Ian
@ipilko.bsky.social
Disability rights activist, talking hard to hear truth to power & holding them accountable. Warm polite nag, better w/caffeine. Vale octogenarian 4ever stubborn
Struggling to manage my pain, utter complete exhaustion layered with extreme fatigue. Well beyond tears on the pain scale.
This is a multi day flare up.
This is a multi day flare up.
November 7, 2025 at 2:12 AM
Struggling to manage my pain, utter complete exhaustion layered with extreme fatigue. Well beyond tears on the pain scale.
This is a multi day flare up.
This is a multi day flare up.
My body is being a jerk, it’s freaking out my medical team and I.
November 5, 2025 at 8:52 AM
My body is being a jerk, it’s freaking out my medical team and I.
Looking like I need to move here from
The bad place, gosh it REALLY has become a cesspool especially in the last few hours/days. “Freedom of speech” if views aline with platform owner….
The bad place, gosh it REALLY has become a cesspool especially in the last few hours/days. “Freedom of speech” if views aline with platform owner….
October 6, 2025 at 8:15 AM
Looking like I need to move here from
The bad place, gosh it REALLY has become a cesspool especially in the last few hours/days. “Freedom of speech” if views aline with platform owner….
The bad place, gosh it REALLY has become a cesspool especially in the last few hours/days. “Freedom of speech” if views aline with platform owner….
on my soapbox again, "Before sending this feedback, I have read your Community Engagement Plan 2025/26 and remind you of your action plan item of inclusion."
October 3, 2025 at 9:52 PM
on my soapbox again, "Before sending this feedback, I have read your Community Engagement Plan 2025/26 and remind you of your action plan item of inclusion."
Well well well!
I’ve been asked if I’m media trained….. well now I actually am!
(Apparently i presented in a recent interview as media trained, until today i wasn’t formerly!!!)
Watch this space…
I’ve been asked if I’m media trained….. well now I actually am!
(Apparently i presented in a recent interview as media trained, until today i wasn’t formerly!!!)
Watch this space…
October 3, 2025 at 10:40 AM
Well well well!
I’ve been asked if I’m media trained….. well now I actually am!
(Apparently i presented in a recent interview as media trained, until today i wasn’t formerly!!!)
Watch this space…
I’ve been asked if I’m media trained….. well now I actually am!
(Apparently i presented in a recent interview as media trained, until today i wasn’t formerly!!!)
Watch this space…
So I've finally been able to download my first ever #NDIS forplan from myndisportal.
The plan has been written and funded as per the meeting.
I am lost of words, that and I can't see from the tears of relief streaming downn my face.
Absolutely life changingg.
The plan has been written and funded as per the meeting.
I am lost of words, that and I can't see from the tears of relief streaming downn my face.
Absolutely life changingg.
September 11, 2025 at 12:18 PM
So I've finally been able to download my first ever #NDIS forplan from myndisportal.
The plan has been written and funded as per the meeting.
I am lost of words, that and I can't see from the tears of relief streaming downn my face.
Absolutely life changingg.
The plan has been written and funded as per the meeting.
I am lost of words, that and I can't see from the tears of relief streaming downn my face.
Absolutely life changingg.
I have a complicated few days ahead. I’m already having unhelpful trauma/ptsd flash backs. Critical (crunch point) is Saturday afternoon/night. I may or may not post/share, focused on pure survival…
August 14, 2025 at 8:05 AM
I have a complicated few days ahead. I’m already having unhelpful trauma/ptsd flash backs. Critical (crunch point) is Saturday afternoon/night. I may or may not post/share, focused on pure survival…
Heading home in tears from the absolute disaster of an evening. Worst accessibility cumulative personal experience anywhere in the world.
August 1, 2025 at 10:44 AM
Heading home in tears from the absolute disaster of an evening. Worst accessibility cumulative personal experience anywhere in the world.
You know you've online shopped hard, when Startrack send you a truck with a powered tailgate and the truck reverses in!
July 22, 2025 at 4:31 AM
You know you've online shopped hard, when Startrack send you a truck with a powered tailgate and the truck reverses in!
I'm trying to find a new #GP in the North Eastern Suburbs of #Adelaide I'm a disability support pensioner with a unique history/case mix. Multiple doctors/specialists say I'm a career standout patient (probably not a good thing) The cost to "interview" to check compatibility...
July 17, 2025 at 12:56 PM
Only ever had HFC/FTTN @NBN_Australia until a few days ago when I upgraded to "full fibre" #FTTP the low latency of fibre is amazing, the additional speed to handy, but the responsiveness of #EVERYTHING# is impressive. Finally giving my full @Ubiquiti #UNIFI #UDMPRO a solid workout!
July 12, 2025 at 11:01 AM
Only ever had HFC/FTTN @NBN_Australia until a few days ago when I upgraded to "full fibre" #FTTP the low latency of fibre is amazing, the additional speed to handy, but the responsiveness of #EVERYTHING# is impressive. Finally giving my full @Ubiquiti #UNIFI #UDMPRO a solid workout!
Massive day ahead tomorrow going to “suit up” with a neck tie,‘I’ve narrowed it down to these….
July 5, 2025 at 11:53 PM
Massive day ahead tomorrow going to “suit up” with a neck tie,‘I’ve narrowed it down to these….
How on earth am I so time poor?
June 16, 2025 at 2:37 AM
How on earth am I so time poor?
