Choroideremia Research Foundation
@curechm.bsky.social
Funding research, raising awareness, and advocating for those affected by choroideremia—a rare inherited retinal disease that causes blindness.
www.curechm.org
www.curechm.org
The first-ever Canada CHM Patient & Family Meeting is happening May 9 in Toronto—and the agenda is live! This free, in-person event is open to individuals with CHM, families, and friends. Explore the agenda: secure.qgiv.com/for/canadach...
Canada CHM Patient & Family Meeting
secure.qgiv.com
January 28, 2026 at 5:01 PM
The first-ever Canada CHM Patient & Family Meeting is happening May 9 in Toronto—and the agenda is live! This free, in-person event is open to individuals with CHM, families, and friends. Explore the agenda: secure.qgiv.com/for/canadach...
Choroideremia Research Foundation (CRF) Acquires Spark Therapeutics, Inc., CHM Gene Therapy Assets, Advances Data Analysis
www.einpresswire.com/article/8852...
www.einpresswire.com/article/8852...
Choroideremia Research Foundation Acquires Spark Therapeutics, Inc., CHM Gene Therapy Assets, Advances Data Analysis
CRF acquired Spark Therapeutics, Inc.’s SPK-7001 CHM gene therapy assets and is analyzing long-term data to identify key clinical measures for development.
www.einpresswire.com
January 23, 2026 at 6:34 PM
Choroideremia Research Foundation (CRF) Acquires Spark Therapeutics, Inc., CHM Gene Therapy Assets, Advances Data Analysis
www.einpresswire.com/article/8852...
www.einpresswire.com/article/8852...
January is for turning good intentions into lasting impact. Even $5/month makes a difference. Become a monthly donor to CRF and provide steady support for sight-saving research, patient programs, and the CHM community—all year long. Join today. curechm.salsalabs.org/donate
January 21, 2026 at 7:30 PM
January is for turning good intentions into lasting impact. Even $5/month makes a difference. Become a monthly donor to CRF and provide steady support for sight-saving research, patient programs, and the CHM community—all year long. Join today. curechm.salsalabs.org/donate
Adam Dubis, PhD, is driving advances for artificial intelligence in eye care and vision research.
healthcare.utah.edu/moran/news/2...
healthcare.utah.edu/moran/news/2...
Powering Hope: The Rise of AI in Ophthalmology
John A. Moran Eye Center researcher Adam Dubis, PhD, is driving advances for artificial intelligence in eye care and vision research.
healthcare.utah.edu
January 16, 2026 at 5:42 PM
Adam Dubis, PhD, is driving advances for artificial intelligence in eye care and vision research.
healthcare.utah.edu/moran/news/2...
healthcare.utah.edu/moran/news/2...
Save the Date! Canada CHM Patient & Family Meeting is May 9th, 2026 | 9am–5pm | Sandman Signature Toronto Airport Hotel. Free, in-person event with CHM research updates, expert speakers, and time to connect with other CHM families. More details soon! #Choroideremia #CHM #RareDisease #CanadaCHM
January 12, 2026 at 10:11 PM
Save the Date! Canada CHM Patient & Family Meeting is May 9th, 2026 | 9am–5pm | Sandman Signature Toronto Airport Hotel. Free, in-person event with CHM research updates, expert speakers, and time to connect with other CHM families. More details soon! #Choroideremia #CHM #RareDisease #CanadaCHM
The Peter G. Boone Endowment Fund supports early-career scientists advancing choroideremia research.
A $50,000 MATCH is doubling gifts right now.
Give today and make an impact:
curechm.salsalabs.org/donate
(Enter “Boone Fund” in the “to notify” box)
A $50,000 MATCH is doubling gifts right now.
Give today and make an impact:
curechm.salsalabs.org/donate
(Enter “Boone Fund” in the “to notify” box)
December 18, 2025 at 6:07 PM
The Peter G. Boone Endowment Fund supports early-career scientists advancing choroideremia research.
A $50,000 MATCH is doubling gifts right now.
Give today and make an impact:
curechm.salsalabs.org/donate
(Enter “Boone Fund” in the “to notify” box)
A $50,000 MATCH is doubling gifts right now.
Give today and make an impact:
curechm.salsalabs.org/donate
(Enter “Boone Fund” in the “to notify” box)
As 2025 wraps up, we’re grateful for the generosity & hope within the CHM community. Your support this year has pushed research forward & strengthened connections. If you’re considering a year-end gift, your contribution helps bring us closer to a cure.
