Dementia Who!
@dementiawho.bsky.social
🔸 Alzheimer's caregiver
🔸 Unpaidcarer
🔸 Blogger: DementiaWho.com
🔸 Caring for mum with Alzheimer's 10yrs 💜
🔸 Unpaidcarer
🔸 Blogger: DementiaWho.com
🔸 Caring for mum with Alzheimer's 10yrs 💜
Pinned
Goodbye Mamma - DementiaWho!
I knew when I saw the Robin sitting on top of your grave waiting for us to approach before it flew of in the distance that this was sign for me that you were
dementiawho.com
**Sunday Blog Post**
Goodbye Mamma
"I knew when I saw the Robin sitting on top of your grave waiting for us to approach before it flew of in the distance that this was sign for me that you were alright."
Thank you everyone for all of your kind messages
#dementia
dementiawho.com/goodbye-mamma/
Goodbye Mamma
"I knew when I saw the Robin sitting on top of your grave waiting for us to approach before it flew of in the distance that this was sign for me that you were alright."
Thank you everyone for all of your kind messages
#dementia
dementiawho.com/goodbye-mamma/
Reposted by Dementia Who!
Carers shouldn't need courage to claim Carer's Allowance.
If today's review resolves this, it's a win thanks to carers and investigative journalism.
If today's review resolves this, it's a win thanks to carers and investigative journalism.
Independent Review of Carer’s Allowance Overpayments
www.gov.uk
November 25, 2025 at 1:51 PM
Carers shouldn't need courage to claim Carer's Allowance.
If today's review resolves this, it's a win thanks to carers and investigative journalism.
If today's review resolves this, it's a win thanks to carers and investigative journalism.
Reposted by Dementia Who!
@patrickjbutler.bsky.social and @joshhalliday.bsky.social
article on Carer’s Allowance overpayments and hundreds of thousands of carers cases to be reassessed.
The Sayce review out later today.
There’s also a quote from us.
Read about it here www.theguardian.com/society/2025...
article on Carer’s Allowance overpayments and hundreds of thousands of carers cases to be reassessed.
The Sayce review out later today.
There’s also a quote from us.
Read about it here www.theguardian.com/society/2025...
DWP to reassess hundreds of thousands of cases in carer’s allowance scandal
Damning official review finds many unpaid carers left with huge debt because of government failure
www.theguardian.com
November 25, 2025 at 7:40 AM
@patrickjbutler.bsky.social and @joshhalliday.bsky.social
article on Carer’s Allowance overpayments and hundreds of thousands of carers cases to be reassessed.
The Sayce review out later today.
There’s also a quote from us.
Read about it here www.theguardian.com/society/2025...
article on Carer’s Allowance overpayments and hundreds of thousands of carers cases to be reassessed.
The Sayce review out later today.
There’s also a quote from us.
Read about it here www.theguardian.com/society/2025...
Just watched Chris Hemsworth: A Road to Remember, documentary about taking his dad, who’s living with Alzheimer’s, on a road trip. It shows how reminiscence therapy &social connection can be very powerful emotional tools, read my review
Watch it on Disney+
dementiawho.com/chris-hemswo...
Watch it on Disney+
dementiawho.com/chris-hemswo...
Review: Chris Hemsworth: A Road to Remember - How Connection Reaches Beyond Memory - DementiaWho!
A caregiver’s review of Chris Hemsworth: A Road to Remember. How reminiscence therapy, social connection and memory shape this powerful documentary.
dementiawho.com
November 24, 2025 at 2:42 PM
Just watched Chris Hemsworth: A Road to Remember, documentary about taking his dad, who’s living with Alzheimer’s, on a road trip. It shows how reminiscence therapy &social connection can be very powerful emotional tools, read my review
Watch it on Disney+
dementiawho.com/chris-hemswo...
Watch it on Disney+
dementiawho.com/chris-hemswo...
Reposted by Dementia Who!
