Dalila
@dalilatm.bsky.social
Interested in research ethics and all about #lupus #lupusnephritis | Running support group #Wales ๐ด๓ ง๓ ข๓ ท๓ ฌ๓ ณ๓ ฟ| Views my own | We need a cure for Lupus ๐ฆ
Pinned
Dalila
@dalilatm.bsky.social
ยท Dec 11
That's a wrap #2024Wrapped! ๐ Itโs been a year of amazing guest speakers from around the globe sharing unique perspectives on lupus, plus our first F2F meeting in #Swansea ๐ด๓ ง๓ ข๓ ท๓ ฌ๓ ณ๓ ฟ๐ Huge thanks to them & our group members. Here's to an even brighter 2025! ๐ #lupus #Wales
Reposted by Dalila
Very excited to share that our #lupus diagnostic #bias in primary care study was just published! Thank you to the wonderful team of collaborators and coauthors, and all of the participants. cc: first author @alyssahowren.bsky.social journals.plos.org/plosone/arti...
Effect of race and sex on lupus diagnosis in primary care: A randomized factorial survey study
Background Systemic lupus erythematosus (SLE) is a heterogeneous autoimmune rheumatic disease whose epidemiology and clinical prognosis vary by race and sex. Observed disparities in SLE may be partly ...
journals.plos.org
February 9, 2026 at 5:37 PM
Very excited to share that our #lupus diagnostic #bias in primary care study was just published! Thank you to the wonderful team of collaborators and coauthors, and all of the participants. cc: first author @alyssahowren.bsky.social journals.plos.org/plosone/arti...
Reposted by Dalila
Meet Dennisse Bonilla, Clinical Research Manager within the #Lupus Program @schroeder-uhn.bsky.social. "Being able to give a voice to our patients at the Institute, and patients worldwide, continues to be a blessing."
Learn all about her inspiring journey -> mailchi.mp/27b4b259da16...
Learn all about her inspiring journey -> mailchi.mp/27b4b259da16...
February 10, 2026 at 2:36 PM
Meet Dennisse Bonilla, Clinical Research Manager within the #Lupus Program @schroeder-uhn.bsky.social. "Being able to give a voice to our patients at the Institute, and patients worldwide, continues to be a blessing."
Learn all about her inspiring journey -> mailchi.mp/27b4b259da16...
Learn all about her inspiring journey -> mailchi.mp/27b4b259da16...
Reposted by Dalila
Meet Lucy Li, an MD/PhD candidate at the University of Washington advancing lupus research at BRI.
Working across BRIโs Hamerman and Ray labs, she studies the genetics of lupus nephritis to uncover new therapeutic targets and improve care for people living with it: bri-news.short.gy/AX6Bje
Working across BRIโs Hamerman and Ray labs, she studies the genetics of lupus nephritis to uncover new therapeutic targets and improve care for people living with it: bri-news.short.gy/AX6Bje
February 10, 2026 at 8:33 PM
Meet Lucy Li, an MD/PhD candidate at the University of Washington advancing lupus research at BRI.
Working across BRIโs Hamerman and Ray labs, she studies the genetics of lupus nephritis to uncover new therapeutic targets and improve care for people living with it: bri-news.short.gy/AX6Bje
Working across BRIโs Hamerman and Ray labs, she studies the genetics of lupus nephritis to uncover new therapeutic targets and improve care for people living with it: bri-news.short.gy/AX6Bje
Reposted by Dalila
Inspired by women in pharmacology, PhD student Diana Nelles's research aims to fill critical gaps in pregnancy drug-safety data and help guide safer prescribing for people with lupus during pregnancy: www.pharmacy.utoronto.ca/news-announc...
#WomeninScience #IDWGS
#WomeninScience #IDWGS
PharmSci studentโs research advances medication safety during pregnancy
Diana Nelles was inspired by women in pharmacology research to advance knowledge in understudied populations.
www.pharmacy.utoronto.ca
February 11, 2026 at 3:09 PM
Inspired by women in pharmacology, PhD student Diana Nelles's research aims to fill critical gaps in pregnancy drug-safety data and help guide safer prescribing for people with lupus during pregnancy: www.pharmacy.utoronto.ca/news-announc...
