Princess in the Tower
@apainprincess.bsky.social
Healing Portal for everyone affected by severe #ChronicPain & #ChronicIllness~by a princess with full body #CRPS.
Resources, community, awareness | www.princessinthetower.org
#YouAreNotAlone ~ wishing you support, strength & hope for far kinder days.♥
Resources, community, awareness | www.princessinthetower.org
#YouAreNotAlone ~ wishing you support, strength & hope for far kinder days.♥
Pinned
“If opening your eyes, or getting out of bed, or holding a spoon, or combing your hair is the daunting Mount Everest you climb today, that is okay.” ~ Carmen Ambrosia
#MentalHealthMatters #ChronicPain #ChronicIllness #RareDisease
#MentalHealthMatters #ChronicPain #ChronicIllness #RareDisease
"The tricky thing about chronic Illnesses are how individualistic they are. Even people suffering from the same illness can present vastly different symptoms… triggers vary… so do coping strategies.” https://buff.ly/2WuDKQF @achronicvoice.com #chronicillness #chronicpain
December 7, 2025 at 1:23 AM
"The tricky thing about chronic Illnesses are how individualistic they are. Even people suffering from the same illness can present vastly different symptoms… triggers vary… so do coping strategies.” https://buff.ly/2WuDKQF @achronicvoice.com #chronicillness #chronicpain
“People don’t understand the amount of energy that goes into preparing to leave the house… You have to calculate your every move to ensure you don’t overdo it. Even still, you could have an awful flare-up.” https://buff.ly/2JEis0g #ChronicIllness #DisabilitySky
December 6, 2025 at 2:23 PM
“People don’t understand the amount of energy that goes into preparing to leave the house… You have to calculate your every move to ensure you don’t overdo it. Even still, you could have an awful flare-up.” https://buff.ly/2JEis0g #ChronicIllness #DisabilitySky
“Guilt is a common reaction to cancelling—but it’s important to remind yourself that it isn’t your fault. You are doing the best you can… Your #chronicillness isn’t a flaw or failure… Release yourself from any expectation of what you ‘should’ be doing.” https://buff.ly/4R793wX #DisabilitySky
December 6, 2025 at 1:23 AM
“Guilt is a common reaction to cancelling—but it’s important to remind yourself that it isn’t your fault. You are doing the best you can… Your #chronicillness isn’t a flaw or failure… Release yourself from any expectation of what you ‘should’ be doing.” https://buff.ly/4R793wX #DisabilitySky
“I don’t trust my sensations. Things that should be cold, burn…normal movements, shock at random… A simple brush by from someone translates into unbearable discomfort… Even noises…or a breeze could translate into painful burning.” https://buff.ly/3SEswIV #ChronicPain #RareDisease #CPS #CRPS
December 5, 2025 at 2:23 PM
“I don’t trust my sensations. Things that should be cold, burn…normal movements, shock at random… A simple brush by from someone translates into unbearable discomfort… Even noises…or a breeze could translate into painful burning.” https://buff.ly/3SEswIV #ChronicPain #RareDisease #CPS #CRPS
“Do not berate yourself… #chronicillness life is all about things going belly up and we don’t need to add more grief or self-recrimination to our plate. Flexibility is important and it’s not failure if you can’t always meet your aims.” https://buff.ly/r2hoUlZ @invisiblymeblog
December 5, 2025 at 1:23 AM
“Do not berate yourself… #chronicillness life is all about things going belly up and we don’t need to add more grief or self-recrimination to our plate. Flexibility is important and it’s not failure if you can’t always meet your aims.” https://buff.ly/r2hoUlZ @invisiblymeblog
“#ChronicIllness is unpredictable. One day you’ll be thinking, “I can handle it” then bam. The next…find yourself bed-bound as the weeks fly by, wondering if it will ever let up… Now… I give myself compassion—I am doing my absolute best—and that is OK.” https://buff.ly/2yHONMo #DisabilitySky
December 4, 2025 at 2:23 PM
“#ChronicIllness is unpredictable. One day you’ll be thinking, “I can handle it” then bam. The next…find yourself bed-bound as the weeks fly by, wondering if it will ever let up… Now… I give myself compassion—I am doing my absolute best—and that is OK.” https://buff.ly/2yHONMo #DisabilitySky
“There are no magic words, and unless you are living with #ChronicPain, it’s difficult to understand what we are going through. ”This must be so difficult for you.” Comments like this show support without pretending you know how we feel.” https://buff.ly/2MZaEoa #chronicillness #spoonie
December 4, 2025 at 2:23 AM
“There are no magic words, and unless you are living with #ChronicPain, it’s difficult to understand what we are going through. ”This must be so difficult for you.” Comments like this show support without pretending you know how we feel.” https://buff.ly/2MZaEoa #chronicillness #spoonie
“When you have #ChronicPain there’s no finish line… Trying to push through the pain will just make things worse… Pushing through pain for a few days knowing that it will get better is very different than every day for years.” buff.ly/39qiDL2 #Disability #InvisibleIllness
