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ALK Positive Lung Cancer UK @alkpositiveuk.bsky.social · 1d

Great to see our Chair Debra Montague quoted in coverage of NICE’s decision recommending lorlatinib as a 1L trtmt for people newly diagnosed with ALK+ #lungcancer in England & Wales.

A real step forward in access to targeted treatments on the NHS & recognition of the UK ALK+ community.

#LCSM

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ALK Positive Lung Cancer UK @alkpositiveuk.bsky.social · 2d

🆕 case report describes a woman with advanced #ALK+ #lungcancer who became pregnant on lorlatinib. Trtmt was paused then restarted. Baby was born healthy at 32 wks & is thriving at 20 mnths - the 1st published case showing a successful outcome. #LCSM

jto.org/article/S1556-0864(25)00746-4/fulltext

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Reposted by ALK Positive Lung Cancer UK

BTOG @btog.bsky.social · 2d

💡 Discover the latest in mutation-driven lung cancer research.
Session 4 with @ruthstraussfdn.bsky.social rings science, debate, and progress together.
📅 13 Nov | 📍 The View, London
🔗 www.btog.org/non-smo...
#LungCancer #LCSM #NonSmokingLungCancer

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Reposted by ALK Positive Lung Cancer UK

Lung Foundation Australia @lungfoundation.bsky.social · 2d

Is your job harming your lungs? 👷🫁

Take the healthy lungs at work quiz to assess your risk: buff.ly/ofeS9u0

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Reposted by ALK Positive Lung Cancer UK

Patient Information Forum @pifonline.bsky.social · 2d

If you want information you can trust on women's health or cancer, we have a collection of resources on our PIF TICK website.
All the resources are created by Trusted Information Creators using a PIF TICK approved process.
Take a look here: piftick.org.uk/resource-col...
#BreastCancerAwarenessMonth

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Reposted by ALK Positive Lung Cancer UK

Lung Cancer Nursing UK @lcnuk.bsky.social · 3d

We’re looking for new Trustees to join LCNUK, including a Finance Trustee.

Help us strengthen lung cancer nursing and patient care nationwide.

Learn more and apply ▶️ ow.ly/M57150X3eME

Application deadline: 7th October.

#Trustee #Governance

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Reposted by ALK Positive Lung Cancer UK

Nature @nature.com · 3d

An AI tool that scans manuscript titles and abstracts has flagged more than 250,000 cancer studies that bear textual similarities to articles that are known to have been produced by paper mills

go.nature.com/48mbbgj

Low quality papers are flooding the cancer literature — can this AI tool help to catch them?

A large language model scans abstracts and titles for signs that an article was produced by a 'paper-mill' company.

go.nature.com

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Reposted by ALK Positive Lung Cancer UK

Nature @nature.com · 2d

Analyses of RNA expression reveal molecules underpinning the cancer-associated process of skeletal-muscle wasting

go.nature.com/4gZI2Kh

Clues to why the weight-loss condition cachexia arises when cancer occurs

Analyses of RNA expression reveal molecules underpinning the cancer-associated process of skeletal-muscle wasting, a condition called cachexia.

go.nature.com

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Reposted by ALK Positive Lung Cancer UK

The King's Fund @thekingsfund.bsky.social · 2d

The latest #NHS performance data shows while there have been slight improvements in patient experience surveys, wider efforts to tackle waiting lists remain shaky. Read our full response 🔽 https://bit.ly/42y9bOj

Latest NHS Performance Stats Show Green Shoots Of NHS Recover Remain Fragile | The King's Fund

Danielle Jefferies, Senior Analyst at The King's Fund, responds to the latest monthly NHS performance data.

bit.ly

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Reposted by ALK Positive Lung Cancer UK

All You Need is Lungs @allyouneedislungs.bsky.social · 3d

It’s a pinch me moment! All You Need Is Lungs is a finalist tonight at the UK Social Media Awards for Best Charity/Non-Profit Campaign 🎉

Our little team is heading there with some of the amazing voices behind this #LungCancer awareness campaign & thinking of those who are no longer with us.

#LCSM

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ALK Positive Lung Cancer UK @alkpositiveuk.bsky.social · 4d

Today’s NICE decision marks a big step forward for people newly diagnosed with ALK-positive #lungcancer.

Our full statement explains what it means in practice - and why we’ll keep pushing for earlier testing and access.

🔗 www.alkpositive.org.uk/_files/ugd/3...

💙 #LCSM

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ALK Positive Lung Cancer UK @alkpositiveuk.bsky.social · 4d

‼️ BIG NEWS for ALK+!

NICE has today recommended lorlatinib (Lorbrena) as the first treatment for people in England & Wales newly diagnosed with advanced ALK+ #lungcancer.

Access to the best option from day one matters - this is real progress for people newly diagnosed & starting treatment.

#LCSM

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ALK Positive Lung Cancer UK @alkpositiveuk.bsky.social · 5d

For ALK+ lung cancer, this helps explain why immunotherapy hasn’t yet delivered the same benefit we see in other cancers. Research like this is so key for finding what could change that.

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ALK Positive Lung Cancer UK @alkpositiveuk.bsky.social · 5d

“9 yrs since my #lungcancer diagnosis” - Debra Montague, ALK+ UK Chair & Founder.