#WomeninScience #IDWGS
#WomeninScience #IDWGS
Reposted by Dalila
Interviews with 30 Hispanic women with SLE provide insight into their hopes, fears, and needs in navigating pregnancy and pregnancy-related decisions while living with lupus
ACR Open Rheumatology
doi.org/10.1002/acr2...
ACR Open Rheumatology
doi.org/10.1002/acr2...
Considering Pregnancy: Duality in the Reproductive Journey and DecisionโMaking in Hispanic Women With Systemic Lupus Erythematosus in the United States
Objective Systemic lupus erythematosus (SLE) commonly affects women during their childbearing years, making pregnancy experiences especially important to understand. This is particularly true for US...
doi.org
February 11, 2026 at 5:09 PM
Interviews with 30 Hispanic women with SLE provide insight into their hopes, fears, and needs in navigating pregnancy and pregnancy-related decisions while living with lupus
ACR Open Rheumatology
doi.org/10.1002/acr2...
ACR Open Rheumatology
doi.org/10.1002/acr2...
Reposted by Dalila
The challenge may be that lupus has multiple endotypes with variable rates of progression/trajectories. Can you Prevent SLE? Dr. David Karp lecturing at UTSW @drdavidkarp @utswrheum
February 5, 2026 at 3:24 PM
The challenge may be that lupus has multiple endotypes with variable rates of progression/trajectories. Can you Prevent SLE? Dr. David Karp lecturing at UTSW @drdavidkarp @utswrheum
Reposted by Dalila
Pericarditis ๐๐ฉบ in lupus should not be underestimated!
Dr. Pankti Mehta & co-authors were instrumental in the conduct of this study๐
Dr. Pankti Mehta & co-authors were instrumental in the conduct of this study๐
Who is most at risk for heart inflammation (pericarditis) in #lupus? ๐ซ
A new study from @uhn.ca's @schroeder-uhn.bsky.social reveals key patternsโhighlighting earlier diagnosis and disease severity as risk factors for #pericarditis.
๐Read more: www.uhnresearch.ca/news/how-lup...
A new study from @uhn.ca's @schroeder-uhn.bsky.social reveals key patternsโhighlighting earlier diagnosis and disease severity as risk factors for #pericarditis.
๐Read more: www.uhnresearch.ca/news/how-lup...
February 6, 2026 at 7:30 PM
Pericarditis ๐๐ฉบ in lupus should not be underestimated!
Dr. Pankti Mehta & co-authors were instrumental in the conduct of this study๐
Dr. Pankti Mehta & co-authors were instrumental in the conduct of this study๐
Reposted by Dalila
Anyone out there on #episky working with natural language processing to get data from electronic health records? Itโs a steep learning curve but I think it will be worth it in complex immune mediated diseases like lupus and sarcoidosis. Just submitted my first grant on this topic๐ค
February 7, 2026 at 9:18 AM
Anyone out there on #episky working with natural language processing to get data from electronic health records? Itโs a steep learning curve but I think it will be worth it in complex immune mediated diseases like lupus and sarcoidosis. Just submitted my first grant on this topic๐ค
Reposted by Dalila
A few weeks late, but pleased to call out this paper in which I had a role, showing that subcut anifrolumab is effective and well-tolerated in #lupus. Hopefully this leads to ex-hospital access option for this impactful drug. Onwards!
acrjournals.onlinelibrary.wiley.com/doi/10.1002/...
acrjournals.onlinelibrary.wiley.com/doi/10.1002/...
Efficacy and Safety of Subcutaneous Anifrolumab in Systemic Lupus Erythematosus: the Randomized, Phase 3, TULIPโSC Study
Objective The multinational, phase 3, double-blind, placebo-controlled TULIP-SC trial evaluated the efficacy and safety of subcutaneous anifrolumab in adults who have moderate-to-severe SLE activity...
acrjournals.onlinelibrary.wiley.com
February 6, 2026 at 2:34 AM
A few weeks late, but pleased to call out this paper in which I had a role, showing that subcut anifrolumab is effective and well-tolerated in #lupus. Hopefully this leads to ex-hospital access option for this impactful drug. Onwards!
acrjournals.onlinelibrary.wiley.com/doi/10.1002/...
acrjournals.onlinelibrary.wiley.com/doi/10.1002/...
