Eden Dora Trust
@edendoratrust.bsky.social
Helping children & families affected by childhood Encephalitis & Acquired Brain Injury, feel less misunderstood & alone, through dedicated support, research & more.
For more info:
Www.edendoratrust.org
For more info:
Www.edendoratrust.org
Festive Fundraising Challenge 🎄
Take on a xmas challenge & help us support families affected by Encephalitis & ABI
You could do a -
🎅 Santa run
🧦 Jumper challenge
🍰 Festive bake sale
or anything you'd like!
Start your fundraiser here 👉 www.justgiving.com/campaign/edt...
Thank you 🫶
Take on a xmas challenge & help us support families affected by Encephalitis & ABI
You could do a -
🎅 Santa run
🧦 Jumper challenge
🍰 Festive bake sale
or anything you'd like!
Start your fundraiser here 👉 www.justgiving.com/campaign/edt...
Thank you 🫶
Building Brighter Days – Christmas Appeal for Eden Dora Trust
Support our Building Brighter Days Christmas Appeal and help children and families affected by Encephalitis and Acquired Brain Injury (ABI).
Your donation provides vital support now and in the future...
www.justgiving.com
December 4, 2025 at 5:49 PM
Festive Fundraising Challenge 🎄
Take on a xmas challenge & help us support families affected by Encephalitis & ABI
You could do a -
🎅 Santa run
🧦 Jumper challenge
🍰 Festive bake sale
or anything you'd like!
Start your fundraiser here 👉 www.justgiving.com/campaign/edt...
Thank you 🫶
Take on a xmas challenge & help us support families affected by Encephalitis & ABI
You could do a -
🎅 Santa run
🧦 Jumper challenge
🍰 Festive bake sale
or anything you'd like!
Start your fundraiser here 👉 www.justgiving.com/campaign/edt...
Thank you 🫶
✨ Our Christmas Appeal is LIVE! ✨🎄
“When our child got Encephalitis, our world turned upside down, EDT was there for us, I don't know how we'd have coped without them.”
You can help us reach more families like theirs
Please support our Christmas Appeal🎄💙
www.justgiving.com/campaign/edt...
“When our child got Encephalitis, our world turned upside down, EDT was there for us, I don't know how we'd have coped without them.”
You can help us reach more families like theirs
Please support our Christmas Appeal🎄💙
www.justgiving.com/campaign/edt...
Building Brighter Days – Christmas Appeal for Eden Dora Trust
Support our Building Brighter Days Christmas Appeal and help children and families living Encephalitis and Acquired Brain Injury (ABI).
Your donation provides vital support now and in the future, ens...
www.justgiving.com
December 1, 2025 at 4:18 PM
✨ Our Christmas Appeal is LIVE! ✨🎄
“When our child got Encephalitis, our world turned upside down, EDT was there for us, I don't know how we'd have coped without them.”
You can help us reach more families like theirs
Please support our Christmas Appeal🎄💙
www.justgiving.com/campaign/edt...
“When our child got Encephalitis, our world turned upside down, EDT was there for us, I don't know how we'd have coped without them.”
You can help us reach more families like theirs
Please support our Christmas Appeal🎄💙
www.justgiving.com/campaign/edt...
🎄✨ Skipping the Christmas Cards This Year? ✨🎄
If you’re thinking about sending fewer Christmas cards - Pls consider supporting our charity instead 💙
Help us to continue supporting children living with the effects of childhood Encephalitis & ABI. 🧠
Thank you 🎅🎄💙
#Encephalitis #ABI
If you’re thinking about sending fewer Christmas cards - Pls consider supporting our charity instead 💙
Help us to continue supporting children living with the effects of childhood Encephalitis & ABI. 🧠
Thank you 🎅🎄💙
#Encephalitis #ABI
November 18, 2025 at 5:13 PM
🎄✨ Skipping the Christmas Cards This Year? ✨🎄
If you’re thinking about sending fewer Christmas cards - Pls consider supporting our charity instead 💙
Help us to continue supporting children living with the effects of childhood Encephalitis & ABI. 🧠
Thank you 🎅🎄💙
#Encephalitis #ABI
If you’re thinking about sending fewer Christmas cards - Pls consider supporting our charity instead 💙
Help us to continue supporting children living with the effects of childhood Encephalitis & ABI. 🧠
Thank you 🎅🎄💙
#Encephalitis #ABI
The fabulous team we work with @nables.bsky.social have a new resource:
An editable ABI Passport, designed by our incredible Young Experts By Experience in ABI A way to emphasise the YP's voice & help teachers understand more about their specific ABI
#ABI #Encephalitis
ukabif.org.uk/page/NABLESA...
