EDCRN (Eating Disorders Clinical Research Network)
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edcrn.bsky.social
EDCRN (Eating Disorders Clinical Research Network)
@edcrn.bsky.social
Establishing a UK-wide NHS research network to improve understandings of, and outcomes for, eating disorders.

Eating Disorders Research Survey - https://qualtrics.kcl.ac.uk/jfe/form/SV_1Xlzef8GdoVZu0C

https://linktr.ee/ed_crn
Curious about what it means to be part of EDCRN?
✨Here’s a glimpse of what joining the EDCRN as a site will look like!
To learn more or express interest, email [email protected]
November 20, 2025 at 1:20 PM
🎗️Awareness is the first step towards change.
Men deserve to be included, feel seen, and feel supported.

At EDCRN, we’re pushing for better understanding, recognition, and treatment of eating disorders in men 💚

#edcrn #eatingdisorders #eatingdisordersresearch #mensmentalhealth
November 13, 2025 at 12:00 PM
Help shape the future of Eating Disorders! 📃

🔗 Take part in our survey now, link in bio

Closes: 16th Nov, Midnight

#eatingdisorderresearch #eatingdisoder #edcrn #researchmatters #edawareness #mentalhealth
November 10, 2025 at 10:37 AM
Say hello 👋 to our placement students!

We are excited to have them on board. 🎉 Welcome to the team! #EDCRN @edgiuk.bsky.social @gladstudy.bsky.social #EatingDisorder
November 6, 2025 at 2:52 PM
Are you interested in eating disorders funding and research?🔬
Please help us develop some key messaging to deliver to stakeholders to help increase investment in eating disorder research by completing the following survey!
qualtrics.kcl.ac.uk/jfe/form/SV_...
October 30, 2025 at 4:46 PM
Reposted by EDCRN (Eating Disorders Clinical Research Network)
A valuable read from @ameaustin.bsky.social and @karina-maudsley.bsky.social on the importance of collecting routine outcome measures in eating disorders - and the potential of this to tranform care for individuals affected 🫶🏻🤍
🔬This week’s journal club ➡️ Our co-principal investigator, Dr Karina Allen, recently published this paper on why routine outcome measurement is key in the eating disorders field.

Read the paper here: pubmed.ncbi.nlm.nih.gov/40640949/
October 18, 2025 at 7:12 AM
🔬This week’s journal club ➡️ Our co-principal investigator, Dr Karina Allen, recently published this paper on why routine outcome measurement is key in the eating disorders field.

Read the paper here: pubmed.ncbi.nlm.nih.gov/40640949/
October 17, 2025 at 4:50 PM
Happy World Mental Health Day! 🧠

The theme this year is ‘Access to Services - Mental Health in Catastrophes and Emergencies’.
October 10, 2025 at 5:05 PM
Reposted by EDCRN (Eating Disorders Clinical Research Network)
📢New blog alert📢

@annacarnegie.bsky.social from @edcrn.bsky.social talks about the importance of trust in treatment, and how being treated as a unique individual with different interests and hopes for the future helped her recover from anorexia.

www.dumpthescales.org/post/seven-p...
Seven positives I took away from eating disorder treatment
Anna Carnegie, researcher and person with lived experience of eating disorders and OCD writes about the positives she took away from Eating Disorder Treatment
www.dumpthescales.org
September 30, 2025 at 4:46 PM
🔬 This week’s journal club is a paper authored by EDCRN’s co-principal investigator, Dr Karina Allen! The paper looks at the effect of early interventions on young people with eating disorders.

To read the paper, see 👉 pubmed.ncbi.nlm.nih.gov/40878998/
September 17, 2025 at 5:40 PM
🔬This week's journal club is a paper by James Downs, a member of our Lived Experience Steering Committee, and Clive Kelly, with some fascinating insights into Anorexia Nervosa in males. To see the full paper, see here 👉 www.magonlinelibrary.com/doi/full/10....
August 22, 2025 at 3:19 PM
This week's journal club features a paper from our excellent colleague and PhD researcher, Saakshi Kakar, in which she conducted a large-scale analysis of under-recognised weight loss behaviours in individuals with eating disorders.
August 4, 2025 at 7:54 PM
Reposted by EDCRN (Eating Disorders Clinical Research Network)
Currently, eating disorder services do not collect consistent routine data, which means we have limited knowledge of the effectiveness of care.

