Author | Lightnews

Cystic Fibrosis News Today @cfnewstoday.bsky.social · 6h

Cystic fibrosis symptoms can feel extra spooky: https://bit.ly/3Lf4Iu7

From lung infections to gallstones and bacteria like Pseudomonas aeruginosa. This Halloween, we’re shining a light on the symptoms that might make CF feel frightening.

#CysticFibrosis #CysticFibrosisNewsToday #Bionews

Illustration of a person holding their knee with text: "CF Symptoms That Can Feel Scary," surrounded by symptoms like shortness of breath, gallstones, collapsed lung, and more.

Cystic Fibrosis News Today @cfnewstoday.bsky.social · 1d

Why toxic positivity doesn’t help in cystic fibrosis: https://bit.ly/47rl22d

#CysticFibrosis #CysticFibrosisAwareness #CFWarrior #CysticFibrosisNews #Bionews

Person pushing against invisible force, with text "Pushing back on toxic positivity in cystic fibrosis spaces." Website link at bottom.

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Cystic Fibrosis News Today @cfnewstoday.bsky.social · 2d

Understand how cystic fibrosis affects your airways: https://bit.ly/47tlL2X

#CysticFibrosis #CysticFibrosisAwareness #CFWarrior #CysticFibrosisNews #Bionews

Illustration of lungs with the text "How cystic fibrosis affects the respiratory system" above, and "CysticFibrosisNewsToday.com" below.

Cystic Fibrosis News Today @cfnewstoday.bsky.social · 2d

Let’s talk disclosure: https://bit.ly/3W90jLs

October is National Disability Employment Awareness Month, a time to recognize how sharing personal information about a disability or health condition comes with both risks and rewards.

#CysticFibrosis #CysticFibrosisNewsToday #Bionews

Diverse group of individuals, including those in wheelchairs, above the text: "October is National Disability Employment Awareness Month," highlighting inclusion and support for people with cystic fibrosis in workplaces.

Cystic Fibrosis News Today @cfnewstoday.bsky.social · 2d

Find out how cystic fibrosis is diagnosed early and accurately: https://bit.ly/4nqf084

#CysticFibrosis #CysticFibrosisAwareness #CFWarrior #CysticFibrosisNewsToday #Bionews

Illustration of a doctor holding a lung model, with the text "Diagnosing cystic fibrosis earlier and more accurately" above.

Cystic Fibrosis News Today @cfnewstoday.bsky.social · 3d

Explore a new approach: https://bit.ly/4oIvx8t

A new Sionna Therapeutics trial is testing whether adding its experimental therapy SION-719 to Trikafta can further improve CFTR function in adults with cystic fibrosis who have two F508del mutations.

#CysticFibrosis #CysticFibrosisNews #Bionews

Cystic Fibrosis News: Trikafta improves activity in some mutations but not F508del. SION-719 aims to fill this gap, enhancing Trikafta's benefits.

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Cystic Fibrosis News Today @cfnewstoday.bsky.social · 4d

Find meaning in every breath: https://bit.ly/496QQfx

After years of uncertainty and misdiagnoses, Devanshi Dubey finally learned she had cystic fibrosis at 19.

#CysticFibrosis #CFWarrior #CysticFibrosisNews #ChronicIllnessAwareness #GuestVoice #Bionews

Devanshi Dubey smiles in front of a blurred cityscape. Text reads: "I’m living and loving after my CF diagnosis."

Cystic Fibrosis News Today @cfnewstoday.bsky.social · 5d

Breaking down the real costs of cystic fibrosis: https://bit.ly/4o9BDPr

#CysticFibrosis #CysticFibrosisAwareness #CFWarrior #CysticFibrosisNewsToday #Bionews

Wallet with cash, calculator, lightbulb, and documents below text: "The real cost of living with cystic fibrosis." Website: CysticFibrosisNewsToday.com.

Cystic Fibrosis News Today @cfnewstoday.bsky.social · 7d

A fresh take on cystic fibrosis and life expectancy: https://bit.ly/3WVPJrq

#CysticFibrosis #CysticFibrosisAwareness #CFWarrior #CysticFibrosisNews #Bionews

Open book with stars, captioned: "Why life expectancy isn’t the whole cystic fibrosis story." Website: CysticFibrosisNewsToday.com.

