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Dysautonomia Support Network @dyssupport.bsky.social · 17h

Explaining dysautonomia can be a challenge! So we've made it easier!
The next time you're trying to tell someone what dysautonomia means, use our Dysautonomia Handout. Download it here: https://dysautonomiasupport.pulse.ly/lqnfzyvaj2

#dysautonomia #chronicillnesssupport #DysautonomiaAwarenessMonth

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Dysautonomia Support Network @dyssupport.bsky.social · 1d

Exciting partnership alert! DSN + Enact Hydration are teaming up for Dysautonomia Awareness Month! Join us for 2 Ask the Expert events (Oct 15 & 23) with giveaways at each. More info: https://DysautonomiaSupport.pulse.ly/mssojoxway #DysautonomiaAwareness #POTS

Dysautonomia Support Network @dyssupport.bsky.social · 2d

Orthostatic Hypotension: blood pressure drops when standing, reducing blood flow to brain. Treatment: fluids, salt, compression, meds. Forms of Dysautonomia series.
https://dysautonomiasupport.pulse.ly/vo2mzsgfxw
#Dysautonomia #ChronicIllness

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Dysautonomia Support Network @dyssupport.bsky.social · 3d

October is Dysautonomia Awareness Month 🩵 The autonomic nervous system controls vital functions automatically. When it malfunctions, it's called dysautonomia. Learn more: https://dysautonomiasupport.pulse.ly/j6gcvsvrae #DysautonomiaAwareness

Dysautonomia Support Network @dyssupport.bsky.social · 4d

Brain fog from dysautonomia making life a challenge? Accommodations and adaptations can help. Learn more: https://dysautonomiasupport.pulse.ly/mcpddpzvyo #Dysautonomia #BrainFog #DisabilityRights

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Dysautonomia Support Network @dyssupport.bsky.social · 5d

You don't have to navigate dysautonomia alone. 🩵
DSN's regional online communities offer peer-to-peer support in a welcoming and private environment. Find your region: https://dysautonomiasupport.pulse.ly/8obyg6qpbs

#dysautonomia #support #community #chronicillness #peerSupport

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Dysautonomia Support Network @dyssupport.bsky.social · 6d

Enact Hydration + DSN are partnering for Dysautonomia Awareness Month! Join us for 2 Ask the Expert events (Oct 15 & 23) with book & goodie bag giveaways at each. Register: https://DysautonomiaSupport.pulse.ly/bpzhyrf5ox #DysautonomiaAwareness #POTS

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Dysautonomia Support Network @dyssupport.bsky.social · 7d

October is Dysautonomia Awareness Month 🩵 This condition affects at least 70M people worldwide but remains under-recognized. Learn about disorders of the autonomic nervous system: https://dysautonomiasupport.pulse.ly/4grjfcpqmv #DysautonomiaAwarenessMonth #POTS #LongCovid

What is Dysautonomia?

Dysautonomia [dis-aw-tuh-noh-mee-uh] Also called autonomic dysfunction, is an umbrella term used to describe disorders that affect the autonomic nervous system. ¹ The autonomic nervous system (ANS)…

dysautonomiasupport.pulse.ly

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Dysautonomia Support Network @dyssupport.bsky.social · 8d

October is Dysautonomia Awareness Month! 🩵 We're sharing resources, lifting up our members & making connections. Same things we do every month, but now with a bigger audience! Let's make it count! #DysautonomiaAwareness #POTS #ChronicIllness

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Dysautonomia Support Network @dyssupport.bsky.social · 9d

Dysautonomia fatigue making work impossible? You may be entitled to ADA accommodations like flexible schedules, rest breaks & remote work. Know your rights!
https://dysautonomiasupport.pulse.ly/vwix0tah2l
#Dysautonomia #POTS #DisabilityRights

Dysautonomia Support Network @dyssupport.bsky.social · 10d

Handouts are great ways to share condensed information related to dysautonomia with others! Download and share the handouts to help spread awareness!

Download them here: https://dysautonomiasupport.pulse.ly/pwvo37v6ge

#dysautonomia #potssyndrome #longcovid #chronicillnesssupport

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Dysautonomia Support Network @dyssupport.bsky.social · 11d

EDS & dysautonomia often coexist. Research links connective tissue laxity to autonomic dysfunction. Learn about symptoms, diagnosis & management 💙
https://dysautonomiasupport.pulse.ly/oeriec76od
#EDS #Dysautonomia #ChronicIllness

Dysautonomia Support Network @dyssupport.bsky.social · 12d

What are you holding onto as your light today? Sometimes the most powerful magic we have is believing in what's possible and moving toward it with intention.