Funded by us, a new study has identified a standardised dataset to be collected by a clinical research network in the UK, EDCRN (@edcrn.bsky.social). [1/3]
July 31, 2025 at 8:49 AM
💙 Following the consensus building workshops, the EDCRN team identified four key themes. Read the thread below to find out these themes and how we implemented them into the EDCRN dataset. 🧵👇
July 25, 2025 at 5:09 PM
🚨 Exciting news 🚨

Our paper on the development of the EDCRN dataset, created through consensus-building workshops, has now been published! 🎉The team held two workshops to agree on the information that should be collected in the dataset. Find out our consensus activities below🧵👇
July 21, 2025 at 1:39 PM
📚 For our next EDCRN journal club, authored by a member of our Lived Experience Advisory Board, we read about the PEACE Pathway – an autism-informed approach to ED care.
July 4, 2025 at 5:15 PM
Reposted by EDCRN (Eating Disorders Clinical Research Network)
🔔 Last chance! Our survey on what really matters in eating disorders early intervention closes this Friday 4th July.

🧠 Add your voice: qualtrics.kcl.ac.uk/jfe/form/SV_...
Qualtrics Survey | Qualtrics Experience Management
The most powerful, simple and trusted way to gather experience data. Start your journey to experience management and try a free account today.
qualtrics.kcl.ac.uk
June 30, 2025 at 10:58 AM
Reposted by EDCRN (Eating Disorders Clinical Research Network)
📣 We’ve now opened our second phase of recruitment and are inviting cisgender adults with a current or past eating disorder to share their experiences too.

Please follow the link to find out more: tinyurl.com/LEADINGStudy1
June 27, 2025 at 12:54 PM
🌱This month, we’re diving into the Full of Beans podcast hosted by Hannah Hickinbotham. Hannah is joined by Dr Jessica Murphy to explore long-term physical/mental effects of EDs in adulthood, and treatment changes needed to better support all ages.
June 26, 2025 at 10:25 AM
A privilege to be back in Parliament this week for an event organised as part of the APPG on Eating Disorders with @hopevirgo.bsky.social and @werahobhouse.bsky.social.

A wonderful opportunity to chat about EDCRN @edgiuk.bsky.social and the importance of continued investment in ED research.
June 20, 2025 at 10:04 AM
Reposted by EDCRN (Eating Disorders Clinical Research Network)
I hosted eating disorder experts & campaigners in Parliament today.

For too long, eating disorders have been misunderstood - it was therefore great to offer an opportunity to improve ED awareness.

Thank you to @edgiuk.bsky.social, @dumpthescales.bsky.social & @edcrn.bsky.social joining us🤝
June 18, 2025 at 2:58 PM
🎨This week’s EDCRN Journal Club features a great paper by our co-principal investigator, Dr Karina Allen! Karina is an investigator on an ambitious project called @edifyresearch.bsky.social , which aims to revolutionise how eating disorders are perceived, prevented and treated in young people. 🧵
June 3, 2025 at 10:24 AM
🔬 This month's journal club comes from @jamesldowns.bsky.social , a member of our Lived Experience Steering Committee! James has published a brilliant paper on the diverse ways of knowing in mental health research. Read the thread to learn more! 🧵👇
May 19, 2025 at 10:57 AM
Reposted by EDCRN (Eating Disorders Clinical Research Network)
➡️Please consider taking part in our survey! 📊We aim to include as diverse a range of views as possible. Your answers will inform an early intervention action plan shared with policy makers and practitioners! qualtrics.kcl.ac.uk/jfe/form/SV_... ⬅️
May 14, 2025 at 10:24 AM
📚 Our new journal club kicks off with a paper on exploring intersectionality in help-seeking for eating disorders 🧵👇
April 30, 2025 at 1:27 PM