Just out - letter in @JAMAInternalMed led by @joannamdavies.bsky.social

“Understanding the risks that MAiD [assisted dying] may pose to individuals living in vulnerable situations … should be a priority.”

Very happy that our final paper from the OPTIMAL-Care study is out in BMC Medicine!

This multi-method study, brilliantly led by Matthew Allsop, examines the optimal development, implementation & evaluation of digital advance care plans (EPaCCS).

bmcmedicine.biomedcentral.com/articles/10....

Always the way!

This work with @katherinesleeman.bsky.social and @flissmurtagh.bsky.social shows how we can use routine data to understand causes and help find ways to address inequality in palliative and end of life care

For people who died from cancer, those living in more deprived areas were more likely to live alone and this partly explained why they were more likely to die in hospital. Improving support for people living alone in more deprived areas is a potential way to reduce inequalities in place of death.

It’s well known that people who live in more deprived areas are more likely to die in hospital, but our analysis shows that this depends on cause of death – we see a gradient for people who die from cancer, dementia and ‘other’ causes, but not for respiratory, cardiovascular and sudden causes

We have been describing the association between area-based deprivation and place of death for 30 years but we know little about causes and moderators or how to reduce inequalities. Our new paper in SSM Pop Health investigates with some surprising results...
👇👇👇
www.sciencedirect.com/science/arti...

📢 Join us later today for our evening seminar with Dr Naomi Richards from University of Glasgow
‘Death is no equaliser - social injustice at the end of life'
📅 26th March 2025
🕓 16:00 – 17:00
📍 Hybrid event, online and in person at the Cicely Saunders Institute
www.tickettailor.com/events/facul...

"How can leaders make evidence informed decisions if there is no evidence?"

A US researcher in the federal system talks about what the past few weeks have been like, as data have been pulled and colleagues put on administrative leave
www.bmj.com/content/388/...

Join us 1-2 6th March for our International Women’s Day talk from Liesbeth Van Vliet on how communication can help and harm in serious illness.

Sign up (for free) 👇👇👇https://buytickets.at/facultyofnursingmidwiferypalliativecarekingscollegelondon/1548191

#IWD25 #peol #womeninscience #CSI #KCL

Massive thank you to first author Rehaan Husain, medical student and King’s Undergraduate Research Fellow (KURF) who worked incredibly hard to deliver this work!

Examples of best practice include using reasonable adjustments and job crafting to support staff to continue working and leave with dignity when the time is right.

Just 8 had sickness policies that mention terminal illness explicitly, and only 5 had a dedicated terminal illness policy.

No policy addressed support for staff on fixed-term contracts who make up a major part of the HE workforce.

We reviewed support across the 24 Russel group universities to get a snapshot of provision in the HE sector. We found significant gaps and variation in support offered to staff living with terminal illness…

Our project on support in the workplace for staff with terminal illness has won joint runner-up for the Joanna Mugridge poster prize 🥈! Thank you #MCresearch2025 for recognising this work, and to our collaborators #CIPD #whatworkwellbeing & #mariecurie

Thank you @donnawakefield.bsky.social - the short link has failed! Thanks for sharing a working one :)

spcare.bmj.com/content/earl...

Our new Editorial in BMJ Supportive and Palliative Care on inequity and inequality in palliative and end of life care, and smarter use of routine data to measure and monitor inequalities, and to inform decision-making.
👇👇👇

*We could use #bigdata more effectively to deliver fairer palliative and end-of-life care* Priorities incl' using data to: 1. understand causes of inequality, 2. test what works to reduce inequality, 3. monitor service delivery. Editorial in #bmjspcare shorturl.at/AG2PR @katherinesleeman.bsky.social

My letter in today’s Guardian on last weeks oral evidence sessions for the assisted dying bill - and how they left us with more questions than answers (including a big one)…

My brilliant friend @sjblakemore.bsky.social has written about her dad, Sir Colin Blakemore, his diagnosis of MND, his desire for an assisted death and his experience of palliative care.
Beautiful piece, full of love, that tells us assisted dying is complex, and death - un’assisted’ - can be gentle❤️

Facilitators of high quality out-of-hours care include: a palliative care specific single point of access for patients; formal structures to integrate generalist/specialist services; and timely/skilled management of symptoms

journals.sagepub.com/doi/full/10....

#hapc
#PalliativeCare
#hpm

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