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Reposted by Debbie Wilson

Inflammatory Arthritis UK @inflamarthritis.bsky.social · 17d

💥 How painful is inflammatory arthritis? 🤔
This Friday on Inflammatory! we’re diving into the invisible pain that comes with IA.
✨ Does pain change your mood?
✨ What are your go-to tips for coping?
Drop a comment below & join the conversation.
🎧 Full episode out Friday + YouTube!
#Inflammatory

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Inflammatory Arthritis UK @inflamarthritis.bsky.social · Aug 26

🐾 Happy #InternationalDogDay! 🐶✨
Dogs just know when you’re not at your best, flare, fatigue, or a rough day. Their cuddles & unconditional love are the best medicine. 💕

Here’s Debbie’s pup Whiskey 🐾, who we’ve mentioned on the Inflammatory! podcast. Listen here: tinyurl.com/yck6huy7

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Inflammatory Arthritis UK @inflamarthritis.bsky.social · Aug 27

📢 The British Society for Rheumatology is working on a brand-new life-course clinical guideline for Juvenile Idiopathic Arthritis (JIA). People with lived experience we need your help! Share what matters most by completing our short survey before 16 Sept.

🔗 tinyurl.com/3pxu3mdu

#JIA #Rheumatology

British Society for Rheumatology - JIA Guideline Scope for patients

tinyurl.com

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Inflammatory Arthritis UK @inflamarthritis.bsky.social · Aug 8

🎙In episode 17 of Inflammatory! we were joined by fashion and portrait photographer Rachell Smith, who shared her journey living with inflammatory arthritis. Navigating years of misdiagnosis to parenting with chronic pain. It is full of heart, honesty, and hope.
🎧 Listen here tinyurl.com/55ezx3hu

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Inflammatory Arthritis UK @inflamarthritis.bsky.social · Aug 18

One of the hardest parts of living with Inflammatory Arthritis (IA) is explaining it. It’s not “just arthritis” like OA. IA is an autoimmune disease. 🎧 In Ep13 of Inflammatory! we use a sound system analogy to make sense of it.
Listen here tinyurl.com/4ajba8rr

#ArthritisAwareness #Autoimmune

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Inflammatory Arthritis UK @inflamarthritis.bsky.social · Aug 5

🎧 Have you or someone you care about been diagnosed with a type of inflammatory arthritis (IA)?

Check out Inflammatory! our weekly podcast (currently on a summer break ☀️) that dives into what life is really like with IA.
🎙️ Listen now on our website inflammatoryarthritis.org

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Inflammatory Arthritis UK @inflamarthritis.bsky.social · Jul 8

🎉 Inflammatory Arthritis UK is 6 months old!
What a journey it’s been and we’ve only just begun.

There are other charities, but our focus on lived experience shows: people need to hear from people who get it.

We’re here, and we’re needed. 💙 #IAUK #LivedExperience💙 #IAUK #LivedExperience

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Inflammatory Arthritis UK @inflamarthritis.bsky.social · Jul 4

The NHS 10-Year Plan is out. We welcome the ambition but are reviewing how it impacts people with inflammatory arthritis. Timely diagnosis, access, and care matter.
🔗 Read our response: tinyurl.com/mr4djm5t

#NHSPlan #InflammatoryArthritis #IAUK 👉 tinyurl.com/mr4djm5t
#NHSPlan

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Inflammatory Arthritis UK @inflamarthritis.bsky.social · Jul 1

July is #JuvenileIdiopathicArthritis Awareness Month 💙
JIA starts before age 16, and for many, it lasts a lifetime. Our co-founder & her daughter both live with JIA.
Read Debbie's inspiring blogs here: tinyurl.com/ye3x5djr

#JIA #ChronicIllness #JIAAwareness #InflammatoryArthritis

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Inflammatory Arthritis UK @inflamarthritis.bsky.social · Jun 30

Inflammatory arthritis doesn’t take a holiday... even when we do!
In this week’s episode of Inflammatory! we talk all things holidays, reflect on how far we have come considering IAUK is not even 6 months old!

🎧 🔗 Listen now: tinyurl.com/y42k4scr
#inflammatoryarthritis #podcast #community

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Inflammatory Arthritis UK @inflamarthritis.bsky.social · Jun 23

🌟 Small Charities, Big Impact 🌟
#SmallCharitiesWeek, even though IAUK is a new small charity, we are already making a big impact 💙

💬 Show your support this Small Charities Week by:
✔️ Sharing our page
✔️ Spreading awareness
✔️ Sign up to our newsletter & donate here inflammatoryarthritis.org

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Debbie Wilson @debswilson.bsky.social · Jun 6

Please do get in touch if you would like to volunteer for Inflammatory Arthritis UK. Details 👇

Inflammatory Arthritis UK @inflamarthritis.bsky.social · Jun 6

HELP! episode out now
👥 Want to make a difference, even with limited time or energy?
We’re talking about realistic, empowering ways to volunteer and shape the future of IAUK.
🎧 Listen to the full episode here: tinyurl.com/4aynyfs4