Cystic Fibrosis News Today @cfnewstoday.bsky.social · 7d

Protect Your Lungs: https://bit.ly/4oAkfmC

#CysticFibrosis #RespiratoryHealth #InfectionPrevention #CysticFibrosisNewsToday #Bionews

Infographic on CF respiratory health: Lists respiratory issues like cough and lung infections. Shows treatments: bronchodilators, vaccinations, medication, germ control.

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Cystic Fibrosis News Today @cfnewstoday.bsky.social · 8d

Lead the change: https://bit.ly/4qo0qRh

Patient voices are vital in shaping the future of cystic fibrosis research. As Tré LaRosa writes, true progress can’t happen without people with CF helping guide the decisions that impact them.

#CysticFibrosis #CysticFibrosisNewsToday #Bionews

Diverse group of people with purple ribbons, symbolizing cystic fibrosis awareness, highlighting the need for patient advocacy in CF research.

Cystic Fibrosis News Today @cfnewstoday.bsky.social · 8d

See the unseen side: https://bit.ly/4npYO6N

#CysticFibrosis #InvisibleIllness #CysticFibrosisNewsToday #Bionews

Text: "Living with the invisible side of cystic fibrosis" above an eye icon with a red slash. Source: CysticFibrosisNewsToday.com.

Cystic Fibrosis News Today @cfnewstoday.bsky.social · 8d

Living with an invisible illness means fighting battles no one else sees: https://bit.ly/3WjWLpW

Your journey matters, and your courage inspires us all.

#InvisibleIllness #InvisibleDisabilitiesWeek #ChronicIllness #SpoonieLife #ChronicPainWarrior #SupportNotStigma #Bionews #CysticFibrosisNewsToday

Invisible Disabilities Week poster, Oct 19-25. Diverse group of people smiling. Text encourages raising awareness. CysticFibrosisNewsToday.com.

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Cystic Fibrosis News Today @cfnewstoday.bsky.social · 8d

Understand class 1 mutations: https://bit.ly/4oDWOJj

Protein production, or class 1, mutations stop the CFTR protein from being made. These include nonsense and splicing mutations, found in about 10% of people with cystic fibrosis.

#CysticFibrosis #CFResearch #CysticFibrosisNewsToday #Bionews

Infographic explaining class 1 mutations in protein production: nonsense mutations lead to incomplete CFTR protein; splicing mutations prevent CFTR production.

Cystic Fibrosis News Today @cfnewstoday.bsky.social · 9d

Learn about ART options: https://bit.ly/3IZQpJg

Assisted reproductive technology (ART) can help people with cystic fibrosis achieve pregnancy through methods like IVF and IUI.

#CysticFibrosisNewsToday #Bionews #CysticFibrosis #CFCommunity #FertilityAwareness #IVFJourney #ReproductiveHealth

Infographic on Assisted Reproductive Technology & CF explains IVF and IUI. IVF: egg fertilization outside the body. IUI: sperm insertion into uterus.

Cystic Fibrosis News Today @cfnewstoday.bsky.social · 10d

Merging Art and Advocacy: https://bit.ly/47BeLCg

Filmmaker and author Ashley Wilson has lived with cystic fibrosis since birth, and she’s using her art to bring hidden truths to light.

#CysticFibrosis #CysticFibrosisAwareness #ChronicIllnessCommunity #BioNews #CysticFibrosisNewsToday

Cystic Fibrosis News Today @cfnewstoday.bsky.social · 10d

Celebrate Every Breath: https://bit.ly/48AEHz2

After a double-lung transplant, Jennifer Bleecher found her motivation in one goal, walking her daughter down the aisle.

#CysticFibrosisNewsToday #CysticFibrosis #LungTransplant #CFCommunity #CFWarrior #ChronicIllnessJourney#BioNews

A mother and daughter, seen from behind, walk down the aisle. The quote above reads, “Walking my daughter down the aisle was worth every breath” - Jennifer Bleecher.

