ICUsteps Edinburgh
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icustepsedinburgh.bsky.social
ICUsteps Edinburgh
@icustepsedinburgh.bsky.social
ICUsteps Edinburgh is a group for ex-ICU patients, their families and friends, run by former ICU patients, relatives and health professionals. The purpose is to provide on-going support after discharge for those who have encountered critical illness.
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A very warm Welcome from ICUSteps Edinburgh who provide on-going support after discharge for those who have encountered critical illness
More information:
icusteps.org/support/edin...
twitter.com/ICUSEdinburgh
mastodon.scot/@icusedinburgh
A website to help your recovery:
www.criticalcarerecovery.com
The Critical Care Recovery website has been carefully developed to offer information, advice and support on recovery after Intensive Care. It's here for patients, friends and family members when you need it, 24/7.
edinburghroyalinfirmary.criticalcarerecovery.com
Royal Infirmary of Edinburgh
edinburghroyalinfirmary.criticalcarerecovery.com
November 5, 2025 at 5:34 PM
Care opinion: tell us your story - share your experiences of Scottish health and care services, good or bad. We pass your stories to the right people to make a difference.
www.careopinion.org.uk/services/nhs...
NHS Scotland
Feedback from patients and carers about NHS Scotland
www.careopinion.org.uk
November 5, 2025 at 5:28 PM
Good ICUsteps Edinburgh support meeting on 4 November. Topics: Our journey to ICU and how we are now; delirium, nightmares and hallucinations; ICU diaries, reviews and piecing together the timeline; what we're looking forward to, & the Annual General Meeting. Christmas dinner will be on 9 December.
November 5, 2025 at 5:12 PM
Walking Scotland

This week, skip the car for one short trip and walk or wheel instead. Jump in a puddle and maybe spot a rainbow or two. Don't let the rain stop you.

#PuddlePower
November 1, 2025 at 10:12 PM
Tom Duffin Photography

This Autumn might be the best one I've seen in Edinburgh if the fine weather keeps up
November 1, 2025 at 10:10 PM
#ICUThoughtForToday: You only live once, but if you do it right, once is enough. Mae West
November 1, 2025 at 10:07 PM
#ICUThoughtForToday: It is health that is real wealth. Not pieces of gold and silver. Mahatma Gandhi
November 1, 2025 at 10:05 PM
Good ICUsteps Edinburgh support meeting on 7 October. Topics: Our journey to ICU and how we are now; delirium; sleeplessness; tinnitus; therapy dogs; podcasts; fresh air; escapism and what we're looking forward to.
October 10, 2025 at 9:02 AM
NHS Lothian @NHS_Lothian

Meet the finalists for our Celebrating Success Best Example of Quality, Innovation, and Productivity Award! 🏆✨

As well as providing excellent care, these teams and individuals lead the way in developing new ways of working.
October 4, 2025 at 8:28 PM
The UK Sepsis Trust @UKSepsisTrust

Sepsis can be life-threatening, but knowing the signs can save lives.

Symptoms differ in adults, children, & infants under 5.

Learn more: sepsistrust.org/about-sepsis/
About sepsis
Sepsis is a life-threatening condition. It can lead to shock, multiple organ failure and even death if not recognised and treated promptly.
sepsistrust.org
October 4, 2025 at 8:26 PM
Nursing in Critical Care Journal @niccjournal

Post-Intensive Care Syndrome (PICS) remains a serious challenge for ICU survivors.

A new study followed patients for 3 months after ICU discharge and found that over 60% experienced some form of PICS.

📖 doi.org/10.1111/nicc...

