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Hannah May Scott @hannahmayscott.bsky.social · Sep 6

@dystoniauk.bsky.social @cdauke.bsky.social @cerebralpalsyscot.bsky.social @rdrukhub.bsky.social @geneticallianceuk.bsky.social #dystonia #CerebralPalsy

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Hannah May Scott @hannahmayscott.bsky.social · Jul 31

And if anyone would like to read my thesis (Developing an implementation plan with theoretically-informed strategies for integration of the Children's Palliative care Outcome Scale into routine paediatric palliative care), it can be found here: kclpure.kcl.ac.uk/portal/en/st...

Developing an implementation plan with theoretically-informed strategies for integration of the Children's Palliative care Outcome Scale into routine paediatric palliative care

kclpure.kcl.ac.uk

Hannah May Scott @hannahmayscott.bsky.social · Jul 31

I had an absolutely wonderful day today graduating with my PhD in Palliative Care from @kingscollegelondon.bsky.social Thank you so much to my supervisors and all my collegues and friends at the Cicley Saunders Insitute and wider @kingsnmpc.bsky.social for their support throughout the journey!

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Hannah May Scott @hannahmayscott.bsky.social · Jul 15

The Dystonia IMPACT team are recruiting children & young people with dystonia & their parents to take part in interviews to find out what matters most to them.

Register your interest: tinyurl.com/DystoniaIMPACT

Or contact the team at [email protected]

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Hannah May Scott @hannahmayscott.bsky.social · Jun 26

📢 Calling all healthcare #hcp #ahp, #SocialCare, & #education-based professionals working with #children & #YoungPeople with hyperkinetic movement disorders #HMD including #Dystonia & dyskinetic/mixed #CerebralPalsy to take part in our Dystonia IMPACT survey:

➡️ tinyurl.com/532rxb9c

Hannah May Scott @hannahmayscott.bsky.social · Jun 26

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Hannah May Scott @hannahmayscott.bsky.social · Jun 26

Excited to be presenting our poster from our work as part of the Dystonia IMPACT study on “Enabling people from underrepresented groups to take #PPI roles in #paediatric #dystonia research” today at #EACD2025 #IAACD2025 at 9:40am CEST at poster screen 7

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Hannah May Scott @hannahmayscott.bsky.social · Apr 19

Developing a Theory of Change and Implementation Plan to implement a novel child- and family-centred outcome measure in paediatric palliative care - Hannah May Scott, Inez Gaczkowska, Debbie Braybrook...

Background: To achieve benefits of person-centred outcome measures within routine children’s palliative care, implementation plans and the intended pathways to ...

journals.sagepub.com

Hannah May Scott @hannahmayscott.bsky.social · Apr 19

4. Identify and prepare champions/implementation leads
5. Facilitate relay of clinical data to providers
6. Prepare patients and family members to be active participants, and obtain patient and family feedback

Read the full paper: journals.sagepub.com/doi/10.1177/...
@kingsnmpc.bsky.social
8/8 🧵

Developing a Theory of Change and Implementation Plan to implement a novel child- and family-centred outcome measure in paediatric palliative care - Hannah May Scott, Inez Gaczkowska, Debbie Braybrook...

Background: To achieve benefits of person-centred outcome measures within routine children’s palliative care, implementation plans and the intended pathways to ...

journals.sagepub.com

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Hannah May Scott @hannahmayscott.bsky.social · Apr 19

1. Develop a formalised implementation blueprint and mandate change
2. Change record systems and documentation
3. Develop effective education materials, conduct educational meetings and distribute educational materials (eg: youtu.be/0UMJdSAzz9U?... & youtu.be/wNeOWqFkz-Q?...) (7/8)

C-POS:UK for families of children and young people with life-limiting conditions

YouTube video by CSIKCL

youtu.be

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Hannah May Scott @hannahmayscott.bsky.social · Apr 19

From this work, and the previous findings of my systematic review (doi.org/10.1186/s129...) and qualitative interview study (doi.org/10.1177/0269...), key strategies were refined and comprehensively specified, forming a implementation plan: (6/8)

https://doi.org/10.1186/s12955…

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Hannah May Scott @hannahmayscott.bsky.social · Apr 19