'"I think it's super important to acknowledge that instinct of wanting to protect our loved ones," she says. "But what do we lose … when we focus solely on one type of safety, without acknowledging the richness that can come from a life that allows for some freedom and flexibility and autonomy?"'
Dementia care without locked doors? Inclusion is becoming more common : Shots - Health News : NPR www.npr.org/sections/sho...
Dementia housing without locked wards? It's a small but growing movement
Some senior living communities are caring for people with dementia alongside other residents, not segregated behind locked doors.
www.npr.org
November 19, 2025 at 8:57 AM
'"I think it's super important to acknowledge that instinct of wanting to protect our loved ones," she says. "But what do we lose … when we focus solely on one type of safety, without acknowledging the richness that can come from a life that allows for some freedom and flexibility and autonomy?"'
Reposted by Dementia Who!
Carers should be better paid, trained ongoing, helping step outside of embedded cultures
This can create safety
challenge practice
improve services/standards
It's a multiskilled difficult job & so rewarding if you're also paid well, respected & that includes high standards of progressive training
This can create safety
challenge practice
improve services/standards
It's a multiskilled difficult job & so rewarding if you're also paid well, respected & that includes high standards of progressive training
November 18, 2025 at 10:08 AM
Carers should be better paid, trained ongoing, helping step outside of embedded cultures
This can create safety
challenge practice
improve services/standards
It's a multiskilled difficult job & so rewarding if you're also paid well, respected & that includes high standards of progressive training
This can create safety
challenge practice
improve services/standards
It's a multiskilled difficult job & so rewarding if you're also paid well, respected & that includes high standards of progressive training
Alzheimer's and dementia mortality at highest level since 2000 www.bbc.com/news/article...
Alzheimer's and dementia mortality at highest level since 2000
The number of deaths from Alzheimer's disease and other forms of dementia has reached its highest level since records began in 2000, new figures show.
www.bbc.com
November 19, 2025 at 8:07 AM
Alzheimer's and dementia mortality at highest level since 2000 www.bbc.com/news/article...
Yes, No, Maybe... Where Do You Stand On The Top 12 Arguments In Adult Social Care? | The King's Fund www.kingsfund.org.uk/insight-and-...
Yes, no, maybe... where do you stand on the top 12 arguments in adult social care? | The King's Fund
As the Casey Commission investigates the future of adult social care, Simon Bottery explores 12 key questions it will need to answer
www.kingsfund.org.uk
November 18, 2025 at 9:03 AM
Yes, No, Maybe... Where Do You Stand On The Top 12 Arguments In Adult Social Care? | The King's Fund www.kingsfund.org.uk/insight-and-...
Dementia care without locked doors? Inclusion is becoming more common : Shots - Health News : NPR www.npr.org/sections/sho...
Dementia housing without locked wards? It's a small but growing movement
Some senior living communities are caring for people with dementia alongside other residents, not segregated behind locked doors.
www.npr.org
November 18, 2025 at 8:58 AM
Dementia care without locked doors? Inclusion is becoming more common : Shots - Health News : NPR www.npr.org/sections/sho...
“I want people to see me, not my dementia” www.stir.ac.uk/news/2025/no...
“I want people to see me, not my dementia”
Award-winning Joan, 75, is using her Alzheimer’s diagnosis for the good – including delivering university lectures.
www.stir.ac.uk
November 18, 2025 at 8:55 AM
“I want people to see me, not my dementia” www.stir.ac.uk/news/2025/no...
“Every day is different”: Pauline Quirke’s son shares moving dementia update ahead of “emotional” challenge www.goodhousekeeping.com/uk/lifestyle...
“Every day is different”: Pauline Quirke’s son shares moving dementia update ahead of “emotional” challenge
'My mum has always been my best friend, and dementia hasn’t changed that'
www.goodhousekeeping.com
November 18, 2025 at 8:53 AM
“Every day is different”: Pauline Quirke’s son shares moving dementia update ahead of “emotional” challenge www.goodhousekeeping.com/uk/lifestyle...
