Childhood Dystonia Awareness Uk and Europe
@cdauke.bsky.social
Welcome to Childhood Dystonia Awareness UK and Europe
We are dedicated to raising awareness about childhood dystonia and providing unwavering support to children and families affected by this condition.
We are dedicated to raising awareness about childhood dystonia and providing unwavering support to children and families affected by this condition.
We got asked by several parents if there was anything that they could take into a school to help the school understand Dystonia. We made this for them.
#Dystonia #childhooddystonia #complexcare
#Dystonia #childhooddystonia #complexcare
February 6, 2026 at 8:44 PM
We got asked by several parents if there was anything that they could take into a school to help the school understand Dystonia. We made this for them.
#Dystonia #childhooddystonia #complexcare
#Dystonia #childhooddystonia #complexcare
A child with both Epilepsy and Dystonia can be challenging. Parents often have to differentiate the differences between what is a seizure and what is Dystonia this can often take years and over time our children like to throw a curve ball.
We recognise November as Epilepsy awareness month ππ.
We recognise November as Epilepsy awareness month ππ.
November 10, 2025 at 8:06 AM
A child with both Epilepsy and Dystonia can be challenging. Parents often have to differentiate the differences between what is a seizure and what is Dystonia this can often take years and over time our children like to throw a curve ball.
We recognise November as Epilepsy awareness month ππ.
We recognise November as Epilepsy awareness month ππ.
Did you know ?? π lets share this post best way to educate others about Dystonia is teaching them about something they already know.
#FocalDystonia #writerscramp #dystonia #dystoniaawareness
#FocalDystonia #writerscramp #dystonia #dystoniaawareness
September 10, 2025 at 1:19 PM
Did you know ?? π lets share this post best way to educate others about Dystonia is teaching them about something they already know.
#FocalDystonia #writerscramp #dystonia #dystoniaawareness
#FocalDystonia #writerscramp #dystonia #dystoniaawareness
πDystonia Awareness month postπ
π whats is generalised Dystonia
#Dystonia #childhooddystonia
#Dam2025 #Dystoniaawarenessmonth #dystoniaawareness
π whats is generalised Dystonia
#Dystonia #childhooddystonia
#Dam2025 #Dystoniaawarenessmonth #dystoniaawareness
September 10, 2025 at 6:05 AM
πDystonia Awareness month postπ
π whats is generalised Dystonia
#Dystonia #childhooddystonia
#Dam2025 #Dystoniaawarenessmonth #dystoniaawareness
π whats is generalised Dystonia
#Dystonia #childhooddystonia
#Dam2025 #Dystoniaawarenessmonth #dystoniaawareness
Join our Childhood Dystonia Support Group β open to children with dystonia, parents & close family across the UK & Europe. π
A safe space to share, connect & support each others.
please share!
π Join here: facebook.com/share/g/1FURiLβ¦#Dystoniai#Dystoniaawarenesss#Dystoniasupportrt
A safe space to share, connect & support each others.
please share!
π Join here: facebook.com/share/g/1FURiLβ¦#Dystoniai#Dystoniaawarenesss#Dystoniasupportrt
September 8, 2025 at 9:23 AM
Join our Childhood Dystonia Support Group β open to children with dystonia, parents & close family across the UK & Europe. π
A safe space to share, connect & support each others.
please share!
π Join here: facebook.com/share/g/1FURiLβ¦#Dystoniai#Dystoniaawarenesss#Dystoniasupportrt
A safe space to share, connect & support each others.
please share!
π Join here: facebook.com/share/g/1FURiLβ¦#Dystoniai#Dystoniaawarenesss#Dystoniasupportrt
Dystonia Awareness month post π
Highlighting Respiratory Dystonia ππ
#dystonia #dystoniaawareness #dystoniawarrior #dam2025
Highlighting Respiratory Dystonia ππ
#dystonia #dystoniaawareness #dystoniawarrior #dam2025
September 8, 2025 at 6:24 AM
Dystonia Awareness month post π
Highlighting Respiratory Dystonia ππ
#dystonia #dystoniaawareness #dystoniawarrior #dam2025
Highlighting Respiratory Dystonia ππ
#dystonia #dystoniaawareness #dystoniawarrior #dam2025
A Proverb with such an important meaning behind it. Raising a complex child takes a village.
