Cort Johnson
@cortjohnson.bsky.social
Long (long) time person with ME/CFS/FM, Translator ME/CFS/ fibromyalgia/long COVID/POTS, etc. research and advocate. Creator of Health Rising and Phoenix Rising. Roaming the western US since 2012
Tackling the World’s Most Complex Diseases: Amatica’s ME/CFS and Long COVID Project #MECFS #LongCOVID www.healthrising.org/blog/2026/01...
Tackling the World's Most Complex Diseases: Amatica's ME/CFS and Long COVID Project - Health Rising
Amatica's huge gene expression database attempts to identify which subsets a person belongs in and which treatments that may work for them.
www.healthrising.org
January 19, 2026 at 9:00 PM
Tackling the World’s Most Complex Diseases: Amatica’s ME/CFS and Long COVID Project #MECFS #LongCOVID www.healthrising.org/blog/2026/01...
“Something in the Blood” Again! ME/CFS and Long COVID Serum Locks the Muscles Down www.healthrising.org/blog/2025/12... #MECFS #longCOVID
"Something in the Blood" Again! ME/CFS and Long COVID Serum Locks the Muscles Down - Health Rising
Geoff’s Narration The GIST Muscles on a Chip Whoa, another muscle study. We recently reported on a proteomic study suggesting that muscle repair problems contribute to post-exertional malaise in ME/CF...
www.healthrising.org
January 11, 2026 at 10:21 PM
“Something in the Blood” Again! ME/CFS and Long COVID Serum Locks the Muscles Down www.healthrising.org/blog/2025/12... #MECFS #longCOVID
ME/CFS Autopsy Study Finds a Wrecked HPA Axis: The 2025 IACFS/ME Conference Report #3 www.healthrising.org/blog/2025/12... #MECFS
ME/CFS Autopsy Study Finds a Wrecked HPA Axis: The 2025 IACFS/ME Conference Report #3 - Health Rising
A Dutch ME/CFS autopsy report findings multiple severe problems in the HPA axis of ME/CFS patients.
www.healthrising.org
December 13, 2025 at 9:21 PM
ME/CFS Autopsy Study Finds a Wrecked HPA Axis: The 2025 IACFS/ME Conference Report #3 www.healthrising.org/blog/2025/12... #MECFS
Fibromyalgia Autoimmune Subset Rears Its Head www.healthrising.org/blog/2025/11... #FM
A Fibromyalgia Autoimmune Subset Rears Its Head - Health Rising
More evidence is presented that the most severely ill fibromyalgia patients have an autoimmune disease.
www.healthrising.org
December 13, 2025 at 9:02 PM
Fibromyalgia Autoimmune Subset Rears Its Head www.healthrising.org/blog/2025/11... #FM
A Long COVID Autoimmune Subset Coming into View? (and Why ME/CFS May be Next) #longcovid #MECFS www.healthrising.org/blog/2025/11...
A Long COVID Autoimmune Subset Coming into View? (and Why ME/CFS May be Next) - Health Rising
Solve ME Catalyst Award winner Dr. Iwasaki explains a subset of long COVID patients may have an autoimmune disease. Now she moves onto ME/CFS.
www.healthrising.org
December 10, 2025 at 9:51 PM
A Long COVID Autoimmune Subset Coming into View? (and Why ME/CFS May be Next) #longcovid #MECFS www.healthrising.org/blog/2025/11...
The GLP-1 Agonist Boom in ME/CFS, FM and Long COVID: Insights, Using it, Trials Underway #MECFS #FM #longCOVID www.healthrising.org/blog/2025/11...
The GLP-1 Agonist Boom in ME/CFS, FM and Long COVID: Insights, Using it, Trials Underway - Health Rising
Complex, chronic illness experts discuss what GLP-1 agonists can and can't do in diseases like ME/CFS, long COVID, and POTS. Plus new long COVID trials.
www.healthrising.org
November 4, 2025 at 9:07 PM
The GLP-1 Agonist Boom in ME/CFS, FM and Long COVID: Insights, Using it, Trials Underway #MECFS #FM #longCOVID www.healthrising.org/blog/2025/11...