An editable ABI Passport, designed by our incredible Young Experts By Experience in ABI A way to emphasise the YP's voice & help teachers understand more about their specific ABI
#ABI #Encephalitis
ukabif.org.uk/page/NABLESA...
NABLES Patient Passport - United Kingdom Acquired Brain Injury Forum
ukabif.org.uk
November 13, 2025 at 4:41 PM
The fabulous team we work with @nables.bsky.social have a new resource:
An editable ABI Passport, designed by our incredible Young Experts By Experience in ABI A way to emphasise the YP's voice & help teachers understand more about their specific ABI
#ABI #Encephalitis
ukabif.org.uk/page/NABLESA...
An editable ABI Passport, designed by our incredible Young Experts By Experience in ABI A way to emphasise the YP's voice & help teachers understand more about their specific ABI
#ABI #Encephalitis
ukabif.org.uk/page/NABLESA...
Reposted by Eden Dora Trust
"We need to bring the best of the NHS, to the rest of the NHS"
At the #UKABIFSummit2025, Ashley Dalton, MP and Under-Secretary of State for Public Health and Prevention DHSC delivered an outstanding presentation. Listening to her motivational stories was truly inspiring!
(1/2)
At the #UKABIFSummit2025, Ashley Dalton, MP and Under-Secretary of State for Public Health and Prevention DHSC delivered an outstanding presentation. Listening to her motivational stories was truly inspiring!
(1/2)
November 5, 2025 at 8:01 AM
"We need to bring the best of the NHS, to the rest of the NHS"
At the #UKABIFSummit2025, Ashley Dalton, MP and Under-Secretary of State for Public Health and Prevention DHSC delivered an outstanding presentation. Listening to her motivational stories was truly inspiring!
(1/2)
At the #UKABIFSummit2025, Ashley Dalton, MP and Under-Secretary of State for Public Health and Prevention DHSC delivered an outstanding presentation. Listening to her motivational stories was truly inspiring!
(1/2)
Reposted by Eden Dora Trust
Dr. Hope Kent delivered an exceptional talk at the @ukabif.bsky.social #Summit2025. She shared her ongoing research, highlighting the lack of SEN support for young people with #ABI, as they aren't listed on the school census.
#BrainInjuryAwareness #EducationMatters #Inclusivity
#BrainInjuryAwareness #EducationMatters #Inclusivity
November 6, 2025 at 8:01 AM
Dr. Hope Kent delivered an exceptional talk at the @ukabif.bsky.social #Summit2025. She shared her ongoing research, highlighting the lack of SEN support for young people with #ABI, as they aren't listed on the school census.
#BrainInjuryAwareness #EducationMatters #Inclusivity
#BrainInjuryAwareness #EducationMatters #Inclusivity
Reposted by Eden Dora Trust
On #AntiBullyingWeek, it's vital to highlight the importance of creating nurturing, respectful environments, particularly in schools. If you have a student with an #AcquiredBrainInjury (ABI), understanding and empathy are crucial!
🔗 More information:
🔗 More information:
National Acquired Brain Injury In Learning And Education Syndicate help make educators aware of abi
The National ABI Education and Learning Syndicate (N-ABLES) was set up to identify ways to support all education professionals in gaining a minimum level of awareness and understanding about acquired…
ukabif.org.uk
November 12, 2025 at 12:02 PM
On #AntiBullyingWeek, it's vital to highlight the importance of creating nurturing, respectful environments, particularly in schools. If you have a student with an #AcquiredBrainInjury (ABI), understanding and empathy are crucial!
🔗 More information:
🔗 More information:
Reposted by Eden Dora Trust
"Teachers have the professional skills to support these children, but don’t have the knowledge... there is a lack of consistent training for #ABI"
Joanna Woodhouse from N-ABLES shared insights from the Educators' Perspective at the #UKABIFSummit2025 symposium.