December 3, 2025 at 2:23 PM
“When you have #ChronicPain there’s no finish line… Trying to push through the pain will just make things worse… Pushing through pain for a few days knowing that it will get better is very different than every day for years.” buff.ly/39qiDL2 #Disability #InvisibleIllness
“It takes a lot of energy to be in pain all the time… You can’t know what it’s like living with #ChronicPain unless you have it, and understanding what it’s like… dramatically affects how you treat someone who lives with it.” https://buff.ly/ZVh1ubc (@kmitchellauthor) #InvisibleIllness
December 3, 2025 at 1:23 AM
“It takes a lot of energy to be in pain all the time… You can’t know what it’s like living with #ChronicPain unless you have it, and understanding what it’s like… dramatically affects how you treat someone who lives with it.” https://buff.ly/ZVh1ubc (@kmitchellauthor) #InvisibleIllness
“I reached my limit for “pushing through it” and ended up unable to get out of bed for months, and disabled at 25… #Disability has shown me there are more important things than the standards of society or expectations.” https://buff.ly/3Q4Kl2L #DisabilitySky #ChronicallyIll #ChronicPain
December 2, 2025 at 2:23 PM
“I reached my limit for “pushing through it” and ended up unable to get out of bed for months, and disabled at 25… #Disability has shown me there are more important things than the standards of society or expectations.” https://buff.ly/3Q4Kl2L #DisabilitySky #ChronicallyIll #ChronicPain
“Many sufferers are incredible actors who can smile through pain and misery that would have most people heading to the ER… The internal battle is ongoing.” “But You Look Great” The Challenges of #InvisibleIllness https://buff.ly/2FUOdO6 #ChronicPain
December 2, 2025 at 1:23 AM
“Many sufferers are incredible actors who can smile through pain and misery that would have most people heading to the ER… The internal battle is ongoing.” “But You Look Great” The Challenges of #InvisibleIllness https://buff.ly/2FUOdO6 #ChronicPain
“How exhausting being in constant pain is, and how frustrating it is to be limited physically when there is so much more that I would like to do.” 18 Hidden Parts of #ChronicIllness You Don't Usually See https://buff.ly/2MXjCSH #ChronicPain
December 1, 2025 at 1:23 PM
“How exhausting being in constant pain is, and how frustrating it is to be limited physically when there is so much more that I would like to do.” 18 Hidden Parts of #ChronicIllness You Don't Usually See https://buff.ly/2MXjCSH #ChronicPain
“Constantly explaining ourselves and the emotional weight that comes with that on top of our symptoms, as well as masking and feeling unseen is a lot to carry. But online I have found so much understanding, kindness and… friends, allies.” https://buff.ly/CUjt9mi #disability
December 1, 2025 at 3:23 AM
“Constantly explaining ourselves and the emotional weight that comes with that on top of our symptoms, as well as masking and feeling unseen is a lot to carry. But online I have found so much understanding, kindness and… friends, allies.” https://buff.ly/CUjt9mi #disability
“You are expected to give up your seat because you are young and you look fine. The truth is, you aren’t fine. You are in pain. You are tired, and have every right to sit in that seat.” Frustrating Situations When You're Young with #ChronicPain https://buff.ly/2S1ppx5 #NERVEmber
November 30, 2025 at 11:23 PM
“You are expected to give up your seat because you are young and you look fine. The truth is, you aren’t fine. You are in pain. You are tired, and have every right to sit in that seat.” Frustrating Situations When You're Young with #ChronicPain https://buff.ly/2S1ppx5 #NERVEmber
“Sound, vibration, even a breeze can send our pain levels soaring. This is so hard to convey to healthy people, who have a tendency to think that it can’t be that bad—but it is. #CRPS’ perplexing symptoms are incredibly real to us.” https://buff.ly/pNO6lzb #CRPSAwarenessMonth #NERVEmber
November 30, 2025 at 3:23 PM
“Sound, vibration, even a breeze can send our pain levels soaring. This is so hard to convey to healthy people, who have a tendency to think that it can’t be that bad—but it is. #CRPS’ perplexing symptoms are incredibly real to us.” https://buff.ly/pNO6lzb #CRPSAwarenessMonth #NERVEmber
“Healthy people don’t understand that #chronicillness and pain is not linear… the consequences don’t always match the actions. We have no idea if what we choose to do now will mean that we can’t move tomorrow.” buff.ly/2NAyL12 #NERVEmber #chronicpain
November 30, 2025 at 1:23 AM
“Healthy people don’t understand that #chronicillness and pain is not linear… the consequences don’t always match the actions. We have no idea if what we choose to do now will mean that we can’t move tomorrow.” buff.ly/2NAyL12 #NERVEmber #chronicpain
“It can be even harder when you live with more than one type of #ChronicPain, or when #ChronicIllness adds extra layers to the struggle. Just when one part of your body starts to calm down a little, somewhere else flares up.” buff.ly/MGfPSsS @despitepain.bsky #NERVEmber #spoonie
November 29, 2025 at 3:23 PM
