Innovation in Health Information System unit
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ihisunitsciensano.bsky.social
Innovation in Health Information System unit
@ihisunitsciensano.bsky.social
Unit of @sciensano.bsky.social, the Belgian Institute of Public Health. Our mission is to facilitate the secondary use of health information for research and evidence based health policies in Europe, in Belgium and in Sciensano.
🧐 In the context of the BePIN (Belgian Pandemic Intelligence Network) project, we have examined how scientific evidence informed decision making during the #COVID19 crisis in Belgium and beyond.
📑 This was presented in a great poster by our colleague Miriam Saso at #EPH2025. ⬇️
November 14, 2025 at 1:04 PM
Great start to the European Public Health Conference in Helsinki 🇫🇮 with a preconference session on the #EHDS, co-organised with @sciensano.be, the Belgian Health Data Agency, Belgian Federal Public Service, Austrian Public Health Institute, Luxembourg National Data Service and @tehdas.eu. #EPH2025
November 11, 2025 at 8:45 AM
Discover our latest findings from Iceland 🇮🇸 on digital systems for health threat detection and response, supporting interoperability with the EU Health Emergency Preparedness and Response Authority (HERA).
👉 zenodo.org/records/1752...
November 5, 2025 at 4:01 PM
🙂 Meet our team today and tomorrow at the #SNOMEDCTExpo 2025, in Antwerp!
We are at the European Projects Pavilion, representing the Joint Action @tehdas.eu. The @quantumproject.bsky.social is there — a project we’re proud to contribute to as well!
🔗 www.snomed.org/snomedct-expo
October 23, 2025 at 2:17 PM
🇪🇺 The European Health Data Space (#EHDS) is taking shape.
🗣️ Have your say!
Under the lead of @sciensano.be, the @tehdas.eu joint action has opened a public consultation (30 Sept–30 Nov 2025) on 11 draft guidelines and technical specifications.
➡️ tehdas.eu/public-consu...
October 10, 2025 at 12:20 PM
👉 Guideline on dataset description duties in the European Health Data Space #EHDS published!
🔗 tehdas.eu/wp-content/u...

We developed it for @tehdas.eu, offering support for #healthdata holders who will need to describe and make datasets available for secondary use under the #EHDS Regulation.
October 6, 2025 at 7:55 AM
📢 🇧🇪 Invitation to Belgian stakeholders!

🇪🇺 The European Health Data Space is taking shape.
Join us on 16 Oct (15:30–17:30) for a briefing: Practical guidance for the #EHDS consultation. Discover @tehdas.eu draft guidelines & prepare your input.

👉 Register here! sciensano.webex.com/weblink/regi...
September 29, 2025 at 2:52 PM
🇪🇺 Big step for the European Health Data Space #EHDS!
HealthDCAT-AP, the metadata standard developed by our @sciensano.be unit & partners, has been transferred to the European Commission @ec.europa.eu to ensure its long-term maintenance.
👉 healthdataeu.pages.code.europa.eu/healthdcat-a...
HealthDCAT-AP Release 5
healthdataeu.pages.code.europa.eu
September 26, 2025 at 2:51 PM
📨 The first newsletter of the project SHAIPED is out!
Your gateway to updates from one of Europe’s flagship initiatives at the intersection of #healthdata governance, #AI regulation, and medical innovation!
👉 mailchi.mp/73c46986de93...
July 2, 2025 at 10:13 AM
🧩 Last week at @ulbruxelles.bsky.social, BE-PIN partners met to connect researchers, policymakers, experts in pandemic preparedness, to rethink how we deal with future health crises.
@sciensano.be backs co-creation & data-driven action for stronger future responses.
👉 www.pandemicintelligence.be
June 30, 2025 at 1:20 PM
Earlier this month, we were glad to join the PREPARE-EU Spring School, hosted by KULeuven, to connect on #pandemicpreparedness and research.
Our colleagues Miriam Saso & Shona Cosgrove presented their poster on building resilient intelligence networks in 🇪🇺, based on our work in the BE-PIN project.
June 26, 2025 at 9:05 AM
📣 Don't miss this interesting upcoming webinar organised by the #xShare project in which @sciensano.be is involved. The event will shed light on the importance to work on a better alignment between #healthdata models and standards used in clinical care and #publichealth.
👉 ehtel.eu/events/11-ev...
June 4, 2025 at 2:46 PM
Excited to be part of #SHAIPED, a 🇪🇺 project aiming to facilitate the access to #healthdata for #AI -based medical devices.
@sciensano.be leads WP3 on tools & services needed under the European Health Data Space #EHDS.
🎥 Watch our colleague Pascal explain: youtu.be/aN1Vn7TwFgs
More info 🔗 shaiped.eu
A European space for AI in healthcare : the SHAIPED project kicks-off
YouTube video by Health Data Hub
youtu.be
June 4, 2025 at 2:25 PM
Reposted by Innovation in Health Information System unit
👋 Welcome to QUANTUM on BlueSky!
We are enhancing health data quality across Europe with a Data Quality & Utility Label supporting the EHDS.
Join us in building a trustworthy health data ecosystem.
🔗 quantumproject.eu
#HealthData #DataQuality #EHDS
May 21, 2025 at 8:43 AM
Reposted by Innovation in Health Information System unit
The recording of our last patients and citizen forum session is now online!

