Emma Edwards
@kernowpdnurse.bsky.social
590 followers 1.2K following 44 posts
Parkinsons nurse / mental health nurse and advocate. Deputy CEO at SpotlightYOPD. Volunteer with Parkinson’s UK. RCN Neuroscience Nurse Forum- Vice Chair Likes the beach, gardening ,dogs and pasty eating!
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Reposted by Emma Edwards
neurologyacademy.bsky.social
Today is #WorldMentalHealthDay and we want to talk about the importance of having open conversations about mental health in #neurology, for both the people we care for & the teams who care for them. Watch the full video on our website: neurologyacademy.org/articles/wor...

@kernowpdnurse.bsky.social
kernowpdnurse.bsky.social
Ever fancied becoming a Parkinson’s nurse?? It’s an incredibly rewarding job. @parkinsons.org.uk are not only fundraising for more nurses but will support interested nurses in gaining the skills to undertake the role. Look here for more details - prksn.uk/3HUgwke
How to become a Parkinson's nurse
Learn more about the role of a Parkinson’s nurse and how you can grow your career and specialise.
prksn.uk
kernowpdnurse.bsky.social
Congratulations to the @moversand.bsky.social for getting their Gov petition to over 100,000 signatures.

Now let’s see the issues about why Parkinson’s care is so patchy across UK discussed at the highest level.

#parkinsons
kernowpdnurse.bsky.social
Please do consider signing this Government petition that calls for better care for people with Parkinson’s. We need 100,000 signatures for it to be debated in Parliament.

#parkinsons
#neurology

www.facebook.com/share/p/15fx...
kernowpdnurse.bsky.social
Day 4 (last day of @rcn.org.uk Congress): lively debates on financial hardships for nursing and care planning.

It’s been a great #nursing Congress and had great company from Shona, Mark and Jonathan from the Forum.

Think we convinced some nurses that #Neurology was the specialty to be in!!!
kernowpdnurse.bsky.social
Day 3 of the @rcn.org.uk Congress in Liverpool. It’s been an interesting and humbling day listening to nurses who work in Conflict areas, quality improvements, lack of learning disability nurses to name but a few!
Mark from the @rcnneuro.bsky.social had a 2nd opportunity to talk on stage too!
kernowpdnurse.bsky.social
Day 2 of the @rcn.org.uk Congress. Met up with fantastic, hard working staff from @parkinsons.org.uk who were giving out vital information on Parkinson’s to other nursing delegates.

#parkinsons
#rcn2025
@rcnneuro.bsky.social
kernowpdnurse.bsky.social
Proud to be representing the @rcnneuro.bsky.social at the Liverpool RCN Congress, alongside fellow committee members Shona and Mark. Looking forward to be inspired by our fellow nursing professions and meeting up with @parkinsons.org.uk staff at their stand in the Expo area.

#RCN2025
#neurology
Reposted by Emma Edwards
abfbrain.bsky.social
A breakthrough in #MultipleSystemAtrophy (MSA) research: Dr. Victor Dieriks and his team in NZ have identified that the cause of this neurodegenerative disorder is toxic α-synuclein protein aggregates that invade neuron nuclei.

buff.ly/YKLxq6O
Research Discovery: Neurodegeneration in multiple system atrophy (MSA) is caused by toxic protein clumps that penetrate the nuclei of neurons and cause the death of those cells. Diseases affected: Multiple System Atrophy (MSA) Key findings: Oligodendrocytes are not the primary cause of MSA, as previously thought. What's next? By identifying neurons as the primary victims of α-synuclein toxicity, researchers can now develop treatments that protect neurons from invasive protein aggregates or enhance the cells’ ability to clear them out.
kernowpdnurse.bsky.social
It was excellent….. and it was great to catch up with some fantastic advocates for Parkinson’s.
Reposted by Emma Edwards
rorycj.bsky.social
open.substack.com/pub/rorycell... We thought our @moversand.bsky.social colleague Gillian was bonkers when she suggested we organise a mass singalong of We Will Survive in Westminster – how wrong we were!
#parkinsons
Movers and Shakers - the Big Sing
A great day out in Westminster and Huddersfield
open.substack.com
kernowpdnurse.bsky.social
Last week I was very pleased to attend 2 Parkinson’s events that had the theme of bringing people together. One was the launch of a new @parkinsons.org.uk support group at Tavistock. The other was The Movers and Shakers podcasters awareness event in London, with over 500 attending.

#parkinsons
Reposted by Emma Edwards
Reposted by Emma Edwards
dementiaresearcher.bsky.social
Important new report from @denpruexeter.bsky.social highlights hidden inequalities facing those living alone with dementia. Time to rethink dementia care. #Dementia #HealthEquity

www.dementiaresearcher.nihr.ac.uk/living-alone...
kernowpdnurse.bsky.social
GPs are an integral and essential part of any person’s journey with Parkinson’s. SpotlightYOPD have created a poster to help GP’s support their younger patients pre and post diagnosis.

Please do share with GP colleagues/ surgeries.

#parkinsons
#parkinsonsawarenessmonth
Reposted by Emma Edwards
carolinerassell.bsky.social
What a wonderful day meeting @SpotlightYOPD new friends and old ones. Lovely to see Carl, Nikki and Dawn. The wonderful Ellie and Gaynor and of course Gary and Simon from @ParkinsonsUK - looking forward to the future
kernowpdnurse.bsky.social
Had fab visit from @carolinerassell.bsky.social from
@parkinsons.org.uk in Plymouth this week. Sometimes it’s helpful to precise a situation out loud to a visitor to see where the strengths and challenges are. We rarely get the time to reflect. Lots of planning conversations afterwards!
#parkinsons
kernowpdnurse.bsky.social
I’m always a bit nervous just before a podcast…. Always worried that the dog will bark (she did), or I’ll say something ridiculous (probably did). Anyway, it was fabulous to talk about our charity SpotlightYOPD, and how collaborative working is key.
#collobarativeequation.
#parkinsons
Reposted by Emma Edwards
jbeebee.bsky.social
I am delighted to be speaking RCNi's upcoming event in April. Join us for expert guidance on safe, ethical restraint & practical strategies. Book your place now. invt.io/1txbj2ysdke
I'm speaking at Restraint: Improving nursing practice with a human rights approach, join me
Register now
invt.io
kernowpdnurse.bsky.social
Please do give this #RCN #Neuroscience #nurse account a follow! Lots of info on Nursing competencies / Neuro conditions / education will be shared over the yr to inspire (lure) the next generation of nurses over to Neurology! We’ll also be at the RCN Congress.
Join us!!!
@rcn.org.uk
rcnneuro.bsky.social
Hello! This is the account of the RCN Neuroscience Nursing Forum. Our forum is made up nurses working in lots of different areas of Neurology such as Parkinson’s, Stroke, Headaches, Epilepsy, Neuro-oncology and MS. Please do give us a follow as we have some fab events coming up this year!
joy from inside out is doing a yoga pose and smiling .
ALT: joy from inside out is doing a yoga pose and smiling .
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