#ChronicIllnessWarrior #VolunteerOpportunity #InvisibleDisability

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Inflammatory Arthritis UK @inflamarthritis.bsky.social · May 29

If you missed last weeks episode of Inflammatory! here is a small clip of what we discussed.
Listen to the full episode here: shorturl.at/P53mT
What would be your main research priority?
Please let us know in the comments below 👇
#inflammatoryarthritis #InflammatoryPodcast #inflammatory

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Inflammatory Arthritis UK @inflamarthritis.bsky.social · May 30

🎙️ Episode 20 our fifth Q&A is OUT NOW!
We love diving into your questions, and this one was packed with great ones.
What’s the most obscure “cure” for IA that someone’s ever suggested to you? 🤔🪄
Listen to our answers and the full episode here 🎧: tinyurl.com/5yncx8jz 😅

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Inflammatory Arthritis UK @inflamarthritis.bsky.social · Jun 3

#Volunteerweek2025 Inflammatory! episode this week will celebrate and highlight the great work volunteers do. IAUK wouldn't exist without our amazing volunteers. If you know someone who gives up their time to help others please let us know in the comments and we would love to do some shout outs 👇

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Debbie Wilson @debswilson.bsky.social · May 27

We love answering your questions. Please do send them in details 👇

Inflammatory Arthritis UK @inflamarthritis.bsky.social · May 27

We can not quite believe it is our fifth Q&A session this week!!🥳🎉
It is not too late to send in your questions.
Leave your questions in the comments or send them here: tinyurl.com/yc4jj93b
Please note: we only answer from our lived experience, we are not medical professionals.

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Inflammatory Arthritis UK @inflamarthritis.bsky.social · May 23

🎧 New Inflammatory! episode is out now Digital Geniuses🧬💬

This week, we're diving deep into the power of lived experience in research, from genetic studies and AI, to digital health apps and real-life clinic frustrations (yes, even writing notes on a napkin 😅).

listen here: tinyurl.com/5a29h8tk

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Inflammatory Arthritis UK @inflamarthritis.bsky.social · May 16

🧠 Mental Health Awareness Week meets International Nurses Day! 🩺Latest Inflammatory! episode Nurse!, we discuss how nurses are the human side of healthcare & how they have really changed our lives #InternationalNursesDay
Listen here tinyurl.com/39nvshv5
#Mentalhealthawarenessweek #inflammatory

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Debbie Wilson @debswilson.bsky.social · May 7

Cannot wait to share this episode. Such an inspiring story, don't miss out sign up to our newsletter today at inflammatoryarthritis.org

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Debbie Wilson @debswilson.bsky.social · May 2

Fluctuating aspect of the disease. Every day is different.

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Inflammatory Arthritis UK @inflamarthritis.bsky.social · May 2

🚨New 🎙Inflammatory! episode....our 4th Q&A! 🚨
We would love to know your thoughts on this questions, comment below 👇
Listen to our answers here 🎧 rebrand.ly/h2bqgj9
#inflammatory #inflammatoryarthritis #chronicillness

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Inflammatory Arthritis UK @inflamarthritis.bsky.social · Apr 30

For all those attending #BSR25, IAUK hope the conference is going well. If you need something to listen to on your way home, Inflammatory! podcasts 🎙️ will give an insight into how we live with IA. 🎧 Listen to all episodes here shorturl.at/PbxH2 see you next year
#inflammatoryarthritis #inflammatory

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Inflammatory Arthritis UK @inflamarthritis.bsky.social · Apr 28

🙏Please nominate Inflammatory Arthritis UK, charity number 1211390, to win £5,000. We are all volunteers and all the money goes directly to helping our cause. Thank you 🙏nominate here health.movementforgood.com#nominateACha...

Nominate a charity - Movement for Good

Nominate a charity for a Movement for Good award now.

health.movementforgood.com

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Debbie Wilson @debswilson.bsky.social · Apr 28

Do you have a question about how we live with inflammatory arthritis or a funny one to cover on the podcast? Send them in 👇

Inflammatory Arthritis UK @inflamarthritis.bsky.social · Apr 28

❓Got a question about inflammatory arthritis? 🙋🏽‍♂️
Send it to rb.gy/f66c49 for our next Inflammatory! podcast Q&A session. We do like the humorous ones too! (Please note we are not medical professionals and we answer from our lived experience).
🎧🎙Listen to our previous Q&A sessions here: rb.gy/g2a0py

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Inflammatory Arthritis UK @inflamarthritis.bsky.social · Apr 23

🎧 Missing Inflammatory!? Don’t worry — a brand new episode drops this Friday! 🙌

In the meantime, why not catch up or re-listen to your favourite episodes? Listen here 👉 shorturl.at/fVNRP

#InflammatoryArthritis #Podcast #Inflammatory #ChronicIllness

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