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dalilatm.bsky.social
Dalila
@dalilatm.bsky.social
250 followers 320 following 200 posts
Interested in research ethics and all about #lupus #lupusnephritis | Running support group #Wales 🏴󠁧󠁢󠁷󠁬󠁳󠁿| Views my own | We need a cure for Lupus 🦋
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dalilatm.bsky.social
Dalila @dalilatm.bsky.social · Dec 11
That's a wrap #2024Wrapped! 🎉 It’s been a year of amazing guest speakers from around the globe sharing unique perspectives on lupus, plus our first F2F meeting in #Swansea 🏴󠁧󠁢󠁷󠁬󠁳󠁿🙌 Huge thanks to them & our group members. Here's to an even brighter 2025! 🌟 #lupus #Wales
Reposted by Dalila
acr-journals.bsky.social
Interviews with 30 Hispanic women with SLE provide insight into their hopes, fears, and needs in navigating pregnancy and pregnancy-related decisions while living with lupus

ACR Open Rheumatology
doi.org/10.1002/acr2...
Considering Pregnancy: Duality in the Reproductive Journey and Decision‐Making in Hispanic Women With Systemic Lupus Erythematosus in the United States
Objective Systemic lupus erythematosus (SLE) commonly affects women during their childbearing years, making pregnancy experiences especially important to understand. This is particularly true for US...
doi.org
February 11, 2026 at 5:09 PM
Reposted by Dalila
rheumnow.bsky.social
The challenge may be that lupus has multiple endotypes with variable rates of progression/trajectories. Can you Prevent SLE? Dr. David Karp lecturing at UTSW @drdavidkarp @utswrheum
February 5, 2026 at 3:24 PM
Reposted by Dalila
zahitouma.bsky.social
Pericarditis 💜🩺 in lupus should not be underestimated!

Dr. Pankti Mehta & co-authors were instrumental in the conduct of this study📒
uhnresearch.ca Research at UHN @uhnresearch.ca · 5d
Who is most at risk for heart inflammation (pericarditis) in #lupus? 🫀

A new study from @uhn.ca's @schroeder-uhn.bsky.social reveals key patterns—highlighting earlier diagnosis and disease severity as risk factors for #pericarditis.

🔗Read more: www.uhnresearch.ca/news/how-lup...
February 6, 2026 at 7:30 PM
Reposted by Dalila
elizabetharkema.bsky.social
Anyone out there on #episky working with natural language processing to get data from electronic health records? It’s a steep learning curve but I think it will be worth it in complex immune mediated diseases like lupus and sarcoidosis. Just submitted my first grant on this topic🤞
February 7, 2026 at 9:18 AM
Reposted by Dalila
ericfmorand.bsky.social
A few weeks late, but pleased to call out this paper in which I had a role, showing that subcut anifrolumab is effective and well-tolerated in #lupus. Hopefully this leads to ex-hospital access option for this impactful drug. Onwards!

acrjournals.onlinelibrary.wiley.com/doi/10.1002/...
Efficacy and Safety of Subcutaneous Anifrolumab in Systemic Lupus Erythematosus: the Randomized, Phase 3, TULIP‐SC Study
Objective The multinational, phase 3, double-blind, placebo-controlled TULIP-SC trial evaluated the efficacy and safety of subcutaneous anifrolumab in adults who have moderate-to-severe SLE activity...
acrjournals.onlinelibrary.wiley.com
February 6, 2026 at 2:34 AM
dalilatm.bsky.social
👍 Positive news to see the launch of a new multidisciplinary team for #lupus in Wales 🏴󠁧󠁢󠁷󠁬󠁳󠁿 An important step towards a lifelong, joined-up approach to care.

About the Wales MSK Network and full newsletter ➡️ performanceandimprovement.nhs.wales/functions/ne...
February 5, 2026 at 10:58 AM
Reposted by Dalila
lupus.org
Living with #lupus or caring for someone who is? Join us 2/25 for a free webinar where leading experts discuss how next-generation therapies like T-cell engagers are being studied to target lupus at its core.