3× longer than the life expectancy I was given. Grateful for every ‘extra year’ & everything it brings: family, friends, advocacy, travel, music & memories. Still saying yes to life & excited for what’s next. 💙 #LCSM

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ALK Positive Lung Cancer UK @alkpositiveuk.bsky.social · 6d

Prof Sanjay Popat shared an encouraging outlook on ALK+ #lungcancer treatments at our conference last weekend.

Huge thanks to him and to all our experts - we couldn’t make this conference happen every year without you. It’s so important that our community stays informed & empowered. 💙 #LCSM

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Reposted by ALK Positive Lung Cancer UK

Cancer52 @cancer52org.bsky.social · 10d

Busy time at #Lab25, connecting with policy makers and member charities.
With the National Cancer Plan in the final stages of development, it’s a vital time to collaborate to improve outcomes for people affected by rare & less common cancers.

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Reposted by ALK Positive Lung Cancer UK

Patient Information Forum @pifonline.bsky.social · 9d

1/2 - Did you know that half of UK adults struggle to access trusted health information? And that up to 1 million people cannot speak English well or at all?

At PIF, we believe everyone should have access to health information they can understand.

#HealthLiteracyMonth
#HealthLiteracy

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Reposted by ALK Positive Lung Cancer UK

The King's Fund @thekingsfund.bsky.social · 7d

This week, Right Reverend and Right Honourable Dame Sarah Mullally DBE was announced as the new Archbishop of Canterbury.

Earlier this year she joined us on our podcast to talk about faith, hope and health inequalities. You can listen back to the episode here: https://bit.ly/4gTwS9P

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Reposted by ALK Positive Lung Cancer UK

Lung Foundation Australia @lungfoundation.bsky.social · 8d

✨ Brisbane was buzzing as the World Bronchiectasis Conference landed - and for the first time, consumers weren’t just attending, they were shaping the conversation. 💬

🎤 Real voices, real impact. Discover how our consumers helped shape the WBC experience: buff.ly/0bnr4sc

#WBC2025 #Bronchiectasis

Celebrating Consumer Voices at World Bronchiectasis Conference 2025

When the World Bronchiectasis Conference came to Brisbane in July, there was a palpable sense of excitement.

buff.ly

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Reposted by ALK Positive Lung Cancer UK

ESMO - European Society for Medical Oncology @myesmo.bsky.social · 6d

🤖 How can multimodal AI support #PrecisionOncology? At #ESMOAI25, the session “Multimodal AI for clinical decision support” will explore tumour boards, real-world data, explainability & integration challenges.

👉 www.esmo.org/meeting-cale...

#ESMOAI25 #DigitalOncology #HealthAI

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ALK Positive Lung Cancer UK @alkpositiveuk.bsky.social · 7d

We’re in Belfast for BOPA 2025 (3-5 Oct).

Our treasurer, Geoff Otterman, is representing us & hosting our stand.

BOPA is a key oncology pharmacy event - it gives us the chance to:

▪️Highlight ALK+ #lungcancer
▪️Connect with the pharmacy community

If you’re at the conference come & say 👋 #LCSM

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ALK Positive Lung Cancer UK @alkpositiveuk.bsky.social · 7d

More than 60K people in England miss out on radiotherapy each year. For #lungcancer, delays cost lives. Prof Pat Price calls it a “cancer care crisis.” ALK+ UK supports Radiotherapy UK & #CatchUpWithCancer in calling for urgent action in the National Cancer Plan. #LCSM

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Reposted by ALK Positive Lung Cancer UK

Paul Belcher FRCP MFPH Hon 🇪🇺🇬🇧 @pauljbelcher.bsky.social · 8d

🪵 Affluent effluence: #AirPollution caused by indoor #WoodBurning in wealthier urban areas is increasingly linked to declining #Lung function

New findings presented at @europeanrespsoc.bsky.social congress suggest a rising #PublicHealth threat in Europe

www.emjreviews.com/respiratory/...

Indoor Wood Burning in Affluent Areas Problematic for Lung Health

Indoor wood burning is linked to declining lung function, with UK data showing rising emissions, increased use among older adults, and concerning health risks for vulnerable populations.

www.emjreviews.com

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Reposted by ALK Positive Lung Cancer UK

BTOG @btog.bsky.social · 9d

"🧩 Local Consolidative Therapy – survival benefits or overtreatment?
Hear from experts tackling difficult questions in non-smoking lung cancer.
🎫 Register today
🔗 www.btog.org/non-smo...
#LungCancer #LCSM #NonSmokingLungCancer
With @RuthStraussFdn"

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ALK Positive Lung Cancer UK @alkpositiveuk.bsky.social · 8d

Scientists have found not all ALK+ #LungCancer fusions act the same.

Variant 3 can grow faster & may respond less well to some ALK drugs.

Knowing the exact fusion variant could help doctors plan more personalised treatment & improve outcomes. #LCSM

🔗 www.dkfz.de/en/news/pres...

Not all ALK fusions act the same: Variants influence treatment success in lung cancer

About five percent of lung adenocarcinomas, one of the most common forms of lung cancer, are driven by a faulty fusion of two genes, EML4 and ALK. This fusion results in different variants, and until ...

www.dkfz.de

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