Joanna Woodhouse from N-ABLES shared insights from the Educators' Perspective at the #UKABIFSummit2025 symposium.
November 13, 2025 at 1:42 PM
"Teachers have the professional skills to support these children, but don’t have the knowledge... there is a lack of consistent training for #ABI"
Joanna Woodhouse from N-ABLES shared insights from the Educators' Perspective at the #UKABIFSummit2025 symposium.
Joanna Woodhouse from N-ABLES shared insights from the Educators' Perspective at the #UKABIFSummit2025 symposium.
So many incredible, passionate people wanting to make a difference @ukabif.bsky.social summit & @n-ables.bsky.social speakers were amazing. So proud (bursting!) of our very own young expert by experience (Eden 🌟) speaking with Baroness Estelle Morris🧠
The day really was superb 💙
#ABI #Encephalitis
The day really was superb 💙
#ABI #Encephalitis
November 5, 2025 at 5:22 PM
So many incredible, passionate people wanting to make a difference @ukabif.bsky.social summit & @n-ables.bsky.social speakers were amazing. So proud (bursting!) of our very own young expert by experience (Eden 🌟) speaking with Baroness Estelle Morris🧠
The day really was superb 💙
#ABI #Encephalitis
The day really was superb 💙
#ABI #Encephalitis
Reposted by Eden Dora Trust
📧 Join our mailing list!
🔗 Subscribe for regular updates about our resources and upcoming events by clicking on the following link buff.ly/mvMZSSk or email us at: [email protected].
Thank you for your continued support!
#BrainInjuryAwareness #EducationMatters
🔗 Subscribe for regular updates about our resources and upcoming events by clicking on the following link buff.ly/mvMZSSk or email us at: [email protected].
Thank you for your continued support!
#BrainInjuryAwareness #EducationMatters
October 28, 2025 at 12:05 PM
📧 Join our mailing list!
🔗 Subscribe for regular updates about our resources and upcoming events by clicking on the following link buff.ly/mvMZSSk or email us at: [email protected].
Thank you for your continued support!
#BrainInjuryAwareness #EducationMatters
🔗 Subscribe for regular updates about our resources and upcoming events by clicking on the following link buff.ly/mvMZSSk or email us at: [email protected].
Thank you for your continued support!
#BrainInjuryAwareness #EducationMatters
🧠TOPS-UK supports young people (13–19) with an ABI to manage everyday challenges
Struggling with planning, organisation, or feeling overwhelmed?
💡 Learn simple strategies
📱Online & accessible (with coach support)
🌐tops-uk.org
📧[email protected]
#ABI #Encephalitis
Struggling with planning, organisation, or feeling overwhelmed?
💡 Learn simple strategies
📱Online & accessible (with coach support)
🌐tops-uk.org
📧[email protected]
#ABI #Encephalitis
October 27, 2025 at 1:20 PM
🧠TOPS-UK supports young people (13–19) with an ABI to manage everyday challenges
Struggling with planning, organisation, or feeling overwhelmed?
💡 Learn simple strategies
📱Online & accessible (with coach support)
🌐tops-uk.org
📧[email protected]
#ABI #Encephalitis
Struggling with planning, organisation, or feeling overwhelmed?
💡 Learn simple strategies
📱Online & accessible (with coach support)
🌐tops-uk.org
📧[email protected]
#ABI #Encephalitis
Half term is approaching, with lots of activities planned 🎃
We understand that for some families of children after Encephalitis & with an ABI, school holidays can be a tough time 🫶
We are here to support you via our helpline, email, or through our online resources 💙
#ABI #encephalitis #halfterm
We understand that for some families of children after Encephalitis & with an ABI, school holidays can be a tough time 🫶
We are here to support you via our helpline, email, or through our online resources 💙
#ABI #encephalitis #halfterm
October 24, 2025 at 9:15 AM
Half term is approaching, with lots of activities planned 🎃
We understand that for some families of children after Encephalitis & with an ABI, school holidays can be a tough time 🫶
We are here to support you via our helpline, email, or through our online resources 💙
#ABI #encephalitis #halfterm
We understand that for some families of children after Encephalitis & with an ABI, school holidays can be a tough time 🫶
We are here to support you via our helpline, email, or through our online resources 💙
#ABI #encephalitis #halfterm
Incredible opportunity for someone to take advantage of our NEW funded 3 year PhD project🧠
👉 www.exeter.ac.uk/study/fundin...