"Desserts, Sewing, Business, Management" Did you set this up @liangrhea.bsky.social spotted in @rundlemall #Adelaide #Library #CityOfAdelaide
June 7, 2025 at 10:25 AM
"Desserts, Sewing, Business, Management" Did you set this up @liangrhea.bsky.social spotted in @rundlemall #Adelaide #Library #CityOfAdelaide
Got myself stuck in a shopping centre/area I’m not familiar with. Managed to get some over the counter support from a pharmacy but yikes…
June 7, 2025 at 5:47 AM
Got myself stuck in a shopping centre/area I’m not familiar with. Managed to get some over the counter support from a pharmacy but yikes…
Had someone recently mention in relation to personal energy/capacity “I’m running on fumes” my only thought of what comes next? I’m not running on fumes I’m looonnnggggg past that!
June 4, 2025 at 7:48 AM
Had someone recently mention in relation to personal energy/capacity “I’m running on fumes” my only thought of what comes next? I’m not running on fumes I’m looonnnggggg past that!
Took a decent tumble in the early hours of yesterday morning, I've got to find a better way of falling if that's what I'm going to keep doing. I can't sit right now due to pain, it's a pain in the arse! (literally!)
May 26, 2025 at 4:33 AM
Took a decent tumble in the early hours of yesterday morning, I've got to find a better way of falling if that's what I'm going to keep doing. I can't sit right now due to pain, it's a pain in the arse! (literally!)
#movinghouse
Starting to understand why I'm so mentally and physically beyond exhausted. Month to date, I've driven 1324.7km, not including taxis, plus the two hire-by-the-hour larger vehicles I've used. Ultimate juggling act with chronic health issues, which are made worse by "overdoing it" 1/
Starting to understand why I'm so mentally and physically beyond exhausted. Month to date, I've driven 1324.7km, not including taxis, plus the two hire-by-the-hour larger vehicles I've used. Ultimate juggling act with chronic health issues, which are made worse by "overdoing it" 1/
May 22, 2025 at 11:55 AM
#movinghouse
Starting to understand why I'm so mentally and physically beyond exhausted. Month to date, I've driven 1324.7km, not including taxis, plus the two hire-by-the-hour larger vehicles I've used. Ultimate juggling act with chronic health issues, which are made worse by "overdoing it" 1/
Starting to understand why I'm so mentally and physically beyond exhausted. Month to date, I've driven 1324.7km, not including taxis, plus the two hire-by-the-hour larger vehicles I've used. Ultimate juggling act with chronic health issues, which are made worse by "overdoing it" 1/
Anyone else a Desky fan?
I’ve ordered a few samples to physically help me work out what to order.
The far left is “Finish: Pheasant” the rest should be fairly clear.
The decision fatigue is real, big few weeks ahead!
I’ve ordered a few samples to physically help me work out what to order.
The far left is “Finish: Pheasant” the rest should be fairly clear.
The decision fatigue is real, big few weeks ahead!
May 1, 2025 at 2:17 AM
Anyone else a Desky fan?
I’ve ordered a few samples to physically help me work out what to order.
The far left is “Finish: Pheasant” the rest should be fairly clear.
The decision fatigue is real, big few weeks ahead!
I’ve ordered a few samples to physically help me work out what to order.
The far left is “Finish: Pheasant” the rest should be fairly clear.
The decision fatigue is real, big few weeks ahead!
Very close to literally signing a miracle opportunity. Look forward to sharing the update when it’s actually real.
April 29, 2025 at 12:28 PM
Very close to literally signing a miracle opportunity. Look forward to sharing the update when it’s actually real.
This seems quite ironically poetic,
Would have been even more so had the wheels fallen off!
Would have been even more so had the wheels fallen off!
April 29, 2025 at 3:20 AM
This seems quite ironically poetic,
Would have been even more so had the wheels fallen off!
Would have been even more so had the wheels fallen off!
Don’t begin to think I’m immune to having IT issues.
Bought a new label printer for the move and went a bit fancy and started off backfiring.
Machine “auto detects” what labels you put in it, until it doesn’t.
Bought a new label printer for the move and went a bit fancy and started off backfiring.
Machine “auto detects” what labels you put in it, until it doesn’t.
April 16, 2025 at 5:42 AM
Don’t begin to think I’m immune to having IT issues.
Bought a new label printer for the move and went a bit fancy and started off backfiring.
Machine “auto detects” what labels you put in it, until it doesn’t.
Bought a new label printer for the move and went a bit fancy and started off backfiring.
Machine “auto detects” what labels you put in it, until it doesn’t.
I need to move house urgently. I have an inspection of where I hope to move to on Thursday. How I physically move? NFI I can barely self physically move/think right now…. #help
April 13, 2025 at 6:45 AM
I need to move house urgently. I have an inspection of where I hope to move to on Thursday. How I physically move? NFI I can barely self physically move/think right now…. #help
Had 5 paramedics visit me late Monday night (very early AM Tuesday)to extricate me under c-spine precautions after a fall. 2hrs on the floor, Ramped for 3hrs, 10hrs forced laying on my back. Thankfully nothing broken, incredibly sore still.
March 26, 2025 at 5:29 AM
Had 5 paramedics visit me late Monday night (very early AM Tuesday)to extricate me under c-spine precautions after a fall. 2hrs on the floor, Ramped for 3hrs, 10hrs forced laying on my back. Thankfully nothing broken, incredibly sore still.
I'm going to subtweet myself "If I told you, you wouldn't believe me" ain't life fcked.
March 24, 2025 at 5:56 AM
I'm going to subtweet myself "If I told you, you wouldn't believe me" ain't life fcked.