Reposted by Dementia Who!
On my way to Manchester! If you're attending #UKDC2025 I'll be there running Comms for @dementiacommunity.bsky.social, the organisers of UK Dementia Congress. Do come and say hello! Looking forward to seeing lots of colleagues and friends 😊
November 16, 2025 at 2:56 PM
On my way to Manchester! If you're attending #UKDC2025 I'll be there running Comms for @dementiacommunity.bsky.social, the organisers of UK Dementia Congress. Do come and say hello! Looking forward to seeing lots of colleagues and friends 😊
Memory Matters Weekly is out.
This week:
• A THC–CBD dementia trial showing measurable cognitive improvement
• A Mayo Clinic tool predicting Alzheimer’s risk years before symptoms
• New data showing lower-income and minority groups face more Alzheimer’s risk factors
Read here:
This week:
• A THC–CBD dementia trial showing measurable cognitive improvement
• A Mayo Clinic tool predicting Alzheimer’s risk years before symptoms
• New data showing lower-income and minority groups face more Alzheimer’s risk factors
Read here:
Memory Matters Weekly #10 - DementiaWho!
This week’s dementia research includes a THC–CBD trial showing cognitive improvement, a Mayo Clinic risk-prediction tool, and new findings on neighbourhood disadvantage.
buff.ly
November 17, 2025 at 8:02 AM
Memory Matters Weekly is out.
This week:
• A THC–CBD dementia trial showing measurable cognitive improvement
• A Mayo Clinic tool predicting Alzheimer’s risk years before symptoms
• New data showing lower-income and minority groups face more Alzheimer’s risk factors
Read here:
This week:
• A THC–CBD dementia trial showing measurable cognitive improvement
• A Mayo Clinic tool predicting Alzheimer’s risk years before symptoms
• New data showing lower-income and minority groups face more Alzheimer’s risk factors
Read here:
Beyond excited to listen to this, check out the podcast below!
🎙️ Season two first episode...we're speaking to Sir Ed Davey!
MP for Kingston and Surbiton, leader of @libdems.org.uk , a carer and author of a book ‘Why I care: And why care matters’ @eddavey.libdems.org.uk speaks to Care Fully Considered 🎙️
Listen here player.captivate.fm/episode/0e2c...
1/2
MP for Kingston and Surbiton, leader of @libdems.org.uk , a carer and author of a book ‘Why I care: And why care matters’ @eddavey.libdems.org.uk speaks to Care Fully Considered 🎙️
Listen here player.captivate.fm/episode/0e2c...
1/2
November 12, 2025 at 11:01 AM
Beyond excited to listen to this, check out the podcast below!
Reposted by Dementia Who!
🎙️ Season two first episode...we're speaking to Sir Ed Davey!
MP for Kingston and Surbiton, leader of @libdems.org.uk , a carer and author of a book ‘Why I care: And why care matters’ @eddavey.libdems.org.uk speaks to Care Fully Considered 🎙️
Listen here player.captivate.fm/episode/0e2c...
1/2
MP for Kingston and Surbiton, leader of @libdems.org.uk , a carer and author of a book ‘Why I care: And why care matters’ @eddavey.libdems.org.uk speaks to Care Fully Considered 🎙️
Listen here player.captivate.fm/episode/0e2c...
1/2
November 12, 2025 at 10:30 AM
🎙️ Season two first episode...we're speaking to Sir Ed Davey!
MP for Kingston and Surbiton, leader of @libdems.org.uk , a carer and author of a book ‘Why I care: And why care matters’ @eddavey.libdems.org.uk speaks to Care Fully Considered 🎙️
Listen here player.captivate.fm/episode/0e2c...
1/2
MP for Kingston and Surbiton, leader of @libdems.org.uk , a carer and author of a book ‘Why I care: And why care matters’ @eddavey.libdems.org.uk speaks to Care Fully Considered 🎙️
Listen here player.captivate.fm/episode/0e2c...
1/2
New issue of Memory Matters Weekly is out.
