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Reposted by European Paediatric Neurology Society (EPNS)

ERN-RND @ern-rnd.bsky.social · 22h

Learn from Martin Reich in "Deep Brain Stimulation - Pitch and Live Case Discussion" at the Scientific Symposium "European Healthcare for RND Patients", Oct 28, 11:00 CET.

Registration (free of charge): t1p.de/k7tec
Program: t1p.de/u62ba
Abstract: tinyurl.com/y7yx8e5v

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Reposted by European Paediatric Neurology Society (EPNS)

Mac Keith Press @mackeithpress.bsky.social · 21h

#DMCNPodcast
Resilience in practice: Scientific and clinical commitment amid systemic uncertainty
www.youtube.com/watch?v=I1Ly...

Scientific and clinical commitment amid systemic uncertainty | Theresa Sukal-Moulton | DMCN

In this podcast, Theresa Sukal-Moulton discusses her paper 'Resilience in practice: Scientific and clinical commitment amid systemic uncertainty'. The paper is available here:…

www.youtube.com

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European Paediatric Neurology Society (EPNS) @epnsnews.bsky.social · 2d

Happening today!
Join the FREE #EPNS webinar:
Neurological complications of paediatric cancer and its treatment
8 Oct 2025 17:00 CET
Register: us02web.zoom.us/webinar/regi...
Recording available for EPNS members.
#PaediatricNeurology

Reposted by European Paediatric Neurology Society (EPNS)

ERN-RND @ern-rnd.bsky.social · 3d

Don't miss our Symposium on "European Healthcare for RND Patients" - with insights from the #ERNs ERN-RND, Epicare & ERNICA as well as from @jardinjointaction.bsky.social, @eurordis.bsky.social on October 28, starting at 8:20 CET.

Registration: tinyurl.com/p8wrbucf

Agenda: tinyurl.com/49yhy4rx

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European Paediatric Neurology Society (EPNS) @epnsnews.bsky.social · 3d

EPNS honoured to be represented at Romanian Paediatric Neurology Society Congress Bucharest, hosted by Prof Dana Craiu & Dr Niculina Butoianu.
Sessions on paediatric stroke, MS, PANS/PANDAS, drug-resistant epilepsy & more.
An inspiring event!
#EPNS #PaediatricNeurology #ChildNeurology

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Reposted by European Paediatric Neurology Society (EPNS)

Mac Keith Press @mackeithpress.bsky.social · 8d

This mixed-methods study highlights the pivotal role parents of a child with a neurological condition play in shaping their child’s healthcare experience
onlinelibrary.wiley.com/doi/10.1111/...

Parental perspectives on family-centered care in pediatric neurology: An explanatory sequential mixed-methods study

onlinelibrary.wiley.com

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Reposted by European Paediatric Neurology Society (EPNS)

European Brain Council (EBC) @braincouncil.eu · 7d

🧠 Wrapping up #BrainDays at #UNGA80!

From borderless research to brain capital & governance, 25–26 Sept brought global leaders together to push brain health to the center of policy, science & society.

🔗 Highlights: www.braincouncil.eu/event-highli...

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European Paediatric Neurology Society (EPNS) @epnsnews.bsky.social · 7d

Still time to register for the next FREE EPNS webinar!
Wed 8 Oct 2025 | 17:00 CET
Topic: Neurological complications of paediatric cancer & treatment
Live on Zoom | Open to all!
Register free: us02web.zoom.us/webinar/regi...
#EPNS #PaediatricNeurology

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European Paediatric Neurology Society (EPNS) @epnsnews.bsky.social · 9d

Join the next EPNS Journal Club

Wed 22 Oct 2025 at 17:00 CET

Differential diagnosis and comparison of diagnostic algorithms in children and adolescents with autoimmune encephalitis in Spain

Free & open to all
Register us02web.zoom.us/webinar/regi...
Article: pubmed.ncbi.nlm.nih.gov/39706634/

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European Paediatric Neurology Society (EPNS) @epnsnews.bsky.social · 12d

Honoured to share Prof Sameer Zuberi is representing @EPNSnews & @EU_Brain at #UNGA80
From the Gates Foundation’s Goalkeepers event to the UNGA Brain Health Summit, he’s advocating for brain health across the lifespan—spotlighting Childhood Dementia.
#ChildNeurology #EBC #EPNS

European Paediatric Neurology Society (EPNS) @epnsnews.bsky.social · 14d

The EPNS was honoured to be represented at #AOCCN2025 in New Delhi (16–20 Sept).
Prof. Kevin Rostasy, EPNS President, delivered a keynote on ‘MOGAD – Diagnostic and Management Consensus’.
Grateful to the organisers for an inspiring event!
#EPNS #ChildNeurology #PaediatricNeurology #MOGAD

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Reposted by European Paediatric Neurology Society (EPNS)

Mac Keith Press @mackeithpress.bsky.social · 14d

"This book is highly recommended for anyone with a confirmed diagnosis of seizures or #epilepsy, as well as for their caregivers and family members ."

Discover our Gillette Children's Healthcare Series book, Epilepsy, at buff.ly/A452RWH

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European Paediatric Neurology Society (EPNS) @epnsnews.bsky.social · 14d

Application period for EPNS Visiting Teacher 2026 - DEADLINE 1 October!

