Johan Prevot
@johanprevot.bsky.social
Executive Director at IPOPI. All views strictly personal.
Reposted by Johan Prevot
IPOPI welcomes the positive CHMP opinion recommending EU marketing authorisation for Waskyra™, a groundbreaking ex vivo gene therapy for Wiskott-Aldrich Syndrome.
For more information: ipopi.org/ema-waskyra-...
For more information: ipopi.org/ema-waskyra-...
IPOPI Applauds EMA’s Positive Opinion on Waskyra™ for Wiskott-Aldrich Syndrome - IPOPI
IPOPI welcomes the EMA’s positive opinion on Waskyra™, a breakthrough gene therapy bringing new hope to patients with Wiskott-Aldrich Syndrome.
ipopi.org
November 17, 2025 at 10:10 AM
IPOPI welcomes the positive CHMP opinion recommending EU marketing authorisation for Waskyra™, a groundbreaking ex vivo gene therapy for Wiskott-Aldrich Syndrome.
For more information: ipopi.org/ema-waskyra-...
For more information: ipopi.org/ema-waskyra-...
Reposted by Johan Prevot
#IPIC2025 kicked off with great energy! 🙌
From check-in to the first sessions, the enthusiasm was contagious.
Here are some of our favourite shots from Day 1 📸
From check-in to the first sessions, the enthusiasm was contagious.
Here are some of our favourite shots from Day 1 📸
November 5, 2025 at 11:32 PM
#IPIC2025 kicked off with great energy! 🙌
From check-in to the first sessions, the enthusiasm was contagious.
Here are some of our favourite shots from Day 1 📸
From check-in to the first sessions, the enthusiasm was contagious.
Here are some of our favourite shots from Day 1 📸
Reposted by Johan Prevot
The IPOPI Jose Drabwell Research Grant Programme is supporting 4 innovative projects with 2 years of funding to advance scientific and clinical research in Primary Immunodeficiencies (PID). 🧬
👏 We celebrate these brilliant minds driving hope and progress in the PID community!
👏 We celebrate these brilliant minds driving hope and progress in the PID community!
October 30, 2025 at 11:03 AM
The IPOPI Jose Drabwell Research Grant Programme is supporting 4 innovative projects with 2 years of funding to advance scientific and clinical research in Primary Immunodeficiencies (PID). 🧬
👏 We celebrate these brilliant minds driving hope and progress in the PID community!
👏 We celebrate these brilliant minds driving hope and progress in the PID community!
Reposted by Johan Prevot
✨ Free Public Transport in Prague!
IPIC2025 delegates get a complimentary pass for unlimited metro, tram & bus rides from Nov 5 to Nov 7.
Available only for delegates registered by 30 October.
➡️ Read More: lnkd.in/dBFM9gr4
#IPIC2025
IPIC2025 delegates get a complimentary pass for unlimited metro, tram & bus rides from Nov 5 to Nov 7.
Available only for delegates registered by 30 October.
➡️ Read More: lnkd.in/dBFM9gr4
#IPIC2025
October 30, 2025 at 5:25 PM
✨ Free Public Transport in Prague!
IPIC2025 delegates get a complimentary pass for unlimited metro, tram & bus rides from Nov 5 to Nov 7.
Available only for delegates registered by 30 October.
➡️ Read More: lnkd.in/dBFM9gr4
#IPIC2025
IPIC2025 delegates get a complimentary pass for unlimited metro, tram & bus rides from Nov 5 to Nov 7.
Available only for delegates registered by 30 October.
➡️ Read More: lnkd.in/dBFM9gr4
#IPIC2025
Reposted by Johan Prevot
🎉 IPOPI is thrilled to announce that the IPIC2025 Scientific Committee has approved a record-breaking 258 abstracts, showcasing cutting-edge research in the field of PIDs.
🏅 Three winners have been selected—curious who they are?
🔗 Visit our website ipic2025.com
#IPIC2025 #AbstractWinners
🏅 Three winners have been selected—curious who they are?
