: Connection + Conversation for ALK+ Men

A space just for men to talk, listen, and support each other.

- Discuss challenges unique to men with ALK
- Build camaraderie and connection

Join us Thursday, Sept 18 @ 9PM EST

Details: alkpositive.org/living-with-...

ALK Positive Inc. @alkpositive.bsky.social · 22d

🌍 The 2025 ALK+ Summit brought together our community from 30 countries — united in one mission: accelerating research and supporting ALK-positive lives.

💙 Together, we are stronger.

👉 Stay connected for ALK Summit 2026: mailchi.mp/alkpositive/...

#ALKPositive #StrongerTogether

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ALK Positive Inc. @alkpositive.bsky.social · 27d

ALKtALK Season 6 kicks off: Sun, Sept 14 at 7pm ET

We're excited to host Dr. @christine_lovly, oncologist, researcher, SAB member & true advocate for ALK patients. 💙

Join us on Zoom: www.alkpositive.org/alktalk

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ALK Positive Inc. @alkpositive.bsky.social · 27d

🎙️ Tune into Dr. Ross Camidge’s How This Is Building Me podcast featuring our own Dr. Ken Culver. From pediatrics to HIV, gene therapy to cancer drugs—his career has always centered on patients & now drives new ALK+ trials. 💙 Listen here: www.onclive.com/view/how-a-c...

Reposted by ALK Positive Inc.

Lung Cancer Research Foundation @lcrf.org · 29d

The lung cancer community is rallying in support of D. Ross Camidge, MD, PhD, a renowned clinical oncologist and researcher at University of Colorado Cancer Center who has recently gone public with his own lung cancer diagnosis. news.cuanschutz.edu/cancer-cente...

World Lung Cancer Expert Diagnosed with Advanced Lung Cancer

D. Ross Camidge, MD, PhD, has spent his career fighting lung cancer. In 2022, that fight turned personal when he received a diagnosis of his own.

news.cuanschutz.edu

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ALK Positive Inc. @alkpositive.bsky.social · 28d

Congratulations to friends at Nuvalent on the exciting and pivotal #ARROS1 data released @iaslc.bsky.social #WCLC25. Proud to continue to collaborate on outcomes for our patient community globally. 💙
#LCSM

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ALK Positive Inc. @alkpositive.bsky.social · 29d

💙 Our love goes out to Dr. Camidge & family. A world-renowned lung cancer expert & friend, he has guided our ALK community for years. Now living with lung cancer, we admire his courage & stand with him always. news.cuanschutz.edu/.../ross-cam...

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ALK Positive Inc. @alkpositive.bsky.social · Sep 5

We’re heading to @IASLC's #WCLC25 in Barcelona! 🇪🇸 This premier global gathering of the thoracic community brings researchers, clinicians & partners together to improve outcomes for the lung cancer & ALK+ community.

ALK Positive Inc. @alkpositive.bsky.social · Sep 3

September is Childhood Cancer Awareness Month. At 7, Deliah was diagnosed with ALK+ brain cancer. Now 13, she fights with courage & hope. 💛 Read her story: alkpositive.org/blog/pediatr...

ALK Positive Inc. @alkpositive.bsky.social · Aug 28

“Take the trips, take the chances, make every memory possible. Live, Laugh, Love & Never Give Up.” – Denise

In honoring John’s legacy, Denise reminds us love endures.
Your legacy can carry forward too. 💙

👉 Create your free will: www.freewill.com/alkpositiveinc

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ALK Positive Inc. @alkpositive.bsky.social · Aug 27

Honored to join the @IASLC Lung Cancer Considered Podcast highlighting the 2025 ALK+ Summit. 🎧 Hear our board members share how advocacy & community shape the future of ALK+ research.

🔗 soundcloud.com/lungcancerco...

#ALKPositive #LungCancer #PatientAdvocacy

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ALK Positive Inc. @alkpositive.bsky.social · Aug 26

Meet OncogeneCancer Research.

Co-founded by Yvonne Diaz & Jan Clark, this patient-led charity is working to accelerate research across oncogene-driven lung cancers - because resistance to targeted therapies remains a reality.

Read more 👉 alkpositive.org/blog/introdu...

#LCSM

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ALK Positive Inc. @alkpositive.bsky.social · Aug 15

For ALK-positive patients who have progressed after targeted therapy, a trial at Moffitt Cancer Center offers hope. This study explores an enhanced form of Tumor-Infiltrating Lymphocyte (TIL) therapy—empowering a patient’s immune cells to fight cancer. Learn more: clinicaltrials.gov/study/NCT056...

Reposted by ALK Positive Inc.

Foundation Medicine @foundationmedicine.bsky.social · Aug 1

This #WorldLungCancerDay, we are proud to support patients like Greg and organizations like @alkpositive.bsky.social on spreading greater awareness of the disease and promoting further research, education and resources for those affected.

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ALK Positive Inc. @alkpositive.bsky.social · Aug 13

Rick from San José was diagnosed ALK+ in 2014. In 2023, he joined the NVL-655 trial—and he’s still going strong. His advice: ‘Always focus on what’s important: your family and friends.’ Read his tips for scanxiety ⬇️ alkpositive.org/blog/patient...

ALK Positive Inc. @alkpositive.bsky.social · Aug 7

They’ve lived 10+ years with ALK-positive cancer.
That shouldn’t be rare—it should be the norm.

This #MakeAWillMonth, create a legacy that fuels research, hope & a future for all ALK+ patients.

Make your will free with @FreeWill ⬇️
👉 www.freewill.com/alkpositivei...

Reposted by ALK Positive Inc.

CU Cancer Center @cucancercenter.bsky.social · Aug 1

World Lung Cancer Day: Kyle Concannon, MD, joins the CU Cancer Center to establish a new lab that aims to overcome resistance to therapies in lung cancer ⬇️

Cracking Cancer: New Arrival at CU Cancer Center Seeks to Unlock Lung Cancer Secrets, Spread Awareness

Thoracic oncologist Kyle Concannon, MD, overcame a challenging upbringing to become a lung cancer physician-scientist and a cancer podcaster.

news.cuanschutz.edu

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ALK Positive Inc. @alkpositive.bsky.social · Aug 3

Many in the ALK+ community now start lorlatinib first line or later. Managing side effects can be challenging — patients need clear, practical info. Our VP Nancee Pronsati & Dr. Ken Culver co-authored a patient guide w leading KOLs. Learn more👇

alkpositive.org/blog/managing-… #LCSMSM

ALK Positive Inc. @alkpositive.bsky.social · Aug 2

Today is World ALK Lung Cancer Day 🧬🫁

18 years ago, Dr. Mano’s discovery of the ALK gene changed everything. We honor every breakthrough since — and every person behind it.

In honor, the 2025 ALK+ Summit videos now live: youtu.be/1-XOjN0K2C8?...
#WorldALKLungCancerDay

ALK Positive Summit 2025 Kick Off and Spirit of Courage Award

YouTube video by ALK Positive Inc.

youtu.be

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