💡 Walking 3000- 5,000 steps a day linked to slower Alzheimer’s decline
🧠 A discovery that could explain why loved ones are forgotten
👩🏽⚕️ The NHS’s new dementia research nurses
Three stories linking science, care, and hope:
💡 Walking 3000- 5,000 steps a day linked to slower Alzheimer’s decline
🧠 A discovery that could explain why loved ones are forgotten
👩🏽⚕️ The NHS’s new dementia research nurses
Three stories linking science, care, and hope:
Memory Matters Weekly #9 - DementiaWho!
This week’s dementia research highlights walking and brain health, new insight into memory loss, and the NHS launch of Dementia Research Nurses.
buff.ly
November 10, 2025 at 7:26 AM
New issue of Memory Matters Weekly is out.
💡 Walking 3000- 5,000 steps a day linked to slower Alzheimer’s decline
🧠 A discovery that could explain why loved ones are forgotten
👩🏽⚕️ The NHS’s new dementia research nurses
Three stories linking science, care, and hope:
💡 Walking 3000- 5,000 steps a day linked to slower Alzheimer’s decline
🧠 A discovery that could explain why loved ones are forgotten
👩🏽⚕️ The NHS’s new dementia research nurses
Three stories linking science, care, and hope:
I used to think helping meant doing everything. Now I know it also means knowing when to stop.
“Safety without smothering” is a balance every caregiver faces, keeping a loved one with #dementia, safe without taking away who they are.
New Blog : buff.ly/szgSF9R
#Dementia #Caregivers #Independence
“Safety without smothering” is a balance every caregiver faces, keeping a loved one with #dementia, safe without taking away who they are.
New Blog : buff.ly/szgSF9R
#Dementia #Caregivers #Independence
Safety Without Smothering: Learning When to Step Back in Dementia Care - DementiaWho!
Discover how to keep your loved one safe without taking over. Learning when to step back in dementia care is one step to support independence with gentle awareness.
buff.ly
November 9, 2025 at 7:35 AM
I used to think helping meant doing everything. Now I know it also means knowing when to stop.
“Safety without smothering” is a balance every caregiver faces, keeping a loved one with #dementia, safe without taking away who they are.
New Blog : buff.ly/szgSF9R
#Dementia #Caregivers #Independence
“Safety without smothering” is a balance every caregiver faces, keeping a loved one with #dementia, safe without taking away who they are.
New Blog : buff.ly/szgSF9R
#Dementia #Caregivers #Independence
Show 1451: Rethinking Dementia: Is What We Believed about Alzheimer’s Wrong? | The People's Pharmacy
"Instead of focusing only on amyloid plaque in the brain, should we be rethinking dementia? Multiple interventions could protect cognition" www.peoplespharmacy.com/articles/sho...
"Instead of focusing only on amyloid plaque in the brain, should we be rethinking dementia? Multiple interventions could protect cognition" www.peoplespharmacy.com/articles/sho...
Show 1451: Rethinking Dementia: Is What We Believed about Alzheimer’s Wrong?
Instead of focusing only on amyloid plaque in the brain, should we be rethinking dementia? Multiple interventions could protect cognition.
www.peoplespharmacy.com
November 7, 2025 at 8:12 AM
Show 1451: Rethinking Dementia: Is What We Believed about Alzheimer’s Wrong? | The People's Pharmacy
"Instead of focusing only on amyloid plaque in the brain, should we be rethinking dementia? Multiple interventions could protect cognition" www.peoplespharmacy.com/articles/sho...
"Instead of focusing only on amyloid plaque in the brain, should we be rethinking dementia? Multiple interventions could protect cognition" www.peoplespharmacy.com/articles/sho...
Care home launches dementia-friendly disco for residents www.exmouthjournal.co.uk/news/2560242...
Care home launches dementia-friendly disco for residents
Staff and residents at Raleigh Manor Care Home in Exmouth put on their dancing shoes on Wednesday, October 29, for the first Dementia Disco.
www.exmouthjournal.co.uk
November 7, 2025 at 8:07 AM
Care home launches dementia-friendly disco for residents www.exmouthjournal.co.uk/news/2560242...
