Dysautonomia Support Network
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dyssupport.bsky.social
Dysautonomia Support Network
@dyssupport.bsky.social
45 followers 2 following 180 posts
Dysautonomia Support Network works to support and empower people with dysautonomia through education, resources, and community.
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dyssupport.bsky.social
If you're heading to a Thanksgiving gathering where you're likely to get a lot of "advice" on your chronic illness, don't forget that DSN is open for venting! Share your holiday stories with us. And may all your Thanksgiving dinner companions be supportive and sympathetic!
#spoonie #potsie
November 27, 2025 at 1:06 AM
dyssupport.bsky.social
COOLING AID DISCOUNT ALERT! Nano-Ice has a special offer for followers of Dysautonomia Support Network. Use code HJ9CCKNC99G8 to get $20 off your purchase at https://nano-ice.pulse.ly/1lzl8rigne

#dysautonomia #heatintolerance #potssyndrome #longcovid #coolingaids
November 25, 2025 at 6:00 PM
dyssupport.bsky.social
Exercise helps manage dysautonomia symptoms. Start recumbent (rowing, bikes, swimming), combine aerobic + strength training. Go at your pace. Talk to your provider first. 🩵
https://dysautonomiasupport.pulse.ly/jtvg4udiq0
#Dysautonomia #POTS
November 24, 2025 at 11:59 PM
dyssupport.bsky.social
“What I want is so simple I almost can't say it: elementary kindness.”
― Barbara Kingsolver, Animal Dreams

Luckily, we see kindness every day in our DSN communities. Thank you to everyone who connects with DSN to offer a kind word. 🩵
#chronicillnesssupport #kindnessmatters
November 23, 2025 at 4:00 PM
dyssupport.bsky.social
The holidays are hectic for everyone. Add dysautonomia to the list and it's a recipe for exhaustion. Fortunately, Physical Therapist Kristine Trimble, PT, DPT has tips for managing the holidays with dysautonomia: https://youtu.pulse.ly/ffid5h9xy3

#chronicillnesslife #potssyndrome #dysautonomia
November 22, 2025 at 4:59 PM
dyssupport.bsky.social
Looking for dysautonomia-knowledgeable providers? Check out this patient-recommended healthcare directory - searchable by region & free to access! 🩵
https://dysautonomiasupport.pulse.ly/pvgq8ni7kh
#Dysautonomia #POTS #ChronicIllness #ChronicIllnessSupport
November 21, 2025 at 6:59 PM
dyssupport.bsky.social
Holiday cooking with dysautonomia? Tools like Rocker Knives, Good Grip Openers & Pan Stabilizers help manage fatigue & joint pain. More info: https://dysautonomiasupport.pulse.ly/dzulkudehw
#dysautonomia #POTS
November 21, 2025 at 12:59 AM
dyssupport.bsky.social
AAG is a rare form of dysautonomia where antibodies attack the autonomic nervous system. Symptoms: dizziness when standing, dry eyes/mouth, vision changes, digestive & bladder problems, burning sensations. Learn more:https://dysautonomiasupport.pulse.ly/tgisoxbnex #Dysautonomia #AAG
November 20, 2025 at 1:59 AM
dyssupport.bsky.social
DSN hosts a monthly Virtual Support Group via Zoom for individuals living with dysautonomia.

Next session: Thurs, 11/20 at 7:30 PM EST (6:30 PM CST, 5:30 PM MST, 4:30 PM PST). Register:
https://dysautonomiasupport.pulse.ly/br3oebrt4v
November 18, 2025 at 3:59 PM
dyssupport.bsky.social
Managing brain fog with dysautonomia? Sleep hygiene & physical counter maneuvers can help with cognitive symptoms.
https://dysautonomiasupport.pulse.ly/jhboteebcm
#Dysautonomia #POTS #BrainFog
November 18, 2025 at 1:59 AM
dyssupport.bsky.social
Need workplace accommodations for POTS? Job Accommodation Network offers free expert guidance on flexible schedules, remote work & more.
https://askjan.pulse.ly/bmxzdqfx2t
#POTS #Dysautonomia
November 16, 2025 at 7:59 PM
dyssupport.bsky.social
What does Dysautonomia Support Network mean to you?
Did a DSN post spark the research that led you to a diagnosis? Have our resources helped with symptom management? Was joining a support community the first time you felt seen?
#dysautonomia #chronicillnesssupport #potssyndrome #longcovid
November 15, 2025 at 6:59 PM
dyssupport.bsky.social
Happy National Pickle Day to all who celebrate!
While you're enjoying this special day, check out our page on healthy ways to get the salt you need: https://dysautonomiasupport.pulse.ly/cxbrs0qxlw