Please get in touch if you/candidates have questions
#Encephalitis #ABI
@annaadlam.bsky.social @emilytalbot.bsky.social
👉 www.exeter.ac.uk/study/fundin...
Please get in touch if you/candidates have questions
#Encephalitis #ABI
@annaadlam.bsky.social @emilytalbot.bsky.social
www.exeter.ac.uk
October 18, 2025 at 7:19 PM
Incredible opportunity for someone to take advantage of our NEW funded 3 year PhD project🧠
👉 www.exeter.ac.uk/study/fundin...
Please get in touch if you/candidates have questions
#Encephalitis #ABI
@annaadlam.bsky.social @emilytalbot.bsky.social
👉 www.exeter.ac.uk/study/fundin...
Please get in touch if you/candidates have questions
#Encephalitis #ABI
@annaadlam.bsky.social @emilytalbot.bsky.social
Reposted by Eden Dora Trust
Last chance to sign-up to our @twinklresources.bsky.social Teachmeet tomorrow.
The key areas of focus include...
📚 Inclusion
🧠 Fatigue Management
🌟 Peers and Participation
🔗 Sign-up here: www.eventbrite.co.uk/e/improve-in...
The key areas of focus include...
📚 Inclusion
🧠 Fatigue Management
🌟 Peers and Participation
🔗 Sign-up here: www.eventbrite.co.uk/e/improve-in...
Improve Inclusion, Attendance and Engagement for Pupils with an ABI
Create a brain injury-aware school to boost inclusion, attendance & engagement for students with acquired brain injuries (ABI).
www.eventbrite.co.uk
October 6, 2025 at 7:01 AM
Last chance to sign-up to our @twinklresources.bsky.social Teachmeet tomorrow.
The key areas of focus include...
📚 Inclusion
🧠 Fatigue Management
🌟 Peers and Participation
🔗 Sign-up here: www.eventbrite.co.uk/e/improve-in...
The key areas of focus include...
📚 Inclusion
🧠 Fatigue Management
🌟 Peers and Participation
🔗 Sign-up here: www.eventbrite.co.uk/e/improve-in...
We know 1st hand just how important it is to understand a young person with an ABI & how helpful, informative & necessary the 'UCABI' workshop is🧠
Which is why we fund it completely, so ANYONE working with a child that has an ABI can attend at no cost to themselves!
Link below 💙
#ABI #Encephalitis
Which is why we fund it completely, so ANYONE working with a child that has an ABI can attend at no cost to themselves!
Link below 💙
#ABI #Encephalitis
Do you work with children or young people? Our workshops are fully funded by @edendoratrust.bsky.social, who support children and families affected by childhood encephalitis and acquired brain injury. Spaces are limited, so make sure to book your place today: buff.ly/bo0Ayp9
September 9, 2025 at 1:37 PM
We know 1st hand just how important it is to understand a young person with an ABI & how helpful, informative & necessary the 'UCABI' workshop is🧠
Which is why we fund it completely, so ANYONE working with a child that has an ABI can attend at no cost to themselves!
Link below 💙
#ABI #Encephalitis
Which is why we fund it completely, so ANYONE working with a child that has an ABI can attend at no cost to themselves!
Link below 💙
#ABI #Encephalitis
Thank you to all the amazing people who chose to take part in the Great North Run for us today. You are amazing & we couldn’t do what we do with out you! Thank you 💙
#ABB #encephalitis #support #marathon #GreatNorthRun
#ABB #encephalitis #support #marathon #GreatNorthRun
September 7, 2025 at 6:33 PM
Thank you to all the amazing people who chose to take part in the Great North Run for us today. You are amazing & we couldn’t do what we do with out you! Thank you 💙
#ABB #encephalitis #support #marathon #GreatNorthRun
#ABB #encephalitis #support #marathon #GreatNorthRun
Please help us while you shop...👇🏼
Sign up to @easyfundraising.bsky.social & when you shop online, they’ll donate to us👏
It's free & your shopping won't cost you any extra - the retailers you shop with will donate, not you! join.easyfundraising.org.uk/theedendorat...