How to keep dementia from robbing your loved ones of their sense of personhood – tips for caregivers theconversation.com/how-to-keep-...
How to keep dementia from robbing your loved ones of their sense of personhood – tips for caregivers
Treating people with dementia as full, thriving human beings requires awareness of stigma and simple communication strategies.
theconversation.com
November 7, 2025 at 8:07 AM
How to keep dementia from robbing your loved ones of their sense of personhood – tips for caregivers theconversation.com/how-to-keep-...
Dedicated national network of Dementia Research Nurses launches
"will get nurses on the ground recruiting people from as many different communities and backgrounds as they can into clinical trials, providing support throughout their research journey" www.ucl.ac.uk/news/2025/no...
"will get nurses on the ground recruiting people from as many different communities and backgrounds as they can into clinical trials, providing support throughout their research journey" www.ucl.ac.uk/news/2025/no...
Dedicated national network of Dementia Research Nurses launches
The UK Dementia Trials Network, led by a UCL professor of neurology, is establishing a dedicated nationwide network of Dementia Research Nurses.
www.ucl.ac.uk
November 7, 2025 at 8:04 AM
Dedicated national network of Dementia Research Nurses launches
"will get nurses on the ground recruiting people from as many different communities and backgrounds as they can into clinical trials, providing support throughout their research journey" www.ucl.ac.uk/news/2025/no...
"will get nurses on the ground recruiting people from as many different communities and backgrounds as they can into clinical trials, providing support throughout their research journey" www.ucl.ac.uk/news/2025/no...
‘Severance’ Actor John Turturro Opens Up About His Caregiving Journey www.aarp.org/caregiving/b...
‘Severance’ Actor John Turturro Opens Up About His Caregiving Journey
He reflects on supporting his brother through mental illness and giving grace to caregivers
www.aarp.org
November 6, 2025 at 9:38 AM
‘Severance’ Actor John Turturro Opens Up About His Caregiving Journey www.aarp.org/caregiving/b...
What I Wish I’d Done Differently as a Caregiver www.aarp.org/caregiving/b...
What I Wish I’d Done Differently as a Caregiver
AARP’s family and caregiving expert reflects on a traumatic time of caring for her sister and parents and ultimately losing her mom
www.aarp.org
November 6, 2025 at 9:34 AM
What I Wish I’d Done Differently as a Caregiver www.aarp.org/caregiving/b...
Most willing to accept caregiving robots as solution to long-term care challenge www.ucd.ie/newsandopini...
Most willing to accept caregiving robots as solution to long-term care challenge
Posted 5 November, 2025
www.ucd.ie
November 6, 2025 at 9:33 AM
Most willing to accept caregiving robots as solution to long-term care challenge www.ucd.ie/newsandopini...
Dealing with dementia: ‘I’m not a wife anymore, I’m a carer. That’s sad, but once Thomas is happy, that’s all I care about’ www.independent.ie/life/health-...
Dealing with dementia: ‘I’m not a wife anymore, I’m a carer. That’s sad, but once Thomas is happy, that’s all I care about’
You are wearing dark sunglasses, but rather than music, there’s a cacophonous audio mashup of the television, the radio and amplified household sounds ringing in your ears. Meanwhile the place is a…
www.independent.ie
November 5, 2025 at 8:56 AM
Dealing with dementia: ‘I’m not a wife anymore, I’m a carer. That’s sad, but once Thomas is happy, that’s all I care about’ www.independent.ie/life/health-...
Teesside photographers share archive to help dementia patients www.bbc.com/news/article...
Teesside photographers share archive to help dementia patients
The pictures help trigger memories and conversations at the University Hospital of North Tees.
www.bbc.com
November 5, 2025 at 8:49 AM
Teesside photographers share archive to help dementia patients www.bbc.com/news/article...