@bsky.app The Brain Disease: Huge Fibromyalgia Genetic Study Highlights the Brain and Offers New Treatment Possibilities #FM
www.healthrising.org/blog/2025/10...
www.healthrising.org/blog/2025/10...
The Brain Disease: Huge Fibromyalgia Genetic Study Highlights the Brain and Offers New Treatment Possibilities - Health Rising
Geoff’s Narration The GIST Just months after the publication of the first large ME/CFS GWAS study comes an enormous FM GWAS study. Notice how these two diseases seem to be marching hand in hand. Bot...
www.healthrising.org
October 21, 2025 at 7:22 PM
@bsky.app The Brain Disease: Huge Fibromyalgia Genetic Study Highlights the Brain and Offers New Treatment Possibilities #FM
www.healthrising.org/blog/2025/10...
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New Epigenetic Diagnostic Test For ME/CFS Wows … But Can It Hold? #MECFS www.healthrising.org/blog/2025/10...
New Epigenetic Diagnostic Test For ME/CFS Wows ... But Can It Hold? - Health Rising
Geoff’s Translation The GIST “With this breakthrough, we are proud to enable a first-in-class test that can address an unmet need for a quick and reliable diagnostic for a complex, challenging-to-id...
www.healthrising.org
October 18, 2025 at 6:22 PM
New Epigenetic Diagnostic Test For ME/CFS Wows … But Can It Hold? #MECFS www.healthrising.org/blog/2025/10...
RECOVER’s 2nd Round of Long COVID Clinical Trials Shows Progress… and Limitations healthrising.org/blog/2025/10... #longCOVID
RECOVER's 2nd Round of Long COVID Clinical Trials Shows Progress... and Limitations - Health Rising
The RECOVER Initiative announces four more clinical trials for long COVID including low dose naltrexone, bariticinib, GLP-1 agonists, and stellate ganglion blockade.
healthrising.org
October 11, 2025 at 9:38 PM
RECOVER’s 2nd Round of Long COVID Clinical Trials Shows Progress… and Limitations healthrising.org/blog/2025/10... #longCOVID
In Good Health: How Chronic Illness Redefined My Relationship with Food - Rachel Riggs #MECFS and Complex Chronic Illness Cookbook has arrived! www.healthrising.org/blog/2025/10...
In Good Health: How Chronic Illness Redefined My Relationship with Food - Health Rising
In Good Health cookbook by Rachel Riggs
www.healthrising.org
October 1, 2025 at 11:58 PM
In Good Health: How Chronic Illness Redefined My Relationship with Food - Rachel Riggs #MECFS and Complex Chronic Illness Cookbook has arrived! www.healthrising.org/blog/2025/10...
Is the Long COVID Field Missing a Major Opportunity? #longCOVID www.healthrising.org/blog/2025/09...
Is the Long COVID Field Missing a Major Opportunity? - Health Rising
Geoff’s Narration The GIST From viral persistence to complex immune studies, to tissue sampling, to assessing heavy-duty immune treatment trials and large treatment trials, long-COVID researchers ar...
www.healthrising.org
September 25, 2025 at 8:28 PM
Is the Long COVID Field Missing a Major Opportunity? #longCOVID www.healthrising.org/blog/2025/09...
The Promise of Vagus Nerve Stimulation – and the No Brainer Long COVID Trial Underway #MECFS #longCOVID #FM #POTS www.healthrising.org/blog/2025/09...
The Promise of Vagus Nerve Stimulation - and the No Brainer Long COVID Trial Underway - Health Rising
Vagus nerve stimulation could reduce inflammation, pain and stress in ME/CFS, fibromyalgia and long COVID. A long COVID trial is underway.
www.healthrising.org
September 18, 2025 at 5:40 PM
The Promise of Vagus Nerve Stimulation – and the No Brainer Long COVID Trial Underway #MECFS #longCOVID #FM #POTS www.healthrising.org/blog/2025/09...
Gut Reactions: BioMapAI Points to Multiple Dysregulated Systems in ME/CFS #MECFS www.healthrising.org/blog/2025/09...