🔗 Visit our website ipic2025.com
#IPIC2025 #AbstractWinners
October 31, 2025 at 2:01 PM
🎉 IPOPI is thrilled to announce that the IPIC2025 Scientific Committee has approved a record-breaking 258 abstracts, showcasing cutting-edge research in the field of PIDs.
🏅 Three winners have been selected—curious who they are?
🔗 Visit our website ipic2025.com
#IPIC2025 #AbstractWinners
🏅 Three winners have been selected—curious who they are?
🔗 Visit our website ipic2025.com
#IPIC2025 #AbstractWinners
Reposted by Johan Prevot
🎥 You can now watch the full recording of our latest IPOPI Hard Talks on Clinical Application of Calculated Globulin Screening — featuring insights from Prof. Stephen Jolles and Dr. Cecilia Poli.
▶️ Watch now on YouTube: youtu.be/t43ldp0LsTU
Webinar supported by CSL.
▶️ Watch now on YouTube: youtu.be/t43ldp0LsTU
Webinar supported by CSL.
IPOPI Hard Talks: Clinical Application of Calculated Globulin Screening
YouTube video by IPOPI
youtu.be
October 31, 2025 at 2:55 PM
🎥 You can now watch the full recording of our latest IPOPI Hard Talks on Clinical Application of Calculated Globulin Screening — featuring insights from Prof. Stephen Jolles and Dr. Cecilia Poli.
▶️ Watch now on YouTube: youtu.be/t43ldp0LsTU
Webinar supported by CSL.
▶️ Watch now on YouTube: youtu.be/t43ldp0LsTU
Webinar supported by CSL.
Reposted by Johan Prevot
🎧 Have you listened yet?
If you missed it when it first came out, now’s the perfect time to catch up!
🎙️ Listen and follow our podcast: open.spotify.com/episode/2Mxk...
If you missed it when it first came out, now’s the perfect time to catch up!
🎙️ Listen and follow our podcast: open.spotify.com/episode/2Mxk...
October 31, 2025 at 4:44 PM
🎧 Have you listened yet?
If you missed it when it first came out, now’s the perfect time to catch up!
🎙️ Listen and follow our podcast: open.spotify.com/episode/2Mxk...
If you missed it when it first came out, now’s the perfect time to catch up!
🎙️ Listen and follow our podcast: open.spotify.com/episode/2Mxk...
Reposted by Johan Prevot
🚀 Get ready for IPIC2025! Download the congress app for easy access to the scientific programme, speaker info, floor plans, and more.
Search for IPIC2025 on the App Store and Google Play! 📲
Search for IPIC2025 on the App Store and Google Play! 📲
November 1, 2025 at 2:58 PM
🚀 Get ready for IPIC2025! Download the congress app for easy access to the scientific programme, speaker info, floor plans, and more.
Search for IPIC2025 on the App Store and Google Play! 📲
Search for IPIC2025 on the App Store and Google Play! 📲
🧠 Rethink routine lab values!
💡Find out how Calculated Globulins can help reveal previously undiagnosed #PIDs — live on IPOPI’s upcoming Hard Talks webinar on 28 October!
👇👇👇 to register
💡Find out how Calculated Globulins can help reveal previously undiagnosed #PIDs — live on IPOPI’s upcoming Hard Talks webinar on 28 October!
👇👇👇 to register
🧬 IPOPI Hard Talks is next week!
Register here: app.livestorm.co/ipopi/ipopi-...
Join us for an insightful session on the Clinical Application of Calculated Globulin Screening, featuring Prof Stephen Jolles and Dr Cecilia Poli, both experts in primary and secondary immunodeficiency management.
Register here: app.livestorm.co/ipopi/ipopi-...
Join us for an insightful session on the Clinical Application of Calculated Globulin Screening, featuring Prof Stephen Jolles and Dr Cecilia Poli, both experts in primary and secondary immunodeficiency management.
October 24, 2025 at 8:03 PM
🧠 Rethink routine lab values!
💡Find out how Calculated Globulins can help reveal previously undiagnosed #PIDs — live on IPOPI’s upcoming Hard Talks webinar on 28 October!
👇👇👇 to register
💡Find out how Calculated Globulins can help reveal previously undiagnosed #PIDs — live on IPOPI’s upcoming Hard Talks webinar on 28 October!