Drop a 💫 if you're choosing hope today.

#hope #lainitaylor #dysautonomia #spoonie #potsie

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Dysautonomia Support Network @dyssupport.bsky.social · 13d

Looking for dysautonomia-knowledgeable providers? Check out this patient-recommended healthcare directory - searchable by region & free to access! 💙
https://dysautonomiasupport.pulse.ly/bfuvc9hyuc
#Dysautonomia #POTS #ChronicIllness#ChronicIllnessSupport

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Dysautonomia Support Network @dyssupport.bsky.social · 14d

Dysautonomia Awareness Month is right around the corner, and DSN will be honoring the month with special events, special giveaways, plus all the support and education you're used to getting from us! Stay tuned for more info about the month's events.

#dysautonomiaawareness #potssyndrome #longcovid

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Dysautonomia Support Network @dyssupport.bsky.social · 15d

DSN hosts a Virtual Support Group for individuals with dysautonomia on the fourth Thursday of every month at 7:30 PM Eastern (6:30 PM CDT, 5:30 PM MDT, 4:30 PM PDT).

Register at link!
https://zoom.pulse.ly/gb3pc1pwxz

#chronicillnesssupport #potssyndrome #dysautonomia #longcovid #invisibleillness

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Dysautonomia Support Network @dyssupport.bsky.social · 17d

Fall vibes are a little different with dysautonomia.
We're ok with that.

#dysautonomia #chronicillnesshumor #potsie #spoonie #fall

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Dysautonomia Support Network @dyssupport.bsky.social · 18d

Fighting health misinformation starts with education! DSN created a free beginner's guide to evaluating medical research for anyone wanting to critically assess studies without a science background.
https://dysautonomiasupport.pulse.ly/9wgutnswoi
#research #healthliteracy #dysautonomia #education

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Dysautonomia Support Network @dyssupport.bsky.social · 19d

Dysautonomia affects your body's autopilot system - the part controlling heart rate & blood pressure. POTS is most common, causing heart rate to spike when standing. Multiple forms exist, all treatable with proper care!
https://dysautonomiasupport.pulse.ly/luknvkgy8z

#dysautonomia #POTS #health

Dysautonomia Support Network @dyssupport.bsky.social · 20d

COOLING AID DISCOUNT ALERT! has a special offer for followers of Dysautonomia Support Network. Use code HJ9CCKNC99G8 to get $20 off your purchase at https://nano-ice.pulse.ly/n0h2ynqcyx

#dysautonomia #heatintolerance #potssyndrome #longcovid #coolingaids

Dysautonomia Support Network @dyssupport.bsky.social · 21d

Dysautonomia folks - share the most unhinged ways you manage symptoms. Not the usual suggestions like salty snacks and neck fans. No! We wanna hear the weird tricks you've come up with all on your own because nothing else helped.

#dysautonomia #spoonie #chroniclife #potsie

Dysautonomia Support Network @dyssupport.bsky.social · 22d

Dysautonomia life hack: assistive tech!
Smart plugs = energy conservation during flares
Voice typing = brain fog relief
Shower chairs = safety + independence
Reachers = no more dizzy bends

Guide: https://dysautonomiasupport.pulse.ly/ajabusl1qp

#dysautonomia #POTS #assistivetechnology

Dysautonomia Support Network @dyssupport.bsky.social · 23d

Dr. Natraj Ballal is BACK to take your questions LIVE on October 23 at 6 p.m. Eastern. Dr. Ballal is the pediatric cardiologist known for his compassionate care for patients with dysautonomia and EDS.
Register:
https://zoom.pulse.ly/xq1sbs5try

#dysautonomia #potssyndrome #longcovid

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Dysautonomia Support Network @dyssupport.bsky.social · 24d

"The Dysautonomia Workbook: A Guide to Empowered Living" includes tools and activities meant to become your personal roadmap to managing symptoms and developing routines - so you can do more of the things that are important to you.
https://pulse.pulse.ly/kufgji89ua

#Dysautonomia #ChronicIllness

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Dysautonomia Support Network @dyssupport.bsky.social · 25d

In recognition of National Service Dog Month, learn how service dogs can help with dysautonomia on our Dyscovery Education episode featuring trainer Blythe Bouchard/Neer of Delta Tails, found at this link https://youtu.pulse.ly/h0zsrrmkuy

#NationalServiceDogMonth #dysautonomia #POTSsyndrome

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