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Ethics Institute Winkler @ethicswinkler.bsky.social · 11h

✨Hello from Day 1 & 2 of @aem-online.bsky.social 🎉

📣Talking all things genomic newborn screening, child-centered ethics & children in public health.

Big questions, great minds, and lots to think about!

Captured some great impressions from our team of presenters onsite📽️🍿

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Ethics Institute Winkler @ethicswinkler.bsky.social · 18h

✨ On Oct 6, the opening of the Camilla & Georg Jellinek Center for Ethics at @uniheidelberg.bsky.social 🏛️was celebrated with the symposium “Why Trust Matters — and How it Fails,” exploring trust in 🤖 tech, 🏙️ institutions & 🧑‍⚕️ professions.

Thanks to all who joined us!

@nadiaprimc.bsky.social

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Ethics Institute Winkler @ethicswinkler.bsky.social · 1d

#Bioethics #Medicalethics

@alenabuyx.bsky.social @marcelloienca.bsky.social @stuartmclennan.bsky.social @salloch.bsky.social @gstarke.bsky.social @frankursin.bsky.social @veriwil.bsky.social @martin-jk.bsky.social

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Ethics Institute Winkler @ethicswinkler.bsky.social · 1d

Conference time: The annual conference @aem-online.bsky.social kicks off today in Munich! 🌍
Great to see our group in action.
Stay tuned for insights from our team of presenters.

🧠Theme: #Ethics of health technologies: science, society, healthcare

📋Details: aem-online.de/jahrestagung...

Jahrestagung 2025 – Akademie für Ethik in der Medizin

aem-online.de

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Ethics Institute Winkler @ethicswinkler.bsky.social · 2d

@uniheidelberg.bsky.social

Ethics Institute Winkler @ethicswinkler.bsky.social · 2d

Members of the Jellinek family honored the opening of the Camilla & Georg Jellinek Center for Ethics with their presence, handing over official documents to mark the occasion. Sharing this moment with them made the occasion truly special.

#heidelberg #uniheidelberg #ethikzentrum #ethik #eröffnung

Ethics Institute Winkler @ethicswinkler.bsky.social · 2d

A milestone moment! Founding directors Eva Winkler & Thorsten Moos officially opened the Camilla & Georg Jellinek Center @uniheidelberg. With music, discussions and a keynote by Thomas W. Simpson, a new platform for exploring #ethics at the intersection of #science and #society begins.
#ethikzentrum

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Ethics Institute Winkler @ethicswinkler.bsky.social · 2d

Members of the Jellinek family honored the opening of the Camilla & Georg Jellinek Center for Ethics with their presence, handing over official documents to mark the occasion. Sharing this moment with them made the occasion truly special.
#universität #uniheidelberg #ethikzentrum #ethik #eröffnung

Ethics Institute Winkler @ethicswinkler.bsky.social · 2d

Members of the Jellinek family honored the opening of the Camilla & Georg Jellinek Center for Ethics with their presence, handing over official documents to mark the occasion. Sharing this moment with them made the occasion truly special.

Reposted by Ethics Institute Winkler

Universität Heidelberg @uniheidelberg.bsky.social · 14d

Feierliche Eröffnung des Camilla-und-Georg-Jellinek-Zentrums für Ethik: Eröffnungsveranstaltung am 6. Oktober 2025 wendet sich auch an die interessierte Öffentlichkeit www.uni-heidelberg.de/de/newsroom/...
#universität #heidelberg #uniheidelberg #ethikzentrum #ethik #eröffnung

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Reposted by Ethics Institute Winkler

Deutscher Ethikrat @ethikrat.org · 8d

📅 Am 15.10. um 9:30 Uhr startet unsere Herbsttagung #WissenUndMacht – Wissenschaft in Politik & Gesellschaft

🎥 Speaker im Reel
💻 Vor Ort & im Livestream 👉 www.ethikrat.org/veranstaltun...

@ethicswinkler.bsky.social @jud1th.bsky.social @schroep.bsky.social @eddahumprecht.bsky.social

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Ethics Institute Winkler @ethicswinkler.bsky.social · 9d

New special issue out now!

The Sept 2025 issue of Ethik in der Medizin @aem-online.bsky.social explores ethical challenges in genomic newborn screening, including the two articles we recently spotlighted.

🔗 link.springer.com/journal/481/...

#Bioethics #Genomics #NewbornScreening

Ethik in der Medizin

Die Zeitschrift Ethik in der Medizin widmet sich der interdisziplinären wissenschaftlichen Erforschung und Vermittlung von Ethik in der Medizin in allen ...

link.springer.com

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Ethics Institute Winkler @ethicswinkler.bsky.social · 11d

🧠 #DAFIDUMER at #CoRDI2025 in Aachen @nfdi.de and at #EACME2025 in Zurich. It was great to present first results of our project on #data #fiduciaries in medical research! Thanks to all for the great feedback & discussions!

#DataEthics #Trust #Ethics #MedicalEthics

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Ethics Institute Winkler @ethicswinkler.bsky.social · 14d

Join us in the Great Hall for music, talks & a keynote by Prof. Dr. Thomas W. Simpson (University of Oxford), followed by a symposium on trust in different disciplinary contexts.

@uniheidelberg.bsky.social

#AcademicEvents #HeidelbergEvents #EthicsConference

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Ethics Institute Winkler @ethicswinkler.bsky.social · 14d

🎉 On Oct 6, Heidelberg University celebrates the opening of the Camilla and Georg Jellinek Center for Ethics!

