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HIV Outcomes - Beyond Viral Suppression @hivoutcomes.bsky.social · 1d

🧠 Today, for #WorldMentalHealthDay, we sound the alarm that the mental health of people living with HIV is heavily affected by stigma, often leading to discrimination, abuse, avoidance of healthcare services, and poorer HRQoL.

Action is needed; read more in our Good Practices: tinyurl.com/yj9nt383

Compendium of Good Practices

This is the Compendium of Good Practices landing page. Please do not remove it.

hivoutcomes.eu

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HIV Outcomes - Beyond Viral Suppression @hivoutcomes.bsky.social · 9d

🔜𝗪𝗼𝗿𝗹𝗱 𝗔𝗜𝗗𝗦 𝗗𝗮𝘆 𝗰𝗼𝗻𝗳𝗲𝗿𝗲𝗻𝗰𝗲 𝗶𝗻 𝘁𝗵𝗲 𝗘𝘂𝗿𝗼𝗽𝗲𝗮𝗻 𝗣𝗮𝗿𝗹𝗶𝗮𝗺𝗲𝗻𝘁

The EU is at a crossroads. It is a time for 𝗮 𝗻𝗲𝘄 𝗛𝗜𝗩 𝗿𝗲𝘀𝗽𝗼𝗻𝘀𝗲, promoting 𝗲𝗾𝘂𝗶𝘁𝘆 𝗯𝗲𝘁𝘄𝗲𝗲𝗻 𝗴𝗲𝗻𝗱𝗲𝗿𝘀 and across the 𝗹𝗶𝗳𝗲𝘀𝗽𝗮𝗻.

📅 Wednesday 10 December 2025
🕙 10:00 –12:00 CET
📍 European Parliament InfoHub, Brussels
🔗 Register here: shorturl.at/J1o0Z

HIV Outcomes - Beyond Viral Suppression @hivoutcomes.bsky.social · 11d

The #UNAIDS #UNGA side-event on people-centred primary care reminded us that vertical care models are not enough: integration is necessary for dignified, accessible, sustainable care. For people living and ageing with HIV, the inclusion of NCDs & MH in their care is crucial.

HIV Outcomes - Beyond Viral Suppression @hivoutcomes.bsky.social · 16d

Proposals to phase out #UNAIDS by 2026 are threatening decades of progress. With 40 million people living with HIV globally and funding certainty eroding, UNAIDS leadership is vital. There is no time for complacency – the EU must step up to ensure a strong HIV/AIDS response and meet the 2030 goal.

HIV Outcomes - Beyond Viral Suppression @hivoutcomes.bsky.social · 23d

People living with HIV are 2x more likely to develop CVDs and have a 50% higher risk of heart attack. 🫀

The upcoming #EUCardiovascularPlan must recognise and address HIV as a risk factor – read more in our response to the call for evidence: shorturl.at/ERHFV.

@ec.europa.eu

HIV Outcomes - Beyond Viral Suppression @hivoutcomes.bsky.social · 26d

Our response to the @ec.europa.eu’s consultation on the European Pillar of Social Rights Action Plan calls for action in 6 key areas important for people living with HIV: 🩺 healthcare, 🕰️ long-term care, 🏥 access to services, 🧑‍🧒 social protection, ♀gender equality, and 💼 work conditions.

HIV Outcomes - Beyond Viral Suppression @hivoutcomes.bsky.social · 29d

☀️ Summer is over – what have we got in store?

We're prepping for #EACS2025, to host a HRQoL meeting, and to mark #WorldAIDSDay with a @europarl.europa.eu discussion on gender-informed realities of living w/ HIV across the lifespan.

And don't forget to submit your good practices! shorturl.at/rHyNo

Reposted by HIV Outcomes - Beyond Viral Suppression

National AIDS Trust @nat.org.uk · Sep 1

For some people living with HIV, stigma can negatively impact:

🏥💊seeking treatment & attending health appointments
💕relationships
🧠mental health & seeking support for it

This doesn't need to happen. Learn more about what we do to tackle this:

nat.org.uk/what-we-d...