β₯οΈππππ
#epilepsy #dystonia #cerebralpalsy #rettssyndrome #ittakesavillage
#strongertogether
β₯οΈππππ
#epilepsy #dystonia #cerebralpalsy #rettssyndrome #ittakesavillage
#strongertogether
September 7, 2025 at 2:24 PM
A Proverb with such an important meaning behind it. Raising a complex child takes a village.
β₯οΈππππ
#epilepsy #dystonia #cerebralpalsy #rettssyndrome #ittakesavillage
#strongertogether
β₯οΈππππ
#epilepsy #dystonia #cerebralpalsy #rettssyndrome #ittakesavillage
#strongertogether
Dystonia Awareness month post π.
Today we share HemiDystonia awareness. What is Hemidystonia and what causes it π.
#Dystonia #Dystoniaawareness #dystoniawarrior #childhooddystonia
Today we share HemiDystonia awareness. What is Hemidystonia and what causes it π.
#Dystonia #Dystoniaawareness #dystoniawarrior #childhooddystonia
September 7, 2025 at 7:06 AM
Dystonia Awareness month post π.
Today we share HemiDystonia awareness. What is Hemidystonia and what causes it π.
#Dystonia #Dystoniaawareness #dystoniawarrior #childhooddystonia
Today we share HemiDystonia awareness. What is Hemidystonia and what causes it π.
#Dystonia #Dystoniaawareness #dystoniawarrior #childhooddystonia
We have some incredibly educational Dystonia posts we have and will sharing throughout Dystonia awareness month so make sure to keep up with our page ππ
September 6, 2025 at 9:54 AM
We have some incredibly educational Dystonia posts we have and will sharing throughout Dystonia awareness month so make sure to keep up with our page ππ
Reposted by Childhood Dystonia Awareness Uk and Europe
thank you Hannah we will give it a reshare π
September 6, 2025 at 9:51 AM
thank you Hannah we will give it a reshare π
thank you Hannah we will give it a reshare π
September 6, 2025 at 9:51 AM
thank you Hannah we will give it a reshare π
Dystonia Awareness month post today we are highlighting a fairly newer type of Dystonia GI Dystonia/Gut Dystonia.
#Dystonia #gutdystonia #gidystonia #dystoniaawareness
#Dystonia #gutdystonia #gidystonia #dystoniaawareness
September 6, 2025 at 5:54 AM
Dystonia Awareness month post today we are highlighting a fairly newer type of Dystonia GI Dystonia/Gut Dystonia.
#Dystonia #gutdystonia #gidystonia #dystoniaawareness
#Dystonia #gutdystonia #gidystonia #dystoniaawareness
Dystonia in Epilepsy syndromes is a very real thing and can make both extremely hard to treat.
#Dystonia #Epilepsy #Dystoniaawareness #Epilepsyawareness #Dam2025
#Dystonia #Epilepsy #Dystoniaawareness #Epilepsyawareness #Dam2025
September 5, 2025 at 6:47 AM
Dystonia in Epilepsy syndromes is a very real thing and can make both extremely hard to treat.
#Dystonia #Epilepsy #Dystoniaawareness #Epilepsyawareness #Dam2025
#Dystonia #Epilepsy #Dystoniaawareness #Epilepsyawareness #Dam2025
Thank you for reposting πβ₯οΈ
September 4, 2025 at 7:31 AM
Thank you for reposting πβ₯οΈ
Dystonia Awareness month post!!
Today we highlight Spastic and Dystonic CP ππ
#Dystonia #DystonicCP #Spasticcp #Cerebralpalsy
Today we highlight Spastic and Dystonic CP ππ
#Dystonia #DystonicCP #Spasticcp #Cerebralpalsy
September 4, 2025 at 6:04 AM
Dystonia Awareness month post!!