๐ Positive news to see the launch of a new multidisciplinary team for #lupus in Wales ๐ด๓ ง๓ ข๓ ท๓ ฌ๓ ณ๓ ฟ An important step towards a lifelong, joined-up approach to care.
About the Wales MSK Network and full newsletter โก๏ธ performanceandimprovement.nhs.wales/functions/ne...
About the Wales MSK Network and full newsletter โก๏ธ performanceandimprovement.nhs.wales/functions/ne...
February 5, 2026 at 10:58 AM
๐ Positive news to see the launch of a new multidisciplinary team for #lupus in Wales ๐ด๓ ง๓ ข๓ ท๓ ฌ๓ ณ๓ ฟ An important step towards a lifelong, joined-up approach to care.
About the Wales MSK Network and full newsletter โก๏ธ performanceandimprovement.nhs.wales/functions/ne...
About the Wales MSK Network and full newsletter โก๏ธ performanceandimprovement.nhs.wales/functions/ne...
Reposted by Dalila
Living with #lupus or caring for someone who is? Join us 2/25 for a free webinar where leading experts discuss how next-generation therapies like T-cell engagers are being studied to target lupus at its core.
Register now & submit questions for the Q&A: buff.ly/V9Kgppb
Register now & submit questions for the Q&A: buff.ly/V9Kgppb
February 4, 2026 at 9:02 PM
Living with #lupus or caring for someone who is? Join us 2/25 for a free webinar where leading experts discuss how next-generation therapies like T-cell engagers are being studied to target lupus at its core.
Register now & submit questions for the Q&A: buff.ly/V9Kgppb
Register now & submit questions for the Q&A: buff.ly/V9Kgppb
Reposted by Dalila
Role of lupus nephritis classification systems in everyday clinical practice: a questionnaire-based survey of the Renal Pathology Society (RPS)
doi.org/10.1093/ckj/...
doi.org/10.1093/ckj/...
Role of lupus nephritis classification systems in everyday clinical practice: a questionnaire-based survey of the Renal Pathology Society (RPS)
AbstractBackground. Kidney biopsy is the gold standard for lupus nephritis (LN) diagnosis, with the 2018 International Society of Nephrology/Renal Patholog
doi.org
February 5, 2026 at 8:17 AM
Role of lupus nephritis classification systems in everyday clinical practice: a questionnaire-based survey of the Renal Pathology Society (RPS)
doi.org/10.1093/ckj/...
doi.org/10.1093/ckj/...
journals.lww.com
February 3, 2026 at 11:32 AM
#cSLE "In children, high-quality evidence is lacking, and the management of #lupus nephritis is largely established based on data derived from adults or from cohort studies"
๐ฐ Editorial: Is It Time to Change Our Approach to to Childhood Lupus Nephritis? Journal of the American Society of Nephrology
๐ฐ Editorial: Is It Time to Change Our Approach to to Childhood Lupus Nephritis? Journal of the American Society of Nephrology
February 3, 2026 at 11:32 AM
#cSLE "In children, high-quality evidence is lacking, and the management of #lupus nephritis is largely established based on data derived from adults or from cohort studies"
๐ฐ Editorial: Is It Time to Change Our Approach to to Childhood Lupus Nephritis? Journal of the American Society of Nephrology
๐ฐ Editorial: Is It Time to Change Our Approach to to Childhood Lupus Nephritis? Journal of the American Society of Nephrology
Reposted by Dalila
Chelsea, our Young People and Family Support Officer, has shared their experience of living with cutaneous lupus. You can watch their presentation on our YouTube Channel (@LupusUkOfficial) or by clicking the link below.