Sign up to @easyfundraising.bsky.social & when you shop online, they’ll donate to us👏
It's free & your shopping won't cost you any extra - the retailers you shop with will donate, not you! join.easyfundraising.org.uk/theedendorat...
September 4, 2025 at 3:10 PM
Please help us while you shop...👇🏼
Sign up to @easyfundraising.bsky.social & when you shop online, they’ll donate to us👏
It's free & your shopping won't cost you any extra - the retailers you shop with will donate, not you! join.easyfundraising.org.uk/theedendorat...
Sign up to @easyfundraising.bsky.social & when you shop online, they’ll donate to us👏
It's free & your shopping won't cost you any extra - the retailers you shop with will donate, not you! join.easyfundraising.org.uk/theedendorat...
*** LONDON MARATHON 2026 PLACE AVAILABLE***
Would you like to run the @LondonMarathon '26
We have 1 place left - register interest here 👉
edendoratrust.org/london-marat...
Do something legendary & apply to be part of #TeamEdenDoraTrust 💙
Please Share 🤗
#londonmarathon #Run4EDT #Encephalitis #ABI
Would you like to run the @LondonMarathon '26
We have 1 place left - register interest here 👉
edendoratrust.org/london-marat...
Do something legendary & apply to be part of #TeamEdenDoraTrust 💙
Please Share 🤗
#londonmarathon #Run4EDT #Encephalitis #ABI
Run the London Marathon for EDT | Eden Dora Trust
edendoratrust.org
August 12, 2025 at 12:23 PM
*** LONDON MARATHON 2026 PLACE AVAILABLE***
Would you like to run the @LondonMarathon '26
We have 1 place left - register interest here 👉
edendoratrust.org/london-marat...
Do something legendary & apply to be part of #TeamEdenDoraTrust 💙
Please Share 🤗
#londonmarathon #Run4EDT #Encephalitis #ABI
Would you like to run the @LondonMarathon '26
We have 1 place left - register interest here 👉
edendoratrust.org/london-marat...
Do something legendary & apply to be part of #TeamEdenDoraTrust 💙
Please Share 🤗
#londonmarathon #Run4EDT #Encephalitis #ABI
Would you like to run the @londonmarathon.bsky.social 2026🏃🏃♀️
We have one place left - register your interest here 👇
edendoratrust.org/london-marat...
Do something legendary this year and apply to be part of #TeamEdenDoraTrust 💪💙
Please Share 🙏
#londonmarathon #Run4EDT #Encephalitis #ABI
We have one place left - register your interest here 👇
edendoratrust.org/london-marat...
Do something legendary this year and apply to be part of #TeamEdenDoraTrust 💪💙
Please Share 🙏
#londonmarathon #Run4EDT #Encephalitis #ABI
Run the London Marathon for EDT | Eden Dora Trust
edendoratrust.org
July 23, 2025 at 5:44 PM
Would you like to run the @londonmarathon.bsky.social 2026🏃🏃♀️
We have one place left - register your interest here 👇
edendoratrust.org/london-marat...
Do something legendary this year and apply to be part of #TeamEdenDoraTrust 💪💙
Please Share 🙏
#londonmarathon #Run4EDT #Encephalitis #ABI
We have one place left - register your interest here 👇
edendoratrust.org/london-marat...
Do something legendary this year and apply to be part of #TeamEdenDoraTrust 💪💙
Please Share 🙏
#londonmarathon #Run4EDT #Encephalitis #ABI
Most schools have now broken up for the summer, however school holidays can be a challenging time for families when a young person's routine changes.
We understand how difficult it can be 💙
We also have some key tips that may help during the school holidays
#ABI #encephalitis
We understand how difficult it can be 💙
We also have some key tips that may help during the school holidays
#ABI #encephalitis
July 21, 2025 at 4:30 PM
Most schools have now broken up for the summer, however school holidays can be a challenging time for families when a young person's routine changes.
