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determindstudy.bsky.social
DETERMIND Research Study
@determindstudy.bsky.social
33 followers 110 following 28 posts
DETERMIND is an ambitious research project funded by the NIHR Three Schools’ Dementia Research Programme that aims to find out how we can make dementia care and outcomes in the UK more equal. https://determind.org.uk/about-determind/
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determindstudy.bsky.social
'Healthist' attitudes, implying dementia is preventable through an healthy lifestyle choices, often stigmatise specific diagnoses. Media may be 'assigning blame', rather than 'providing hope', focusing on personal risk factors, rather than population risks.
onlinelibrary.wiley.com/doi/10.1111/...
Providing Hope or Assigning Blame? Healthism in Print Media Portrayals of Dementia Risk and Responsibility
Media representations often imply that dementia is preventable through lifestyle choices, potentially blaming individuals for their condition. Crawford's ideology of healthism outlines this form of r....
onlinelibrary.wiley.com
November 26, 2025 at 9:10 AM
determindstudy.bsky.social
#UKDisabilityHistoryMonth #UKDHM
A written piece about UK Disability History Month. It reads: UK Disability History Month is a chance to reflect on the theme, "Disability, Life and Death". Over the last year, there have been growing, concerning conversations on the value of disabled lives in policy, laws and society. When speaking to people living with dementia and those who support them, it is clear they are experiencing the knock-on effects of policy. Changes to PIP eligibility, NHS privatisation and funding for local community groups all have significant impacts on wellbeing. Managing one’s own health with a lack of support is a common experience, but one that nobody should have to go through. So, we would like to take the opportunity this month to celebrate the immense resilience from this community, both past and present. Reflection is only impactful if it reaches beyond this month and into practice. Within research, those with disabilities should be prioritised in designing projects and never face challenges to being part of them. Only then can we capture the most relevant concerns and use these to influence policy and change.
November 25, 2025 at 2:34 PM
determindstudy.bsky.social
What do our participants think of DETERMIND? At our recent conference, we gathered feedback and generated new ideas for future involvement! #dementiaresearch
A group of six large sheets of paper with feedback from study participants. At the base of each sheet are illustrations of pathways across the study sites, including London, Brighton Beach and rural fields. A researcher presenting in front of a bright green slide titled 'Discussion time'. She is asking for feedback from study participants and looking out towards the crowd.
November 13, 2025 at 8:41 AM
determindstudy.bsky.social
In this blog post @kategridley.bsky.social shares learnings from the DETERMIND project about challenges people living with dementia and those who support them face in navigating the social care system.

📖Read it here:
swopresearch.wordpress.com/2024/10/07/n...
Navigation capital: How social workers can guide older people with dementia through the social care maze
In this guest blog, Kate Gridley shares learning from the DETERMIND project about the importance of having someone to guide you through the social care system. The ESRC/NIHR funded DETERMIND projec…
swopresearch.wordpress.com
November 7, 2025 at 2:13 PM
determindstudy.bsky.social
Register for this webinar and listen to @isaac-dc.bsky.social talking about findings from the DETERMIND study on coping styles and help seeking in #dementia!

shorturl.at/AFPX9
Microsoft Virtual Events Powered by Teams
Microsoft Virtual Events Powered by Teams
shorturl.at
November 5, 2025 at 3:56 PM
determindstudy.bsky.social
Looking for an opportunity to be involved in dementia research?
Our DETERMIND PhD student, Alice Russell is keen to chat to people living with dementia and their supporters about receiving their diagnosis.
Reach out to Alice ([email protected]) to take part!
#dementiaresearch #researchopportunity
alicerussell94.bsky.social alicerussell94.bsky.social @alicerussell94.bsky.social · 28d
Do you have a diagnosis of dementia or care for someone who does? Are you interested in taking part in research? I am looking for participants to help me develop a questionnaire to improve the quality of dementia diagnosis. Please get in contact if you are interested! #dementia #research
October 30, 2025 at 9:22 AM
determindstudy.bsky.social
Did you know that people living with dementia are more likely to report inadequate support from care services if:

Their carer is younger, they have more functional limitations, live in a rural area or have mixed dementia compared to Alzheimer’s disease?