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Cystic Fibrosis News Today @cfnewstoday.bsky.social · 11d

Follow the Progress: https://bit.ly/4o8qWN6

Enrollment for the CMTX-101 trial is now complete, marking a big step toward new options for bacterial lung infections in cystic fibrosis.

#CysticFibrosis #CysticFibrosisNewsToday #Bionews #ClinicalTrial #CMTX101

Cystic Fibrosis News: CMTX-101 aims to destroy biofilms aiding P. aeruginosa, easing CF treatment. Positive trial results led to faster development, with FDA fast track and orphan designations granted.

Cystic Fibrosis News Today @cfnewstoday.bsky.social · 14d

Navigating Two Big Changes: https://bit.ly/46WUjvC

#CysticFibrosis #CysticFibrosisAwareness #Menopause #ChronicIllnessCare #CFCommunity #CysticFibrosisNewsToday #Bionews

Illustration of a woman sitting with a large clock, surrounded by flowers and icons related to menopause. Text reads "CF & Menopause".

Cystic Fibrosis News Today @cfnewstoday.bsky.social · 15d

Get inspired: https://bit.ly/3W9oYzv

Tré LaRosa shares how using AI tools like ChatGPT has helped lighten the load of managing daily care and nutrition, without replacing his medical team.

#CysticFibrosis #CysticFibrosisAwareness #ChronicIllnessCare #CF #CysticFibrosisNewsToday #Bionews

Graphic listing benefits of AI in Tré LaRosa's cystic fibrosis care: meal planning, nutrient education, cognitive relief, and more.

Cystic Fibrosis News Today @cfnewstoday.bsky.social · 16d

Learn about new progress: https://bit.ly/3W2Prij

The Cystic Fibrosis Foundation is investing up to $11 million more in 4D Molecular Therapeutics to advance its inhaled gene therapy, 4D-710, now in Phase 2 trials.

#CysticFibrosisNews #CysticFibrosis #GeneTherapy #4DMT #ClinicalTrials #Bionews

Cystic Fibrosis News headline with a megaphone icon. Summary: CF results from CFTR gene mutations leading to mucus issues. 4D-710 aims to deliver a healthy CFTR gene to improve lung function using a virus vector.

Cystic Fibrosis News Today @cfnewstoday.bsky.social · 17d

Steroid side effects struggle: https://bit.ly/4q6tZ9K

Lara Govendo shares how high doses of prednisone left her feeling like a different person, inside and out.

#CysticFibrosis #CysticFibrosisNewsToday #Bionews #ChronicIllness #Prednisone #SteroidSideEffects

A sad woman looks at her reflection in a mirror. Text reads: "Increasing my prednisone dose brought a slew of side effects. High doses of steroids can turn me into a person I don't recognize." - Lara Govendo.

Cystic Fibrosis News Today @cfnewstoday.bsky.social · 18d

Learn about weight gain with Kaftrio (Trikafta): https://bit.ly/4nLcg67

#CysticFibrosis #CysticFibrosisNewsToday #Bionews

Cystic Fibrosis News: Emphasizes the need for a nuanced dietary approach with healthy fats for CF patients to meet energy demands and reduce disease risks.

Cystic Fibrosis News Today @cfnewstoday.bsky.social · 21d

Read Jennifer’s reflection: bit.ly/3VVt0vk

Living with chronic illness can mean carrying both gratitude and exhaustion.

#CysticFibrosis #CysticFibrosisNewsToday #CFCommunity #ChronicIllness #Bionews

Quote by Jennifer Bleecher about wishing for normalcy with illness, beside an illustration of a woman frustrated over her complex medical history list.

Cystic Fibrosis News Today @cfnewstoday.bsky.social · 22d

Learn the Full Story: bit.ly/3KFRxlH

#CysticFibrosisNewsToday #Bionews

Illustration of a white and red tobramycin antibiotic bottle with capsules scattered below it on a mint green background. The on-image quote reads: “In my life with cystic fibrosis (CF), the antibiotic tobramycin has saved my life countless times. But 15 years ago, it took something from me that I’ll never get back.” – Jennifer Bleecher.