“It can be even harder when you live with more than one type of #ChronicPain, or when #ChronicIllness adds extra layers to the struggle. Just when one part of your body starts to calm down a little, somewhere else flares up.” buff.ly/MGfPSsS @despitepain.bsky #NERVEmber #spoonie
“Medication is not failure. You’re not broken because you need support—you’re resilient because you keep showing up… And if all else fails? Cancel everything…give yourself the grace to rest.” https://vikkyleaney.substack.com/p/my-top-5-pain-management-tools-as/ #ChronicPain
November 28, 2025 at 1:23 AM
“Medication is not failure. You’re not broken because you need support—you’re resilient because you keep showing up… And if all else fails? Cancel everything…give yourself the grace to rest.” https://vikkyleaney.substack.com/p/my-top-5-pain-management-tools-as/ #ChronicPain
“I spend everyday in excruciating #pain. I’m sensitive to light and noise… My short term memory’s bad… #CRPS is a horrid disease… Don’t allow someone to minimize your journey… every warrior is a warrior.” https://rsds.org/dont-allow-someone-else-to-minimize-your-journey/ #RSD #CRPSAwarenessMonth
November 27, 2025 at 1:23 AM
“I spend everyday in excruciating #pain. I’m sensitive to light and noise… My short term memory’s bad… #CRPS is a horrid disease… Don’t allow someone to minimize your journey… every warrior is a warrior.” https://rsds.org/dont-allow-someone-else-to-minimize-your-journey/ #RSD #CRPSAwarenessMonth
“Chronic pain is very different because It. Never. Ends. We never get a chance to be in our body in a comfortable state. #NervePain is torture—I stare in disbelief because I swear it should be on fire.” https://themighty.com/topic/fibromyalgia/types-of-chronic-pain-fibromyalgia-feels-like #NERVEmber
November 26, 2025 at 1:23 AM
“Chronic pain is very different because It. Never. Ends. We never get a chance to be in our body in a comfortable state. #NervePain is torture—I stare in disbelief because I swear it should be on fire.” https://themighty.com/topic/fibromyalgia/types-of-chronic-pain-fibromyalgia-feels-like #NERVEmber
“We don’t see how someone is on their worst days; we only see them on a day when they’re well enough to leave the house. You don’t know what it took for someone to get up and get out that day, so don’t judge.” https://whatapain.co.uk/things-to-remember-about-invisible-disabilities/ #disabilitysky
November 25, 2025 at 1:23 PM
“We don’t see how someone is on their worst days; we only see them on a day when they’re well enough to leave the house. You don’t know what it took for someone to get up and get out that day, so don’t judge.” https://whatapain.co.uk/things-to-remember-about-invisible-disabilities/ #disabilitysky
“Those with #chronicillness may need to cancel events last minute. This does not mean they are lazy or trying to avoid activities. Once #fatigue kicks in—the body ‘hits a wall’ & can’t go further—no matter what.” https://themighty.com/topic/chronic-illness/doctor-with-chronic-illness-things-to-know/
November 24, 2025 at 2:23 PM
“Those with #chronicillness may need to cancel events last minute. This does not mean they are lazy or trying to avoid activities. Once #fatigue kicks in—the body ‘hits a wall’ & can’t go further—no matter what.” https://themighty.com/topic/chronic-illness/doctor-with-chronic-illness-things-to-know/
“#ChronicPain is always there…interfering with every aspect of life one can think of… You learn to hide it. You learn to function through levels a normal person would not tolerate. Yet you cannot get 'used' to it… Pain demands attention.” https://buff.ly/7EUjBx1 #NERVEmber #ChronicIllness
November 24, 2025 at 1:23 AM
“#ChronicPain is always there…interfering with every aspect of life one can think of… You learn to hide it. You learn to function through levels a normal person would not tolerate. Yet you cannot get 'used' to it… Pain demands attention.” https://buff.ly/7EUjBx1 #NERVEmber #ChronicIllness
“Be gentle with yourself… Our bodies are hard enough on us without ourselves being even harder. Be kind, be patient, be gentle. Treat yourself how you would treat another #chronicallyill person.” https://themighty.com/topic/chronic-illness/hacks-tips-cleaning-chronic-illness/ #ChronicPain #Spoonie
November 23, 2025 at 2:23 PM
“Be gentle with yourself… Our bodies are hard enough on us without ourselves being even harder. Be kind, be patient, be gentle. Treat yourself how you would treat another #chronicallyill person.” https://themighty.com/topic/chronic-illness/hacks-tips-cleaning-chronic-illness/ #ChronicPain #Spoonie
“I tend to put pressure on myself to ‘power through’ pain to prove that I am capable: But powering through pain can cause more harm than good, and it is okay to not ‘power through’!” Why Do I Pretend To Be Well? #ChronicPain #InvisibleIllness
Why Do I Pretend To Be Well?
Why Do I Pretend To Be Well?
cme.sh
November 22, 2025 at 1:23 PM
“I tend to put pressure on myself to ‘power through’ pain to prove that I am capable: But powering through pain can cause more harm than good, and it is okay to not ‘power through’!” Why Do I Pretend To Be Well? #ChronicPain #InvisibleIllness