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HIV Outcomes - Beyond Viral Suppression @hivoutcomes.bsky.social · Aug 14

BBC News featured HIV Outcomes UK report, ‘HIV Services at the Crossroads.’

Cutting funding for voluntary services impedes our efforts to end the HIV epidemic by 2030. We cannot allow this trend to continue.

Full BBC article and clip 👉 shorturl.at/1ysSM
Full report 👉 shorturl.at/P85EK

@nat.org.uk

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HIV Outcomes - Beyond Viral Suppression @hivoutcomes.bsky.social · Jul 31

📣 Call for Good Practices in HIV Care!

Since 2018, our virtual Compendium has showcased practices that make a difference in the lives of people with HIV.

Got a standout initiative? Share it & inspire others!

📝 Submit it by 17 September: forms.gle/rbboxnNSQaBd...

More info: shorturl.at/7OdKD

HIV Outcomes - Beyond Viral Suppression @hivoutcomes.bsky.social · Jul 23

1 year since our Call for an EU Action Plan on HIV/AIDS.

Since, the global HIV response has been weakened when it needs to be reinforced. People living with HIV cannot be left behind!

🔎 Read more about our priorities and recommendations for EU policymakers: shorturl.at/Xt7Dm

#HRQoL #EndHIVStigma

HIV Outcomes Call to Action | Recommit to ending the AIDS epidemic by 2030: the need for a new EU Action Plan on HIV/AIDS

If Europe is to achieve the UNAIDS 2030 target for ending the HIV/AIDS epidemic, the new European institutions must play their part by renewing the EU’s committment to the fight against HIV/AIDS. H...

shorturl.at

HIV Outcomes - Beyond Viral Suppression @hivoutcomes.bsky.social · Jul 18

Call for Good Practices in HIV Care!

We're expanding our Good Practices Compendium and want input! shorturl.at/7OdKD

We're looking for innovative ways to improve the HRQoL of people living with HIV.

💡 Help us highlight what works and inspire change across Europe.
📝 Submit here: shorturl.at/rHyNo

Good Practice submission

Thank you for your interest in contributing to the HIV Outcomes Compendium of Good Practices, where we collate examples of initiatives, best practices, research projects and more which contribute to t...

forms.gle

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HIV Outcomes - Beyond Viral Suppression @hivoutcomes.bsky.social · Jul 8

People have been living and ageing with HIV for decades. There is a strong, global HIV community which, at this perilous time, must:

1. Together, make sure there is a future for all people living with HIV
2. Reconnect as a global community
3. Make allies across countries, sectors and organisations

HIV Outcomes - Beyond Viral Suppression @hivoutcomes.bsky.social · Jul 8

A very touching webinar with EATG spotlighted several initiatives to ensure healthy ageing with HIV.

Better communication between patients and clinicians, such as through #PROMs, would help clinicians understand the priorities of people living with HIV, especially the impact of stigma.

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HIV Outcomes - Beyond Viral Suppression @hivoutcomes.bsky.social · Jul 4

Reminder to register to Monday’s webinar! Empowering ageing and older people living with HIV: enduring gaps and emerging opportunities.

EATG has put together a really excellent panel, so make sure to tune in at 16:00 CEST.

🔗 Register here: shorturl.at/U0d5P

HIV Outcomes - Beyond Viral Suppression @hivoutcomes.bsky.social · Jun 27

Excited to participate in an EATG webinar: Empowering ageing and older people living with HIV: enduring gaps and emerging opportunities.

🗓️ 7 July (4pm CEST)
🔗 shorturl.at/U0d5P

People are living longer with HIV. We can empower them to become decision-makers in their own HIV care and ageing journey

HIV Outcomes - Beyond Viral Suppression @hivoutcomes.bsky.social · Jul 3

Great roundtable with EACS at the European Parliament.

Europe needs a more unified HIV response, with quality of life, ageing with dignity, mental health and freedom from stigma at its heart.

@eacsociety.bsky.social @krzysztofsmiszek.bsky.social @rbiedron.bsky.social @socialistsanddemocrats.eu

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HIV Outcomes - Beyond Viral Suppression @hivoutcomes.bsky.social · Jun 27

Excited to participate in an EATG webinar: Empowering ageing and older people living with HIV: enduring gaps and emerging opportunities.