We understand how difficult it can be 💙
We also have some key tips that may help during the school holidays
#ABI #encephalitis
We understand how difficult it can be 💙
We also have some key tips that may help during the school holidays
#ABI #encephalitis
What a great day at the Parliamentary reception for ABI. 4 amazing young people spoke on behalf of @nables.bsky.social
So brave, insightful & giving. The only way to make the right change is to listen to the experts by experience💙 #YEBEABI
#ABI #Encephalitis #TimeForChange @ukabif.bsky.social
So brave, insightful & giving. The only way to make the right change is to listen to the experts by experience💙 #YEBEABI
#ABI #Encephalitis #TimeForChange @ukabif.bsky.social
July 19, 2025 at 3:24 PM
What a great day at the Parliamentary reception for ABI. 4 amazing young people spoke on behalf of @nables.bsky.social
So brave, insightful & giving. The only way to make the right change is to listen to the experts by experience💙 #YEBEABI
#ABI #Encephalitis #TimeForChange @ukabif.bsky.social
So brave, insightful & giving. The only way to make the right change is to listen to the experts by experience💙 #YEBEABI
#ABI #Encephalitis #TimeForChange @ukabif.bsky.social
Really looking forward to attending the @ukabif.bsky.social ABI Parliamentary APPG Reception at Portcullis House this afternoon 🧠
I’ll be wearing many hats today,CEO of @edendoratrust.bsky.social , as Mummy to Eden & as part of the steering committee for @nables.bsky.social
#ABI #Encephalitis
I’ll be wearing many hats today,CEO of @edendoratrust.bsky.social , as Mummy to Eden & as part of the steering committee for @nables.bsky.social
#ABI #Encephalitis
July 16, 2025 at 11:59 AM
Really looking forward to attending the @ukabif.bsky.social ABI Parliamentary APPG Reception at Portcullis House this afternoon 🧠
I’ll be wearing many hats today,CEO of @edendoratrust.bsky.social , as Mummy to Eden & as part of the steering committee for @nables.bsky.social
#ABI #Encephalitis
I’ll be wearing many hats today,CEO of @edendoratrust.bsky.social , as Mummy to Eden & as part of the steering committee for @nables.bsky.social
#ABI #Encephalitis
Great catch up with one of our amazing Patrons @djwilliamsact whilst he’s on tour with the fantastic @thelastlaughplay (an amazing show that we definitely recommend seeing if you get chance!) catching up with all things EDT 💙
Thank you Damian for all your continued support! ❤️💙
#encephalitis #ABI
Thank you Damian for all your continued support! ❤️💙
#encephalitis #ABI
July 12, 2025 at 6:30 PM
Great catch up with one of our amazing Patrons @djwilliamsact whilst he’s on tour with the fantastic @thelastlaughplay (an amazing show that we definitely recommend seeing if you get chance!) catching up with all things EDT 💙
Thank you Damian for all your continued support! ❤️💙
#encephalitis #ABI
Thank you Damian for all your continued support! ❤️💙
#encephalitis #ABI
We are so proud to share some pictures we received from some of our amazing supporters that took on our #50MilesinMay challenge! Raising vital funds & awareness, allowing us to continue being a lifeline for children & families across the UK - THANK YOU! 💙🧠
#Encephalitis #ABI #50Miles4EDT #Support
#Encephalitis #ABI #50Miles4EDT #Support
June 26, 2025 at 10:38 AM
We are so proud to share some pictures we received from some of our amazing supporters that took on our #50MilesinMay challenge! Raising vital funds & awareness, allowing us to continue being a lifeline for children & families across the UK - THANK YOU! 💙🧠
#Encephalitis #ABI #50Miles4EDT #Support
#Encephalitis #ABI #50Miles4EDT #Support
Reposted by Eden Dora Trust
The wonderful Jo Woodhouse will represent N-ABLES at the Northern Acquired Brain Injury Conference to deliver an update on N-ABLES and discuss the responsibilities of a SENCO in supporting children and young people with #AcquiredBrainInjuries
Stay tuned to our accounts for an update!
Stay tuned to our accounts for an update!
June 24, 2025 at 11:02 AM
The wonderful Jo Woodhouse will represent N-ABLES at the Northern Acquired Brain Injury Conference to deliver an update on N-ABLES and discuss the responsibilities of a SENCO in supporting children and young people with #AcquiredBrainInjuries
Stay tuned to our accounts for an update!
Stay tuned to our accounts for an update!