👇👇👇 to register
Reposted by Johan Prevot
📢 The IPOPI 2024 Annual Review Report is now live!
Explore the key moments, global events, and new initiatives that helped IPOPI grow stronger in supporting people with primary immunodeficiencies worldwide.
👉 Read the full review here: ipopi.org/2024-annual-...
#IPOPI #AnnualReview
Explore the key moments, global events, and new initiatives that helped IPOPI grow stronger in supporting people with primary immunodeficiencies worldwide.
👉 Read the full review here: ipopi.org/2024-annual-...
#IPOPI #AnnualReview
October 23, 2025 at 3:48 PM
📢 The IPOPI 2024 Annual Review Report is now live!
Explore the key moments, global events, and new initiatives that helped IPOPI grow stronger in supporting people with primary immunodeficiencies worldwide.
👉 Read the full review here: ipopi.org/2024-annual-...
#IPOPI #AnnualReview
Explore the key moments, global events, and new initiatives that helped IPOPI grow stronger in supporting people with primary immunodeficiencies worldwide.
👉 Read the full review here: ipopi.org/2024-annual-...
#IPOPI #AnnualReview
A well deserved honour for @ipopi.bsky.social Medical Advisory Committee's Vice Chairman Prof Martin van Hagen in recognition of his contributions to the field of clinical immunology & decades of dedication to our #PID patients community. Bravo Martin! More info: tinyurl.com/jwtdnv4f
October 20, 2025 at 9:49 PM
A well deserved honour for @ipopi.bsky.social Medical Advisory Committee's Vice Chairman Prof Martin van Hagen in recognition of his contributions to the field of clinical immunology & decades of dedication to our #PID patients community. Bravo Martin! More info: tinyurl.com/jwtdnv4f
Day 2 at the @EAPSCongress features a 👍 session on "Challenges in managing #immunodeficiencies" with talks on managing #PID #IEI in the ER by Dr Pere Soler-Palacin; Dr Fabien Touzot on diagnostic challenges of ALPIDs & on genetic susceptibility to infections by Dr Colobran Oriol
October 19, 2025 at 4:18 PM
Day 2 at the @EAPSCongress features a 👍 session on "Challenges in managing #immunodeficiencies" with talks on managing #PID #IEI in the ER by Dr Pere Soler-Palacin; Dr Fabien Touzot on diagnostic challenges of ALPIDs & on genetic susceptibility to infections by Dr Colobran Oriol
It was great to join my colleague Dr Jacques Rivière at the EAPS Congress in Lisbon during a session on patient engagement in scientific research to talk about @ipopi.bsky.social extensive experience on this topic, highlighting challenges & opportunities!
#ESID #ERNRITA
#ESID #ERNRITA
October 19, 2025 at 2:13 PM
It was great to join my colleague Dr Jacques Rivière at the EAPS Congress in Lisbon during a session on patient engagement in scientific research to talk about @ipopi.bsky.social extensive experience on this topic, highlighting challenges & opportunities!
#ESID #ERNRITA
#ESID #ERNRITA
Reposted by Johan Prevot
🎉 IPOPI President @martinepergent.bsky.social took part in the Opening Ceremony of the @lasidofficial.bsky.social Meeting, marking the official start of this inspiring congress.
A wonderful moment of collaboration and shared purpose between patient leaders and medical experts!
A wonderful moment of collaboration and shared purpose between patient leaders and medical experts!
October 16, 2025 at 1:43 AM
🎉 IPOPI President @martinepergent.bsky.social took part in the Opening Ceremony of the @lasidofficial.bsky.social Meeting, marking the official start of this inspiring congress.
A wonderful moment of collaboration and shared purpose between patient leaders and medical experts!
A wonderful moment of collaboration and shared purpose between patient leaders and medical experts!
Such a well deserved recognition! Congratulations Martin!!
👏 We are proud to celebrate and announce that Professor Martin van Hagen, Vice-Chairman of IPOPI’s Medical Advisory Panel (MAP), has been appointed as Officer of the Order of Orange-Nassau by His Majesty the King of the Netherlands.
