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Brain Ablaze @brainablaze.bsky.social · 21h

While diagnosis of #epilepsy is common in children, it is NOT just a childhood disease. It can affect anyone of any age. #EpilepsyAwareness

In a black-and-white world, a mature woman holds a kid in her lap. Both are smiling to the camera while wearing purple dresses.

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Brain Ablaze @brainablaze.bsky.social · 1d

That can definitely happen. We hope your doctor can help. 💜

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Brain Ablaze @brainablaze.bsky.social · 1d

No one is perfect. What is a mistake you've made while dealing with #epilepsy? #EpilepsyAwareness

A purple shoe is about to step on a banana peel.

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Brain Ablaze @brainablaze.bsky.social · 2d

On this day in 1849, the world lost the Master of the Macabre, Edgar Allan Poe. While we will never know for sure, some researchers think that Poe may have had #epilepsy based on the descriptions of seizures he added to his works. -- Which is your favorite of his stories? #EpilepsyAwareness

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Brain Ablaze @brainablaze.bsky.social · 3d

Cerebral Palsy and #epilepsy are often connected, reminding us how closely neurological conditions intertwine. In this episode of comedian Trevor Harris describes living with both conditions. #WorldCerebralPalsyDay #EpilepsyAwareness

brainablaze.com/the-brain-ab...

brainablaze.com

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Brain Ablaze @brainablaze.bsky.social · 4d

SUDEP or SUdden Death in Epilepsy affects about 1 in 1000 people with Epilepsy annually. - Have your doctors told you about your risks of SUDEP? #EpilepsyAwareness

brainablaze.com/the-brain-ab...

026: Mortality - The Brain Ablaze Epilepsy Podcast

We stare down the monster that has plagued our Epilepsy community for decades, SUDEP, or SUdden Death from EPilepsy.

brainablaze.com

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Brain Ablaze @brainablaze.bsky.social · Aug 13

Thank you. 💜

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Brain Ablaze @brainablaze.bsky.social · Aug 13

Despite the necessary safety measures, many people with #Epilepsy still have a fierce desire to live their lives to the fullest. We want adventure, spontaneity, and joy, just like anyone else. Finding that balance is the true challenge. #EpilepsyAwareness

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Brain Ablaze @brainablaze.bsky.social · Jun 29

It's a myth that people with #epilepsy cannot play video games. Only about 3-5% of people with Epilepsy are photosensitive. If you are a gamer with Epilepsy, what genres do you enjoy the most? #EpilepsyAwareness

a baby is wearing headphones and a headband and says `` gaming time '' .

ALT: a baby is wearing headphones and a headband and says `` gaming time '' .

media.tenor.com

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Brain Ablaze @brainablaze.bsky.social · Jun 26

Feel alone in your journey with #epilepsy? Our Epilepsy support group meets virtually this evening. We would love to see you there! #EpilepsyAwareness

Here's everything you need to know (including the invite link):
brainablaze.com/epilepsy-sup...

PST Epilepsy Support Group Session - Brain Ablaze

If you are looking for support, we have it. Our PST Support Group Session meets every month on the 26th at 6 PM PST | 9 PM EST. We hope to see you there!

brainablaze.com

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Brain Ablaze @brainablaze.bsky.social · Jun 24

DYK about Catamenial #Epilepsy? For many women, seizure frequency or intensity can be directly affected by hormonal shifts during their menstrual cycle. -- Do you or someone you know experiences seizures that worsen around menstruation or other hormonal changes? #EpilepsyAwareness

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Brain Ablaze @brainablaze.bsky.social · Jun 22

It's easy to fall into the trap that one's seizure control is "good enough". If you're taking your meds, but still having seizures, please reach out to your neurologist (or ideally an epileptologist) because there are others treatments in addition to meds that can be tried. #EpilepsyAwareness

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Brain Ablaze @brainablaze.bsky.social · Jun 20

Don't know who needs to hear this: good job adapting to your Epilepsy today! Whether you're having seizures or not, if you're working with doctors, taking your meds as you doctor directs, getting your sleep, and minding your triggers you're strill doing wonderfully. #EpilepsyAwareness

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Brain Ablaze @brainablaze.bsky.social · Jun 19

Life with #epilepsy often means the unpredictable can become an emergency in an instant. -- Have you ever had an emergency because of your Epilepsy (or seizures)? #EpilepsyAwareness

A man wearing scrubs stands in front of an glowing EMERGENCY sign.

