Lightnews — Scholar-powered news

Ashley Ball-Gamble @ashleyballgamble.bsky.social · 20d

Non-commercial clinical research (which includes charity-funded research) - as well as addressing patient priorities and developing new treatments and cures - has a huge benefit to the UK economy.

Association of Medical Research Charities @amrc-uk.bsky.social · 22d

New Frontier Economics report, commissioned by AMRC and @wellcometrust.bsky.social, showcases the extensive benefits of non-commercial clinical research. It reveals the ‘triple dividend’ this research brings to the UK: unlocking growth, supporting the NHS and improving lives. bit.ly/3KrW7nf

Health and growth: How non-commerical clinical research benefits the UK. www.amrc.org.uk/HealthAndGrowth25 A report for the Association of Medical Research Charities (AMRC) and Wellcome, by Frontier Economics

2

Reposted by Ashley Ball-Gamble

CCLG: The Children & Young People’s Cancer Association @cclguk.bsky.social · Sep 1

Around 1 in 500 children in the UK will be diagnosed with cancer by age 14. This #CCAM, we’re highlighting #ChildCancerSmart, sharing information about how diagnoses are made and what support is available for families 🎗️

Find out more and get involved at bit.ly/45JBdsi

2 2

Reposted by Ashley Ball-Gamble

CCLG: The Children & Young People’s Cancer Association @cclguk.bsky.social · Sep 5

💡 Have an idea to improve cancer outcomes for children and young people?

@littleprincesses.bsky.social Project Grants are available for #research into kinder treatments, better care, and improved diagnosis.

Find out more and apply by 8 October at bit.ly/47vDWa5

#CCAM #CYPCancerResearch

2 3

Reposted by Ashley Ball-Gamble

CCLG: The Children & Young People’s Cancer Association @cclguk.bsky.social · 29d

🚨 Attention, early career researchers working in childhood and young people's cancer: Share your work 🗣️

Submit a poster, presentation, or power pitch for our Early Career Research Day.

Deadline: 5 pm, Friday, 19 September.

More info and submit at bit.ly/42qh9c6

1 1

Reposted by Ashley Ball-Gamble

CCLG: The Children & Young People’s Cancer Association @cclguk.bsky.social · Aug 19

3 persistent symptoms, 3 GP visits or 3 weeks of unexplained symptoms? We want #HealthcareProfessionals to consider: 'Could it be cancer?'

#ChildCancerSmart Dissemination Lead, @drbobphillips.bsky.social, explains more about our evidence-based approach.

🔗 bit.ly/4lno0Kh

3 3

Reposted by Ashley Ball-Gamble

CCLG: The Children & Young People’s Cancer Association @cclguk.bsky.social · Aug 27

We're joining #OneCancerVoice, a coalition of over 60 charities, to urge the UK Government to deliver a bold and fully funded #NationalCancerPlan for England. This plan aims to save and improve the lives of more people, including children and young people 🎗️📣

3 3

Ashley Ball-Gamble @ashleyballgamble.bsky.social · Aug 16

Finally got round to creating my kitchen gallery with pride of place given to my fave Christmas present, “The Mona Lisa Scott-Lee” by @joelycett.bsky.social

2

Reposted by Ashley Ball-Gamble

CCLG: The Children & Young People’s Cancer Association @cclguk.bsky.social · Aug 8

We want #HealthcareProfessionals to consider the question: 'Could it be cancer?'

If a child has 3 persistent symptoms, 3 GP visits, or 3 weeks of unexplained symptoms, it might be time to call your local on-call paediatrician 📞

cclg.org.uk/childcancers...

#ChildCancerSmart

2 3

Ashley Ball-Gamble @ashleyballgamble.bsky.social · Aug 7

Huge thanks to everyone involved, not least CCLG Early Diagnosis Fellow @headsmartfellow.bsky.social, all of the team involved in this, the children, young people and families who have contributed, and @dramirkhangp.bsky.social for helping to spread the word!

1 3

Ashley Ball-Gamble @ashleyballgamble.bsky.social · Aug 7

It follows several years of research, including a population-based observational study and a lot of systematic reviews, to ensure we have, for the first time, a sound evidence base and a good understanding of the signs and symptoms of childhood cancer and the pathways to diagnosis.

1 1 1

Ashley Ball-Gamble @ashleyballgamble.bsky.social · Aug 7

Pleased to launch #ChildCancerSmart today, aiming to speed up diagnosis of cancer in children and young people through raising awareness with the public and equipping professionals with tools and resources to help them with diagnosis

CCLG: The Children & Young People’s Cancer Association @cclguk.bsky.social · Aug 7

Today, we’re launching #ChildCancerSmart alongside campaign ambassador @dramirkhangp.bsky.social - an evidence-based public and professional awareness campaign to improve #EarlyDiagnosis of cancer in children and teenagers aged up to 18 🩵🎗️

Find out more at cclg.org.uk/childcancers...

1 1 2

Ashley Ball-Gamble @ashleyballgamble.bsky.social · Jul 27

Greetings from a scorching Washington DC

2

Ashley Ball-Gamble @ashleyballgamble.bsky.social · Jul 22

#Bahamas day spent feeding fish from a catamaran followed by a quick dip in the sea

1

Ashley Ball-Gamble @ashleyballgamble.bsky.social · Jul 20

View from the treadmill slightly more motivating than usual #Bermuda

1

Ashley Ball-Gamble @ashleyballgamble.bsky.social · Jul 20

#Bermuda

Ashley Ball-Gamble @ashleyballgamble.bsky.social · Jul 15

Good morning #Baltimore

Ashley Ball-Gamble @ashleyballgamble.bsky.social · Jul 3

Today's 10-Year Health Plan is a welcome step forward, but for children & young people with cancer, the forthcoming Cancer Plan must use this as stepping stone to go further. Full response from the CYP Cancer Coalition on our new LinkedIn page (follow us!) www.linkedin.com/pulse/patien...