Today we highlight Spastic and Dystonic CP ππ
#Dystonia #DystonicCP #Spasticcp #Cerebralpalsy
Today we highlight Spastic and Dystonic CP ππ
#Dystonia #DystonicCP #Spasticcp #Cerebralpalsy
September 2, 2025 at 7:08 AM
Dystonia is a condition in its own right and should be considered as such. π
#Dam2025 #dystonia #dystoniaawareness #cerebralpalsy #Epilepsy #adhd #autism
#Dam2025 #dystonia #dystoniaawareness #cerebralpalsy #Epilepsy #adhd #autism
September 1, 2025 at 6:17 AM
Dystonia is a condition in its own right and should be considered as such. π
#Dam2025 #dystonia #dystoniaawareness #cerebralpalsy #Epilepsy #adhd #autism
#Dam2025 #dystonia #dystoniaawareness #cerebralpalsy #Epilepsy #adhd #autism
Tomorrow is the start of Dystonia Awareness month
What a better time to share our Parents guide to Dystonia.
The full guide can be viewed or downloaded at cdauk.org
#Dystonia #childhooddystonia #dystoniaawareness #dam2025 #cerebralpalsy #lifelimiting #complexcare
What a better time to share our Parents guide to Dystonia.
The full guide can be viewed or downloaded at cdauk.org
#Dystonia #childhooddystonia #dystoniaawareness #dam2025 #cerebralpalsy #lifelimiting #complexcare
August 31, 2025 at 8:39 AM
Tomorrow is the start of Dystonia Awareness month
What a better time to share our Parents guide to Dystonia.
The full guide can be viewed or downloaded at cdauk.org
#Dystonia #childhooddystonia #dystoniaawareness #dam2025 #cerebralpalsy #lifelimiting #complexcare
What a better time to share our Parents guide to Dystonia.
The full guide can be viewed or downloaded at cdauk.org
#Dystonia #childhooddystonia #dystoniaawareness #dam2025 #cerebralpalsy #lifelimiting #complexcare
September is Dystonia awareness month. Next month we will be posting lots of posts about childhood Dystonia.
Parent who is syruggling and need support ? our facebook group offers private parent to parent support.
www.facebook.com/share/g/1BDS...
#Dystonia #Dystoniaawareness #childhooddystonia
Parent who is syruggling and need support ? our facebook group offers private parent to parent support.
www.facebook.com/share/g/1BDS...
#Dystonia #Dystoniaawareness #childhooddystonia
August 13, 2025 at 9:08 AM
September is Dystonia awareness month. Next month we will be posting lots of posts about childhood Dystonia.
Parent who is syruggling and need support ? our facebook group offers private parent to parent support.
www.facebook.com/share/g/1BDS...
#Dystonia #Dystoniaawareness #childhooddystonia
Parent who is syruggling and need support ? our facebook group offers private parent to parent support.
www.facebook.com/share/g/1BDS...
#Dystonia #Dystoniaawareness #childhooddystonia
Dystonia a parents guide
Brand new 12 page guide aimed at parents from parents with a child with a Dystonia diagnosis. First 4 pages are below you can view and download full guide here:
cdauk.org
Please share π
#Dystonia #childhooddystonia #whatisdystonia #dystoniaawareness
Brand new 12 page guide aimed at parents from parents with a child with a Dystonia diagnosis. First 4 pages are below you can view and download full guide here:
cdauk.org
Please share π
#Dystonia #childhooddystonia #whatisdystonia #dystoniaawareness
April 27, 2025 at 8:11 AM
Dystonia a parents guide
Brand new 12 page guide aimed at parents from parents with a child with a Dystonia diagnosis. First 4 pages are below you can view and download full guide here:
cdauk.org
Please share π
#Dystonia #childhooddystonia #whatisdystonia #dystoniaawareness
Brand new 12 page guide aimed at parents from parents with a child with a Dystonia diagnosis. First 4 pages are below you can view and download full guide here:
cdauk.org
Please share π
#Dystonia #childhooddystonia #whatisdystonia #dystoniaawareness