๐https://youtu.be/KTGtjo8tFq8
#Lupus #SLE #LupusCommunity #CutaneousLupus
๐https://youtu.be/KTGtjo8tFq8
#Lupus #SLE #LupusCommunity #CutaneousLupus
January 28, 2026 at 11:01 AM
Chelsea, our Young People and Family Support Officer, has shared their experience of living with cutaneous lupus. You can watch their presentation on our YouTube Channel (@LupusUkOfficial) or by clicking the link below.
๐https://youtu.be/KTGtjo8tFq8
#Lupus #SLE #LupusCommunity #CutaneousLupus
๐https://youtu.be/KTGtjo8tFq8
#Lupus #SLE #LupusCommunity #CutaneousLupus
Reposted by Dalila
Remission? Single center study of 100 RA, 100 SLE pts assessed by SLEDAI-2K, SDAI, VAS. Remission/LDA found in 88% of 392 SLE visits & 91% of 389 RA visits(p=NS). Remission was more common in SLE vs RA (79% vs 69%; p= 0.0018). academic.oup.com/rheumatology...
Treating-to-target: remission and low disease activity in systemic lupus erythematosus versus rheumatoid arthritis
AbstractObjectives. To compare the proportion of patients in remission and low disease activity (LDA) between rheumatoid arthritis (RA) and systemic lupus
academic.oup.com
January 30, 2026 at 7:03 PM
Remission? Single center study of 100 RA, 100 SLE pts assessed by SLEDAI-2K, SDAI, VAS. Remission/LDA found in 88% of 392 SLE visits & 91% of 389 RA visits(p=NS). Remission was more common in SLE vs RA (79% vs 69%; p= 0.0018). academic.oup.com/rheumatology...
Quite interesting
โLesion network mapping can be prone to false-positive findings or nonspecific findings, and study designs need to be constructed carefully in a way that can account for this,โ says lesion network mapping co-developer Aaron Boes.
By @avaskham.bsky.social
www.thetransmitter.org/brain-imagin...
By @avaskham.bsky.social
www.thetransmitter.org/brain-imagin...
Methodological flaw may upend network mapping tool
The lesion network mapping method, used to identify disease-specific brain networks for clinical stimulation, produces a nearly identical network map for any given condition, according to a new study.
www.thetransmitter.org
January 28, 2026 at 11:55 AM
Quite interesting
Reposted by Dalila
How can we treat various brain disorders without invasive procedures? Join the Maudsley Neurotechnology Meeting as Professor Stephen Jackson (University of Nottingham) speaks on his work in median nerve stimulation in tic disorders.
Register now: www.kcl.ac.uk/events/media...
Register now: www.kcl.ac.uk/events/media...
Median nerve stimulation in tic disorders | King's College London
The Maudsley Neurotechnology Meetings are a monthly forum to discuss neurotechnological approaches for mental health disorders.
www.kcl.ac.uk
January 27, 2026 at 10:35 AM
How can we treat various brain disorders without invasive procedures? Join the Maudsley Neurotechnology Meeting as Professor Stephen Jackson (University of Nottingham) speaks on his work in median nerve stimulation in tic disorders.
Register now: www.kcl.ac.uk/events/media...
Register now: www.kcl.ac.uk/events/media...
#UK โUniversity of Birmingham appoints globally renowned life sciences expertsโ
#AutoimmuneDiseases #LymphocyteAntigen
@UniversityofBirmingham
www.birmingham.ac.uk/news/2026/un...
#AutoimmuneDiseases #LymphocyteAntigen
@UniversityofBirmingham
www.birmingham.ac.uk/news/2026/un...
University of Birmingham appoints globally renowned life sciences experts - University of Birmingham
Two internationally renowned experts are coming to Birmingham as part of a Government drive to attract global research talent to the UK.
www.birmingham.ac.uk
January 26, 2026 at 9:40 PM
#UK โUniversity of Birmingham appoints globally renowned life sciences expertsโ
#AutoimmuneDiseases #LymphocyteAntigen
@UniversityofBirmingham
www.birmingham.ac.uk/news/2026/un...
#AutoimmuneDiseases #LymphocyteAntigen
@UniversityofBirmingham
www.birmingham.ac.uk/news/2026/un...