More info from our conference coming soon!
A screen at a conference displaying a table titled 'costs of health and social care services (per year). There are two people looking at it in the foreground of the photo. A group of people sat at chairs in staggered seating listening to a talk at a conference. They are facing side-on to the camera.
October 28, 2025 at 9:23 AM
determindstudy.bsky.social
The DETERMIND participant conference took place last week in London! It was great to bring together study participants, staff and analysts to share findings and plans for future. Topics discussed included self-funding of care, service use inequalities, decision making and diagnosis timing.
#research
A group photo taken at the DETERMIND participant conference. There are thirty people in a lecture theatre with carpeted floors, green walls and light wooden desks. The front two rows are sitting and the back row standing. They are all smiling and laughing, looking at the camera.
October 27, 2025 at 12:43 PM
determindstudy.bsky.social
Today is Young Onset Dementia Awareness Day. Dementia Forward are asking people to take action by writing to their MP to ask them to create change by improving services for young onset dementia.
Find out more and download the letter template here: shorturl.at/SzEcf

#YODA #DementiaAwareness
Young Onset Dementia Awareness Day, Dementia Forward, North Yorkshire's leading dementia charity
Young Onset Dementia Awareness Day. Recognising and raising awareness of the unique impact of a dementia diagnosis at a young age #YODA
shorturl.at
October 24, 2025 at 3:03 PM
determindstudy.bsky.social
Read this @alzheimerssoc.bsky.social blog post by @rionamcardle.bsky.social and Lyn Rogers on why physical activity is so important for people living with dementia, and top tips for keeping active🚶

www.alzheimers.org.uk/blog/moving-...
Moving well with dementia: why physical mobility matters
Movement expert Dr Ríona McArdle and former carer, Lyn Rogers, explain why dementia can make moving around more difficult, and share ideas for supporting you to keep moving well.
www.alzheimers.org.uk
October 21, 2025 at 8:36 AM
determindstudy.bsky.social
This Black History Month, we'd like to highlight two excellent interviews with members of the community. They discuss the differences in dementia pathways and support systems for people who are Black, African and Caribbean.
www.alzheimers.org.uk/blog/address...
www.dementiauk.org/information-...
Addressing big issues that Black people with dementia in the UK face
Community leader Morcea Walker talks to us about the specific challenges of dementia in the Black community and her passion for raising awareness.
www.alzheimers.org.uk
October 15, 2025 at 7:44 AM
determindstudy.bsky.social
Our London research team travel each week to interview people living with dementia and their supporters across local boroughs. If we're a bit early, we take a break to wander around the area and take some photos. We hope you can take a little break today too and enjoy these sights as much as we did!
Croydon's skyline on a bright and clear summer's day. The sky is a bright blue and sits above a green park with trees around the edge. There is a modern tall building on the skyline. Anerley's green man sign, showing a man with green facial features and skin made of oak leaves. A Dulwich woodland clearing in the early morning light. There is a tree stump in the clearing, surrounded by hundreds of green leaves in bushes below and trees above. A tram on its way to Wimbledon, pulling into the tram stop. The tram is mostly bright green, with a stripe of blue at its base.
October 14, 2025 at 7:48 AM
determindstudy.bsky.social
Ben Hicks presented findings from the DETERMIND study at @alzheimereurope.bsky.social conference in Bologna. This work looked at whether an early diagnosis of dementia is better for quality of life in people living with dementia and their carers after one year post diagnosis.