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Brain Ablaze @brainablaze.bsky.social · Jun 17

Epilepsy is more than seizures. What's one of your goals in your adaptation to Epilepsy that doesn't involve seizure-reduction? #EpilepsyAwareness

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Brain Ablaze @brainablaze.bsky.social · Jun 16

Happy 50th Birthday to the host of our #epilepsy podcast: David Clifford. #EpilepsyAwareness

Listen to his story:
brainablaze.com/the-brain-ab...

004: Our Host - The Brain Ablaze Epilepsy Podcast

In this episode, the host of our podcast, David Clifford, reluctantly opens up about his twenty-seven-year-long struggle with uncontrolled seizures and describes the great lengths to which he went to ...

brainablaze.com

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Brain Ablaze @brainablaze.bsky.social · Jun 15

Happy Father's Day! How did your dad help you better adapt to your #epilepsy (or seizures)? #EpilepsyAwareness

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Brain Ablaze @brainablaze.bsky.social · Jun 13

We really appreciate your effort to help us raise #EpilepsyAwareness. It shows that we're all in this together. Thank you for supporting us with you likes, replies, and reposts!

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Brain Ablaze @brainablaze.bsky.social · Jun 12

Should #epilepsyAwareness only be used for posts involving humans? (We see used a lot in posts about pets having seizures.)

brainablaze.com/the-brain-ab...

014: Faux Pas (Part 1) - The Brain Ablaze Epilepsy Podcast

We walk through some of the faux pas that members of the general public often make that often cause confusion or even playful eye-rolls from members of the Epilepsy community.

brainablaze.com

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Brain Ablaze @brainablaze.bsky.social · Jun 12

A migraine disorder that causes seizures? Never heard of that before. Maybe you mean your migraines trigger your epilepsy? Would definitely love to learn more.

Brain Ablaze @brainablaze.bsky.social · Jun 11

Living with Temporal Lobe Epilepsy (or #TLE) can mean unique experiences like déjà vu, unusual smells/tastes, or feelings of fear before a seizure. DYK #TLE is the most common form of focal #epilepsy? #EpilepsyAwareness

The temporal lobe is highlighted purple in a black-and-white figure of the brain.

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Brain Ablaze @brainablaze.bsky.social · Jun 9

Did you know that 1 in 10 people will have a seizure sometime in their life? Seizures are incredibly common. -- In what year did you have your first seizure? Did doctors think it was Epilepsy right away or something else? #EpilepsyAwareness

Two hands are displayed in front of a 10. One of the fingernails is painted purple.

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Brain Ablaze @brainablaze.bsky.social · Jun 8

Many people with brain tumors only learn about the condition after experiencing a seizure. About 30% of people with brain tumors will also develop #epilepsy. #WorldBrainTumorDay #EpilepsyAwareness

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Brain Ablaze @brainablaze.bsky.social · Jun 7

Happy #WorldCaringDay! Carers play a vital role in the lives of people with #Epilepsy. #EpilepsyAwareness

brainablaze.com/the-brain-ab...

042: We Care - The Brain Ablaze Epilepsy Podcast

In this episode, we argue that Caretakers (or carers) deserve to be full-fledged members in our Epilepsy Community.

brainablaze.com

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Brain Ablaze @brainablaze.bsky.social · Jun 6

To any billionaires looking to save their reputation: why not invest heavily into the cure for #epilepsy? Imagine being the one person who finds a cure for one of the oldest documented conditions! #EpilepsyAwareness

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