Themes include: education & information needs, the importance of a tailored approach, stakeholder engagement & the role of champions, IT system support requirements, improved outcomes & experience of care & evidence for service provision, development, evaluation & expansion (5/8)

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Hannah May Scott @hannahmayscott.bsky.social · Apr 19

This was followed by a second phase of analysis using a Framework approach, underpinned by Normalisation Process Theory to enable identification of potential causal mechanisms underpinning implementation and normalisation of person-centred outcome measures into routine care (4/8)

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Hannah May Scott @hannahmayscott.bsky.social · Apr 19

The Theory of Change map developed explains the causal pathway for successful implementation of outcome measurement in #pedpc. We then consulted with a Young Person’s Advisory Group #PPI and study steering group to inform development of initial implementation strategies (3/8)

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Hannah May Scott @hannahmayscott.bsky.social · Apr 19

We conducted participatory workshops with health and social care professionals, parent/carers of children with life-limiting and life-threatening conditions, and bereaved parent/carers, analysed using a directed content analysis to develop a Theory of Change (2/8)

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Hannah May Scott @hannahmayscott.bsky.social · Apr 19

I’m excited to share the third and final paper from my #PhD: Developing a Theory of Change and Implementation Plan to implement a novel child- and family-centred outcome measure in paediatric palliative care. #pedpc Published in @palliativemedj.bsky.social journals.sagepub.com/doi/10.1177/... 1/8🧵

Developing a Theory of Change and Implementation Plan to implement a novel child- and family-centred outcome measure in paediatric palliative care - Hannah May Scott, Inez Gaczkowska, Debbie Braybrook...

Background: To achieve benefits of person-centred outcome measures within routine children’s palliative care, implementation plans and the intended pathways to ...

journals.sagepub.com

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Reposted by Hannah May Scott

Digesting Science @digestingscience.bsky.social · Jan 6

Have you taken part in a Digesting Science event as a family? 🧠🫶⚡️

We are looking for families who have come along to a Digesting Science event so we can talk to you to find out the lasting impact of coming along!

For more info, get in touch by sending us a DM or email [email protected] 🥳

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Hannah May Scott @hannahmayscott.bsky.social · Mar 23

Excited to be with @digestingscience.bsky.social at the @mstrustuk.bsky.social conference and looking forward to presenting my poster on families experiences of attending a Digesting Science event to learn about #MultipleSclerosis later in the speed dating session #MS

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Hannah May Scott @hannahmayscott.bsky.social · Feb 12

If you didn’t get chance to join the webinar today but want to find out more about the development of the implementation plan for C-POS:UK, my systematic review and qualitative data analysis papers are published open access:
Review: doi.org/10.1186/s129...
Qual paper: doi.org/10.1177/0269...

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Hannah May Scott @hannahmayscott.bsky.social · Feb 12

Really excited to be presenting at today’s @pcrscommittee.bsky.social webinar on the work from my @arc-southlondon.bsky.social funded PhD!

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Hannah May Scott @hannahmayscott.bsky.social · Feb 4

As my result has now been officially ratified I’m excited to share that last month I successfully defended my thesis and passed my viva with no corrections! #PhDSky @kingsnmpc.bsky.social

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Hannah May Scott @hannahmayscott.bsky.social · Jan 30

Really excited to be presenting the work from my PhD in the next @pcrscommittee.bsky.social webinar!

Palliative Care Research Society @pcrscommittee.bsky.social · Jan 30

Next PCRS Webinar
Developing an implementation plan for integrating a novel child and family centred outcome measure into hospital-based paediatric palliative care in the UK

🗓️Wednesday 12 February 2025
⏰13:15 – 14:15
👤Dr Hannah Scott

👉https://pcrs.org.uk/events/pcrs-webinar-february-2025/

Reposted by Hannah May Scott

Anne Finucane @annefinucane.bsky.social · Dec 16

Invitation: If you are a UK-based researcher, or clinician conducting palliative care research, please complete our brief survey to help funders understand what is needed to sustain and grow palliative care research in the UK. Now open until 12.1.25:

app.onlinesurveys.jisc.ac.uk/s/edinburgh/...

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