#35AEC
A man in a shirt is standing at a podium talking into a microphone to an audience who appear to be listening intently. A PowerPoint slide on a projector screen is party visible. There is an illustration of a sand timer and a brain and the text reads 'Temporal: Time between noticing symptoms and diagnosis (early diagnosis <2 years). Cognitive severity: CDR<1, sMMSE≥ 20)'. A man in a shirt is standing at a podium in a lecture theatre talking to an audience. They have a slide on a projector screen with the heading '....Emergence of 'Timely' discourse'. Underneath the heading there are three bullet points reading 'Lack of evidence has led to the emergence of the 'timely' discourse.', 'Timely is a more person-centred, subjective approach to diagnosis. Diagnosis delivered when best for the person and family. If diagnosis unwanted then no diagnosis is considered 'timely'.', 'Emerging but weak evidence (Woods et al 2018) suggests this may be beneficial for both person with dementia and carer. Carers report 3-4 years post-diagnosis.'
October 9, 2025 at 4:10 PM
determindstudy.bsky.social
A great day at the Nottingham Centre for Dementia Showcase which focused on ‘Rethinking dementia: collaboration, co-design and change’. A great mix of presenters and an interesting table discussion! Alice presented work from her PhD on ‘addressing dementia diagnosis inequalities’.
A photo taken from the perspective of someone attending a conference. There is a laptop set up in front of the camera, with the title slide 'Addressing dementia diagnosis inequalities' on its screen. It sits on a glossy wooden table, which also has a booklet for the conference sitting next to the laptop. In the background is a large presentation screen with a slide suggesting questions for a roundtable discussion.
October 7, 2025 at 10:58 AM
determindstudy.bsky.social
Happy #InternationalDayOfOlderPersons! It is rare that the time and efforts that older people put towards caring for others are truly appreciated. So, from our DETERMIND team, we'd like to send a huge thank you and encourage others to join in with the celebrations :)
A graphic showing the white DETERMIND study logo. The logo is a drawing of a wooden signpost pointing in two directions with flowers underneath it. On the arrow signs there are drawings symbolising care and money. The logo is on a green background with white text curved around it saying 'The DETERMIND Study celebrates International Day of Older Persons'
October 1, 2025 at 1:38 PM
determindstudy.bsky.social
We're closing off World Alzheimer's Month with a look back at this September.

This month, we visited 20 homes to interview people living with dementia and those who support them. We travelled to 16 areas across the UK, attended 5 conferences and expanded our staff team with a few new members :)
September 30, 2025 at 7:44 AM
determindstudy.bsky.social
Empowering video from @alzint.org about what everyone can do to raise awareness and reduce stigma associated with dementia.

This year's theme for World Alzheimer's Month encourages open conversation and for people to ask about dementia.

#WorldAlzheimersMonth #AskAboutDementia #AskAboutAlzheimers
paolabarbarino.bsky.social paolabarbarino.bsky.social @paolabarbarino.bsky.social · Sep 1
Ciao everyone and Happy World Alzheimers Month!!!

For the launch today I recorded a video share it if you can, we have subtitles in a huge number if languages! It’s on You Tube at youtu.be/q7cuA66Tit4

#AskAboutDementia and #AskAboutAlzheimers in your online

Access the toolkits at: bit.ly/411i4iC
September 25, 2025 at 12:21 PM
Reposted by DETERMIND Research Study
womeninneurouk.bsky.social
September is World Alzheimer’s Month! 💜

Want to learn more about Alzheimer’s? Here are our recommended reads from our blog! 📖

Read the full articles here: www.womeninneuroscienceuk.org/blog/tags/al...

Want to learn more about Alzheimer’s? Check out @AlzResearchUK 🧡
Women in Neuroscience UK’s recommended reads for World Alzheimer’s Month. Alzheimer’s Disease in Women: Is Menopause the Missing Link? by Emily Budden. Diagnosis of Early Dementia: blood proteins reveal potential risk by Emily Beswick. Tau do you solve a problem like dementia? How inhibiting tau phosphorylation could be a potential therapeutic for Alzheimer’s disease by Catherine Turnbull. Bugs and Brain: The Role of Gut-Brain Axis in Neurological Disorders by Shriya Singh. Sheltering from Time: A Review of Time Shelter by Rebecca Pope. Read these articles and more on our website linked above!
September 17, 2025 at 7:42 PM
determindstudy.bsky.social
The Gateshead research team recently visited participants in a beautiful town in the North Pennines. Winding roads led the team on a rural research adventure, where they were warmly welcomed by the local community.

#DementiaResearch #RuralDementia
A winding countryside road through vast, open and hilly countryside. There are old wall ruins on the right of the road and green trees and heath on the left. There are several sheep dotted throughout the landscape A sheep is standing in the heath looking at the camera and is surrounded by hilly countryside. A winding road is visible in the background. The clouds in the sky are grey and dramatic. A road runs alongside hilly purple and green heathland. The landscape is dotted with jagged rock, small trees and bracken.
September 23, 2025 at 2:19 PM
determindstudy.bsky.social
World Alzheimer's Day is this Sunday. @alzheimerssoc.bsky.social are raising money to fund vital research and have lots of ways you can help beat dementia, from volunteering and campaigning, to learning something new. Check out the ways you can get involved: shorturl.at/TrmIl