Register now & submit questions for the Q&A: buff.ly/V9Kgppb
February 4, 2026 at 9:02 PM
Reposted by Dalila
ckj-era.bsky.social
Role of lupus nephritis classification systems in everyday clinical practice: a questionnaire-based survey of the Renal Pathology Society (RPS)

doi.org/10.1093/ckj/...
Role of lupus nephritis classification systems in everyday clinical practice: a questionnaire-based survey of the Renal Pathology Society (RPS)
AbstractBackground. Kidney biopsy is the gold standard for lupus nephritis (LN) diagnosis, with the 2018 International Society of Nephrology/Renal Patholog
doi.org
February 5, 2026 at 8:17 AM
dalilatm.bsky.social
#cSLE "In children, high-quality evidence is lacking, and the management of #lupus nephritis is largely established based on data derived from adults or from cohort studies"

📰 Editorial: Is It Time to Change Our Approach to to Childhood Lupus Nephritis? Journal of the American Society of Nephrology
February 3, 2026 at 11:32 AM
Reposted by Dalila
lupusuk.bsky.social
Chelsea, our Young People and Family Support Officer, has shared their experience of living with cutaneous lupus. You can watch their presentation on our YouTube Channel (@LupusUkOfficial) or by clicking the link below.

🔗https://youtu.be/KTGtjo8tFq8

#Lupus #SLE #LupusCommunity #CutaneousLupus
January 28, 2026 at 11:01 AM
Reposted by Dalila
rheumnow.bsky.social
Remission? Single center study of 100 RA, 100 SLE pts assessed by SLEDAI-2K, SDAI, VAS. Remission/LDA found in 88% of 392 SLE visits & 91% of 389 RA visits(p=NS). Remission was more common in SLE vs RA (79% vs 69%; p= 0.0018). academic.oup.com/rheumatology...
Treating-to-target: remission and low disease activity in systemic lupus erythematosus versus rheumatoid arthritis
AbstractObjectives. To compare the proportion of patients in remission and low disease activity (LDA) between rheumatoid arthritis (RA) and systemic lupus
academic.oup.com
January 30, 2026 at 7:03 PM
dalilatm.bsky.social
Quite interesting
January 28, 2026 at 11:55 AM
Reposted by Dalila
kingsioppn.bsky.social
How can we treat various brain disorders without invasive procedures? Join the Maudsley Neurotechnology Meeting as Professor Stephen Jackson (University of Nottingham) speaks on his work in median nerve stimulation in tic disorders.

Register now: www.kcl.ac.uk/events/media...
Median nerve stimulation in tic disorders | King's College London
The Maudsley Neurotechnology Meetings are a monthly forum to discuss neurotechnological approaches for mental health disorders.
www.kcl.ac.uk
January 27, 2026 at 10:35 AM
dalilatm.bsky.social
#UK ‘University of Birmingham appoints globally renowned life sciences experts’
#AutoimmuneDiseases #LymphocyteAntigen
@UniversityofBirmingham

www.birmingham.ac.uk/news/2026/un...
University of Birmingham appoints globally renowned life sciences experts - University of Birmingham
Two internationally renowned experts are coming to Birmingham as part of a Government drive to attract global research talent to the UK.
www.birmingham.ac.uk
January 26, 2026 at 9:40 PM
Reposted by Dalila
dukekidney.bsky.social
New from #NephFaculty Dr Lucas, Dr Kovalik and Colleagues in Lupus

Serum BAFF levels in pregnant patients with systemic lupus erythematosus

https://pubmed.ncbi.nlm.nih.gov/41572585/
January 24, 2026 at 3:52 AM
Reposted by Dalila
acr-journals.bsky.social
Routine screening for economic insecurities among 222 patients with SLE showed 16% reported ≥1 economic insecurity. Eco. insecurity + adverse social drivers of health was assoc. with 2-fold negative impact on PROs. Social worker intervention led to improved PROs

AC&R
doi.org/10.1002/acr....
Addressing Economic Insecurities Can Improve Patient-Reported Outcomes in Lupus. A graphical abstract
January 22, 2026 at 5:14 PM
Reposted by Dalila
kidneycareuk.bsky.social
We welcome approval of new Lupus Nephritis treatment in England & Wales. The CD20 monoclonal antibody is less likely to cause reactions & has been shown to reduce kidney decline 👉 kidneycareuk.org/news-from-kidney-care-uk/nice-recommends-two-medicines-to-treat-conditions-causing-kidney-disease
Logo of Kidney Care UK in the top left corner, a healthcare professional examining a patient's chart, with a news icon in the foreground.
January 22, 2026 at 12:04 PM
Reposted by Dalila
medpagetoday.com
Lupus patients with financial problems reported better health-related outcomes when they received help from social workers with such things as food stamps and drug costs, researchers said.