🗓️ 7 July (4pm CEST)
🔗 shorturl.at/U0d5P

People are living longer with HIV. We can empower them to become decision-makers in their own HIV care and ageing journey

HIV Outcomes - Beyond Viral Suppression @hivoutcomes.bsky.social · Jun 25

We've submitted evidence to @ec.europa.eu's LGBTIQ equality strategy 🏳️‍🌈 shorturl.at/c242S

LGBTIQ+ communities are key pillars in the HIV response. We need the Strategy to:
🚫 Address stigma + discrimination
🩺 Promote #HRQoL
🧑‍🧒 Support long-term care
📉 Collect more data
🤝 Involve + sustain communities

HIV Outcomes - Beyond Viral Suppression @hivoutcomes.bsky.social · Jun 20

Thanks so much for hosting us @nat.org.uk!

You and our other in-country initiatives have done some outstanding work in advocating for the health-related quality of life of people living with HIV.

Keep up the good work 👏

National AIDS Trust @nat.org.uk · Jun 19

This week, we hosted the @hivoutcomes.bsky.social strategic meeting to strengthen collaboration across national and European #HIV initiatives.

With NAT providing the secretariat for HIV Outcomes UK, we shared insights and helped develop advocacy strategies with partners from the continent.

Participants of the H.I.V. Outcomes strategic meeting

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HIV Outcomes - Beyond Viral Suppression @hivoutcomes.bsky.social · Jun 17

📢 📢 Looking ahead, the second half of 2025 will be busy. The global HIV response demands unity, persistence, and strong advocacy from the community.

With #EACS25 and #WorldAIDSDay approaching, we will be fully engaged — driving change and working towards a HRQoL for all people living with HIV.

HIV Outcomes - Beyond Viral Suppression @hivoutcomes.bsky.social · Jun 17

Exciting day in London, as we hosted our colleagues across Europe, 🇮🇹IT 🇷🇴RO 🇳🇱NL & 🇬🇧UK. We discussed:

👉 the global HIV situation, where funding cuts threaten progress and millions of lives
👉 ongoing voluntary sector research
👉 our upcoming 10th anniversary
👉 Welcomed a new initiative – stay tuned!

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Reposted by HIV Outcomes - Beyond Viral Suppression

Garry Brough @garrybrough.bsky.social · Jun 12

Great presentation from James from @nat.org.uk about the findings of the @hivoutcomes.bsky.social research on the financial crisis facing the #HIV voluntary sector, who provide an essential complement to clinical care, particularly in providing #PeerSupport. #NHIVNA2025

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HIV Outcomes - Beyond Viral Suppression @hivoutcomes.bsky.social · Jun 13

𝗣𝗲𝗲𝗿 𝗮𝗻𝗱 𝗰𝗼𝗺𝗺𝘂𝗻𝗶𝘁𝘆 𝘀𝘂𝗽𝗽𝗼𝗿𝘁 𝗰𝗮𝗻 𝗯𝗲 𝗹𝗶𝗳𝗲-𝗰𝗵𝗮𝗻𝗴𝗶𝗻𝗴 – 𝗮𝗻𝗱 𝗶𝘁𝘀 𝗮𝗯𝘀𝗲𝗻𝗰𝗲 𝗱𝗲𝘃𝗮𝘀𝘁𝗮𝘁𝗶𝗻𝗴.

In Scotland, as well as across the UK and Europe, life-changing HIV services are under threat.

A new report, presented by @nat.org.uk, makes urgent recommendations to protect peer-support provisions.

shorturl.at/zyR6u

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HIV Outcomes - Beyond Viral Suppression @hivoutcomes.bsky.social · May 28

Thank you for sharing @doitldn.bsky.social - the situation is really critical as the voluntary sector tackles stark health inequalities often overlooked by mainstream services.

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HIV Outcomes - Beyond Viral Suppression @hivoutcomes.bsky.social · May 28

⏭️ What’s next?

There's a wide variety of PROMs tools available—but also a lack of consensus on what to measure + how to embed this into routine care.

Our members are working to build agreement on what matters most to measure and how PROMs can be meaningfully integrated into HIV care pathways.