Dystonia Medical Research Foundation
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Dystonia Medical Research Foundation
@dystoniafoundation.bsky.social
32 followers 15 following 47 posts
Dystonia is a neurological movement disorder that causes excessive, involuntary muscle contractions. The Dystonia Medical Research Foundation (DMRF) is a 501(c)3 non-profit organization dedicated to serving all people with dystonia and their families.
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The DMRF wishes everyone a safe and Happy Thanksgiving. During this season of gratitude, we are grateful for the support of the dystonia community: DMRF donors, support leaders, volunteers, advocates, and organizational leaders throughout the year.
#dystonia #dmrf #dystoniafoundation
November 27, 2025 at 9:20 PM
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During this season of thanksgiving, Utah Dystonia Support Group Leader Haley Brock shares what she is thankful for.
#dystonia #dmrf #dystoniafoundation
November 25, 2025 at 5:11 PM
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This Thanksgiving, we're grateful for YOU. Your compassion, advocacy and support matter. There are many ways to offer hope to the dystonia community: matching gifts, tax-free IRA gifts or planned giving through the DMRF Legacy Society.
https://bit.ly/49IZwc4
#dystonia #dmrf #dystoniafoundation
November 24, 2025 at 5:11 PM
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Online in the Winter 2025 Dystonia Dialogue: See photos from the 2025 Dystonia Zoo Days and other community events held around the country to raise dystonia awareness.
https://bit.ly/4oBZZl2
#dystonia #dmrf #dystoniafoundation
November 22, 2025 at 7:46 PM
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During this season of thanksgiving and reflection, Atlanta Dystonia Support Group Leader Kathy Ray shares what she is thankful for.
#dystonia #dmrf #dystoniafoundation
November 21, 2025 at 8:06 PM
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The DMRF hosted a meeting on “Neuromodulation in Dystonia,” chaired by Noreen Bukhari-Parlakturk, MD, PhD, Asst. Prof of Neurology, Duke University and Michael D. Fox, MD, PhD, Dir, Center for Brain Circuit Therapeutics, Brigham & Women's Hospital in Boston, MA.
#dystonia #dmrf #dystoniafoundation
November 21, 2025 at 4:24 PM
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The Winter 2025 Dystonia Dialogue includes a focus on acquired dystonia. Formerly known as secondary dystonia, acquired dystonia occurs due to an identifiable cause.
Read Now: https://bit.ly/47SZH22
#dystonia #dmrf #dystoniafoundation
November 20, 2025 at 9:03 PM
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Now in the Winter 2025 Dystonia Dialogue: Learn more about the History of the DMRF Medical and Scientific Advisory Council (MSAC). Part 1 of a 4-Part Series on the history of DMRF research support. Read it here:
https://bit.ly/4oN4mcH
#dystonia #dmrf #dystoniafoundation
November 20, 2025 at 9:03 PM
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During this season of thanksgiving and appreciation, Fairfield, CA Dystonia Support Group Leader Carol Flynn shares what she is thankful for.
#dystonia #dmrf #dystoniafoundation
November 19, 2025 at 7:16 PM
dystoniafoundation.bsky.social
The Winter 2025 Dystonia Dialogue includes a focus on acquired dystonia. Formerly known as secondary dystonia, acquired dystonia occurs due to an identifiable cause.
Read Now: https://bit.ly/47SZH22
#dystonia #dmrf #dystoniafoundation
November 19, 2025 at 7:16 PM
dystoniafoundation.bsky.social
November is National Family Caregivers Month. This year's theme is "Plug-in to Care," which focuses on making connections to support caregivers. Learn about preventing caregiver burnout in our webinar, The Caregiver Journey
https://bit.ly/3At5fUd

#dystonia #dmrf #dystoniafoundation
November 19, 2025 at 7:16 PM
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Jon Davis is Riding4Us to raise money for dystonia research. DBS surgery enabled Jon to resume bike riding, so he rides for those who have limited mobility due to dystonia. All donations up to $10,000 will be matched dollar-for-dollar by a generous donor. https://bit.ly/3YqyTRt
#dystonia #Riding4Us
November 18, 2025 at 4:46 PM
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In the Winter 2025 issue of the Dystonia Dialogue, learn about managing expectations if you are new to botulinum neurotoxin injections.