#IPOPI #RoyalHonor #ClinicalImmunology #HealthcarePioneer
#IPOPI #RoyalHonor #ClinicalImmunology #HealthcarePioneer
October 19, 2025 at 2:11 PM
Such a well deserved recognition! Congratulations Martin!!
Reposted by Johan Prevot
📸 Day 1 at the Latin American PID Patients Meeting was full of energy and meaningful exchanges!
A great start full of knowledge, collaboration, and ideas to drive progress for people living with PIDs in Latin America! 💙
Made possible with the support of: CSL & Grifols
#IPOPI #PID #LASID2025
A great start full of knowledge, collaboration, and ideas to drive progress for people living with PIDs in Latin America! 💙
Made possible with the support of: CSL & Grifols
#IPOPI #PID #LASID2025
October 16, 2025 at 10:13 PM
📸 Day 1 at the Latin American PID Patients Meeting was full of energy and meaningful exchanges!
A great start full of knowledge, collaboration, and ideas to drive progress for people living with PIDs in Latin America! 💙
Made possible with the support of: CSL & Grifols
#IPOPI #PID #LASID2025
A great start full of knowledge, collaboration, and ideas to drive progress for people living with PIDs in Latin America! 💙
Made possible with the support of: CSL & Grifols
#IPOPI #PID #LASID2025
Reposted by Johan Prevot
💙 Day 2 of the Latin American PID Patients Meeting brought us closer together – patients, doctors, partners and advocates united in strengthening PID care and awareness.
Thanks to CSL and Grifols for the support.
#IPOPI #PID #LASID2025 #BuenosAires #PrimaryImmunodeficiency #PIDAdvocacy
Thanks to CSL and Grifols for the support.
#IPOPI #PID #LASID2025 #BuenosAires #PrimaryImmunodeficiency #PIDAdvocacy
October 17, 2025 at 8:48 PM
💙 Day 2 of the Latin American PID Patients Meeting brought us closer together – patients, doctors, partners and advocates united in strengthening PID care and awareness.
Thanks to CSL and Grifols for the support.
#IPOPI #PID #LASID2025 #BuenosAires #PrimaryImmunodeficiency #PIDAdvocacy
Thanks to CSL and Grifols for the support.
#IPOPI #PID #LASID2025 #BuenosAires #PrimaryImmunodeficiency #PIDAdvocacy
Reposted by Johan Prevot
🎥 What makes the Latin American PID Patients Meeting so special?
Let’s hear it from the people who joined us on the last edition – participants and advocates who are shaping the future of PID care in the region. 💙
👉 This year we meet again in Buenos Aires!
#IPOPI #PID #LASID2025 #BuenosAires
Let’s hear it from the people who joined us on the last edition – participants and advocates who are shaping the future of PID care in the region. 💙
👉 This year we meet again in Buenos Aires!
#IPOPI #PID #LASID2025 #BuenosAires
October 8, 2025 at 2:43 PM
🎥 What makes the Latin American PID Patients Meeting so special?
Let’s hear it from the people who joined us on the last edition – participants and advocates who are shaping the future of PID care in the region. 💙
👉 This year we meet again in Buenos Aires!
#IPOPI #PID #LASID2025 #BuenosAires
Let’s hear it from the people who joined us on the last edition – participants and advocates who are shaping the future of PID care in the region. 💙
👉 This year we meet again in Buenos Aires!
#IPOPI #PID #LASID2025 #BuenosAires
Just returned from an inspiring meeting in Cairo!
Grateful for the thoughtful contributions of Dr. @NesrinEradwan, Dr. Sohilla Lofty, Prof. Aisha El-Marsafy, Dr. Nermine Gamal & all + 🙏 to our NMO rep Ms. Shaimaa El Araby.
Thank you all for your insights & to #Grifols for the support!
Grateful for the thoughtful contributions of Dr. @NesrinEradwan, Dr. Sohilla Lofty, Prof. Aisha El-Marsafy, Dr. Nermine Gamal & all + 🙏 to our NMO rep Ms. Shaimaa El Araby.
Thank you all for your insights & to #Grifols for the support!