Patient power, choice and voice is a welcome stepping stone to change – we must go further for children and young people with cancer

The Children and Young People’s Cancer Coalition (CYP Cancer Coalition) welcomes today’s publication of the government’s 10-Year Health Plan, particularly its ambition to put patient power, choice, an...

www.linkedin.com

2 2

Reposted by Ashley Ball-Gamble

Rod Mitchell @rodtmitchell.bsky.social · Jun 23

Very much looking forward to this public webinar with my fantastic colleague Mark Brougham and @cclguk.bsky.social to talk about how #Fertility is affected by #ChildhoodCancer treatment. We plan to leave lots of time at the end so if you have a burning 🔥 question…here’s your chance 😊

CCLG: The Children & Young People’s Cancer Association @cclguk.bsky.social · Jun 23

How can #ChildhoodCancer affect #fertility and what can be done to help? 🧬 Join our free webinar with Prof Rod Mitchell & Dr Mark Brougham to find out 👨‍⚕️

🗓️ 9 July 2025 ⏰ 1:30 - 2:30 pm 🌍 Open to all

Register now for free at bit.ly/3T3i7WM

2 3

Reposted by Ashley Ball-Gamble

CCLG: The Children & Young People’s Cancer Association @cclguk.bsky.social · Jun 25

This is exciting news! We're so proud to be working with you to create a brighter future for children and young people with Ewing sarcoma! 💛🎗️

Bone Cancer Research Trust @bcrt-uk.bsky.social · Jun 24

We're just one week away from #SarcomaAwarenessMonth 🎗️

This July, we're announcing a record investment in Ewing sarcoma research with @cclguk.bsky.social and @greatormondst.bsky.social.

Stay tuned for more exciting news, powerful stories, and ways to get involved 🧡

#Awareness #UntilTheresACure

A graphic that reads: we have big news coming soon on a newspaper with bunsen burners.

1 3

Ashley Ball-Gamble @ashleyballgamble.bsky.social · Jun 12

We're working to put lived experience at the heart of our work, and to support researchers to ensure this is a core part of their work too. More information - and opportunities - coming soon, watch this space!

CCLG: The Children & Young People’s Cancer Association @cclguk.bsky.social · Jun 5

#LivedExperience should be at the heart of children and young people’s cancer research. That's why we have a group of survivors and parents who give feedback on potential research projects we fund 🔬

Find out more at bit.ly/4mRBsrK

#VolunteersWeek

What is it like getting involved in childhood cancer research as a parent?

There is a lot more to research than just scientists in white lab coats. We caught up with some of the amazing parents who help shape the direction of childhood cancer research.

bit.ly

1 2

Reposted by Ashley Ball-Gamble

CCLG: The Children & Young People’s Cancer Association @cclguk.bsky.social · Jun 10

#Trustees wanted! 🌟 We're looking for committed and dedicated volunteer trustees to join our governing board. Your time, skills and experience will help us create a brighter future for children and young people with cancer. #CYPCancer

Interested? Apply now at bit.ly/3HyaGo2

2 2

Ashley Ball-Gamble @ashleyballgamble.bsky.social · Jun 2

There's an information pack that should answer most questions you might have on the quoted post above - but if you'd like a chat to help you make up your mind about getting involved, feel free to reach out to me!

Ashley Ball-Gamble @ashleyballgamble.bsky.social · Jun 2

We're currently looking to appoint several new Trustees, and if you have professional skills and experience relevant to our work, or to governance and strategy, or lived experience of children and young people's cancer, we'd love to hear from you.

1

Ashley Ball-Gamble @ashleyballgamble.bsky.social · Jun 2

#Trustees wanted! Like all charities, our governing board is made up of committed, dedicated volunteer Trustees who give their time, skills and experience to help ensure we achieve our mission - creating brighter futures for children and young people with cancer. #VolunteersWeek

CCLG: The Children & Young People’s Cancer Association @cclguk.bsky.social · Jun 2

Could you be our next trustee? 🌟

We're looking for passionate, dedicated individuals to join our Board of Trustees - an exciting opportunity to play a vital role in making a meaningful difference for children and young people with cancer and their families.

More info & apply at bit.ly/4js5dfT

1 3 3

Reposted by Ashley Ball-Gamble

Sharna @headsmartfellow.bsky.social · May 28

Delighted to see the @nihr funded CCD study published today in @lancetrh-europe.bsky.social

Lots to celebrate: sex, ethnicity and IMD does not impact time to diagnosis for CYP w cancer.

But also lots to improve: young people and certain diagnostic groups need urgent attention.

#earlydiagnosis

CCLG: The Children & Young People’s Cancer Association @cclguk.bsky.social · May 28

📢 News: The Childhood Cancer Diagnosis Study, led by Dr Sharna Shanmugavadivel, has found that young people with certain types of cancer are facing lengthy times to diagnosis 🎗

Find out more at bit.ly/3Hg0rVl

#ChildCancerSmart #EarlyDiagnosis @uniofnottingham.bsky.social

Children and young people are waiting longer than necessary for cancer diagnosis, according to new research

A new study, led by experts at the University of Nottingham, has found that young people suffering from certain types of cancer, such as bone tumours, are experiencing lengthy times to diagnosis.

bit.ly

1 3 6