IBDSuperHeroes
@ibdsuperheroes.bsky.social
61 followers 67 following 150 posts
#CrohnsDisease & #UlcerativeColitis support, #IBDawareness & fundraising 💜 https://linktr.ee/ibdsuperheroes 💜 🧫 We fund #IBDresearch via Bowel Research UK 🧬 💜 #IBD #Crohns #Colitis #Ostomy #Stoma #PatientAdvocacy #IBDAdvocacy 💜
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ibdsuperheroes.bsky.social
It’s #WorldMentalHealthDay. Living with #IBD takes its toll on both body and mind.

Read real stories of struggle, strength & what helps:
👉 buff.ly/ltOyegR

You don’t have to carry it alone. 💜 #MentalHealthMatters #IBDSuperHeroes #InvisibleIllness
ibdsuperheroes.bsky.social
💊What medications have you tried to alleviate your #IBD symptoms? 💉

#IBDSuperHeroes #Crohns #Colitis #CrohnsDisease #UlcerativeColitis #IBDawareness #IBDVisible #IBDBeyondBorders #MakingTheInvisibleVisible #InflammatoryBowelDisease #IBDWarrior #CrohnsColitis #LivingWithIBD #ItTakesGuts
ibdsuperheroes.bsky.social
Both experiences – and everything in between – are real, valid, and important.

Today, we honour all #ostomy warriors: those embracing it, those struggling with it, and those still coming to terms with it. You’re not alone, and your story matters.

#OstomateVoices #WOD2025 #IBDSuperHeroes
ibdsuperheroes.bsky.social
🌍 Today on #WorldOstomyDay, we’re raising awareness of the diverse realities of living with a #stoma.

For some in our #IBD community, it’s life-saving, liberating, and brings relief. For others, it can feel overwhelming, isolating, or a reminder of what’s been lost. 💜
ibdsuperheroes.bsky.social
Visit our website to find out more about #CrohnsDisease and #UlcerativeColitis! 🌐https://buff.ly/4fVRuPo

We cover symptoms, commonly related conditions, causes and more!

#IBDSuperHeroes #Crohns #Colitis #IBD #IBDawareness #IBDMyths #CutTheCrap #IBDHasNoBorders #MakingTheInvisibleVisible
ibdsuperheroes.bsky.social
#IBDSuperHeroes are passionate advocates for advancing #IBD treatment, management strategies, and ultimately finding a cure.🧫

Teaming up with @bowelresearchuk.bsky.social, we fund innovative projects to bring hope and progress to the community! Fundraise or donate buff.ly/4kWhKVM 💜
Reposted by IBDSuperHeroes
colostomyuk.bsky.social
Myth: A stoma ends your sex life.
Truth: Intimacy is still very possible — it’s about comfort, communication + finding what works for you.

This #StomaAware Day (4 Oct) we’re busting myths + smashing stigma www.colostomyuk.org/campaigns/st... #StomaMythbusters #StomaAware
ibdsuperheroes.bsky.social
From our FAQ and #IBDmyths section: tinyurl.com/IBDSH-FAQ

✨ Controlled inflammation in your digestive system does NOT mean you are well ✨
Having no active inflammation in your digestive system does not mean that someone is “well”.

#IBDSuperHeroes #Crohns #Colitis #CrohnsDisease #UlcerativeColitis
ibdsuperheroes.bsky.social
Did you know that our Facebook group is a treasure trove of #IBD knowledge, experiences, and support?

Join us and let's navigate this journey together: www.facebook.com/groups/ibdsuperheroes

#IBDSuperHeroes #Crohns #Colitis #CrohnsDisease #UlcerativeColitis #IBDawareness #CutTheCrap #IBDVisible
ibdsuperheroes.bsky.social
Together, we can learn from each other, uplift one another, and continue to grow stronger as a community.

Check out our community tips & experiences buff.ly/fmyvhad 💜

Let’s embrace our superpowers and shine a light on the realities of living with #IBD🌟

#IBDSuperHeroes #Crohns #Colitis
ibdsuperheroes.bsky.social
#ThursdayThoughts #ThankfulThursday #ThoughtfulThursday

No time for drama ✨

Learn more about #IBDSuperHeroes 💜 buff.ly/NkhYLeX

#Crohns #Colitis #IBD #CrohnsDisease #UlcerativeColitis #IBDawareness #CutTheCrap #IBDVisible #IBDHasNoBorders #MakingTheInvisibleVisible #InflammatoryBowelDisease
ibdsuperheroes.bsky.social
💡 Did you know? People with #IBD are more likely to be low in #VitaminD.
☀️ Autumn & winter make it even harder to maintain.

Our blog explains 👉 ibdsuperheroes.wordpress.com/2024/09/26/t...