Gut Reactions: BioMapAI Points to Multiple Dysregulated Systems in ME/CFS - Health Rising
BioMapAI study suggests the gut problems in ME/CFS are driving other system malfunctions and symptoms.
www.healthrising.org
September 14, 2025 at 4:42 PM
Gut Reactions: BioMapAI Points to Multiple Dysregulated Systems in ME/CFS #MECFS www.healthrising.org/blog/2025/09...
Surprise! The Senate Bill Includes “Some of the Strongest Support for ME/CFS in Years”: Plus, Taking it to the House #MECFS
www.healthrising.org/blog/2025/08...
www.healthrising.org/blog/2025/08...
Surprise! The Senate Bill Includes "Some of the Strongest Support for ME/CFS in Years": Plus, Taking it to the House - Health Rising
The Senate Appropriations bill provides strong support for ME/CFS and long COVID. Now it moves to the House.
www.healthrising.org
September 13, 2025 at 7:58 PM
Surprise! The Senate Bill Includes “Some of the Strongest Support for ME/CFS in Years”: Plus, Taking it to the House #MECFS
www.healthrising.org/blog/2025/08...
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Could ME/CFS and Fibromyalgia Be Narcoleptic Spectrum Disorders? #MECFS #FM
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Could ME/CFS and Fibromyalgia Be Narcoleptic Spectrum Disorders? - Health Rising
Could ME;/CFS and fibromyalgia be on the narcoleptic disease spectrum? After decades of work on these diseases, Dr. Perrino believes so...
www.healthrising.org
August 26, 2025 at 10:49 PM
Could ME/CFS and Fibromyalgia Be Narcoleptic Spectrum Disorders? #MECFS #FM
www.healthrising.org/blog/2025/08...
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Tonmya is FDA Approved to Treat Fibromyalgia: CEO Seth Lederman Talks #FM
www.healthrising.org/blog/2025/08...
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Tonmya is FDA Approved to Treat Fibromyalgia: CEO Seth Lederman Talks - Health Rising
Tonmya is the first FDA approved drug for use in fibromyalgia in 15 years. Seth Lederman, CEO of Tonix Pharmaceuticals, talked about how the drug was developed, what it does, and when it will become a...
www.healthrising.org
August 22, 2025 at 7:00 PM
Tonmya is FDA Approved to Treat Fibromyalgia: CEO Seth Lederman Talks #FM
www.healthrising.org/blog/2025/08...
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Jarred Younger Finds a VERY Inflamed Brain in ME/CFS www.healthrising.org/blog/2025/08... #MECFS
Jarred Younger Finds a VERY Inflamed Brain in ME/CFS - Health Rising
Geoff’s Narration The GIST “We’re seeing things in the front of the brain, we’re seeing issues in the back of the brain, we’re seeing a lot of things in between…this is a brain-wide issue”. It’s sa...
www.healthrising.org
August 10, 2025 at 5:24 PM
Jarred Younger Finds a VERY Inflamed Brain in ME/CFS www.healthrising.org/blog/2025/08... #MECFS
Has the Right B-cell Depleting Drug Been Found for ME/CFS? Daratumumab Shines in Pilot Study www.healthrising.org/blog/2025/07... #MECFS
Has the Right B-cell Depleting Drug Been Found for ME/CFS? Daratumumab Shines in Pilot Study - Health Rising
A B-cell depleter called daratumumab does well in an early trial in ME/CFS. A larger trial is underway.
www.healthrising.org
August 4, 2025 at 2:24 PM
Has the Right B-cell Depleting Drug Been Found for ME/CFS? Daratumumab Shines in Pilot Study www.healthrising.org/blog/2025/07... #MECFS
“Excited Every Day”: Dr. Michael Peluso on LIINC, Long COVID and ME/CFS #longCOVID #MECFS
July 30, 2025 at 5:39 PM
“Excited Every Day”: Dr. Michael Peluso on LIINC, Long COVID and ME/CFS #longCOVID #MECFS
TREATME: the Open Medicine Foundation’s Mammoth ME/CFS and Long COVID Treatment Survey Results #MECFS #longCOVID
www.healthrising.org/blog/2025/07...
www.healthrising.org/blog/2025/07...