Give Today: curechm.salsalabs.org/donate
Give Today: curechm.salsalabs.org/donate
Donate to CRF
Give your support to scientific research leading to a treatment or cure of Choroideremia, a hereditary retinal-degenerative disease that causes blindness; to educate people affected by the disease; an...
curechm.salsalabs.org
December 12, 2025 at 6:23 PM
As 2025 wraps up, we’re grateful for the generosity & hope within the CHM community. Your support this year has pushed research forward & strengthened connections. If you’re considering a year-end gift, your contribution helps bring us closer to a cure.
Give Today: curechm.salsalabs.org/donate
Give Today: curechm.salsalabs.org/donate
For the 13th year in a row, the Laudenbach family laced up for Run For A Reason, running in honor of Matthew and the CHM community.
December 5, 2025 at 5:49 PM
For the 13th year in a row, the Laudenbach family laced up for Run For A Reason, running in honor of Matthew and the CHM community.
Thank you to everyone who supported the CRF this GivingTuesday! Because of your generosity and a dollar-for-dollar match from two incredible anonymous donors, we raised just over $50,000! If you haven’t had a chance to give yet, there’s still time: curechm.salsalabs.org/donate
December 4, 2025 at 10:00 PM
Thank you to everyone who supported the CRF this GivingTuesday! Because of your generosity and a dollar-for-dollar match from two incredible anonymous donors, we raised just over $50,000! If you haven’t had a chance to give yet, there’s still time: curechm.salsalabs.org/donate
The Choroideremia Research Foundation (CRF) announces the first cycle of 2026 research grants, with applications due by December 31, 2025.
www.einpresswire.com/article/8726...
www.einpresswire.com/article/8726...
Choroideremia Research Foundation Announces Grant Application Deadline: December 31, 2025
The Choroideremia Research Foundation (CRF) announces the first cycle of 2026 research grants, with applications due by December 31, 2025.
www.einpresswire.com
December 4, 2025 at 8:37 PM
The Choroideremia Research Foundation (CRF) announces the first cycle of 2026 research grants, with applications due by December 31, 2025.
www.einpresswire.com/article/8726...
www.einpresswire.com/article/8726...
Joanna, Matt, & Michelle took on the Alicante Marathon in Spain, & Joanna proudly sported her Team CHM shirt on race day! While this wasn’t a fundraiser, every moment of visibility helps raise awareness for choroideremia (CHM).
#teamchm #curechm #marathon #Alicante #choroideremia
#teamchm #curechm #marathon #Alicante #choroideremia
December 4, 2025 at 4:20 PM
Joanna, Matt, & Michelle took on the Alicante Marathon in Spain, & Joanna proudly sported her Team CHM shirt on race day! While this wasn’t a fundraiser, every moment of visibility helps raise awareness for choroideremia (CHM).
#teamchm #curechm #marathon #Alicante #choroideremia
#teamchm #curechm #marathon #Alicante #choroideremia
It’s not too late to give! Thanks to two generous donors, every gift is doubled up to $25K—fueling sight-saving CHM research and supporting families through the CRF. Help move us closer to treatments and a cure: curechm.salsalabs.org/givingtuesda...
December 3, 2025 at 6:00 PM
It’s not too late to give! Thanks to two generous donors, every gift is doubled up to $25K—fueling sight-saving CHM research and supporting families through the CRF. Help move us closer to treatments and a cure: curechm.salsalabs.org/givingtuesda...
It’s GivingTuesday! Your gift today goes 2x as far thanks to a $25K match. Support sight-saving CHM research and help the CRF bring hope to families. Every dollar moves us forward.
curechm.salsalabs.org/givingtuesda...
#GivingTuesday #CHMResearch
curechm.salsalabs.org/givingtuesda...
#GivingTuesday #CHMResearch
#GivingTuesday2025
GivingTuesday is a global generosity movement unleashing the power of people and organizations to transform their communities and the world. Give to the Choroideremia Research Foundation this GivingTu...
curechm.salsalabs.org
December 2, 2025 at 2:28 PM
It’s GivingTuesday! Your gift today goes 2x as far thanks to a $25K match. Support sight-saving CHM research and help the CRF bring hope to families. Every dollar moves us forward.
curechm.salsalabs.org/givingtuesda...