#Spoonie #Dysautonomia #NationalPickleDay2025 #Salty #ChronicIllnessHumor
November 14, 2025 at 4:54 PM
dyssupport.bsky.social
You don't have to navigate dysautonomia alone. 🩵
DSN's regional online communities offer peer-to-peer support in a welcoming and private environment. Find your region: https://dysautonomiasupport.pulse.ly/1aoj2gg0vh

#dysautonomia #support #community #chronicillness #peerSupport
November 13, 2025 at 11:59 PM
dyssupport.bsky.social
The dysautonomia diagnosis journey can be long, but understanding the process helps. Typical tests include medical history, orthostatic vitals, ECG & tilt table testing.
https://dysautonomiasupport.pulse.ly/zkyzqn5lrc
#Dysautonomia #POTS #ChronicIllness
November 13, 2025 at 1:59 AM
dyssupport.bsky.social
This Veterans Day, an interesting insight into the history of dysautonomia: "Soldier's Heart," documented in American Civil War veterans, may have been POTS, according to some researchers.
(Halstead 2018, Struhal & Hain 2021)
#VeteransDay2025 #POTS
November 11, 2025 at 8:27 PM
dyssupport.bsky.social
Newly diagnosed with dysautonomia? DSN's Getting Started guide helps you go from surviving to thriving with provider directories, management resources & supportive communities.
https://dysautonomiasupport.pulse.ly/ub9ikndygr
#Dysautonomia #POTS
November 11, 2025 at 12:59 AM
dyssupport.bsky.social
Education is key to managing dysautonomia. Learn from trusted sources—academic institutions, government sites, nonprofits—to advocate for your health.
https://dysautonomiasupport.pulse.ly/uwbhkry9w8
#Dysautonomia #ChronicIllness #PatientAdvocacy #HealthEducation
November 9, 2025 at 3:59 PM
dyssupport.bsky.social
DSN hosts a monthly Virtual Support Group via Zoom for individuals living with dysautonomia.

Next session: Thurs, 11/20 at 7:30 PM EST (6:30 PM CST, 5:30 PM MST, 4:30 PM PST). Register: https://zoom.pulse.ly/oazlng4cfx

#chronicillnesssupport #potssyndrome #dysautonomia #invisibleillness
November 8, 2025 at 9:59 PM
dyssupport.bsky.social
We asked: What do you want the world to know about dysautonomia? The answers were powerful. Thank you for sharing your truth. 🩵
https://dysautonomiasupport.pulse.ly/ksiprvvbnp
#Dysautonomia #ChronicIllness #InvisibleIllness #POTS #DysautonomiaCommunity
November 8, 2025 at 2:00 AM
dyssupport.bsky.social
Dysautonomia Support Network recently shared that the planned publication of The Dysautonomia Workbook: A Guide to Empowered Living has been delayed until the end of the year. Here, Workbook co-author Joanna Behm, EdD, MS expresses our gratitude for your ongoing support!
November 6, 2025 at 11:59 PM
dyssupport.bsky.social
Lesser-known assistive tools for #dysautonomia: hands-free hair dryer stands, long-handled razors, built-up toothbrush grips, sock aids, compression stocking donners & button hooks. Simple solutions when fatigue/joint pain make daily tasks hard!
https://dysautonomiasupport.pulse.ly/8gi883qzyg
November 5, 2025 at 9:59 PM
dyssupport.bsky.social
Knowledge is power. 💙 Our Dyscovery Education video series offers expert insights on dysautonomia.
Watch now: https://dysautonomiasupport.pulse.ly/kseq4roihz
#Dysautonomia #POTS #ChronicIllness #PatientEducation
November 5, 2025 at 12:00 AM
dyssupport.bsky.social
Energy conservation for dysautonomia: Track symptoms, apply key principles & modify your space. Small changes = big impact! 💙
https://dysautonomiasupport.pulse.ly/nohmiliolu
#Dysautonomia #POTS #ChronicIllness
November 4, 2025 at 12:59 AM
dyssupport.bsky.social
Cold intolerance with dysautonomia? Layer up, use heated blankets, hand warmers & avoid temp shifts. Listen to your body! 💙
https://dysautonomiasupport.pulse.ly/lxdfzqi8rt
#Dysautonomia #ColdIntolerance #ChronicIllness
November 2, 2025 at 8:00 PM