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Angioedema News @angioedemanews.bsky.social · 2h

Your mental health matters: https://bit.ly/4jEt387

Self-care, mindfulness, support groups, and therapy can all help you cope 💙

#HereditaryAngioedema #HAEAwareness #MentalHealthMatters #ChronicIllness #RareDisease #PatientSupport #AngioedemaNewsToday #Bionews

Angioedema News @angioedemanews.bsky.social · 7h

Just diagnosed with HAE? https://bit.ly/3SHWpHL

Here’s what to do next, from building your care team to managing daily life.

#NewDiagnosis #HAESupport #CareTeam #PatientGuide #LivingWithHAE #AngioedemaNews #Bionews

Angioedema News @angioedemanews.bsky.social · 7h

Your courage in the face of challenges is truly remarkable: hold on to that strength. 💖 #InvisibleIllness

Angioedema News @angioedemanews.bsky.social · 8h

Read a heartfelt story of navigating family, guilt, and rare disease: https://bit.ly/42M39Kc

Genetic guilt can weigh heavy. Read one mother’s honest story of struggle, love, and hope in hereditary illness. #RareDisease

The guilt of genetics: A mother’s struggle with hereditary illness

As someone living with hereditary angioedema, columnist Hollie Amadio can't help but worry that she passed down the illness to her children.

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Angioedema News @angioedemanews.bsky.social · 12h

Read more: https://bit.ly/4qGVZkD

Delayed HAE diagnosis changes a life:

After 20 years of symptoms and no family history, this woman finally received an HAE type 1 diagnosis.

Her story is a powerful reminder of why raising HAE awareness matters—no one should wait decades for answers.

Diverse group holding hands, surrounded by awareness ribbons and hearts, with text: "Why Rare Disease Awareness Matters". By AngioedemaNews.com

Text detailing a woman's 20-year struggle with undiagnosed HAE due to lack of family history, highlighting diagnostic delays. By AngioedemaNews.com

Text listing signs of a condition: abdominal swelling, unexplained pain, recurring flares with no clear cause, ineffective allergy treatments. By AngioedemaNews.com

Awareness of HAE symptom patterns can lead to faster diagnoses. Get the full story at "Link in bio." By AngioedemaNews.com

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Angioedema News @angioedemanews.bsky.social · 23h

Promise me you’ll always remember: You’re braver than you believe, stronger than you seem, and smarter than you think. #Spoonie

Angioedema News @angioedemanews.bsky.social · 1d

Take a moment today to recognize your progress: https://bit.ly/4kUuC33

It’s easy to get caught up in “what ifs” about the future, but don’t forget to celebrate how far you’ve come.

#Angioedema #HAE #ChronicIllness #CaregiverLife #ProgressNotPerfection #RareDisease #AngioedemaNews #Bionews

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Angioedema News @angioedemanews.bsky.social · 1d

See Factor XII’s role: https://bit.ly/4jYEqbd

#HAE #FactorXII #Research #AngioedemaNews #Bionews

Angioedema News @angioedemanews.bsky.social · 1d

People need to be more compassionate. Chronic pain is no joke. #RareDisease

Angioedema News @angioedemanews.bsky.social · 1d

Prepare yourself with practical tips for managing HAE during extreme weather: https://bit.ly/48FQcW3

Severe weather affects health in hidden ways. Prepare yourself with common-sense tips that protect your HAE. #HAE

I’ve learned that severe weather and HAE have a lot in common

Columnist Danita LaShelle Jones has learned that her daughter's HAE has a lot in common with the severe weather of her northern Alabama home.

bit.ly

Angioedema News @angioedemanews.bsky.social · 1d

Remember to give yourself grace, find time for what brings you joy, and reach out to others who truly get it.

are not alone on this journey—community and self-care make a difference!

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Angioedema News @angioedemanews.bsky.social · 1d

Learn more about caregiving: https://bit.ly/48ZPnaD

Caring for someone with HAE can be tough, but your well-being is just as important as theirs.

HAE Advocates article offering essential caregiving tips, featuring a caregiver attentively holding an elderly man's hand. By AngioedemaNews.com

Tips and advice for caregivers: Find support, be honest and prepare, find joy in little things, avoid comparisons, process emotions. By AngioedemaNews.com

Text promoting tips and advice for HAE caregivers, directing to click the link in the bio. By AngioedemaNews.com

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Angioedema News @angioedemanews.bsky.social · 1d

Find joy in the little victories: they are the building blocks of healing. 🧩 #ChronicIllness

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Angioedema News @angioedemanews.bsky.social · 2d

Discover Hollie's story: https://bit.ly/4lDaF0K

From patient to powerhouse, she’s now fighting for a healthcare system that truly sees rare disease patients.⁠ 👊⁠

#Angioedema #HAE #RareDiseaseWarrior #Bionews #HAEAwareness #AngioedemaAwareness #AngioedemaNewsToday #InvisibleIllness #Misdiagnosed

Angioedema News @angioedemanews.bsky.social · 2d

Stay in the know—and never miss an update! https://bit.ly/3FHecMk

Sign up for the weekly newsletter, because knowledge is power, and you’re not alone!

#Angioedema #HAE #PatientSupport #Newsletter #RareDisease #AngioedemaNews #Bionews

Angioedema News @angioedemanews.bsky.social · 2d

Celebrating small wins boosts confidence. What’s something you’re proud of achieving recently? #DisabilityAwareness

Angioedema News @angioedemanews.bsky.social · 2d

Explore how building community can transform the rare disease experience: https://bit.ly/4o28t4s

Community turns isolation into strength. See how connection is transforming the rare disease journey for many. #RareDisease

From isolation to community: The power of connection

In her journey with hereditary angioedema, columnist Hollie Amadio has discovered the power of connection with others who have the disease.

bit.ly

Angioedema News @angioedemanews.bsky.social · 3d

Leave a 📝 in the comments if resting is on your to-do list (because priorities!). #ChronicIllnessWarrior

Angioedema News @angioedemanews.bsky.social · 3d

Explore the full range of angioedema treatments: https://bit.ly/3He43qS

These range from medications to home remedies. Plus, find strategies to manage and prevent swelling.

#AngioedemaCare #HAEAwareness #PatientSupport #RareDiseaseCommunity #HealthTips #AngioedemaNews #Bionews

Angioedema News @angioedemanews.bsky.social · 3d

Your mental health matters: https://bit.ly/4jEt387

Self-care, mindfulness, support groups, and therapy can all help you cope 💙

#HereditaryAngioedema #HAEAwareness #MentalHealthMatters #ChronicIllness #RareDisease #PatientSupport #AngioedemaNewsToday #Bionews

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Angioedema News @angioedemanews.bsky.social · 3d

Your resilience is inspiring: never underestimate its impact. 🌟 #InvisibleIllness

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Angioedema News @angioedemanews.bsky.social · 3d

Understand the hurdles faced in accessing care and what can be done: https://bit.ly/43mLVTK

Insurance battles can be challenging and costly. Understand the system and empower yourself to navigate obstacles. #Accessibility

Absurd insurance battles are costly for those with rare conditions

Columnist Hollie Amadio notes the ways that profit-minded insurance battles can prove multifariously costly to those with rare conditions.

bit.ly

Angioedema News @angioedemanews.bsky.social · 4d

Leave a 🛌🏆 in the comments if you’re basically a professional at resting. #Spoonie

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