Bridging Gaps in PID Diagnosis and Access to Care in Egypt 🇪🇬
IPOPI’s delegation — Johan Prevot, Bruce Lim, Dr Nizar Mahlaoui & Dr Silvia Sanchez-Ramon — joined a scientific symposium in Cairo on 6 Oct 2025, organised with Grifols Egypt for Plasma Derivatives.
#RareDiseases #GlobalHealth #Egypt
IPOPI’s delegation — Johan Prevot, Bruce Lim, Dr Nizar Mahlaoui & Dr Silvia Sanchez-Ramon — joined a scientific symposium in Cairo on 6 Oct 2025, organised with Grifols Egypt for Plasma Derivatives.
#RareDiseases #GlobalHealth #Egypt
October 8, 2025 at 5:00 PM
Just returned from an inspiring meeting in Cairo!
Grateful for the thoughtful contributions of Dr. @NesrinEradwan, Dr. Sohilla Lofty, Prof. Aisha El-Marsafy, Dr. Nermine Gamal & all + 🙏 to our NMO rep Ms. Shaimaa El Araby.
Thank you all for your insights & to #Grifols for the support!
Grateful for the thoughtful contributions of Dr. @NesrinEradwan, Dr. Sohilla Lofty, Prof. Aisha El-Marsafy, Dr. Nermine Gamal & all + 🙏 to our NMO rep Ms. Shaimaa El Araby.
Thank you all for your insights & to #Grifols for the support!
A big step forward in strengthening patient advocacy in Eastern Europe!
Proud to see such a dedicated group of united patient leaders and doctors. The power of the #PID community in action!!
Grateful to @martinepergent @LeireSolis @OtiliaStanga @Miriam_A_F who made it happen!
Proud to see such a dedicated group of united patient leaders and doctors. The power of the #PID community in action!!
Grateful to @martinepergent @LeireSolis @OtiliaStanga @Miriam_A_F who made it happen!
🧬 IPOPI brought together over 20 participants from across the Eastern European region — patient organisation leaders and doctors — united by a common goal: improving care for people living with primary immunodeficiencies (PIDs).
#IPOPI #PIDAdvocacy #EasternEurope #StrongerTogether
#IPOPI #PIDAdvocacy #EasternEurope #StrongerTogether
September 29, 2025 at 7:23 AM
A big step forward in strengthening patient advocacy in Eastern Europe!
Proud to see such a dedicated group of united patient leaders and doctors. The power of the #PID community in action!!
Grateful to @martinepergent @LeireSolis @OtiliaStanga @Miriam_A_F who made it happen!
Proud to see such a dedicated group of united patient leaders and doctors. The power of the #PID community in action!!
Grateful to @martinepergent @LeireSolis @OtiliaStanga @Miriam_A_F who made it happen!
Reposted by Johan Prevot
🌍 Dr Nizar MAHLAOUI, Chair of the IPOPI Medical Advisory Panel, took part in the 5th European Symposium on Transition. The symposium gathered experts and stakeholders to exchange knowledge and best practices on how to ensure a smooth transition of care for young patients into adulthood.
September 29, 2025 at 7:21 AM
🌍 Dr Nizar MAHLAOUI, Chair of the IPOPI Medical Advisory Panel, took part in the 5th European Symposium on Transition. The symposium gathered experts and stakeholders to exchange knowledge and best practices on how to ensure a smooth transition of care for young patients into adulthood.
Thanks @casanova_lab for sharing. A great article by van der burg et al
👉 #ataxiatelangiectasia can be a secondary finding in TREC-based NBS-SCID but raises an ethical dilemma worth further exploring!
#newbornscreening @Screen4Rare #IPIC2025 @ipopi_info
👉 #ataxiatelangiectasia can be a secondary finding in TREC-based NBS-SCID but raises an ethical dilemma worth further exploring!
#newbornscreening @Screen4Rare #IPIC2025 @ipopi_info
Clinical challenges following early detection of ataxia telangiectasia through SCID newborn screening url: rupress.org/jhi/article/...