For more information visit: epns.info/epns-visitin...

European Paediatric Neurology Society (EPNS) @epnsnews.bsky.social · 14d

Registration for EPNS Fellowships 2026 - DEADLINE 1 October!

There are a total of eight fellowships available: three Research and five Clinical (one of eight successful applicants may be awarded the Aicardi Fellowship).

For more information visit: www.epns.info/epns-fellows...

Reposted by European Paediatric Neurology Society (EPNS)

European Academy of Neurology @ean.org · 17d

Join the MEP Interest Group on Brain Health and Neurological Conditions meeting on 16 Oct for a discussion on how health literacy can enhance patient outcomes and drive impactful policy change for those living with neurological conditions.

➡️ Learn more & register: www.efna.net/mep-oct25/

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European Paediatric Neurology Society (EPNS) @epnsnews.bsky.social · 15d

FREE YEPNS Case Discussion today!
STILL TIME TO REGISTER!

Register at: us02web.zoom.us/.../reg.../W...

European Paediatric Neurology Society (EPNS) @epnsnews.bsky.social · 17d

EPNS is excited to announce that
@ERN_RND
is hosting a FREE online scientific symposium on 28 Oct 2025 with the theme of ‘European Healthcare for RND Patients.’
Register here: ec.europa.eu/eusurvey/run...
This event is open to everyone interested in rare neurological diseases.

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Reposted by European Paediatric Neurology Society (EPNS)

ERN-RND @ern-rnd.bsky.social · 17d

Join our Symposium on European #Healthcare for Rare Neurological Diseases on October 28, 8:20-13:40 CET and learn more about cross-border access to highly specialized therapies. Register now for free: ec.europa.eu/eusurvey/run...

Find the full agenda here: www.ern-rnd.eu/wp-content/u...

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Reposted by European Paediatric Neurology Society (EPNS)

ERN EuroBloodNet @erneurobloodnet.bsky.social · 20d

📢Are you involved in the care of patients with rare diseases? Your insights are crucial to improving continuity of care and shaping future strategies for rare disease patients across Europe!

👉 bit.ly/46JYtGW

#ERNeu #ERNs @ec.europa.eu @jardinjointaction.bsky.social @euonehealth.bsky.social

Europe-wide survey on transition and transfer procedures in rare diseases within the European Reference Networks (ERNs) | News | EuroBloodNet

The survey aims to understand how young patients with rare and complex conditions are transitioned from paediatric to adult care, and how care is transferred.

bit.ly

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Reposted by European Paediatric Neurology Society (EPNS)

BPNA @bpna.bsky.social · 22d

We are delighted to announce the first Fetal & Neonatal Neurology Conference, jointly held by the BPNA and @bapmofficial.bsky.social on 22 April 2026 at Kings College Hospital, London. 

To find out more about abstracts, keynote speakers and book, please see: courses.bpna.org.uk/ecomm_produc...

BPNA Courses

courses.bpna.org.uk

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European Paediatric Neurology Society (EPNS) @epnsnews.bsky.social · 21d

Next EPNS FREE EEG Club 29th September 2025!
For more information & to register visit - epns.info/epns-eeg-club/

Reposted by European Paediatric Neurology Society (EPNS)

Mac Keith Press @mackeithpress.bsky.social · 23d

Caring for Children with Neurodevelopmental Disabilities: Stories from a Pediatric Practice' by Alfred L Scherzer & Erika Cloodt is coming soon!

Express your interest now at www.mackeith.co.uk/caring-for-c...

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Reposted by European Paediatric Neurology Society (EPNS)

WHO @who.int · 23d

Today is #WorldPatientSafetyDay

Children aren’t small adults. They need safe care tailored to their:

🧸 Age
🧸 Weight
🧸 Development
🧸 Medical needs
🧸 Ability to communicate
🧸 Context

Learn why we need to ensure safe care for all children from the start👉 bit.ly/WPSD2025WHO #PatientSafety

A graphic for World Patient Safety Day 2025 with the title “Why is safe health care for children so important?”. It shows two children holding flowers at the top. Four key points are highlighted: (1) Children face higher risks – even small errors can cause lifelong harm. (2) Children need care that fits their age, weight and development. (3) Children can’t speak up — they rely on adults to keep them safe. (4) Safety takes teamwork — families and health workers working together.

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Reposted by European Paediatric Neurology Society (EPNS)

European Brain Council (EBC) @braincouncil.eu · 24d

🧠 Day 2 of the 2025 Brain Days: From Lifespan to the Future of #BrainHealth Policy

Building on Day 1's momentum, Sept 26th explores brain health across all life stages and charts the path toward coordinated global policy action beyond #UNGA80.

👉 braincouncil.eu/programme-un...

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Reposted by European Paediatric Neurology Society (EPNS)

ERN-RND @ern-rnd.bsky.social · 24d

In everyday situations like this a #PatientJourney document can be a huge support for patients. It offers a short and quick overview of the disease, that is also an informative document for doctors and clinicians that are not familiar with this #RareDisease.
Download: www.ern-rnd.eu/disease-know...

ERN-RND Patient Journeys – ERN-RND | European Reference Network on Rare Neurological Diseases

www.ern-rnd.eu

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