Read more at: https://www.medpagetoday.com/rheumatology/lupus/119502?trw=no
Study: Helping Lupus Patients With Money Issues Improves Their Health
Better patient-reported outcomes with social workers' assistance
www.medpagetoday.com
January 22, 2026 at 12:48 AM
Reposted by Dalila
ericfmorand.bsky.social
Thanks to @cellpress.bsky.social Trends in Molecular Medicine for putting us on the cover! Sarah Jones and I review 10 years of progress in #lupus - we have come a long way, but have a long way to go...and we will keep working.

www.cell.com/trends/molec...
January 19, 2026 at 9:15 PM
dalilatm.bsky.social
The dilemma didn’t last long - watched ☑️ Great performance, emotions expressed so beautifully #Hamnet #JoinedtheHype
January 21, 2026 at 11:07 AM
Reposted by Dalila
drkatiemartucci.bsky.social
We launched our Duke Pain Seminar Series for 2026 with Dr. David Pisetsky’s highly educational & insightful presentation on chronic pain in lupus. #Duke_CTPM

⭐️discordance between patient vs clinician evaluation of lupus activity

⭐️nociplasticity as a useful term for lupus pain, fatigue, brain fog
January 16, 2026 at 12:37 PM
Reposted by Dalila
erictopol.bsky.social
Another major triumph for a refractory autoimmune disease—hemolytic anemia—through engineered T cells
@nejm.org
nejm.org/doi/full/10....
CD19 CAR T-Cell Therapy for Autoimmune Hemolytic Anemia | NEJM
In patients with autoimmune hemolytic anemia (AIHA), the risk of relapse is high owing to persistent autoreactive B-cell activity. Multirefractory AIHA is a more advanced stage of disease that is d...
nejm.org
January 14, 2026 at 10:44 PM
Reposted by Dalila
natrevdiseaseprimers.nature.com
Lupus nephritis is a type of immune-mediated glomerulonephritis and a serious complication of systemic lupus erythematosus that can affect up to 60% of patients with this condition.
#NephSky
Lupus nephritis - Nature Reviews Disease Primers
Lupus nephritis is an autoimmune-mediated glomerulonephritis and a serious complication of systemic lupus erythematosus. In this Primer, Parodis and colleagues describe the epidemiology and pathophysiology of this disease, discuss current diagnosis and management, and highlight the effects on patient quality of life as well as future areas of research.
www.nature.com
January 4, 2026 at 11:45 AM
Reposted by Dalila
gracechoung.bsky.social
Evaluating Chronicity Scores for Outcomes in Lupus Nephritis Patients - Kidney International Reports www.kireports.org/article/S246...

#pathsky #nephsky #nephrology #renalpath
Evaluating Chronicity Scores for Outcomes in Lupus Nephritis Patients
To evaluate the prognostic value of the Mayo Clinic Chronicity Score (MCCS) compared with the National Institutes of Health Chronicity Index (NIH-CI) in lupus nephritis (LN).
www.kireports.org
January 14, 2026 at 5:31 AM
Reposted by Dalila
daringtodream.bsky.social
The Space to Talk, our podcast this week with special guest #angelinahall - please share and listen. Angelina reflects on the emotional impact for her of illness and its treatments. Movingly honest & courageous @johnchown.bsky.social @dalilatm.bsky.social

daringtodream.wales/2026/01/13/t...
The Space to Talk – Daring to Dream’s podcast episode two. - Daring to Dream
daringtodream.wales
January 14, 2026 at 9:03 AM