#GivingTuesday #CHMResearch
curechm.salsalabs.org/givingtuesda...
#GivingTuesday #CHMResearch
Tomorrow is GivingTuesday!
Your gift to CRF will be doubled up to $25K thanks to two generous donors.
Twice the impact. Twice the hope. Let’s do this.
curechm.salsalabs.org/givingtuesda...
#GivingTuesday #curechm #choroideremia
Your gift to CRF will be doubled up to $25K thanks to two generous donors.
Twice the impact. Twice the hope. Let’s do this.
curechm.salsalabs.org/givingtuesda...
#GivingTuesday #curechm #choroideremia
#GivingTuesday2025
GivingTuesday is a global generosity movement unleashing the power of people and organizations to transform their communities and the world. Give to the Choroideremia Research Foundation this GivingTu...
curechm.salsalabs.org
December 1, 2025 at 3:56 PM
Tomorrow is GivingTuesday!
Your gift to CRF will be doubled up to $25K thanks to two generous donors.
Twice the impact. Twice the hope. Let’s do this.
curechm.salsalabs.org/givingtuesda...
#GivingTuesday #curechm #choroideremia
Your gift to CRF will be doubled up to $25K thanks to two generous donors.
Twice the impact. Twice the hope. Let’s do this.
curechm.salsalabs.org/givingtuesda...
#GivingTuesday #curechm #choroideremia
Save the date! #GivingTuesday is just a week away. Double your impact and support sight-saving CHM research. Give here: curechm.salsalabs.org/givingtuesda...
November 25, 2025 at 3:40 PM
Save the date! #GivingTuesday is just a week away. Double your impact and support sight-saving CHM research. Give here: curechm.salsalabs.org/givingtuesda...
Apply now for CRF’s 2026 research grants! Seeking proposals in gene therapy, retinal degeneration & vision science. Deadline Dec 31, 2025. Learn more: curechm.org/research/#funding
Research - Gene Trials and Evolving Therapies - CureCHM
CRF advances research on choroideremia (CHM) through gene therapy, DNA editing, and stem cell therapy. Join us in the fight for a cure.
curechm.org
November 24, 2025 at 5:56 PM
Apply now for CRF’s 2026 research grants! Seeking proposals in gene therapy, retinal degeneration & vision science. Deadline Dec 31, 2025. Learn more: curechm.org/research/#funding
FDA Unwraps ‘Plausible Mechanism Pathway’ for Personalized Therapies
www.biospace.com/fda/fda-unwr...
www.biospace.com/fda/fda-unwr...
FDA Unwraps ‘Plausible Mechanism Pathway’ for Personalized Therapies
The plausible mechanism pathway "could accelerate gene therapy/editing development," analysts at William Blair said Thursday, while adding that additional clarity is needed.
www.biospace.com
November 13, 2025 at 6:56 PM
FDA Unwraps ‘Plausible Mechanism Pathway’ for Personalized Therapies
www.biospace.com/fda/fda-unwr...
www.biospace.com/fda/fda-unwr...
A Science and Research Update with Dr. Jess Thompson
youtu.be/M4U1wuAvZjk?...
youtu.be/M4U1wuAvZjk?...
Parents of CHMers Chat - A Science and Research Update
YouTube video by Choroideremia Research Foundation - Cure CHM
youtu.be
November 11, 2025 at 3:37 PM
A Science and Research Update with Dr. Jess Thompson
youtu.be/M4U1wuAvZjk?...
youtu.be/M4U1wuAvZjk?...
NEW! Parents Chat:
Our first session will be A Science and Research Update from Dr. Jess Thompson. He will share the latest updates in CHM research and answer your questions about what’s ahead for the community.
Monday, Nov 10th | 8PM EST - Register to join!
curechm.salsalabs.org/parentchat11...
Our first session will be A Science and Research Update from Dr. Jess Thompson. He will share the latest updates in CHM research and answer your questions about what’s ahead for the community.
Monday, Nov 10th | 8PM EST - Register to join!
curechm.salsalabs.org/parentchat11...
November 5, 2025 at 7:55 PM
NEW! Parents Chat:
Our first session will be A Science and Research Update from Dr. Jess Thompson. He will share the latest updates in CHM research and answer your questions about what’s ahead for the community.