Reposted by Dalila
New from #NephFaculty Dr Lucas, Dr Kovalik and Colleagues in Lupus
Serum BAFF levels in pregnant patients with systemic lupus erythematosus
https://pubmed.ncbi.nlm.nih.gov/41572585/
Serum BAFF levels in pregnant patients with systemic lupus erythematosus
https://pubmed.ncbi.nlm.nih.gov/41572585/
January 24, 2026 at 3:52 AM
New from #NephFaculty Dr Lucas, Dr Kovalik and Colleagues in Lupus
Serum BAFF levels in pregnant patients with systemic lupus erythematosus
https://pubmed.ncbi.nlm.nih.gov/41572585/
Serum BAFF levels in pregnant patients with systemic lupus erythematosus
https://pubmed.ncbi.nlm.nih.gov/41572585/
Reposted by Dalila
Routine screening for economic insecurities among 222 patients with SLE showed 16% reported โฅ1 economic insecurity. Eco. insecurity + adverse social drivers of health was assoc. with 2-fold negative impact on PROs. Social worker intervention led to improved PROs
AC&R
doi.org/10.1002/acr....
AC&R
doi.org/10.1002/acr....
January 22, 2026 at 5:14 PM
Routine screening for economic insecurities among 222 patients with SLE showed 16% reported โฅ1 economic insecurity. Eco. insecurity + adverse social drivers of health was assoc. with 2-fold negative impact on PROs. Social worker intervention led to improved PROs
AC&R
doi.org/10.1002/acr....
AC&R
doi.org/10.1002/acr....
Reposted by Dalila
We welcome approval of new Lupus Nephritis treatment in England & Wales. The CD20 monoclonal antibody is less likely to cause reactions & has been shown to reduce kidney decline ๐ kidneycareuk.org/news-from-kidney-care-uk/nice-recommends-two-medicines-to-treat-conditions-causing-kidney-disease
January 22, 2026 at 12:04 PM
We welcome approval of new Lupus Nephritis treatment in England & Wales. The CD20 monoclonal antibody is less likely to cause reactions & has been shown to reduce kidney decline ๐ kidneycareuk.org/news-from-kidney-care-uk/nice-recommends-two-medicines-to-treat-conditions-causing-kidney-disease
Reposted by Dalila
Lupus patients with financial problems reported better health-related outcomes when they received help from social workers with such things as food stamps and drug costs, researchers said.
Read more at: https://www.medpagetoday.com/rheumatology/lupus/119502?trw=no
Read more at: https://www.medpagetoday.com/rheumatology/lupus/119502?trw=no
Study: Helping Lupus Patients With Money Issues Improves Their Health
Better patient-reported outcomes with social workers' assistance
www.medpagetoday.com
January 22, 2026 at 12:48 AM
Lupus patients with financial problems reported better health-related outcomes when they received help from social workers with such things as food stamps and drug costs, researchers said.
Read more at: https://www.medpagetoday.com/rheumatology/lupus/119502?trw=no
Read more at: https://www.medpagetoday.com/rheumatology/lupus/119502?trw=no
Reposted by Dalila
Thanks to @cellpress.bsky.social Trends in Molecular Medicine for putting us on the cover! Sarah Jones and I review 10 years of progress in #lupus - we have come a long way, but have a long way to go...and we will keep working.
www.cell.com/trends/molec...
www.cell.com/trends/molec...
January 19, 2026 at 9:15 PM
Thanks to @cellpress.bsky.social Trends in Molecular Medicine for putting us on the cover! Sarah Jones and I review 10 years of progress in #lupus - we have come a long way, but have a long way to go...and we will keep working.
www.cell.com/trends/molec...
www.cell.com/trends/molec...
The dilemma didnโt last long - watched โ๏ธ Great performance, emotions expressed so beautifully #Hamnet #JoinedtheHype
January 21, 2026 at 11:07 AM
The dilemma didnโt last long - watched โ๏ธ Great performance, emotions expressed so beautifully #Hamnet #JoinedtheHype