#IBDSuperHeroes #Crohns #Colitis #IBD #CrohnsDisease #UlcerativeColitis #IBDawareness #CutTheCrap
Reposted by IBDSuperHeroes
tuxedobird.bsky.social
70 yo f, dx at 18, s pouch at 27. Sleep issues on and off for years. Currently on a 4 day streak of insomnia. May be due to schedule chg in depression meds. For me, crohns and depression have always gone hand in hand. Always avail. Ask me anything.
ibdsuperheroes.bsky.social
Did you know that living with #IBD increases the risk of #MentalHealth struggles? You don’t have to do it alone!
Check out the #IBDSuperHeroes MH support doc: buff.ly/xwVggZb 🧠

👥 Find a community to lean on
📚 Discover self-help strategies
📱 Access user-friendly MH apps

#Crohns #Colitis
ibdsuperheroes.bsky.social
#IBDSuperHeroes want to raise awareness of #InflammatoryBowelDisease and stamp out the stigma related to it, but we need your help to do this!

Head over to our site for #IBDawareness resources: buff.ly/cFSvoLK 📢

#Crohns #Colitis #IBD #CrohnsDisease #UlcerativeColitis #CutTheCrap #IBDVisible
ibdsuperheroes.bsky.social
Have you visited the "About #IBD" page on our website?🧑💻

We talk about symptoms, causes, types of #CrohnsDisease and #UlcerativeColitis, and more!

Check it out 🔗https://buff.ly/PXcCa2f

#IBDSuperHeroes #Crohns #Colitis #IBDawareness #IBDMyths #CutTheCrap #IBDHasNoBorders #MakingTheInvisibleVisible
ibdsuperheroes.bsky.social
In-person & virtual fundraising ideas 👇
🎮🚶♀️ buff.ly/gGfor1q 🧁🏃♂️

People with #IBD may not always be in the best health, so we've taken that into account when compiling our list. Some are challenging, some are fun, & some are just a bit weird…

#IBDSuperHeroes #Crohns #Colitis
ibdsuperheroes.bsky.social
Do you find that your #Crohns or #Colitis stops you getting a good night’s sleep?! 🛏️

Tell us about it! 😴

#IBDSuperHeroes #IBD #CrohnsDisease #UlcerativeColitis #IBDawareness #IBDVisible #IBDBeyondBorders #MakingTheInvisibleVisible #InflammatoryBowelDisease #IBDWarrior #CrohnsColitis
ibdsuperheroes.bsky.social
🎞 Did you know we have a film club?! 🍿

Every Sunday, we catch up to chat about a movie, and choose next week’s movie! Head to the #IBDSuperHeroes group event section for more info!

#Crohns #Colitis #IBD #CrohnsDisease #UlcerativeColitis #IBDawareness #CutTheCrap #IBDVisible #IBDHasNoBorders
ibdsuperheroes.bsky.social
If you're thinking it might be time to change your #IBD treatment but have no idea what your choices are, this list of #CrohnsDisease & #UlcerativeColitis treatment options should help! 💊 buff.ly/oSnT1hj 💉

Don't forget, you DO have a say in your treatment!

#IBDSuperHeroes #Crohns #Colitis
ibdsuperheroes.bsky.social
💭Ever feel like you have to pretend you're okay while battling #IBD?

You're not alone. Members of the community open up about the emotional toll of life with #Crohns and #Colitis, and what helps them through it.💜

👉 ibdsuperheroes.wordpress.com/2025/07/16/i...

💬 What helps you on tough days?
ibdsuperheroes.bsky.social
🚴 If you enjoy #cycling, why not join Bums on Bikes and cycle for @bowelresearchuk.bsky.social? Find a cycling challenge (worldwide or local) here www.bowelresearchuk.org/get-involved...

Don’t forget to join the #IBDSuperHeroes team to ensure donations fund #IBDresearch! linktr.ee/ibdsuperheroes 🚵
ibdsuperheroes.bsky.social
✨#IBDSuperHeroesMovement is now on YouTube ✨
Gentle, #accessible movement practices created with our #IBD community in mind.

Whether you’re looking to build strength, ground yourself, or find a little energy boost, there’s something for you.

👉 buff.ly/ViuLCki

#IBDSuperHeroes #YogaForIBD
ibdsuperheroes.bsky.social
#TGIF #FridayFeeling #FridayFun #FridayVibes #FearlessFriday

Friday is a day to finish your goals for the week. 🎊 It is a day to celebrate that which you set out to accomplish at the beginning of the week.🥳

Learn more about #IBDSuperHeroes 💜 buff.ly/AUleXxa

#Crohns #Colitis #IBD
ibdsuperheroes.bsky.social
From our FAQ and #IBDmyths section: buff.ly/GWISRB5

✨ You CAN be very sick and still look healthy and well ✨

There is a reason that #CrohnsDisease and #UlcerativeColitis are referred to as invisible illnesses....