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Eve

@evenicholls.bsky.social

1.4K followers 210 following 8.3K posts

Queer disabled quilter. She/her. Free Palestine. Neurodivergent? Queer? Joint pain? Go and read up on Ehlers Danlos Syndrome. Yes, even if you're not all that flexible these days. Even if it's not you, it's probably some of your friends.

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Eve @evenicholls.bsky.social · 23m

The offended ears!

Reposted by Eve

Debbie Moon @debbiemoon.bsky.social · 1d

"And headwear, sir?"
"My lesbian canal boater, I think, Jeeves. I'm feeling daring."

The Abominable Jonathan L. Howard @jonathanlhoward.bsky.social · 1d

"It is a truth universally acknowledged, that any publication owned by Rupert Murdoch, must inevitably descend into trite rage bait." Jane Austen, probably.

On the other hand, a "Lesbian Canal Boater" sounds like a rather dashing item of summer headwear.

Reposted by Eve

Quinn Rhodes (he/him) @onqueerstreet.bsky.social · 7h

For a piece about wearing a mask as an act of community care, I'm looking to talk to people in the UK (especially Scotland) who are still masking regularly!

If this is you, and you're up for answering some questions for me, please drop me an email me at [email protected]! #journorequest

Eve @evenicholls.bsky.social · 6h

Well done!

Eve @evenicholls.bsky.social · 8h

Isn't it always the way? And when you feel like a monster for taking them off the painful bit, too.

How's the healing going?

Eve @evenicholls.bsky.social · 1d

Meanwhile, my partner plays mountain dulcimer, and it seems that in the US the dulcimer players are all married to the quilters. So those groups are equally Problematic and full of "lol I hate my spouse" jokes.

Eve @evenicholls.bsky.social · 1d

Dunno, but they're smug about it. Here's an example, a blog post by someone boasting that she gave a baby quilt to neighbours, then *demanded it back* a few days later because it wasn't properly colour coded for the baby's genitals. But at least there are no cat photos!

Eve @evenicholls.bsky.social · 1d

I've seen so many appalling jokes about it in quilting groups, and it's one of the main reasons why I'll leave them. One banned photos of pets on quilts, but was fine with cartoons joking about the economic control.

Eve @evenicholls.bsky.social · 1d

They took diabetics off the eligibility list the week I was diagnosed type 1 diabetic this spring, incidentally. And that was probably kicked off by the suspected covid I'd had the year before.

Eve @evenicholls.bsky.social · 1d

I've got it right now, probably caught from the mobile vet on Monday despite masks, open windows and the air purifier on high. So far it's mild, which is something, but I'm mainly terrified of the damage it will leave behind. I'd just recovered enough to start going for very gentle walks.

Eve @evenicholls.bsky.social · 1d

Oh FFS, my (admittedly somewhat posh) school had a coach service running because the London suburbs are tricky that way, and I still used the tube and buses the rest of the time!

Eve @evenicholls.bsky.social · 1d

I don't want a book deal and tour for being autistic, anyway. Sounds exhausting.

Eve @evenicholls.bsky.social · 1d

I've been wondering which of the recent moderation lists you approved of!

Eve @evenicholls.bsky.social · 1d

A few years ago a young neighbour, wee babe in arms of 21, had been chatting with me in the communal garden for weeks before I found out she thought I was her age, and I'm actually older than her mum.

Eve @evenicholls.bsky.social · 1d

Yay! Good luck!

Eve @evenicholls.bsky.social · 1d

Thank you! Honestly it's not too bad. I'm mainly worried about the damage it may leave behind. And I was so enjoying going for walks, they'll need to be on hold for ages. But I can do wheelchair trips to the park as an interim thing.

Eve @evenicholls.bsky.social · 1d

That's absolutely not the norm here, no. The NHS pays for gynae care, but waiting lists vary depending on what it is. The waiting list for the menopause clinic is long.

She probably did, and I think they'd have told her not to worry. She was 43 the first time she had it, in her 70s the second time.

Eve @evenicholls.bsky.social · 1d

We are discussing whether Ninja will ritually ignore me when she gets me back. Robin reckons she'll do this while sitting on me, pointedly facing away.

Here's a video of her enjoying her latest walk with him. I'm going to miss joining those walks when I'm in post-covid potato mode for a few months.

Eve @evenicholls.bsky.social · 1d

(I'm resting up, probably more because my partner has taken the cat to his flat and will hopefully continue to test negative, so I'm not interacting with them.

Everyone keeps sending me advice on stuff to take! I've ordered nattokinase, may as well, but I'm fairly sure metformin would risk hypos.)

Eve @evenicholls.bsky.social · 1d

They drew up a family tree and said I didn't need genetic screening, my risk was visibly pretty low.

My GP does take my history into consideration with my HRT and so forth.

www.nice.org.uk/guidance/cg1...

I can afford to go private, yes.

Early detection of breast cancer by surveillance | Information for the public | Familial breast cancer: classification, care and managing breast cancer and related risks in people with a family histor...

www.nice.org.uk

Eve @evenicholls.bsky.social · 1d

I don't have a gynaecologist, and if I needed referral for something, the waiting lists can be long.

My mother had breast cancer twice. She got obsessed with the idea that I'd have it, which meant I got sent to the genetic screening clinic quite young.

Eve @evenicholls.bsky.social · 1d

The main things I'm missing right now are:

1. My two darlings, both safely at Robin's flat, and long may he continue to test negative. He's sending me kitty videos.

2. The smell of air unlaced with garlic. Normally I appreciate that mystery neighbour's cooking smells, but today? Nope.

Eve @evenicholls.bsky.social · 1d

Covid update: mostly feels like a cold. Heart rate closer to normal, actually got some decent sleep. Blood glucose fairly well behaved, ketones only 0.1.

Bit of a chesty cough today, here's hoping that clears off sharpish. (I had a horrendous cough for 2 months with suspected covid two years ago.)

Eve @evenicholls.bsky.social · 1d

I paid to have a DEXA scan ahead of the NHS schedule, and oh, look, osteopenia in my hip, what did I tell you. My GP had been very sympathetic when I told her that people with ME/CFS and EDS don't have good bone density, but it wasn't in the Official Guidelines so there was nothing she could do.

Eve @evenicholls.bsky.social · 1d

Er, first breast cancer screenings are at 50 in the UK, should I be going private and getting one earlier? Assuming I don't get set back to very housebound by the bout of covid I am currently enjoying.