Clinical challenges following early detection of ataxia telangiectasia through SCID newborn screening | Journal of Human Immunity | Rockefeller University Press
Ataxia telangiectasia is a genetic disorder involving neurodegeneration, immunodeficiency, and cancer risk. It can be identified as incidental finding in n
rupress.org
September 20, 2025 at 9:25 AM
Thanks @casanova_lab for sharing. A great article by van der burg et al
👉 #ataxiatelangiectasia can be a secondary finding in TREC-based NBS-SCID but raises an ethical dilemma worth further exploring!
#newbornscreening @Screen4Rare #IPIC2025 @ipopi_info
👉 #ataxiatelangiectasia can be a secondary finding in TREC-based NBS-SCID but raises an ethical dilemma worth further exploring!
#newbornscreening @Screen4Rare #IPIC2025 @ipopi_info
Reposted by Johan Prevot
🌐 We’re live! The new GATA2 website has launched!
We’re thrilled to announce the official release of the new GATA2 website, a dedicated online hub for anyone affected by, working with, or researching GATA2 Deficiency.
🔗 Visit us now: gata2project.eu
#GATA2Deficiency #RareDisease #PatientAdvocacy
We’re thrilled to announce the official release of the new GATA2 website, a dedicated online hub for anyone affected by, working with, or researching GATA2 Deficiency.
🔗 Visit us now: gata2project.eu
#GATA2Deficiency #RareDisease #PatientAdvocacy
July 18, 2025 at 11:03 AM
🌐 We’re live! The new GATA2 website has launched!
We’re thrilled to announce the official release of the new GATA2 website, a dedicated online hub for anyone affected by, working with, or researching GATA2 Deficiency.
🔗 Visit us now: gata2project.eu
#GATA2Deficiency #RareDisease #PatientAdvocacy
We’re thrilled to announce the official release of the new GATA2 website, a dedicated online hub for anyone affected by, working with, or researching GATA2 Deficiency.
🔗 Visit us now: gata2project.eu
#GATA2Deficiency #RareDisease #PatientAdvocacy
Reposted by Johan Prevot
Have you checked out the Proceedings from IPOPI’s 2024 Global Stakeholders Summit?
Don’t miss out on this must-read! Our summer newsletter is packed with the season’s most impactful insights 🌍💡
👉 e-news.ipopi.org
#IPOPI #SummerNewsletter #PrimaryImmunodeficiency
Don’t miss out on this must-read! Our summer newsletter is packed with the season’s most impactful insights 🌍💡
👉 e-news.ipopi.org
#IPOPI #SummerNewsletter #PrimaryImmunodeficiency
July 30, 2025 at 11:18 AM
Have you checked out the Proceedings from IPOPI’s 2024 Global Stakeholders Summit?
Don’t miss out on this must-read! Our summer newsletter is packed with the season’s most impactful insights 🌍💡
👉 e-news.ipopi.org
#IPOPI #SummerNewsletter #PrimaryImmunodeficiency
Don’t miss out on this must-read! Our summer newsletter is packed with the season’s most impactful insights 🌍💡
👉 e-news.ipopi.org
#IPOPI #SummerNewsletter #PrimaryImmunodeficiency
Reposted by Johan Prevot
📣 SAVE THE DATE!
#IPOPI is organising an important Roundtable focused on the intersection of viral threats, immune challenges, and respiratory care — from the perspective of patients with primary immunodeficiencies (PIDs).
More updates soon!
#PublicHealth #RareDiseases #PID
#IPOPI is organising an important Roundtable focused on the intersection of viral threats, immune challenges, and respiratory care — from the perspective of patients with primary immunodeficiencies (PIDs).
More updates soon!
#PublicHealth #RareDiseases #PID
July 30, 2025 at 11:20 AM
📣 SAVE THE DATE!
#IPOPI is organising an important Roundtable focused on the intersection of viral threats, immune challenges, and respiratory care — from the perspective of patients with primary immunodeficiencies (PIDs).
More updates soon!
#PublicHealth #RareDiseases #PID
#IPOPI is organising an important Roundtable focused on the intersection of viral threats, immune challenges, and respiratory care — from the perspective of patients with primary immunodeficiencies (PIDs).
More updates soon!
#PublicHealth #RareDiseases #PID