#WorldAlzheimer'sDay
World Alzheimer's Month
World Alzheimer's Month takes place every September and World Alzheimer's Day is on 21 September each year. It's a global opportunity to raise dementia awareness and support people affected by the dis...
shorturl.at
September 19, 2025 at 3:16 PM
determindstudy.bsky.social
Published DETERMIND study findings from @drrotemperach.bsky.social and Carmen Colclough on how staying involved with decisions such as what to eat and what to wear are positively associated with quality of life.
Read the paper here: www.tandfonline.com/doi/full/10....
September 18, 2025 at 10:24 AM
determindstudy.bsky.social
One of our London research assistants recently presented at the IFPE International Congress in Trento. Outside of the DETERMIND study, they are investigating key health outcomes and sociodemographic details of those who access mental health services without a formal diagnosis.
lucestewart.bsky.social lucestewart.bsky.social @lucestewart.bsky.social · Sep 17
I feel very lucky to have attended the IFPE International Congress in Trento to share findings on those accessing mental healthcare services without a diagnosis. It was a really great opportunity to gain an understanding of global mental health epidemiology! Loved Trento a lot too :)
A researcher standing by their poster in a presentation hall. The hall is bright and airy with wooden floors. The researcher is posed just in fromt of their poster, which details characteristics and outcomes of those who don't receive a mental health diagnosis with some brightly coloured graphs and charts. A researcher presenting a slide at a conference. They are sat down in front of the projection to use the microphone. The presentation slide details standardised mortality ratios in a colourful graph for three cohorts, all of which are significantly higher and worse than a 1:1 ratio. A mountain poking out in the skyline above the roof to the conference venue. It is almost completely covered in dark green trees, with only some sections of white rocks visible. The sky above it is blue with just one cloud. The main fountain in Trento's town square. It is large, about 7-8 times the height of a person. The fountain has many statues dotted around its base, with poseidon sat at the top of the fountain with his infamous trident. People are walking by the statue, pausing to take pictures or sitting at its base, enjoying the sun.
September 17, 2025 at 7:45 AM
Reposted by DETERMIND Research Study
lucestewart.bsky.social
I feel very lucky to have attended the IFPE International Congress in Trento to share findings on those accessing mental healthcare services without a diagnosis. It was a really great opportunity to gain an understanding of global mental health epidemiology! Loved Trento a lot too :)
A researcher standing by their poster in a presentation hall. The hall is bright and airy with wooden floors. The researcher is posed just in fromt of their poster, which details characteristics and outcomes of those who don't receive a mental health diagnosis with some brightly coloured graphs and charts. A researcher presenting a slide at a conference. They are sat down in front of the projection to use the microphone. The presentation slide details standardised mortality ratios in a colourful graph for three cohorts, all of which are significantly higher and worse than a 1:1 ratio. A mountain poking out in the skyline above the roof to the conference venue. It is almost completely covered in dark green trees, with only some sections of white rocks visible. The sky above it is blue with just one cloud. The main fountain in Trento's town square. It is large, about 7-8 times the height of a person. The fountain has many statues dotted around its base, with poseidon sat at the top of the fountain with his infamous trident. People are walking by the statue, pausing to take pictures or sitting at its base, enjoying the sun.
September 17, 2025 at 7:43 AM
determindstudy.bsky.social
Our lead, Professor Sube Banerjee, presented evidence based on findings from the DETERMIND study to the UK Covid Inquiry. He discussed the disproportionate impact the pandemic had on people with dementia and their caregivers, and recommendations for future pandemics.
www.youtube.com/watch?v=NjL-...
UK Covid 19 Inquiry - Module 6 Hearing - 23 July 2025 AM
YouTube video by UK Covid-19 Inquiry
www.youtube.com
September 17, 2025 at 7:26 AM
Reposted by DETERMIND Research Study
natalietawney.bsky.social
ARUK South Coast Network meeting was a great opportunity to catch up with peers, meet others working in the field and present the exciting next stage of the @determindstudy.bsky.social study! Thanks for a great few days @alzheimersresearchuk.org!
A person is standing in front of a projector screen talking to a small audience. The screen shows a slide with the title 'The DETERMIND study goals: Seldom heard voices' and three bullet points reading 'Amplify seldom heard voices', 'Identify priorities for improving care', and 'Address inequalities'. The presenter looks enthusiastic and happy and the audience are listening intently.
September 2, 2025 at 5:33 PM