Read Now: https://bit.ly/3XosaYA
#dystonia #dmrf #dystoniafoundation
November 18, 2025 at 4:46 PM
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Research is fueled by a spark of hope. Your support funded critical research that’s bringing us closer to more accurate diagnosis and better dystonia treatments. Let’s keep that momentum going. Power the next discovery with a year-end gift: https://bit.ly/3Aujyrh
#dystonia #dmrf #dystoniafoundation
November 18, 2025 at 4:46 PM
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If you have dystonia, the DMRF is here for you with tips on how to manage stress and take care of yourself.
#dystonia #dmrf #dystoniafoundation
November 18, 2025 at 12:50 AM
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During this season of thanksgiving and gratitude, Colorado Dystonia Support Group Leader Paul Kavanaugh shares what he is thankful for.
#dystonia #dmrf #dystoniafoundation
November 18, 2025 at 12:50 AM
dystoniafoundation.bsky.social
If you have dystonia, the DMRF is here for you with tips on how to manage stress and take care of yourself.
#dystonia #dmrf #dystoniafoundation
November 18, 2025 at 12:50 AM
dystoniafoundation.bsky.social
We’re seeking passionate runners for dystonia research in the NYC Marathon 11/1/26
✅ Limited spots available
💰 $3,000 minimum fundraising commitment for each runner
🎟️ Runners are responsible for their own race entry fee
Email [email protected] before the 11/30 team application deadline!
November 13, 2025 at 2:39 PM
dystoniafoundation.bsky.social
It is with great sadness that we report the death of Mark Hallett, MD. Dr. Hallett was a giant in the field of movement disorders, a global expert in dystonia, & a great friend to the DMRF. Learn more about Dr. Hallett’s legacy on the DMRF website: dystonia-foundation.org/dmrf-remembe... #dystonia
November 5, 2025 at 11:04 PM
dystoniafoundation.bsky.social
November is National Family Caregivers Month in the United States, which recognizes and honors family caregivers across the country. Learn more about preventing caregiver burnout in the DMRF webinar, The Caregiver Journey: www.youtube.com/watch?v=uI0c...
Dystonia Caregiver
YouTube video by Dystonia Medical Research Foundation
www.youtube.com
November 3, 2025 at 8:21 PM
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Thank you to everyone who participated in the Rochester Dystonia Zoo Day on Oct. 25. The Dystonia Medical Research Foundation is especially grateful for the support of our volunteers and sponsors. Photos from the event are available online. #dystonia #dmrf #dystoniafoundation flic.kr/s/aHBqjCia2A
November 3, 2025 at 8:19 PM
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Thank you to everyone who participated in the Twin Cities Dystonia Zoo Day on Oct. 5. The Dystonia Medical Research Foundation is especially grateful for the support of our volunteers and sponsors. Photos from the event are available online. #dystonia #dmrf #dystoniafoundation flic.kr/s/aHBqjCia2A
October 20, 2025 at 4:41 PM
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Thank you to everyone who participated in the Angel’s Walk for Dystonia on Sept. 27. The Dystonia Medical Research Foundation is especially grateful for the support of our volunteers and sponsors. Photos from the event are available online: flic.kr/s/aHBqjCia2A #dystonia #dmrf #dystoniafoundation
October 20, 2025 at 4:39 PM
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Thank you to everyone who participated in the Fort Wayne Dystonia Zoo Day on Sept 27. The Dystonia Medical Research Foundation is especially grateful for the support of our volunteers and sponsors. Photos from the event are available online. #dystonia #dmrf #dystoniafoundation flic.kr/s/aHBqjCia2A
October 20, 2025 at 4:38 PM
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Shoutout to Mackenzie Prater for promoting dystonia awareness on the local Channel 21 Alive News broadcast ahead of the Fort Wayne Dystonia Zoo Day on Sept. 27.
#dystonia #dmrf #dystoniafoundation
September 25, 2025 at 9:23 PM