TREATME: the Open Medicine Foundation's Mammoth ME/CFS and Long COVID Treatment Survey Results - Health Rising
The massive TreatME survey assessed the effectiveness of 150 treatments in ME/CFS and long COVID.
www.healthrising.org
July 13, 2025 at 7:31 PM
TREATME: the Open Medicine Foundation’s Mammoth ME/CFS and Long COVID Treatment Survey Results #MECFS #longCOVID
www.healthrising.org/blog/2025/07...
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A Neuroinflammation Buster? Jarred Younger on tFUS Stimulation for ME/CFS, Fibromyalgia and long COVID #MECFS #longCOVID #fibromyalgia #FM www.healthrising.org/blog/2025/06...
A Neuroinflammation Buster? Jarred Younger on tFUS Stimulation for ME/CFS, Fibromyalgia and long COVID - Health Rising
Transcranial focused ultrasound (tFUS) may be able to reach deep enough in the brain to help people with fibromyalgia, ME/CFS and long COVID.
www.healthrising.org
June 23, 2025 at 3:55 PM
A Neuroinflammation Buster? Jarred Younger on tFUS Stimulation for ME/CFS, Fibromyalgia and long COVID #MECFS #longCOVID #fibromyalgia #FM www.healthrising.org/blog/2025/06...
Why the Carnivore Diet Could Backfire in ME/CFS and Long COVID: A Closer Look at the Risks #MECFS #longCOVID www.healthrising.org/blog/2025/06...
Why the Carnivore Diet Could Backfire in ME/CFS and Long COVID: A Closer Look at the Risks - Health Rising
Dr. Courtney Craig explains why carnivore diets may seem helpful in the short run for people with ME/CFS and long COVID they are not the answer.
www.healthrising.org
June 6, 2025 at 10:52 PM
Why the Carnivore Diet Could Backfire in ME/CFS and Long COVID: A Closer Look at the Risks #MECFS #longCOVID www.healthrising.org/blog/2025/06...
The GLP1 Agonists: An Exciting New Class of Drugs For ME/CFS, FM, and Long COVID? #MECFS #FM #longcovid www.healthrising.org/blog/2025/05...
The GLP1 Agonists: An Exciting New Class of Drugs For ME/CFS, FM and Long COVID? - Health Rising
GLP-1 agonists like Ozempic could be surprisingly helpful in diseases like chronic fatigue syndrome, fibromyalgia and long COVID.
www.healthrising.org
June 1, 2025 at 6:03 PM
The GLP1 Agonists: An Exciting New Class of Drugs For ME/CFS, FM, and Long COVID? #MECFS #FM #longcovid www.healthrising.org/blog/2025/05...
Finding the Key? Could Unraveling T-cell Exhaustion Solve ME/CFS and Long COVID #MECFS #longcovid www.healthrising.org/blog/2025/05...
Finding the Key? Could Unraveling T-cell Exhaustion Solve ME/CFS and Long COVID - Health Rising
Researchers assessing T-cell exhaustion in ME/CFS and long COVID could ultimately identify what caused these diseases.
www.healthrising.org
May 17, 2025 at 5:45 PM
Finding the Key? Could Unraveling T-cell Exhaustion Solve ME/CFS and Long COVID #MECFS #longcovid www.healthrising.org/blog/2025/05...
Too Much Exertion Produces Autonomic Nervous System Hit in Long COVID, ME/CFS, and Fibromyalgia #MECFS #FM #LongCOVID
www.healthrising.org/blog/2025/04...
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Too Much Exertion Produces Autonomic Nervous System Hit in Long COVID, ME/CFS, and Fibromyalgia - Health Rising
Geoff’s Narrations The GIST The Blog A trip to Seattle to see Dr. Ruhoy held up the blogs a bit but they’re back! Exercise physiologist Rob Wust’s “Wearable heart rate variability monitoring identif...
www.healthrising.org
May 9, 2025 at 5:32 PM
Too Much Exertion Produces Autonomic Nervous System Hit in Long COVID, ME/CFS, and Fibromyalgia #MECFS #FM #LongCOVID
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