👀 www.uni-heidelberg.de/de/einrichtu...

#MedicalEthics #Medizinethik #TranslationaleMedizinethik

Einladung zur feierlichen Eröffnung - Universität Heidelberg

Am 6. Oktober wird das Camilla-und-Georg-Jellinek-Zentrum für Ethik feierlich in der Aula der Alten Universität Heidelberg eröffnet.

www.uni-heidelberg.de

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Ethics Institute Winkler @ethicswinkler.bsky.social · 16d

🎤 Presenting at #EACME2025 in Zurich! Our talk on ethical frameworks for genomic newborn screening sparked great discussions.
#Genomics #Bioethics #NewbornScreening #ScienceInPractice

Karla Alex Presenting at #EACME2025 in Zurich!

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Reposted by Ethics Institute Winkler

Akademie für Ethik in der Medizin e.V. @aem-online.bsky.social · Sep 5

Jetzt neu in der AEM-Zeitschrift: Martin Jungkunz und Christoph Schickhardt präsentieren einen "kindzentrierte[n] Public Health Ansatz" zur "Ethik des genomischen Neugeborenenscreenings" dx.doi.org/10.1007/s004...

Ethics of genomic newborn screening—a child centered public health framework - Ethik in der Medizin

Background The screening of newborns for severe congenital diseases has been a success story since the 1960s. With the upsurge of genomic sequencing technologies, the question arises: Should genomic N...

dx.doi.org

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Ethics Institute Winkler @ethicswinkler.bsky.social · 21d

💡If genomic screening were to be performed on every newborn – what should it look like?
🏥 A new open-access article explores a child-centered ethical framework focused on health, family welfare & autonomy.
👀 link.springer.com/article/10.1...
@martin-jk.bsky.social

#Bioethics #Genomics

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Ethics Institute Winkler @ethicswinkler.bsky.social · 23d

See also the forthcoming talk of members of our NEW_LIVES group at the Annual Conferences of the German Academy for Ethics in Medicine (AEM) - Alex; Neth; Winkler: From Ethics to Practice: Ethical Framework and Best-Practice Recommendations for a Genomic Newborn Screening Program

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Ethics Institute Winkler @ethicswinkler.bsky.social · 23d

The article emerged from the BMFTR-funded research project NEW_LIVES: Genomic NEWborn screening programs - Legal Implications, Value, Ethics, and Society. More information on our website gnbs.ukhd.de

NEW_LIVES: Genomic Newborn Screening Programs: Universitätsklinikum Heidelberg

gnbs.ukhd.de

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Ethics Institute Winkler @ethicswinkler.bsky.social · 23d

This article is published in the context of the forthcoming special issue: “Ethische Herausforderungen des genomischen Neugeborenen-Screenings—Ethical Issues in Genomic Newborn Screening” issued by Eva Winkler and Sascha Settegast.

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Ethics Institute Winkler @ethicswinkler.bsky.social · 23d

📣Big news! Our new two-part publication on genomic newborn screening is officially out in the journal Ethik in der Medizin:

🟨Part I: mapping the ethical issues
🟩Part II: outlining a normative framework

🔗 Read them here:

doi.org/10.1007/s004...
doi.org/10.1007/s004...

Towards genomic newborn screening, part I: Mapping the ethical issues - Ethik in der Medizin

Definition of problem Newborn screening (NBS) is an internationally successful program for the secondary prevention of rare congenital diseases. At present, most of the target conditions in NBS are di...

doi.org

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Reposted by Ethics Institute Winkler

Akademie für Ethik in der Medizin e.V. @aem-online.bsky.social · Sep 3

Jetzt neu in der AEM-Zeitschrift: Settegast, Sascha; Alex, Karla, Dikow; Nicola, Mütze, Ulrike; Schnabel-Besson, Elena; Doll, Elena Sophia, u. a. (2025): Auf dem Weg zum genomischen Neugeborenen-Screening, Teil I: Kartierung der ethischen Problemfelder. dx.doi.org/10.1007/s004...

Towards genomic newborn screening, part I: Mapping the ethical issues - Ethik in der Medizin

Definition of problem Newborn screening (NBS) is an internationally successful program for the secondary prevention of rare congenital diseases. At present, most of the target conditions in NBS are di...

dx.doi.org

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Reposted by Ethics Institute Winkler

German National Research Data Infrastructure (NFDI) @nfdi.de · Aug 20

🏆 New #NFDI success story!

🧬 GHGA connects Germany to Europe’s genomic data networks (FEGA & GDI), enabling secure cross-border sharing of sensitive data while protecting privacy.

🌍 Driving research & healthcare innovation across Europe.

👉 www.nfdi.de/successstori...

#fdm #rdm #NFDIrocks

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Reposted by Ethics Institute Winkler

Deutscher Ethikrat @ethikrat.org · Aug 12

📢 Anmeldung eröffnet
Herbsttagung „Wissen und Macht – Wissenschaft in Politik & Gesellschaft“

Heidelberg & online
15. Okt. 2025, 9:30–17:30 Uhr

🔗 Anmeldung: www.ethikrat.org/veranstaltun...

#Ethikrat #WissenschaftUndMacht #Politik

@uniheidelberg.bsky.social @eddahumprecht.bsky.social @zew.de

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