#CriticalCareNursing
<em>Nursing in Critical Care</em> | BACCN Journal | Wiley Online Library
Background Patients discharged from the intensive care unit (ICU) can experience post-intensive care syndrome (PICS), which is comprised of cognitive, physical and psychological impairments. Aim T...
doi.org
October 4, 2025 at 8:24 PM
Kate Tantam (She/her) @TantamKate

“This group has allowed us all to talk about our rehab journeys and encourage and push each other to achieve”

#RehabMatters and everyone has a #RightToRehab
October 4, 2025 at 8:22 PM
#ICUThoughtForToday:

Health is not valued till sickness comes. Thomas Fuller
October 4, 2025 at 8:19 PM
#ICUThoughtForToday iThrive Edinburgh

Pause. Breathe in the fresh air. Breathe out the tension.
Reconnect with yourself, even for just a few deep breaths

Looking after your mental health can start with something small
Explore more gentle self-care ideas here: ithriveedinburgh.org.uk/self-help/tips
iThrive | Wellbeing tips
ithriveedinburgh.org.uk
October 4, 2025 at 8:18 PM
Scot Gov Health

MyCare, Scotland’s new health and social care online app, will be made available to everyone across Scotland from April 2026.

Find out more ➡️http://gov.scot/news/scotlands-new-health-and-social-care-app/
October 4, 2025 at 8:14 PM
#MyWeeICUPhotoExhibition #WOMENSART @womensart1
“I don't want no drummer. I set the tempo.” - Bessie Smith,
singer, aka Empress of the Blues #WomensArt #FridayFeeling
October 4, 2025 at 8:11 PM
Neil Gray MSP @neilcgray

It’s Organ Donation Awareness Week! While Scotland operates an “opt-out” system for organ and tissue donation, it is still vital that individuals make their wishes clear to avoid uncertainty at a difficult time.
Please register your decision organdonation.scot #LeaveNoDoubt
October 4, 2025 at 8:09 PM
#MyWeeICUArtGallery: Kristen Visbal Fearless Girl 2017
October 4, 2025 at 8:07 PM
#MyICUMusic: Nursing in Critical Care Journal

#Delirium remains one of the most challenging complications in #CriticalCareNursing. Could music hold the key?

This study shows that music interventions significantly reduce delirium risk in ICU patients. #MusicTherapy

🔗 doi.org/10.1111/nicc...
October 4, 2025 at 8:04 PM
#MyWeeICUArtGallery #WOMENSART

Artists Lauren Dicioccio’s hand stitched portrait of Elizabeth Moss as Offred from the adaptation of Margaret Atwood's novel 'The Handmaid's Tale', a work containing the famous quote “Nolite te bastardes carborundorum"
Don't let the bastards grind you down
October 4, 2025 at 7:58 PM
Were you in ICU, or are you a relative of someone who was? If so, the Intensive Care Society wants to hear from you, the patients and families, about your experiences of ICU, in order to identify their top research priorities. Take part here: bit.ly/JLAPSP-ICU
Help shape the future of intensive care research
Take this survey powered by surveymonkey.com. Create your own surveys for free.
bit.ly
September 19, 2025 at 5:57 PM
Good ICUsteps Edinburgh support meeting on 2 Sept. Topics: Our journey to ICU and how we are now; difficulty in coming to terms with how ill we really were; delirium and piecing the ICU story timeline together; difficulties physical and mental; and what we're looking forward to.
September 3, 2025 at 4:19 PM
Alasdair MacLullich @A_MacLullich

“The nurse who explained every procedure was the only ‘good guy’ in my #delirium story.”

-- Delirium survivor

Be that nurse. Be that doctor. Be that therapist.
September 3, 2025 at 12:20 PM
Mental Health Foundation @mentalhealth

Physical activity can reduce the symptoms of depression, as well as boost your energy and self-esteem and reduce stress.

But it can be hard to get physically active when you’re experiencing depression.

Read our tips on how to get moving more: bit.ly/4lO0M0I
Boost your mental health by moving more
This guide will give you some ideas to move more for your mental health as well as tips on how to get the best mental health benefit from the movement you’re doing.
bit.ly
September 3, 2025 at 12:17 PM
paul henderson @paulhendohibs32

Today I’ve been mostly at the Edinburgh book festival promoting my book “They’re trying to kill me” it was right beside a book about a couple of well known singers in the Beatles.
September 3, 2025 at 12:15 PM