We discussed on how a quality label can build trust and encourage data sharing, with real-life patient perspectives on the power of data in shaping care.

👉 www.youtube.com/watch?v=TfDc...
"Why should I care?" QUANTUM patients & citizens forum session 2 - Benefits of Health Data Labelling
YouTube video by QUANTUM - The Health Data Quality Label
www.youtube.com
May 26, 2025 at 4:18 PM
Interesting event tomorrow!

Organised by the xShare project, it will present how the European Health Data Space, the European Electronic Health Record Exchange Format (EEHRxF) and the xShare Yellow Button can put citizens in control of their #healthdata.

👉 xshare-project.eu/adoption_kit... #EHDS
Click and xShare: Transforming Health Data Access for patients in Europe - The Yellow Button experience within the European Health Data Space - xShare
Read the Terms and Privacy Policy.
xshare-project.eu
May 27, 2025 at 9:40 AM
🗣️ Our colleague Claudio Proietti Mercuri will be speaking at the HELT talks, tomorrow, in the VUB campus. He will explore the evolving role of #dataquality in the secondary use of #healthdata, especially under the European Health Data Space (#EHDS) regulation.

ℹ️ hall.research.vub.be/helt-talks-6
May 8, 2025 at 8:57 AM
How did we contribute to develop a new metadata standard for #healthdata in Europe?
⏯️Discover the Health DCAT-AP standard with our colleague Pascal Derycke, Data Engineer at @sciensano.be, and Natalia Żylińska-Puta (@ec.europa.eu): youtu.be/y4RMGViB6wM?... #EHDS
#EHDS "Health DCAT-AP metadata standard" | HealthData@EU Pilot
YouTube video by Health Data Hub
youtu.be
April 4, 2025 at 9:36 AM
In the end of last year, our colleague Pascal Derycke, together with the @ec.europa.eu presented the European Health Data Space and the new Health DCAT-AP metadata standard in a data.europa academy webinar which is now accessible online! #EHDS #healthdata
📹 www.youtube.com/watch?v=gEDz...
'Data spaces: experience from the European Health and Common Energy data spaces' data.europa academy
YouTube video by Publications Office of the European Union
www.youtube.com
February 27, 2025 at 11:10 AM
Reposted by Innovation in Health Information System unit
What is the goal of the TEHDAS2 guideline for data holders on data description and who will it benefit?

Hear from @nienkeschutte.bsky.social of @ihisunitsciensano.bsky.social

This draft guideline is open for public consultation until this Friday, 28 Feb: tehdas.eu/public-consu...

#HealthUnion
February 26, 2025 at 1:56 PM
Reposted by Innovation in Health Information System unit
TEHDAS2 has worked on a draft guideline on data description to help health data holders comply with #EHDS metadata requirements.

We spoke with @nienkeschutte.bsky.social of @ihisunitsciensano.bsky.social about the guideline, now open for public consultation: tehdas.eu/news/improvi...
“Improving metadata records within the EHDS makes health data easier to find, understand and reuse” – Interview with Dr Nienke Schutte, Sciensano  - Tehdas
Nienke Schutte, PhD, leads the Innovation in Health Information Systems unit at Sciensano. We spoke with her about the TEHDAS2 draft guideline for data holders on data description – one of the first k...
tehdas.eu
February 19, 2025 at 6:14 PM
At the occasion of the #EHTEL 25th anniversary event, our head of unit @nienkeschutte.bsky.social gave a presentation on: "Leveraging the EHDS: advancing public health and citizen impact."

📹 The recording is now available! www.youtube.com/watch?v=ioQv...
Leveraging the EHDS: advancing public health and citizen impact | Nienke Schutte
YouTube video by EHTEL
www.youtube.com
February 13, 2025 at 2:23 PM
Do you work with #healthdata?

#TEHDAS2 joint action invites feedback on draft guidelines and technical specifications that support the implementation of the newly adopted European Health Data Space #EHDS regulation. Don’t miss this opportunity to have your say! tehdas.eu/news/public-...
Public consultation opens on guidelines for harmonising health data use in Europe - Tehdas
TEHDAS2 invites stakeholders to provide feedback on draft documents that will inform the implementation of the European Health Data Space (EHDS). TEHDAS2 joint action has launched a 30-day public cons...
tehdas.eu
February 12, 2025 at 9:47 AM