Parents discuss what it is like to bring up a visually impaired or blind child in 2025.

Talk by Elliott, person with aniridia at Conference 2025 "Identifying privilege, embracing protest and challenging power have all been integral to a journey these 25 years that I could not have imagined. "Fighting for a seat at the table for the most marginalised has morphed into a passion, although that has only been possible through recognising my own vulnerabilities and taking part in civil resistance.

Are you aged 18 to 40? Do you want to improve how you work with people to achieve greater success? Will you help enhance the lives of people affected by aniridia? Come to Bulgaria in April 2026 for the 'European Aniridia Leadership and Collaboration Academy'. We're seeking people with and without aniridia to join a 3-day event aiming to raise your:

Talk by Samuel Heczko & Dr. Wai Kit (Calvin) Chan, University of Edinburgh at Conference 2025 We all come from a single cell. But how does this cell know when and how to divide into a brain? And how does the aniridia-associated gene PAX6 guide this process? In this talk we learn about some fascinating research looking for answers to those questions.

Talk by Professor Moosajee, Moorfields Eye Hospital at Conference 2025 Dr Mariya Moosajee It is now accepted that reduced PAX6, caused by genetic changes involving the gene, does not just affect the eye (causing aniridia) but has an impact on many other organs of the body. In this talk, Professor Mariya Moosajee explains the impact of PAX6 outside the eye, and expands on insights gained from looking at all the metabolites in the blood of aniridia patients.

"I found it very informative and took things from each of the talks that I feel like could use going forward to inform my own family and myself when dealing with our healthcare" Attendee Our main event of the year was held online, 1-4pm on Saturday 1 November 2025. We had wodnerful speakers, to talk about a range of aniridia-related issues: from personal experiences to cutting-edge research.

Our next event will be online,1-4pm Saturday 1 November 2025. We have put together a great line up of speakers, to talk about a plethora of aniridia related themes online: from personal experiences…

We have an opportunity to make what RNIB publishes about aniridia as good as possible. They want your valuable input on their online information. Read and critique it. What is needed RNIB maintains…

We would be nothing with the lovely people who use their skills in their spare time to do our charitabke deeds. We are very appreciative of the efforts of all our volunteers and hence what they get done for our beneficiaries. To recognise particular individuals’ input, we created an annual award scheme. Winners get a certificate and a £25 shopping voucher.

Several of our members affected by WAGR enjoyed meeting in Sussex recently Parents Aaron and Michelle brilliantly organised the 2 day event with International WAGR Syndrome Association (IWSA). Aniridia Network trustee James went along to speak with people and fly our flag. Nearly everyone with WAGR has aniridia.

Read details of what our officials, members and supporters did as well our finances between 1 April 2024 and 31 March 2025 in the Aniridia Network Annual Report for 2024/25. Key points After a year with none, 2 people did fundraising plus a legacy donation Several useful events: meetups, conference and leadership academy Moved from Twitter/X to Threads and BlueSky…

The Aniridia Network AGM will be held online on the afternoon of 1 November 2025 as part of our annual conference. We're looking forward to seeing you there.