Monday, Nov 10th | 8PM EST - Register to join!
curechm.salsalabs.org/parentchat11...
Our first session will be A Science and Research Update from Dr. Jess Thompson. He will share the latest updates in CHM research and answer your questions about what’s ahead for the community.
Monday, Nov 10th | 8PM EST - Register to join!
curechm.salsalabs.org/parentchat11...
Ever wondered whether a guide dog might be right for you? CHMers Bob Hrdy, Mike Martens, and John Trott recently shared their personal experiences, from the decision to apply to training and daily life with their canine partners.
youtu.be/_NAiVDTuEoQ?...
youtu.be/_NAiVDTuEoQ?...
Have You Ever Thought About a Guide Dog? CHMers Discuss the Pros and Cons
YouTube video by Choroideremia Research Foundation - Cure CHM
youtu.be
November 5, 2025 at 3:17 PM
Ever wondered whether a guide dog might be right for you? CHMers Bob Hrdy, Mike Martens, and John Trott recently shared their personal experiences, from the decision to apply to training and daily life with their canine partners.
youtu.be/_NAiVDTuEoQ?...
youtu.be/_NAiVDTuEoQ?...
Patient Advocacy: Why It Matters for the Choroideremia Community
Learn how patient advocacy helps shape research, influence policy, and create meaningful change for the CHM community.
youtu.be/kFDO6UtYZwo?...
Learn how patient advocacy helps shape research, influence policy, and create meaningful change for the CHM community.
youtu.be/kFDO6UtYZwo?...
Patient Advocacy: Why It Matters for the Choroideremia Community
YouTube video by Choroideremia Research Foundation - Cure CHM
youtu.be
October 31, 2025 at 2:26 PM
Patient Advocacy: Why It Matters for the Choroideremia Community
Learn how patient advocacy helps shape research, influence policy, and create meaningful change for the CHM community.
youtu.be/kFDO6UtYZwo?...
Learn how patient advocacy helps shape research, influence policy, and create meaningful change for the CHM community.
youtu.be/kFDO6UtYZwo?...
Stay connected with us beyond BlueSky! Follow the Choroideremia Research Foundation on LinkedIn for the latest research updates, events, and more: www.linkedin.com/company/cure...
Choroideremia Research Foundation - Cure CHM | LinkedIn
Choroideremia Research Foundation - Cure CHM | 1,758 followers on LinkedIn. Saving Sight is our Vision! | The Choroideremia Research Foundation is an international nonprofit organization that raises r...
www.linkedin.com
October 28, 2025 at 8:38 PM
Stay connected with us beyond BlueSky! Follow the Choroideremia Research Foundation on LinkedIn for the latest research updates, events, and more: www.linkedin.com/company/cure...
When his son was diagnosed with Choroideremia, Dr. Tom Barker, UVA professor & CRF Research Committee Member, redirected his lab’s focus. He’s not waiting for a miracle; he’s working now to slow the disease’s progression & buy his son more time.
news.virginia.edu/content/diag...
news.virginia.edu/content/diag...
Diagnosed with an incurable disease: How a UVA professor is fighting for his son
Thirteen-year-old Leo Barker’s father, Tom, upended his research to stall a rare genetic illness that strikes 1 in 50,000 people.
news.virginia.edu
October 23, 2025 at 3:31 PM
When his son was diagnosed with Choroideremia, Dr. Tom Barker, UVA professor & CRF Research Committee Member, redirected his lab’s focus. He’s not waiting for a miracle; he’s working now to slow the disease’s progression & buy his son more time.
news.virginia.edu/content/diag...
news.virginia.edu/content/diag...
Choroideremia Research Foundation Awards Alice Y. Zhang, MD, the 6th Annual Randy Wheelock Research Award
www.einpresswire.com/article/8602...
www.einpresswire.com/article/8602...
Choroideremia Research Foundation Awards Alice Y. Zhang, MD, the 6th Annual Randy Wheelock Research Award
CRF honors Dr. Alice Y. Zhang with the 6th Annual Randy Wheelock Research Award for advancing patient-focused outcomes in choroideremia research.
www.einpresswire.com
October 22, 2025 at 1:39 PM
Choroideremia Research Foundation Awards Alice Y. Zhang, MD, the 6th Annual Randy Wheelock Research Award
www.einpresswire.com/article/8602...
www.einpresswire.com/article/8602...